Update/bleeding

[Guest guest]

I just wanted to send a quick update to say that they think Kelsey has a

bleeding disorder, our ENT suggested maybe something like Von Willebrand

Disease. The only lab result that was elevated was the aPTT, not the PT, which

ruled out her antibiotic as a possible culprit. She will not be getting her

tonsils out next week and we are so thankful that the ENT tested for this

problem. We see the hematologist next week and she will do more extensive

testing.

Thanks for all of the advice and support!

(NEMO carrier)

Mom to Hayden (13-unknown PID), Evan (13-unknown PID), Conner (13-NEMO;

transplanted 8/17/07) and Kelsey (12-unknown PID and NEMO carrier).

Wife to (unknown PID).

www.caringbridge.org/visit/smithkids