Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Hi All, My son Devin, 16, CVID has had a bad year. Nothing really major, but just constant problems, sinus infections, bronchitis, migraines(but they have been around for a very long time) and stomach trouble. Not much help from doctors. First couple weeks of school were great, no problems at all (only 1 bad headache) After abasketball workout he had bad stomach pain (he had 7 ulcers found a few years ago & he thought his stomach was just acting up). We finally went to ER his pain was really bad, CT showed entire colon inflamed, diagnosed with infectious colitis, stool samples had blood in them but cultures showed no infection. Sent home-pain for 3 days then back to normal. Went in approx. 1 week after ER visit for colonoscopy & upper endoscopy nothing out of the ordinary -mild inflammation in the transverse colon and esophagus. Comes down with bronchitis again the following week and ends up two weeks from the first visit to ER- back in the ER with identical problem of infectious colitis (no treatment, just pain killers). During both of these times with the colitis he complains of back pain. About 1 week after 2nd colitis has stabbing pain in lower right back, was not doing any exercise or activity to bring on became very severe, after several trips to doctors simply told it was muscle pain. Went away about 5 days later. About 6 days after that- pain in middle back when swallowing liquid or food, to the point he was unable to eat or drink. Sometimes pain radiated out to the right side and up between shoulder blades. After CT scan, upper gi - nothing found, the docs best bet was ulcer in esophagus. Increase nexium and add sucralfate. Since the back pain starting in the mid-back he has had 5 seperate days about 3 to 4 days apart of what seems like a stomach flu. Vomiting starts from 1-4 am lasts most of the day. He said it feels like food poisoning. Pain in the back has continued intermittently but much more intense on right side and up between shoulder blade. Latest labs showed cloudy urine, 2+ protein in urine, slightly elevated liver enzymes, high A/G ratio. Immuno says not related to symptoms. Any ideas? Thanks, (Mom to Devin, 16, CVID) Quote Link to comment Share on other sites More sharing options...
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