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Now 14 months off Gleevec

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(cross-posted)

It was ten years yesterday -- somewhat coincidently National Cancer Survivor Day

-- that I was diagnosed with CML. It has been 14 months Wednesday since I

stopped Gleevec. I'm remiss because I haven't posted my current status since

September 4, 2009, when I told my story about wanting to discontinue Gleevec to

see if I would remain PCR-U, which I had been since September, 2002 (check out

message #17851 if you want to read past history).

I've been followed closely by my oncologist, Dr. Neil Shah, during this period

of time. My last PCR was April 7; I am still PCR-U. Dr. Shah and I are both

delighted, especially me since I no longer have any of the side effects. My

hemoglobin consistently remains in the 12.5 range. There is talk now that

Gleevec might actually be a cure for some people under certain circumstances.

Right now I hope I live long enough to prove this true. Maybe Zavie should

start a Cured Club?

B from California

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