Guest guest Posted June 7, 2010 Report Share Posted June 7, 2010 (cross-posted) It was ten years yesterday -- somewhat coincidently National Cancer Survivor Day -- that I was diagnosed with CML. It has been 14 months Wednesday since I stopped Gleevec. I'm remiss because I haven't posted my current status since September 4, 2009, when I told my story about wanting to discontinue Gleevec to see if I would remain PCR-U, which I had been since September, 2002 (check out message #17851 if you want to read past history). I've been followed closely by my oncologist, Dr. Neil Shah, during this period of time. My last PCR was April 7; I am still PCR-U. Dr. Shah and I are both delighted, especially me since I no longer have any of the side effects. My hemoglobin consistently remains in the 12.5 range. There is talk now that Gleevec might actually be a cure for some people under certain circumstances. Right now I hope I live long enough to prove this true. Maybe Zavie should start a Cured Club? B from California Quote Link to comment Share on other sites More sharing options...
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