Re: Lifting one up

[Guest guest]

IT IS NO WONDER PEOPLE GET IN A FUNK WITH ALL WE HAVE TO DEAL WITH.  EITHER WE

POOP TO MUCH, OR DON'T POOP AT ALL.  EITHER WE CAN'T EAT, OR CAN'T KEEP IT DOWN

IF WE CAN EAT.  IF IT'S COLD OUR JOINTS ACHE.  IF IT'S HOT, WE CAN'T

BREATHE.  WE EITHER CAN'T GET TO SLEEP, OR WE CAN'T WAKE UP.

OUR HAIR TURNS GRAY, OR FALLS OUT, OUR GUMS BLEED OR OUR TEETH FALL OUT, OUR

FEET SWELL AND WE CAN'T WALK, OR WE CAN WALK AND FALL OVER ALL THE TIME. VERY

DEPRESSING, INDEED, VERY DEPRESSING.

IT'S VERY HARD TO GET UP EVERY DAY, INDEED IF YOU CAN EVEN GET UP, AND PUT ON A

HAPPY FACE!! 

BUT THEN WHEN WE TAKE A LOOK AROUND, WE SEE PEOPLE WHO CANNOT WALK, OR CANNOT

TALK, OR HAVE NO HAIR, OR TEETH, OR PEOPLE WHO HAVE DISEASES FAR WORSE THAN CML,

AND THEN WE CAN SAY , WELL, WE'RE NOT REALLY ALL THAT BAD OFF.

I HAVE HAD A BAD BACK NOW FOR 2 WEEKS, I SLEEP AN HOUR AND WAKE UP, AND IT MAY

BE 3 HOURS BEFORE I GET BACK TO SLEEP.  AM FINALLY GETTING AN MRI THIS WEEK. 

BUT MY FRIEND FELL DOWN PICKING A ROSE FOR A FRIEND OF HERS, WAS IN THE HOSPITAL

4 WEEKS WITH A BROKEN HIP AND IS NOW IN REHAB FOR 2 WEEKS.  I AM GLAD I AM NOT

HER.  I WENT TO THE REHAB CENTER TO VISIT HER, SHE WAS IN THE DINING ROOM. 

99% OF THE PEOPLE IN THE DINING ROOM WERE IN WHEEL CHAIRS, 50% WERE ASLEEP

EATING LUNCH, AND MOST OF THEM WERE JUST SITTING THERE STARING INTO SPACE. 

YEP, GLAD I'M NOT ONE OF THEM.

LAST NIGHT MY SON IN LAW CAME BY FOR A SWIM.  HE IS 57, HAS AGGRESSIVE

PARKINSON'S. TOOK OFF ALL HIS CLOTHES AND JUMPED IN, YEP, I'M GLAD I'M NOT HIM

TOO. 

YES SIREE, BOYS AND GIRLS, WE HAVE EARNED THE RIGHT TO BE A BIT DEPRESSED EVERY

NOW AND THEN, AS LONG AS WE DON'T MAKE IT A LIFE TIME THING......

THE OTHER DAY AT U OF MICH MY TRIAL NURSE AND A NURSE PRACTITIONER WERE ASKING

ME QUESTIONS, ONE WAS DID I FEEL BETTER AFTER THE DR. GAVE ME TWO SHOTS FOR MY

HIP, OR DID I THINK IT WAS THE MEDICINE, THE VICODIN?  I SAID IT WAS THE TWO

HITS I TOOK OFF MY PIPE!  THEY COVERED THEIR EARS AND SAID, DON'T TELL US

THAT!!!  TRUTH IS, I WANTED TO FIND OUT IF I WOULD FEEL BETTER, AND GUESS

WHAT?  I DID,SO THERE!!  ONE MIGHT ASK, BOBBY DOYLE, WHERE EVER DID YOU GET

THE " STUFF " ?? ONE OF MY MANY GRAND KIDS CAME BY WITH IT, THOUGHT IT MIGHT MAKE

ME FEEL BETTER AND TAKE AWAY THE HURT.  I SAY, IF IT HELPS , WHY NOT?  MY

FRIEND IN THE NURSING HOME ASKED HOW COME I DIDN'T HURT AS MUCH ONE DAY AND I

TOLD HER I HAD THE " MAGIC MEDICINE " AND I'M NOT SHARING.  CAN YOU PICTURE ALL

THOSE OLD FOLKS IN THE NURSING HOME, HIGH AND HAPPY????

IT IS HARD TO LAUGH AND BE HAPPY WHEN YOU HURT, OR ARE OLD AND SICK, BUT I DON'T

KNOW A WAY OUT OF DEPRESSION, SO I TRY NOT TO GET THERE.

AND LOTTIE, WHY DO THEY CALL IT " C DIFICIL " ?  DOESN'T THAT MEAN DIFFICULT? 

THERE IS NOTHING DIFFICULT ABOUT NOT BEING ABLE TO STOP GOING TO THE POT, DOES

THAT MAKE IT AN OXYMORON????

TODAY I AM MISSING MY 63RD CLASS REUNION ON LONG ISLAND.  I WAS ALL PACKED AND

READY TO GO, BECAUSE MY BACK HAD FELT BETTER, WHEN THE PAIN KICKED IN AND I

COULDN'T LEAVE.  AND BOTH MY SISTERS ARE THERE FOR IT, AS IT IS ALSO AN ALUMNI

LUNCHEON.  ONE SISTER CAME IN FROM CALIFORNIA THE OTHER LIVES THERE, WE HAVE

NOT BEEN TOGETHER IN SEVERAL YEARS, AND AS WE ARE NOW, 84, 82, AND 80, WE MAY

NEVER HAVE THIS OPPORTUNITY AGAIN.  SO I AM REALLY TICKED ABOUT MISSING IT. 

MY HIGH SCHOOL BUDDY SAID TO ME, DON'T WORRY, JUST GET BETTER, THERE IS ALWAYS

NEXT YEAR!

NOW THERE'S AN OPTIMIST!!  TAKE CARE EVERYONE, AND HAVE A GREAT DAY, LOVE,

BOBBY

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

From: Lottie Duthu <lotajam@...>

Subject: [ ] Lifting one up

" CML " < >

Date: Thursday, July 8, 2010, 1:53 AM

 

Dear ,

Your post certainly cheered me up, in all my meloncholy, I wondered what my

problem really was and I think I am probably a little depressed because of all

the things I can't do and I have been focusing on that. Today was better than

yesterday, so that is something to rejoice about. Tomorrow is supposed to clear

up - without rain, so I will try to take advantage of that and get out. I need

to renew my driver's license, and get my handicap tag, so I can focus on that.

I hope is able to get out of his funk as well and appreciate the joys of

each day. Hard to do when you are sick, but if we try a little harder, we can

change our attitude about what has been handed us. I know this group is praying

for him and wishing him the best.

Blessings,

Lottie

[Guest guest]

dear roberta

this past week i also tried the magic medicine.  my bones were aching so bad

from the gleevec that i didn't know what else to do.  i felt absolutely

cornered

by pain.  i tried the magic medicine back in the 70s but never stuck with it. 

well.......let me tell you, inside of about thirty minutes my pain was half what

it was and was now in the tolerable range.  i will continue with it if it i get

that bad again.  thanks for your post and your honesty.

 

MEL SWERLEIN

________________________________

From: ROBERTA DOYLE <rcd1929@...>

Sent: Thu, July 8, 2010 7:19:49 AM

Subject: Re: [ ] Lifting one up

 

IT IS NO WONDER PEOPLE GET IN A FUNK WITH ALL WE HAVE TO DEAL WITH.  EITHER WE

POOP TO MUCH, OR DON'T POOP AT ALL.  EITHER WE CAN'T EAT, OR CAN'T KEEP IT DOWN

IF WE CAN EAT.  IF IT'S COLD OUR JOINTS ACHE.  IF IT'S HOT, WE CAN'T

BREATHE. 

WE EITHER CAN'T GET TO SLEEP, OR WE CAN'T WAKE UP.

OUR HAIR TURNS GRAY, OR FALLS OUT, OUR GUMS BLEED OR OUR TEETH FALL OUT, OUR

FEET SWELL AND WE CAN'T WALK, OR WE CAN WALK AND FALL OVER ALL THE TIME. VERY

DEPRESSING, INDEED, VERY DEPRESSING.

IT'S VERY HARD TO GET UP EVERY DAY, INDEED IF YOU CAN EVEN GET UP, AND PUT ON A

HAPPY FACE!! 

BUT THEN WHEN WE TAKE A LOOK AROUND, WE SEE PEOPLE WHO CANNOT WALK, OR CANNOT

TALK, OR HAVE NO HAIR, OR TEETH, OR PEOPLE WHO HAVE DISEASES FAR WORSE THAN CML,

AND THEN WE CAN SAY , WELL, WE'RE NOT REALLY ALL THAT BAD OFF.

I HAVE HAD A BAD BACK NOW FOR 2 WEEKS, I SLEEP AN HOUR AND WAKE UP, AND IT MAY

BE 3 HOURS BEFORE I GET BACK TO SLEEP.  AM FINALLY GETTING AN MRI THIS WEEK. 

BUT MY FRIEND FELL DOWN PICKING A ROSE FOR A FRIEND OF HERS, WAS IN THE HOSPITAL

4 WEEKS WITH A BROKEN HIP AND IS NOW IN REHAB FOR 2 WEEKS.  I AM GLAD I AM NOT

HER.  I WENT TO THE REHAB CENTER TO VISIT HER, SHE WAS IN THE DINING ROOM. 

99%

OF THE PEOPLE IN THE DINING ROOM WERE IN WHEEL CHAIRS, 50% WERE ASLEEP EATING

LUNCH, AND MOST OF THEM WERE JUST SITTING THERE STARING INTO SPACE.  YEP, GLAD

I'M NOT ONE OF THEM.

LAST NIGHT MY SON IN LAW CAME BY FOR A SWIM.  HE IS 57, HAS AGGRESSIVE

PARKINSON'S. TOOK OFF ALL HIS CLOTHES AND JUMPED IN, YEP, I'M GLAD I'M NOT HIM

TOO. 

YES SIREE, BOYS AND GIRLS, WE HAVE EARNED THE RIGHT TO BE A BIT DEPRESSED EVERY

NOW AND THEN, AS LONG AS WE DON'T MAKE IT A LIFE TIME THING......

THE OTHER DAY AT U OF MICH MY TRIAL NURSE AND A NURSE PRACTITIONER WERE ASKING

ME QUESTIONS, ONE WAS DID I FEEL BETTER AFTER THE DR. GAVE ME TWO SHOTS FOR MY

HIP, OR DID I THINK IT WAS THE MEDICINE, THE VICODIN?  I SAID IT WAS THE TWO

HITS I TOOK OFF MY PIPE!  THEY COVERED THEIR EARS AND SAID, DON'T TELL US

THAT!!!  TRUTH IS, I WANTED TO FIND OUT IF I WOULD FEEL BETTER, AND GUESS

WHAT? 

I DID,SO THERE!!  ONE MIGHT ASK, BOBBY DOYLE, WHERE EVER DID YOU GET THE

" STUFF "

?? ONE OF MY MANY GRAND KIDS CAME BY WITH IT, THOUGHT IT MIGHT MAKE ME FEEL

BETTER AND TAKE AWAY THE HURT.  I SAY, IF IT HELPS , WHY NOT?  MY FRIEND IN

THE

NURSING HOME ASKED HOW COME I DIDN'T HURT AS MUCH ONE DAY AND I TOLD HER I HAD

THE " MAGIC MEDICINE " AND I'M NOT SHARING.  CAN YOU PICTURE ALL THOSE OLD FOLKS

IN THE NURSING HOME, HIGH AND HAPPY????

IT IS HARD TO LAUGH AND BE HAPPY WHEN YOU HURT, OR ARE OLD AND SICK, BUT I DON'T

KNOW A WAY OUT OF DEPRESSION, SO I TRY NOT TO GET THERE.

AND LOTTIE, WHY DO THEY CALL IT " C DIFICIL " ?  DOESN'T THAT MEAN DIFFICULT? 

THERE IS NOTHING DIFFICULT ABOUT NOT BEING ABLE TO STOP GOING TO THE POT, DOES

THAT MAKE IT AN OXYMORON????

TODAY I AM MISSING MY 63RD CLASS REUNION ON LONG ISLAND.  I WAS ALL PACKED AND

READY TO GO, BECAUSE MY BACK HAD FELT BETTER, WHEN THE PAIN KICKED IN AND I

COULDN'T LEAVE.  AND BOTH MY SISTERS ARE THERE FOR IT, AS IT IS ALSO AN ALUMNI

LUNCHEON.  ONE SISTER CAME IN FROM CALIFORNIA THE OTHER LIVES THERE, WE HAVE

NOT

BEEN TOGETHER IN SEVERAL YEARS, AND AS WE ARE NOW, 84, 82, AND 80, WE MAY NEVER

HAVE THIS OPPORTUNITY AGAIN.  SO I AM REALLY TICKED ABOUT MISSING IT.  MY HIGH

SCHOOL BUDDY SAID TO ME, DON'T WORRY, JUST GET BETTER, THERE IS ALWAYS NEXT

YEAR!

NOW THERE'S AN OPTIMIST!!  TAKE CARE EVERYONE, AND HAVE A GREAT DAY, LOVE,

BOBBY

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

From: Lottie Duthu <lotajam@...>

Subject: [ ] Lifting one up

" CML " < >

Date: Thursday, July 8, 2010, 1:53 AM

 

Dear ,

Your post certainly cheered me up, in all my meloncholy, I wondered what my

problem really was and I think I am probably a little depressed because of all

the things I can't do and I have been focusing on that. Today was better than

yesterday, so that is something to rejoice about. Tomorrow is supposed to clear

up - without rain, so I will try to take advantage of that and get out. I need

to renew my driver's license, and get my handicap tag, so I can focus on that. I

hope is able to get out of his funk as well and appreciate the joys of each

day. Hard to do when you are sick, but if we try a little harder, we can change

our attitude about what has been handed us. I know this group is praying for him

and wishing him the best.

Blessings,

Lottie

[Guest guest]

Hi Mel, thanks for the thanks.  I truly would not have believed it myself,

except last night I tried it again.  And I went to bed , only got up one time,

and today is the best I have felt in 13 days.  So, legal, illegal, right,

wrong, if the shoe fits, wear it !!

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

From: Lottie Duthu <lotajam@...>

Subject: [ ] Lifting one up

" CML " < >

Date: Thursday, July 8, 2010, 1:53 AM

 

Dear ,

Your post certainly cheered me up, in all my meloncholy, I wondered what my

problem really was and I think I am probably a little depressed because of all

the things I can't do and I have been focusing on that. Today was better than

yesterday, so that is something to rejoice about. Tomorrow is supposed to clear

up - without rain, so I will try to take advantage of that and get out. I need

to renew my driver's license, and get my handicap tag, so I can focus on that. I

hope is able to get out of his funk as well and appreciate the joys of each

day. Hard to do when you are sick, but if we try a little harder, we can change

our attitude about what has been handed us. I know this group is praying for him

and wishing him the best.

Blessings,

Lottie

[Guest guest]

Hi Group..  I'm house sitting in Laguna Beach and on a different computer so

hopefully it will let me post.  My laptop kicks me out everytime I try to

post. 

I had to say to Bobby D- anything that keeps the pain away is worth  a try- you

Go Girl.  In California you can get a prescription. I still trying to lose the

20 pounds I gained when I started Gleevec- so I don't think I'll try the magic

if I got the Munchies I could gain another 20lbs!!  Sorry you are missing your

reunion- I was feeling bad because I was going to miss my 40th but you put some

perspective when I saw you were missing your 63rd!!!

Happy to see Mama Lottie back on board  with her love and guidance..

I am going to ask my Doc to give me a break from work in August- maybe discuss

switching drugs if he thinks my fatigue would lessen.   Three years ago, I was

diagnosed on a Friday and back to work on Monday.  I never took time off during

the worst of the bone pain, nausea etc but I'm really tired now and my quality

of life is taking a hit. My daughter is 16 and she needs me to be as happy and

healthy as I can be.  I work 10 sometimes 12 hour days four days a week and it

is wearing on me. I'll go on a leave of absence and hopefully in a few

months be

back to work and back on track. 

Thank you to all you veterans that have paved the way through the clinical

trials..  Thanks to you, I'm planning on a future instead of a funeral.

Chi

________________________________

From: ROBERTA DOYLE <rcd1929@...>

Sent: Thu, July 8, 2010 6:06:32 AM

Subject: Re: [ ] Lifting one up

 

Hi Mel, thanks for the thanks.  I truly would not have believed it myself,

except last night I tried it again.  And I went to bed , only got up one time,

and today is the best I have felt in 13 days.  So, legal, illegal, right,

wrong,

if the shoe fits, wear it !!

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

From: Lottie Duthu <lotajam@...>

Subject: [ ] Lifting one up

" CML " < >

Date: Thursday, July 8, 2010, 1:53 AM

 

Dear ,

Your post certainly cheered me up, in all my meloncholy, I wondered what my

problem really was and I think I am probably a little depressed because of all

the things I can't do and I have been focusing on that. Today was better than

yesterday, so that is something to rejoice about. Tomorrow is supposed to clear

up - without rain, so I will try to take advantage of that and get out. I need

to renew my driver's license, and get my handicap tag, so I can focus on that. I

hope is able to get out of his funk as well and appreciate the joys of each

day. Hard to do when you are sick, but if we try a little harder, we can change

our attitude about what has been handed us. I know this group is praying for him

and wishing him the best.

Blessings,

Lottie

[Guest guest]

Hi China, you are so right! And for what ever reason, today is the first

day in 13 days I have had no pain at all, so I am going to let the magic med

take the honors, whether it did or not!!! But you're right about the

munchies too, so I am glad I am pain free now!! Bobby

On Thu, Jul 8, 2010 at 2:20 PM, china neal <chimera46@...> wrote:

>

>

> Hi Group.. I'm house sitting in Laguna Beach and on a different computer

> so

> hopefully it will let me post. My laptop kicks me out everytime I try to

> post.

> I had to say to Bobby D- anything that keeps the pain away is worth a try-

> you

> Go Girl. In California you can get a prescription. I still trying to lose

> the

> 20 pounds I gained when I started Gleevec- so I don't think I'll try the

> magic

> if I got the Munchies I could gain another 20lbs!! Sorry you are missing

> your

> reunion- I was feeling bad because I was going to miss my 40th but you put

> some

> perspective when I saw you were missing your 63rd!!!

>

> Happy to see Mama Lottie back on board with her love and guidance..

>

> I am going to ask my Doc to give me a break from work in August- maybe

> discuss

> switching drugs if he thinks my fatigue would lessen. Three years ago, I

> was

> diagnosed on a Friday and back to work on Monday. I never took time off

> during

> the worst of the bone pain, nausea etc but I'm really tired now and my

> quality

> of life is taking a hit. My daughter is 16 and she needs me to be as happy

> and

> healthy as I can be. I work 10 sometimes 12 hour days four days a week and

> it

> is wearing on me. I'll go on a leave of absence and hopefully in a few

> months be

> back to work and back on track.

>

> Thank you to all you veterans that have paved the way through the clinical

> trials.. Thanks to you, I'm planning on a future instead of a funeral.

>

> Chi

>

> ________________________________

> From: ROBERTA DOYLE <rcd1929@... <rcd1929%40sbcglobal.net>>

> <%40>

> Sent: Thu, July 8, 2010 6:06:32 AM

> Subject: Re: [ ] Lifting one up

>

>

> Hi Mel, thanks for the thanks. I truly would not have believed it myself,

> except last night I tried it again. And I went to bed , only got up one

> time,

> and today is the best I have felt in 13 days. So, legal, illegal, right,

> wrong,

> if the shoe fits, wear it !!

>

> a ( Bobby ) Doyle, dob 12/17/29

> DX 5/1995

> Interferon 9 weeks/Hydroxyurea 5 years

> 02/2000 to 06/2002 Gleevec trial, OHSU

> 06/2002 Gleevec/Trisenox Trial, OHSU

> 06/2003 Gleevec/Zarnestra Trial, OHSU

> 04/2004 Sprycel Trial, MDACC, CCR in 10 months

> 04/2008 XL228 Trial, U of Mich.

> 01/2009 PCR 5.69

> 04/2009 Ariad Trial AP24534

> 09/2009 PCR 0.01

> 11/2009 PCR 0.034

> 02/2010 PCRU

>

> #840 Zavie's Zero Club

>

>

>

> From: Lottie Duthu <lotajam@... <lotajam%40comcast.net>>

>

> Subject: [ ] Lifting one up

>

> " CML " < <%40>>

>

> Date: Thursday, July 8, 2010, 1:53 AM

>

>

>

> Dear ,

>

> Your post certainly cheered me up, in all my meloncholy, I wondered what my

>

>

> problem really was and I think I am probably a little depressed because of

> all

>

> the things I can't do and I have been focusing on that. Today was better

> than

>

> yesterday, so that is something to rejoice about. Tomorrow is supposed to

> clear

>

> up - without rain, so I will try to take advantage of that and get out. I

> need

>

> to renew my driver's license, and get my handicap tag, so I can focus on

> that. I

>

> hope is able to get out of his funk as well and appreciate the joys of

> each

>

> day. Hard to do when you are sick, but if we try a little harder, we can

> change

>

> our attitude about what has been handed us. I know this group is praying

> for him

>

> and wishing him the best.

>

> Blessings,

>

> Lottie

>

>

[Guest guest]

Hey y'all--

I am happy to be alive every day. I think that magic medicine sounds great--I

am not sure how to go about getting some, but I am sure somebody around must

know. I think whatever helps, go for it. This is a natural herbal remedy in my

book--God made it and he only gives good gifts, so it must be good and useful

for making those of us who are in pain or having difficulty, to feel better. I

wonder if I could do my job while feeling good? Certainly. What about my

kids--would i be setting a bad example? I don't know, but I would love to have

the chance to try it to see. I wonder if the pharmaceutical extract (THC) would

work as well as the whole herb?

If anybody has knowledge about these things, let me know. Ironic, me a child of

the 60s, who doesn't know how to get some good herb?!

Wow. WHat is the world coming to.

Hugs to everybody and God bless and keep you, one and all.

V.

> >

> > From: Lottie Duthu <lotajam@... <lotajam%40comcast.net>>

> >

> > Subject: [ ] Lifting one up

> >

> > " CML " < <%40>>

> >

> > Date: Thursday, July 8, 2010, 1:53 AM

> >

> >

> >

> > Dear ,

> >

> > Your post certainly cheered me up, in all my meloncholy, I wondered what my

> >

> >

> > problem really was and I think I am probably a little depressed because of

> > all

> >

> > the things I can't do and I have been focusing on that. Today was better

> > than

> >

> > yesterday, so that is something to rejoice about. Tomorrow is supposed to

> > clear

> >

> > up - without rain, so I will try to take advantage of that and get out. I

> > need

> >

> > to renew my driver's license, and get my handicap tag, so I can focus on

> > that. I

> >

> > hope is able to get out of his funk as well and appreciate the joys of

> > each

> >

> > day. Hard to do when you are sick, but if we try a little harder, we can

> > change

> >

> > our attitude about what has been handed us. I know this group is praying

> > for him

> >

> > and wishing him the best.

> >

> > Blessings,

> >

> > Lottie

> >

> >

[Guest guest]

not to make light of a serious subject, but maybe having grand kids helps!!!! 

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

From: Vicki <vickistu@...>

Subject: Re: [ ] Lifting one up

Date: Thursday, July 8, 2010, 10:05 PM

 

Hey y'all--

I am happy to be alive every day. I think that magic medicine sounds great--I

am not sure how to go about getting some, but I am sure somebody around must

know. I think whatever helps, go for it. This is a natural herbal remedy in my

book--God made it and he only gives good gifts, so it must be good and useful

for making those of us who are in pain or having difficulty, to feel better. I

wonder if I could do my job while feeling good? Certainly. What about my

kids--would i be setting a bad example? I don't know, but I would love to have

the chance to try it to see. I wonder if the pharmaceutical extract (THC) would

work as well as the whole herb?

If anybody has knowledge about these things, let me know. Ironic, me a child of

the 60s, who doesn't know how to get some good herb?!

Wow. WHat is the world coming to.

Hugs to everybody and God bless and keep you, one and all.

V.

> >

> > From: Lottie Duthu <lotajam@... <lotajam%40comcast.net>>

> >

> > Subject: [ ] Lifting one up

> >

> > " CML " < <%40>>

> >

> > Date: Thursday, July 8, 2010, 1:53 AM

> >

> >

> >

> > Dear ,

> >

> > Your post certainly cheered me up, in all my meloncholy, I wondered what my

> >

> >

> > problem really was and I think I am probably a little depressed because of

> > all

> >

> > the things I can't do and I have been focusing on that. Today was better

> > than

> >

> > yesterday, so that is something to rejoice about. Tomorrow is supposed to

> > clear

> >

> > up - without rain, so I will try to take advantage of that and get out. I

> > need

> >

> > to renew my driver's license, and get my handicap tag, so I can focus on

> > that. I

> >

> > hope is able to get out of his funk as well and appreciate the joys of

> > each

> >

> > day. Hard to do when you are sick, but if we try a little harder, we can

> > change

> >

> > our attitude about what has been handed us. I know this group is praying

> > for him

> >

> > and wishing him the best.

> >

> > Blessings,

> >

> > Lottie

> >

> >

[Guest guest]

hi v.

good to see your post.  i was put on marinol for a period of time. it's the

imitation thc.  doesn't come close to the real thing.  good luck...

 

MEL SWERLEIN

________________________________

From: ROBERTA DOYLE <rcd1929@...>

Sent: Thu, July 8, 2010 10:21:09 PM

Subject: Re: [ ] Lifting one up

 

not to make light of a serious subject, but maybe having grand kids helps!!!! 

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

From: Vicki <vickistu@...>

Subject: Re: [ ] Lifting one up

Date: Thursday, July 8, 2010, 10:05 PM

 

Hey y'all--

I am happy to be alive every day. I think that magic medicine sounds great--I am

not sure how to go about getting some, but I am sure somebody around must know.

I think whatever helps, go for it. This is a natural herbal remedy in my

book--God made it and he only gives good gifts, so it must be good and useful

for making those of us who are in pain or having difficulty, to feel better. I

wonder if I could do my job while feeling good? Certainly. What about my

kids--would i be setting a bad example? I don't know, but I would love to have

the chance to try it to see. I wonder if the pharmaceutical extract (THC) would

work as well as the whole herb?

If anybody has knowledge about these things, let me know. Ironic, me a child of

the 60s, who doesn't know how to get some good herb?!

Wow. WHat is the world coming to.

Hugs to everybody and God bless and keep you, one and all.

V.

> >

> > From: Lottie Duthu <lotajam@... <lotajam%40comcast.net>>

> >

> > Subject: [ ] Lifting one up

> >

> > " CML " < <%40>>

> >

> > Date: Thursday, July 8, 2010, 1:53 AM

> >

> >

> >

> > Dear ,

> >

> > Your post certainly cheered me up, in all my meloncholy, I wondered what my

> >

> >

> > problem really was and I think I am probably a little depressed because of

> > all

> >

> > the things I can't do and I have been focusing on that. Today was better

> > than

> >

> > yesterday, so that is something to rejoice about. Tomorrow is supposed to

> > clear

> >

> > up - without rain, so I will try to take advantage of that and get out. I

> > need

> >

> > to renew my driver's license, and get my handicap tag, so I can focus on

> > that. I

> >

> > hope is able to get out of his funk as well and appreciate the joys of

> > each

> >

> > day. Hard to do when you are sick, but if we try a little harder, we can

> > change

> >

> > our attitude about what has been handed us. I know this group is praying

> > for him

> >

> > and wishing him the best.

> >

> > Blessings,

> >

> > Lottie

> >

> >

[Guest guest]

Bless your heart you are such a fighter.

T

Sent from my Verizon Wireless BlackBerry

[ ] Lifting one up

" CML " < >

Date: Thursday, July 8, 2010, 1:53 AM

 

Dear ,

Your post certainly cheered me up, in all my meloncholy, I wondered what my

problem really was and I think I am probably a little depressed because of all

the things I can't do and I have been focusing on that. Today was better than

yesterday, so that is something to rejoice about. Tomorrow is supposed to clear

up - without rain, so I will try to take advantage of that and get out. I need

to renew my driver's license, and get my handicap tag, so I can focus on that.

I hope is able to get out of his funk as well and appreciate the joys of

each day. Hard to do when you are sick, but if we try a little harder, we can

change our attitude about what has been handed us. I know this group is praying

for him and wishing him the best.

Blessings,

Lottie