Missy--RE: Re: SDA newsletter uploaded to the website

[Guest guest]

Missy, thank you for your kind words. How did his BMB go? Were the results

good? My boys have had 4 BMBs in just over one year and have to go back

in 6 months. If you ever need to talk about BMBs, please let me know.

Peace be with you,

Pattie

Four steps to achievement: Plan purposefully. Prepare prayerfully. Proceed

positively. Pursue persistently. ~ A Ward

_____

From: [mailto: ] On Behalf Of

Boggio

Sent: Friday, March 07, 2008 10:48 AM

Subject: Re: Re: SDA newsletter uploaded to the website

Patti..

I too find your information very informative and has helped me greatly.

Especially when my son got his first bone marrow last month. Please continus

to share this info, it is a great assest to me.

Thank you

Missy

www.caringbridge.org/boggiokids

Mom to 10, hypogamma, neutropenia, etc

Max 19moths, Tcell dysfunction, antibody deficiency, hypoplastic sinus...

Mari 5 soy allergy

Sue Petrelli <rsknpsbcglobal (DOT) <mailto:rsknp%40sbcglobal.net> net> wrote:

Patti-

I always find that the info you share is informative, helpful and

encouraging--please continue to share info--

Sue Petrelli

mom to 16 yr old CVID

Pattie <catholicmomof3@ <mailto:catholicmomof3%40gmail.com> gmail.com>

wrote:

I want to plead my case on this one-- this newsletter has medical

information that can be helpful to all families-- in fact the current

issue has one onhow to travel with medications, including those in a

vial like IgG & I felt that thsi could be helpful for families on

thsi list. We also have an article on camps for kids with Special

Needs anda list of camps, etc..... I thought that the kids on this

list could qusalify--especially since my kids go to an IMMUNOLOGY

week at camp.

I apologize if this was considered a broadcast email. I won't do

this again. I hope that everyone here knows that I was only trying

to be helpful and send info that might be of help. One of our recent

newsletters contains everything you need to knwo abotu coping with

chronic illness..... I thought that would be helpful, as well.

I apologize if I was mistaken in thinking that families on thsi list

deal with chronic illnesses and might find usueful information in our

newsletters. Our newsletters are meant for all families ealing with

chronic illness.

I am very sorry if I was out of line.

pattie

>

> The latest issue of the SDA eNewsletter has been uploaded to the

website

> www.shwachmandiamondamerica.org

<http://www.shwachma <http://www.shwachmandiamondamerica.org/>

ndiamondamerica.org/>

> click on the " newsletter " link.

>

>

>

> Thanks to all who have contributed and to all who have sent such

wonderful

> feedback! We appreciate the feedback!

>

>

>

> Peace be with you,

>

>

>

> Pattie

>

> The Will of God will never take you where the Grace of God won't be

with

> you.

>

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>