Re: Re: Elevated liver enzymes after taking Septra

[Guest guest]

----- Original Message -----

Her GGT was 73 (23 is norm) AST was 164 (32 is norm) and ALT was 184 (24 is

norm).

Hi Becki,

I wanted to share that from our experience through Conner's bone marrow

transplant, these numbers aren't all that elevated. I wouldn't be concerned. The

numbers will likely return to normal after the Septra is stopped and even if

it's not stopped any time soon it shouldn't cause any problems. It would likely

be a different story if the numbers were in the 1000's.

Hope this helps!

(NEMO carrier)

Mom to Hayden (14-unknown PID)

Evan (14-unknown PID)

Conner (14-NEMO; transplanted 8/17/07 - from an anonymous donor)

Kelsey (12-unknown PID and NEMO carrier)

Wife to (unknown PID)

www.caringbridge.org/visit/smithkids

[Guest guest]

Good chance it was the Septra, advil, tylenol combo and hopefully they will

return to normal soon.

BARBIE

________________________________

From: Becki Rion <rionfam@...>

Sent: Wednesday, December 17, 2008 6:54:10 AM

Subject: Re: Elevated liver enzymes after taking Septra

Her GGT was 73 (23 is norm) AST was 164 (32 is norm) and ALT was 184

(24 is norm). Her uric acid was normal and her bilirubin and BUN

were just a tiny bit low. She was on Septra which I have now read

can cause bad headaches and high liver levels. Since she was having

the bad headaches the whole time she was on it (2 weeks) I was also

giving her Tylenol and Advil around the clock. She's not jaundice

and the dr. didn't seem concerned yesterday, but her levels seemed

pretty high to me!

Becki

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> Depends on how elevated. Macey's had elevated liver levels

throughout her disease. Sometimes they relate it to Advil use, IVIG,

or antibiotics. The highest she's been is just over 100 on each

level. But they eventually come down. She's usually not very

jaundiced so they don't worry too much.

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> Ursula - mom to (16) and Macey (13,CVID)

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> www.caringbridge. org/visit/ maceyholleman

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> @...: rionfam@...: Wed, 17 Dec 2008 03:52:01

+0000Subject: Elevated liver enzymes after taking Septra

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> I'm a little freaked out. Reagon went to the dr. today for infusion

and her labs from last time came back that her GGT AST and ALT (liver

enzymes) were all very elevated. The dr. acted like it was no big

deal that it was just from the antibiotic she had been on (Septra).

Has anyone else ever had this happen? BeckiReagon 7yrs. CVID

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