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Re: Please don't forget

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My goodness, how tragic is that?  I am so sorry, and thanks for reminding

everyone to take care of the rest of our bodies, that's so important.  Bobby

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

From: Orenstein <scrappygirl123@...>

Subject: [ ] Please don't forget

Date: Thursday, July 8, 2010, 10:17 PM

 

I know that I don't post often, but do read most of the posts. My cousin

just died yesterday. She had Multiple Myeloma, but did not die from this. She

did not have a colonoscopy when she should have, (was going thru her second stem

cell transplant) and just died of COLON CANCER!!! Please don't neglect the rest

of your body because you are so wrapped up in your CML. Ladies, get your

mammograms yearly, men, get your prostates checked and ALL of us should have

colonoscopies on a regular basis. Please, please, don't neglect yourselves.

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, I'm so sorry. What sad news. You are very compassionate to be

thinking of others at this time.

On Thu, Jul 8, 2010 at 7:17 PM, Orenstein

<scrappygirl123@...>wrote:

>

>

> I know that I don't post often, but do read most of the posts. My cousin

> just died yesterday. She had Multiple Myeloma, but did not die from this.

> She did not have a colonoscopy when she should have, (was going thru her

> second stem cell transplant) and just died of COLON CANCER!!! Please don't

> neglect the rest of your body because you are so wrapped up in your CML.

> Ladies, get your mammograms yearly, men, get your prostates checked and ALL

> of us should have colonoscopies on a regular basis. Please, please, don't

> neglect yourselves.

>

>

>

>

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You have my sympathy and prayers!!

Great reminder to keep out blinders off!!

Blessings,

Jo-Dee

From: Orenstein <scrappygirl123@...>

Subject: [ ] Please don't forget

Date: Thursday, July 8, 2010, 10:17 PM

 

I know that I don't post often, but do read most of the posts. My cousin

just died yesterday. She had Multiple Myeloma, but did not die from this. She

did not have a colonoscopy when she should have, (was going thru her second stem

cell transplant) and just died of COLON CANCER!!! Please don't neglect the rest

of your body because you are so wrapped up in your CML. Ladies, get your

mammograms yearly, men, get your prostates checked and ALL of us should have

colonoscopies on a regular basis. Please, please, don't neglect yourselves.

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Guest guest

So Sorry to hear of your loss ! My sympathy and prayers go out to you

and your family. Yes, it is important to have your regular testing. My husband

and I just recently had our routine Colonoscopy, and we are now good for another

5 years. Some people are afraid to have the procedure, but we find it

relatively easy to do.

Hope everyone takes your message seriously.

Take Care

A.

>

> I know that I don't post often, but do read most of the posts. My cousin just

died yesterday. She had Multiple Myeloma, but did not die from this. She did

not have a colonoscopy when she should have, (was going thru her second stem

cell transplant) and just died of COLON CANCER!!! Please don't neglect the rest

of your body because you are so wrapped up in your CML. Ladies, get your

mammograms yearly, men, get your prostates checked and ALL of us should have

colonoscopies on a regular basis. Please, please, don't neglect yourselves.

>

>

>

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Dear :

Sorry to hear your very sad news.   I think all of us who have a long term

illness just get fed up sometimes of being  poked and prodded again and again. 

We know it's for our own good and are very grateful for the skills available and

the many kind people we meet along the way, but we're just human and wish we

didn't need them.

Thank you for encouraging us all along the way.

Guy

Re: [ ] Please don't forget

, I'm so sorry. What sad news. You are very compassionate to be

thinking of others at this time.

On Thu, Jul 8, 2010 at 7:17 PM, Orenstein

<scrappygirl123@...>wrote:

>

>

> I know that I don't post often, but do read most of the posts. My cousin

> just died yesterday. She had Multiple Myeloma, but did not die from this.

> She did not have a colonoscopy when she should have, (was going thru her

> second stem cell transplant) and just died of COLON CANCER!!! Please don't

> neglect the rest of your body because you are so wrapped up in your CML.

> Ladies, get your mammograms yearly, men, get your prostates checked and ALL

> of us should have colonoscopies on a regular basis. Please, please, don't

> neglect yourselves.

>

>

>

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Guest guest

,

I was so sorry to hear about your cousin, that is terrible and an awful

shock, my sympathies go out to you and your family. My brother in law has MM

and I will mention to him also. In OZ we have a national bowel screening

program and I had a friend do it 2 years ago and to her shock she was dx

with bowel cancer and fortunately caught it in time. I have yearly scopes,

due next week and it always makes me feel better knowing it is one less

thing to worry about. Anyone over the age of 50 should have a colonoscopy

and then at least every 5 years.

Regards,

From: [mailto: ] On Behalf Of

Orenstein

Sent: Friday, 9 July 2010 12:18 PM

Subject: [ ] Please don't forget

I know that I don't post often, but do read most of the posts. My cousin

just died yesterday. She had Multiple Myeloma, but did not die from this.

She did not have a colonoscopy when she should have, (was going thru her

second stem cell transplant) and just died of COLON CANCER!!! Please don't

neglect the rest of your body because you are so wrapped up in your CML.

Ladies, get your mammograms yearly, men, get your prostates checked and ALL

of us should have colonoscopies on a regular basis. Please, please, don't

neglect yourselves.

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