Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 Hi Jackie, wow, I am so sorry Ariad didn't do the trick. You are very courageous, and I wished I lived there to be able to pitch in and help out. You are on the top of my prayer list, which means, you have always been there, only you have been moved UP. Get lots of rest, think wonderful thoughts, and when you feel up to it, keep us all posted. Love, Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club From: jackie schneider <jschneider008@...> Subject: [ ] Transplant journey BETHGALLIART@... Cc: " Ann " <annmaddysmith@...>, AsianCMLSupportGroup , " Barb Stanley " <barbarastanley@...>, , " Ernie Paschal " <repas2@...>, " Maureen Doyle " <maureen157@...> Date: Wednesday, July 14, 2010, 1:53 PM  Hi to all, It is official, now is a good time to proceed with transplant. The AP24534 drug is working, but not without side effects. I have had to receive 3 red cell transfusions since May 1, and this is at the lowest dose permitted. Dr. Cortes feels that since I have responded some, 4 out of 20 normal cells, it would be an ideal time for a successful transplant. I spoke with Dr DeLima, the BMT dr at MDACC, yesterday and he also agrees with Dr Cortes. Since I am still in Chronic phase, the transplant will be a Mini transplant. Hopefully, it will be enough to get me to the ultimate " remission " . My sister, the donor, is a complete 10/10 match. I don't have dates yet. My employer changed our insurance 7/1/10 so we need to go through the approval stages once again. My goal, is to be home by the Holidays!! Yes I know, winters in TX are much better than in Iowa, but I won't be heartbroken if I miss out on some of that warm weather. Working out a schedule for caregiving will be the next step. I don't want anyone to have to spend so much time there at once. If anyone has suggestions, please let me know. This is crucial to a full recovery. God Bless to you all, Jackie S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2010 Report Share Posted July 14, 2010 JAckie bless your heart. My prayers with you. T Sent from my Verizon Wireless BlackBerry [ ] Transplant journey Hi to all, It is official, now is a good time to proceed with transplant. The AP24534 drug is working, but not without side effects. I have had to receive 3 red cell transfusions since May 1, and this is at the lowest dose permitted. Dr. Cortes feels that since I have responded some, 4 out of 20 normal cells, it would be an ideal time for a successful transplant. I spoke with Dr DeLima, the BMT dr at MDACC, yesterday and he also agrees with Dr Cortes. Since I am still in Chronic phase, the transplant will be a Mini transplant. Hopefully, it will be enough to get me to the ultimate " remission " . My sister, the donor, is a complete 10/10 match. I don't have dates yet. My employer changed our insurance 7/1/10 so we need to go through the approval stages once again. My goal, is to be home by the Holidays!! Yes I know, winters in TX are much better than in Iowa, but I won't be heartbroken if I miss out on some of that warm weather. Working out a schedule for caregiving will be the next step. I don't want anyone to have to spend so much time there at once. If anyone has suggestions, please let me know. This is crucial to a full recovery. God Bless to you all, Jackie S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 My prayers are with you!!! You sound so brave!! Jo-Dee From: jackie schneider <jschneider008@...> Subject: [ ] Transplant journey BETHGALLIART@... Cc: " Ann " <annmaddysmith@...>, AsianCMLSupportGroup , " Barb Stanley " <barbarastanley@...>, , " Ernie Paschal " <repas2@...>, " Maureen Doyle " <maureen157@...> Date: Wednesday, July 14, 2010, 1:53 PM  Hi to all, It is official, now is a good time to proceed with transplant. The AP24534 drug is working, but not without side effects. I have had to receive 3 red cell transfusions since May 1, and this is at the lowest dose permitted. Dr. Cortes feels that since I have responded some, 4 out of 20 normal cells, it would be an ideal time for a successful transplant. I spoke with Dr DeLima, the BMT dr at MDACC, yesterday and he also agrees with Dr Cortes. Since I am still in Chronic phase, the transplant will be a Mini transplant. Hopefully, it will be enough to get me to the ultimate " remission " . My sister, the donor, is a complete 10/10 match. I don't have dates yet. My employer changed our insurance 7/1/10 so we need to go through the approval stages once again. My goal, is to be home by the Holidays!! Yes I know, winters in TX are much better than in Iowa, but I won't be heartbroken if I miss out on some of that warm weather. Working out a schedule for caregiving will be the next step. I don't want anyone to have to spend so much time there at once. If anyone has suggestions, please let me know. This is crucial to a full recovery. God Bless to you all, Jackie S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 > > Hi to all, > > It is official, now is a good time to proceed with transplant. The AP24534 drug is working, but not without side effects. Since I am still in Chronic phase, the transplant will be a Mini transplant. Hopefully, it will be enough to get me to the ultimate " remission " . My sister, the donor, is a complete 10/10 match. ________________________________ Dear Jackie, You are so fortunate to have a related donor and a 10/10 match in your sister. I wish you the best on this journey and a speedy recovery. There are others on the list who have had successful transplants and I am sure you will join that group. My best to you, C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 Hi Jackie. I am glad to hear that your sister is a perfect match for you. I wish you all the luck in the world. My prayers are with you. Sandi > > Hi to all, > > It is official, now is a good time to proceed with transplant. The AP24534 drug is working, but not without side effects. I have had to receive 3 red cell transfusions since May 1, and this is at the lowest dose permitted. Dr. Cortes feels that since I have responded some, 4 out of 20 normal cells, it would be an ideal time for a successful transplant. I spoke with Dr DeLima, the BMT dr at MDACC, yesterday and he also agrees with Dr Cortes. Since I am still in Chronic phase, the transplant will be a Mini transplant. Hopefully, it will be enough to get me to the ultimate " remission " . My sister, the donor, is a complete 10/10 match. I don't have dates yet. My employer changed our insurance 7/1/10 so we need to go through the approval stages once again. My goal, is to be home by the Holidays!! Yes I know, winters in TX are much better than in Iowa, but I won't be heartbroken if I miss out on some of that warm weather. > > Working out a schedule for caregiving will be the next step. I don't want anyone to have to spend so much time there at once. If anyone has suggestions, please let me know. This is crucial to a full recovery. > > God Bless to you all, > Jackie S. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 Dear Jackie, Wishing you a speedy and safe journey on your transplant. We are all cheering for you. There is a big fat Zero waiting for you at the end of the procedure. You are lucky to have such great doctors and an outstanding facility for your transplant. God bless your sister for being a perfect match. Zavie From: [mailto: ] On Behalf Of jackie schneider Sent: July-14-10 1:53 PM BETHGALLIART@... Cc: Ann ; AsianCMLSupportGroup ; Barb Stanley; ; Ernie Paschal; Maureen Doyle Subject: [ ] Transplant journey Hi to all, It is official, now is a good time to proceed with transplant. The AP24534 drug is working, but not without side effects. I have had to receive 3 red cell transfusions since May 1, and this is at the lowest dose permitted. Dr. Cortes feels that since I have responded some, 4 out of 20 normal cells, it would be an ideal time for a successful transplant. I spoke with Dr DeLima, the BMT dr at MDACC, yesterday and he also agrees with Dr Cortes. Since I am still in Chronic phase, the transplant will be a Mini transplant. Hopefully, it will be enough to get me to the ultimate " remission " . My sister, the donor, is a complete 10/10 match. I don't have dates yet. My employer changed our insurance 7/1/10 so we need to go through the approval stages once again. My goal, is to be home by the Holidays!! Yes I know, winters in TX are much better than in Iowa, but I won't be heartbroken if I miss out on some of that warm weather. Working out a schedule for caregiving will be the next step. I don't want anyone to have to spend so much time there at once. If anyone has suggestions, please let me know. This is crucial to a full recovery. God Bless to you all, Jackie S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2010 Report Share Posted July 16, 2010 Sent: Thu, July 15, 2010 9:06:04 AM Subject: [ ] Re: Transplant journey  > Dear Jackie, Hope you are coping with all the bad news and the good news.  We are all rooting for you. Guy  > > It is official, now is a good time to proceed with transplant. The AP24534 >drug is working, but not without side effects. Since I am still in Chronic >phase, the transplant will be a Mini transplant. Hopefully, it will be enough to >get me to the ultimate " remission " . My sister, the donor, is a complete 10/10 >match. > ________________________________ Dear Jackie, You are so fortunate to have a related donor and a 10/10 match in your sister. I wish you the best on this journey and a speedy recovery. There are others on the list who have had successful transplants and I am sure you will join that group. My best to you, C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2010 Report Share Posted July 16, 2010 Jackie... Just wanted to send my best wishes for your upcoming transplant...I too am headed there...you are lucky that you have a sibling donor...I do not - and the only donor they can find is a 9/10 - not the best...but the only one for me apparently... All the best to you and your family, Cheryl Thornton > > Hi to all, > > It is official, now is a good time to proceed with transplant. The AP24534 drug is working, but not without side effects. I have had to receive 3 red cell transfusions since May 1, and this is at the lowest dose permitted. Dr. Cortes feels that since I have responded some, 4 out of 20 normal cells, it would be an ideal time for a successful transplant. I spoke with Dr DeLima, the BMT dr at MDACC, yesterday and he also agrees with Dr Cortes. Since I am still in Chronic phase, the transplant will be a Mini transplant. Hopefully, it will be enough to get me to the ultimate " remission " . My sister, the donor, is a complete 10/10 match. I don't have dates yet. My employer changed our insurance 7/1/10 so we need to go through the approval stages once again. My goal, is to be home by the Holidays!! Yes I know, winters in TX are much better than in Iowa, but I won't be heartbroken if I miss out on some of that warm weather. > > Working out a schedule for caregiving will be the next step. I don't want anyone to have to spend so much time there at once. If anyone has suggestions, please let me know. This is crucial to a full recovery. > > God Bless to you all, > Jackie S. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2010 Report Share Posted July 16, 2010 Jackie Best wishes on your tansplant journey, I'm in the hospital twice a week and see many transplant patients come in for their post transplant meds, they seem so happy and in good spirits, almost makes me wish I were a good transplant patient, So the best to you SkipD DX'ed 1977 Hi to all, It is official, now is a good time to proceed with transplant. The AP24534 drug is working, but not without side effects. I have had to receive 3 red cell transfusions since May 1, and this is at the lowest dose permitted. Dr. Cortes feels that since I have responded some, 4 out of 20 normal cells, it would be an ideal time for a successful transplant. I spoke with Dr DeLima, the BMT dr at MDACC, yesterday and he also agrees with Dr Cortes. Since I am still in Chronic phase, the transplant will be a Mini transplant. Hopefully, it will be enough to get me to the ultimate " remission " . My sister, the donor, is a complete 10/10 match. I don't have dates yet. My employer changed our insurance 7/1/10 so we need to go through the approval stages once again. My goal, is to be home by the Holidays!! Yes I know, winters in TX are much better than in Iowa, but I won't be heartbroken if I miss out on some of that warm weather. Working out a schedule for caregiving will be the next step. I don't want anyone to have to spend so much time there at once. If anyone has suggestions, please let me know. This is crucial to a full recovery. God Bless to you all, Jackie S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2010 Report Share Posted July 16, 2010 Hi Jackie, Sounds like you are in good hands and having the perfect match with your sister is encouraging. You will be in my prayers as you beging a new chapter in this journey. Thinking of you today. ________________________________ From: jackie schneider <jschneider008@...> BETHGALLIART@... Cc: Ann <annmaddysmith@...>; AsianCMLSupportGroup ; Barb Stanley <barbarastanley@...>; ; Ernie Paschal <repas2@...>; Maureen Doyle <maureen157@...> Sent: Wed, July 14, 2010 12:53:11 PM Subject: [ ] Transplant journey  Hi to all, It is official, now is a good time to proceed with transplant. The AP24534 drug is working, but not without side effects. I have had to receive 3 red cell transfusions since May 1, and this is at the lowest dose permitted. Dr. Cortes feels that since I have responded some, 4 out of 20 normal cells, it would be an ideal time for a successful transplant. I spoke with Dr DeLima, the BMT dr at MDACC, yesterday and he also agrees with Dr Cortes. Since I am still in Chronic phase, the transplant will be a Mini transplant. Hopefully, it will be enough to get me to the ultimate " remission " . My sister, the donor, is a complete 10/10 match. I don't have dates yet. My employer changed our insurance 7/1/10 so we need to go through the approval stages once again. My goal, is to be home by the Holidays!! Yes I know, winters in TX are much better than in Iowa, but I won't be heartbroken if I miss out on some of that warm weather. Working out a schedule for caregiving will be the next step. I don't want anyone to have to spend so much time there at once. If anyone has suggestions, please let me know. This is crucial to a full recovery. God Bless to you all, Jackie S. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 Hi Cheryl, Do you have a date yet? We will cheer each other on through cyber space! You were waiting for insurance right? Did they approve it for you? Mine is working on it, but I dont anticipate any problems with me going to MDACC, even though it is out of network. I hope you get the hospital of your choice. A 9/10 is still good. Someone said that MDACC was the only facility that required 10/10, others do very well with 6/6. And I know you will too. God Bless. Praying for you. Jackie S. From: thornton_cheryl <thornton_cheryl@...> Subject: [ ] Re: Transplant journey Date: Friday, July 16, 2010, 11:21 AM  Jackie... Just wanted to send my best wishes for your upcoming transplant...I too am headed there...you are lucky that you have a sibling donor...I do not - and the only donor they can find is a 9/10 - not the best...but the only one for me apparently... All the best to you and your family, Cheryl Thornton > > Hi to all, > > It is official, now is a good time to proceed with transplant. The AP24534 drug is working, but not without side effects. I have had to receive 3 red cell transfusions since May 1, and this is at the lowest dose permitted. Dr. Cortes feels that since I have responded some, 4 out of 20 normal cells, it would be an ideal time for a successful transplant. I spoke with Dr DeLima, the BMT dr at MDACC, yesterday and he also agrees with Dr Cortes. Since I am still in Chronic phase, the transplant will be a Mini transplant. Hopefully, it will be enough to get me to the ultimate " remission " . My sister, the donor, is a complete 10/10 match. I don't have dates yet. My employer changed our insurance 7/1/10 so we need to go through the approval stages once again. My goal, is to be home by the Holidays!! Yes I know, winters in TX are much better than in Iowa, but I won't be heartbroken if I miss out on some of that warm weather. > > Working out a schedule for caregiving will be the next step. I don't want anyone to have to spend so much time there at once. If anyone has suggestions, please let me know. This is crucial to a full recovery. > > God Bless to you all, > Jackie S. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2010 Report Share Posted July 19, 2010 Thank you Zavie. I will be honored to get that zero from your club. God Bless, Jackie S. From: Zavie <zmiller@...> Subject: RE: [ ] Transplant journey " 'jackie schneider' " <jschneider008@...> Cc: Date: Thursday, July 15, 2010, 4:34 PM Â Dear Jackie, Wishing you a speedy and safe journey on your transplant. We are all cheering for you. There is a big fat Zero waiting for you at the end of the procedure. You are lucky to have such great doctors and an outstanding facility for your transplant. God bless your sister for being a perfect match. Zavie From: [mailto: ] On Behalf Of jackie schneider Sent: July-14-10 1:53 PM BETHGALLIART@... Cc: Ann ; AsianCMLSupportGroup ; Barb Stanley; ; Ernie Paschal; Maureen Doyle Subject: [ ] Transplant journey Hi to all, It is official, now is a good time to proceed with transplant. The AP24534 drug is working, but not without side effects. I have had to receive 3 red cell transfusions since May 1, and this is at the lowest dose permitted. Dr. Cortes feels that since I have responded some, 4 out of 20 normal cells, it would be an ideal time for a successful transplant. I spoke with Dr DeLima, the BMT dr at MDACC, yesterday and he also agrees with Dr Cortes. Since I am still in Chronic phase, the transplant will be a Mini transplant. Hopefully, it will be enough to get me to the ultimate " remission " . My sister, the donor, is a complete 10/10 match. I don't have dates yet. My employer changed our insurance 7/1/10 so we need to go through the approval stages once again. My goal, is to be home by the Holidays!! Yes I know, winters in TX are much better than in Iowa, but I won't be heartbroken if I miss out on some of that warm weather. Working out a schedule for caregiving will be the next step. I don't want anyone to have to spend so much time there at once. If anyone has suggestions, please let me know. This is crucial to a full recovery. God Bless to you all, Jackie S. Quote Link to comment Share on other sites More sharing options...
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