Too much fun?

[Guest guest]

Savannah,10, CVID/asthma, we've noticed problems with joint

pain.....this has been since toddlerhood, but it goes away, sort of,

then comes screaming back. This last yr has been awful. She also gets

stomach aches that havent been figured out yet. Like, the type of

stomach ache, that, if you didnt know it happened all the time for

her, you'd think her appendix was about to burst. She cries, screams,

cant eat, cant walk, sleeps intermittantly, can last for days.

Ive been sort of journaling this, bc we're trying a few new

avenues....first, a new allergist, looking at food allergies being a

possibility. Next, if we dont succeed there, looking at rheum. for

her. A couple times, duriing these episodes, her SED rate has been

slightly elevated.

Its struck me recently, that the last several times this has

happened, has been almost immediately after something like.....a

sleepover. camping. a party. most recently, vacation to FL, w/ theme

parks, lots of walking, less sleep than usual, more junk/fast food.

I was wondering, if this could be a reaction her body is having bc of

getting less sleep/rest.....eating things she probably shouldnt....

being so excited/wound up, having much more activity than normal?

Anybody elses CVID kid do this? I want so much to figure this out. Im

so sorry for her, and cant figure out how to help. We see the new

allergist tomorrow.

She had so much fun during the trip....then on the plane(she doesnt

have motion sickness, she loves flying) she started with the typical

stomach pains. She was an aisle over from me, and one seat in front of

DH, so neither of us could really get to her, physically. She squashed

down in her seat and slept a bit. Woke up vomiting all over:( She was

so weak, I had to push her through the airport in a wheelchair, to get

to our connecting flight. She puked all during the second flight, and

in the airport. The pains in her stomach were so intense, she couldnt

stand at all. She woke through the night screaming about her right hip

having pains. this morning, her hip was no better, and she spiked a

fever(101.5) that has lasted all day. She cant eat, or even move, her

hip hurts SO much. We tried ice and heat. She's been sleeping almost

all day, and is now in bed. You might think it sounds like a stomach

flu, but its not. this happens all the time. If its not her hip, its

her wrists, or ankels, or knees. this is just not normal. and no ten

yr old could fake this. She wants so much to make it to school

tomorrow.....there are only a couple days left, and she wants to do

the parties, field day, hang wtih friends. Im just so sad that her

life is like this.

Valarie

mom to three w/cvid