Guest guest Posted September 9, 2010 Report Share Posted September 9, 2010 Prayers and best wishing going out to you Jackie! God Bless you and keep the faith. We are pulling for you. Love always, peggy becker Connected by MOTOBLURâ„¢ on T-Mobile [ ] Bon voyage, Jackie CML SUPPORT AND INFORMATIONI hope everyone is praying and thinking of Jackie Schneider who is beginning the procees of her BMT on Friday, just 2 days away. This has been a long time developing and a very long struggle for her, but she is very courageous and has a lot of faith, so Jackie, you will have a lot of support from the one thousand plus people in this group. When you think about it, that is powerful to have that many people praying and thinking warm thoughts of you as you begin this new journey that very few people get to experience. I know that you have been an informed patient all along and know what you are facing and very bravely. You have been mentally preparing for this for some time now and finally you have come face to face with your demon and you will slay the dragon. You will be added to our book of heroes. Look to Judy Telford for your inspiration. She was diagnosed in 1992. She now lives a normal life with her family in Australia and is an active member of this group. There are others; has written about his daughter who is recovering bravely from her BMT. We don't hear a great deal from BMT patients, because they have another support group for BMT patients, but we know there are legions out there. Your posts are always on a positive note and always welcomed here. Keep us informed or have or someone in your family let us know how you are doing. Not sure you can have a computer while in isolation. Rest n Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2010 Report Share Posted September 9, 2010 Jackie, Lottie has such a gift for words and phrasing things just so, I couldn't say it better, but will add an AMEN to her post. I'll be thinking of you and praying for you every day. You and all the other BMTers just keep me in awe of your courage and your fortitude. Bless you, love, Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club From: Lottie Duthu <lotajam@...> Subject: [ ] Bon voyage, Jackie " CML " < > Date: Wednesday, September 8, 2010, 8:00 PM  CML SUPPORT AND INFORMATIONI hope everyone is praying and thinking of Jackie Schneider who is beginning the procees of her BMT on Friday, just 2 days away. This has been a long time developing and a very long struggle for her, but she is very courageous and has a lot of faith, so Jackie, you will have a lot of support from the one thousand plus people in this group. When you think about it, that is powerful to have that many people praying and thinking warm thoughts of you as you begin this new journey that very few people get to experience. I know that you have been an informed patient all along and know what you are facing and very bravely. You have been mentally preparing for this for some time now and finally you have come face to face with your demon and you will slay the dragon. You will be added to our book of heroes. Look to Judy Telford for your inspiration. She was diagnosed in 1992. She now lives a normal life with her family in Australia and is an active member of this group. There are others; has written about his daughter who is recovering bravely from her BMT. We don't hear a great deal from BMT patients, because they have another support group for BMT patients, but we know there are legions out there. Your posts are always on a positive note and always welcomed here. Keep us informed or have or someone in your family let us know how you are doing. Not sure you can have a computer while in isolation. Rest now, assured that you are vital to our group and a loyal member and we will think of you often. I personally picture your steadfastness and your willingness to do whatever you had to do and the many trips you made from Iowa, you are a real warrior and trooper that we can all look up to for spirit, passion and inspiration. I think I speak for everyone in our group, but you also have a large family who are your strongest supporters. xoxox Lottie [ ] Aspergillius/mold/Vit.D As some of you may remember my son has aspergillius, which is a fungus that has covered his lung and intertwined with the vessels in the lung and spine, so rather than risk what time he has left, he has opted not to have surgery as he could die on the operating table. Now it seems Vitamin D has another disease that it could prevent and that is what caught my eye on the article. Here it is from Science Daily. Vitamin D May Treat or Prevent Allergy to Common Mold... ScienceDaily (Aug. 18, 2010) — Research conducted by Dr. Jay Kolls, Professor and Chair of Genetics at LSU Health Sciences Center New Orleans " The environmental mold, Aspergillus fumigatus, is one of the most prevalent fungal organisms inhaled by people. In the vast majority, it is not associated with disease. However, in asthmatics and in patients with Cystic Fibrosis (CF), it can cause significant allergic symptoms. Up to 15% of CF patients develop a severe allergic response called Allergic Bronchopulmonary Aspergillosis (ABPA). Since the mold is so common, the researchers wanted to identify the factors that determine why only a subset of patients develop the allergy and what factors regulate tolerance or sensitization to the mold resulting in the development of ABPA. To gain insights, the group studied two groups of patients with CF. Both groups were colonized with A. Fumigatus but only one had ABPA. " http://www.sciencedaily.com/releases/2010/08/100816122122.htm ****************************************** Dangers of Mild (Video) http://www.sciencedaily.com/videos/2008/0303-clean_up_that_moldy_mess.htm ******************************************* Vitamin D Levels Linked To Asthma Severity (Apr. 24, 2009) — New research provides evidence for a link between vitamin D insufficiency and asthma severity. Serum levels of vitamin D in more than 600 Costa Rican children were inversely linked to several ... > read more http://www.sciencedaily.com/releases/2009/04/090423082638.htm ******************************************** More Than Half the World's Population Gets Insufficient Vitamin D, Says Biochemist Vitamin D surfaces as a news topic every few months. How much daily vitamin D should a person get? According to an international expert on v ... > full story http://www.sciencedaily.com/news/health_medicine/vitamin_d/ ******************************************** Order free booklet on Vitamin D & Wellness Report from Berkely University of CA http://tinyurl.com/28zo9gy FYI, Lottie Duthu Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2010 Report Share Posted September 9, 2010 Dear Lottie, I love you!! Good luck Sharon T _____ From: [mailto: ] On Behalf Of Peggy Becker Sent: Wednesday, September 08, 2010 5:47 PM Subject: Re: [ ] Bon voyage, Jackie Prayers and best wishing going out to you Jackie! God Bless you and keep the faith. We are pulling for you. Love always, peggy becker Connected by MOTOBLURT on T-Mobile [ ] Bon voyage, Jackie CML SUPPORT AND INFORMATIONI hope everyone is praying and thinking of Jackie Schneider who is beginning the procees of her BMT on Friday, just 2 days away. This has been a long time developing and a very long struggle for her, but she is very courageous and has a lot of faith, so Jackie, you will have a lot of support from the one thousand plus people in this group. When you think about it, that is powerful to have that many people praying and thinking warm thoughts of you as you begin this new journey that very few people get to experience. I know that you have been an informed patient all along and know what you are facing and very bravely. You have been mentally preparing for this for some time now and finally you have come face to face with your demon and you will slay the dragon. You will be added to our book of heroes. Look to Judy Telford for your inspiration. She was diagnosed in 1992. She now lives a normal life with her family in Australia and is an active member of this group. There are others; has written about his daughter who is recovering bravely from her BMT. We don't hear a great deal from BMT patients, because they have another support group for BMT patients, but we know there are legions out there. Your posts are always on a positive note and always welcomed here. Keep us informed or have or someone in your family let us know how you are doing. Not sure you can have a computer while in isolation. Rest n Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2010 Report Share Posted September 9, 2010 MY PRAYERS GO OUT FOR JACKIE AND LOTTIE AS THEY GO THROUGH A NEW TRIAL AND A BMT. YOU ARE BOTH SUCH STRONG LADIES, AND WE ALL WANT TO HEAR SOME GOOD NEWS. FAITH CAN MOVE MOUNTAINS. YOU BOTH ARE SUCH A INSPIRATION TO ALL OF US WHO FIGHT EACH DAY TO WIN THIS BATTLE WITH CML. MAY GOD LET US ALL EXPERIENCE THE CURE!! > > Dear Lottie, > I love you!! Good luck > Sharon T > > _____ > > From: [mailto: ] On Behalf Of Peggy > Becker > Sent: Wednesday, September 08, 2010 5:47 PM > > Subject: Re: [ ] Bon voyage, Jackie > > > > > Prayers and best wishing going out to you Jackie! God Bless you and keep the > faith. We are pulling for you. Love always, peggy becker > > Connected by MOTOBLURT on T-Mobile > > [ ] Bon voyage, Jackie > > CML SUPPORT AND INFORMATIONI hope everyone is praying and thinking of Jackie > Schneider who is beginning the procees of her BMT on Friday, just 2 days > away. This has been a long time developing and a very long struggle for her, > but she is very courageous and has a lot of faith, so Jackie, you will have > a lot of support from the one thousand plus people in this group. When you > think about it, that is powerful to have that many people praying and > thinking warm thoughts of you as you begin this new journey that very few > people get to experience. I know that you have been an informed patient all > along and know what you are facing and very bravely. You have been mentally > preparing for this for some time now and finally you have come face to face > with your demon and you will slay the dragon. > > You will be added to our book of heroes. Look to Judy Telford for your > inspiration. She was diagnosed in 1992. She now lives a normal life with her > family in Australia and is an active member of this group. There are others; > has written about his daughter who is recovering bravely from her BMT. > We don't hear a great deal from BMT patients, because they have another > support group for BMT patients, but we know there are legions out there. > Your posts are always on a positive note and always welcomed here. > > Keep us informed or have or someone in your family let us know how > you are doing. Not sure you can have a computer while in isolation. Rest n > > Quote Link to comment Share on other sites More sharing options...
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