Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 Good luck 2 u! I love Tasigna and u take the same dose as me! Sharon Sent via BlackBerry by AT & T [ ] 1st day Tasigna I just had Tasigna for first time today 400 mg in the morning and I will take 200 in the evening. So far so good I feel more energetic. But I also find out when I am happy I feel more energetic where taking a break from gleevec is the best think ha penning to me today. T Sent from my Verizon Wireless BlackBerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 Cool. Sharon,how long you have been on Tasigna. I will have an EKG next week and I hope I can meet QT criteria so I can continue on Tasigna, Do you are the supplement that interfere with med. T Sent from my Verizon Wireless BlackBerry [ ] 1st day Tasigna I just had Tasigna for first time today 400 mg in the morning and I will take 200 in the evening. So far so good I feel more energetic. But I also find out when I am happy I feel more energetic where taking a break from gleevec is the best think ha penning to me today. T Sent from my Verizon Wireless BlackBerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 My husband has been taking Tasigna for 2 years 800 mgs daily (400 mg 2x daily). He is doing fine and in remission. He did have a mild QT prolongation incident Dec. 09, but everything is fine. He is 62 yrs and found out he had cml in 2006. He was on Gleevic about 2 weeks and it didn't lower the white blood count fast enough. His first white count in 06 was 139,000. Gleevic lowered it to 98,000 in 2 weeks. He receives his treatment in Houston, Tx @ MD. He got in the drug study there and was started on Disatinib. That drug caused fluid to build on his right lung and drs. removed 22 liters one time and the next time 16 liters. Then Tasigna recieved FDA approval in 08 and he has done just great. We praise God daily for His providing this medicine. From: onthewtr@... <onthewtr@...> Subject: Re: [ ] 1st day Tasigna Date: Wednesday, June 30, 2010, 1:49 PM  Good luck 2 u! I love Tasigna and u take the same dose as me! Sharon Sent via BlackBerry by AT & T [ ] 1st day Tasigna I just had Tasigna for first time today 400 mg in the morning and I will take 200 in the evening. So far so good I feel more energetic. But I also find out when I am happy I feel more energetic where taking a break from gleevec is the best think ha penning to me today. T Sent from my Verizon Wireless BlackBerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 i have been on Tasigna for two years. My EKG's are all good so far. I did not quite understand the sentence abut suplementss---ask me again. sharon _____ From: [mailto: ] On Behalf Of mtadros9@... Sent: Wednesday, June 30, 2010 1:15 PM CML Group Subject: Re: [ ] 1st day Tasigna Cool. Sharon,how long you have been on Tasigna. I will have an EKG next week and I hope I can meet QT criteria so I can continue on Tasigna, Do you are the supplement that interfere with med. T Sent from my Verizon Wireless BlackBerry [ ] 1st day Tasigna I just had Tasigna for first time today 400 mg in the morning and I will take 200 in the evening. So far so good I feel more energetic. But I also find out when I am happy I feel more energetic where taking a break from gleevec is the best think ha penning to me today. T Sent from my Verizon Wireless BlackBerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2010 Report Share Posted July 1, 2010 A-Men!!!!!!! _____ From: [mailto: ] On Behalf Of george pinkard Sent: Wednesday, June 30, 2010 3:54 PM Subject: Re: [ ] 1st day Tasigna My husband has been taking Tasigna for 2 years 800 mgs daily (400 mg 2x daily). He is doing fine and in remission. He did have a mild QT prolongation incident Dec. 09, but everything is fine. He is 62 yrs and found out he had cml in 2006. He was on Gleevic about 2 weeks and it didn't lower the white blood count fast enough. His first white count in 06 was 139,000. Gleevic lowered it to 98,000 in 2 weeks. He receives his treatment in Houston, Tx @ MD. He got in the drug study there and was started on Disatinib. That drug caused fluid to build on his right lung and drs. removed 22 liters one time and the next time 16 liters. Then Tasigna recieved FDA approval in 08 and he has done just great. We praise God daily for His providing this medicine. From: onthewtr@... <mailto:onthewtr%40discobay.net> <onthewtr@... <mailto:onthewtr%40discobay.net> > Subject: Re: [ ] 1st day Tasigna <mailto:%40> Date: Wednesday, June 30, 2010, 1:49 PM Good luck 2 u! I love Tasigna and u take the same dose as me! Sharon Sent via BlackBerry by AT & T [ ] 1st day Tasigna I just had Tasigna for first time today 400 mg in the morning and I will take 200 in the evening. So far so good I feel more energetic. But I also find out when I am happy I feel more energetic where taking a break from gleevec is the best think ha penning to me today. T Sent from my Verizon Wireless BlackBerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2010 Report Share Posted July 2, 2010 Hi everyone. I am wondering if any of the group that take tasigna has experienced rapid heart beats. My daughter, Robyn. is on Gleevec and in total remission, but doesn't like the side effects. She was considering asking for the change to Tasigna, but read that one side effect is rapid heart beat which she gets due to her condition of Super-Ventricular Tachicardia. Let me know if any of you have experienced rapid heart beats. Sandi > > From: onthewtr@... <mailto:onthewtr%40discobay.net> > <onthewtr@... <mailto:onthewtr%40discobay.net> > > Subject: Re: [ ] 1st day Tasigna > <mailto:%40> > Date: Wednesday, June 30, 2010, 1:49 PM > > > > Good luck 2 u! I love Tasigna and u take the same dose as me! > Sharon > Sent via BlackBerry by AT & T > > [ ] 1st day Tasigna > > I just had Tasigna for first time today 400 mg in the morning and I will > take 200 in the evening. So far so good I feel more energetic. But I also > find out when I am happy I feel more energetic where taking a break from > gleevec is the best think ha penning to me today. > T > Sent from my Verizon Wireless BlackBerry > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2010 Report Share Posted July 2, 2010 no I have not had rapid heart beats. and my EKG's have all been good. I would have her check with her doctor and have him either watch her very closely if she changes to Tasigna. I did not know that Rapid Heart beat was a side effect of Tasigna. Is it??? Been on Tasigna for 2 years and loving it so much. do not even know I have CML.... this fourth of July will be 6 years since DX. Sharon _____ From: [mailto: ] On Behalf Of Sandy Sent: Friday, July 02, 2010 10:08 AM Subject: [ ] Re: 1st day Tasigna Hi everyone. I am wondering if any of the group that take tasigna has experienced rapid heart beats. My daughter, Robyn. is on Gleevec and in total remission, but doesn't like the side effects. She was considering asking for the change to Tasigna, but read that one side effect is rapid heart beat which she gets due to her condition of Super-Ventricular Tachicardia. Let me know if any of you have experienced rapid heart beats. Sandi > > From: onthewtr@... <mailto:onthewtr%40discobay.net> > <onthewtr@... <mailto:onthewtr%40discobay.net> > > Subject: Re: [ ] 1st day Tasigna > <mailto:%40> <mailto:%40> > Date: Wednesday, June 30, 2010, 1:49 PM > > > > Good luck 2 u! I love Tasigna and u take the same dose as me! > Sharon > Sent via BlackBerry by AT & T > > [ ] 1st day Tasigna > > I just had Tasigna for first time today 400 mg in the morning and I will > take 200 in the evening. So far so good I feel more energetic. But I also > find out when I am happy I feel more energetic where taking a break from > gleevec is the best think ha penning to me today. > T > Sent from my Verizon Wireless BlackBerry > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2010 Report Share Posted July 3, 2010 Hi Sharon. I checked on the internet about Tasigna and found that Robyn is currect. QT can develope which means rapid heart beat. Since she has the tachicardia condition, she cannot take the drug. She'll have to stay with Gleevec. Welcome to the group, Melody. I have learned alot about CML by reading the digests and asking questions. Everyone is so helpful and supportive. Good luck. Sandi > > > > From: onthewtr@ <mailto:onthewtr%40discobay.net> > > <onthewtr@ <mailto:onthewtr%40discobay.net> > > > Subject: Re: [ ] 1st day Tasigna > > <mailto:%40> > > Date: Wednesday, June 30, 2010, 1:49 PM > > > > > > > > Good luck 2 u! I love Tasigna and u take the same dose as me! > > Sharon > > Sent via BlackBerry by AT & T > > > > [ ] 1st day Tasigna > > > > I just had Tasigna for first time today 400 mg in the morning and I will > > take 200 in the evening. So far so good I feel more energetic. But I also > > find out when I am happy I feel more energetic where taking a break from > > gleevec is the best think ha penning to me today. > > T > > Sent from my Verizon Wireless BlackBerry > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2010 Report Share Posted July 5, 2010 ThAnks to everyone who reply to my email. To all my old folks I lost my phone last week and all email addresses. Please help me to build back my list. ZAvie I need you email please. I am now on the Tasigna fifth day. I feel fine still experience cramps And have a little higher heart beat that I feel. I will have my EKG done this coming. Wednesday. The good news Iis that lost my appetite and hope this help loose my stuburn gleevec weight. T Dxd 2003 Sent from my Verizon Wireless BlackBerry [ ] 1st day Tasigna I just had Tasigna for first time today 400 mg in the morning and I will take 200 in the evening. So far so good I feel more energetic. But I also find out when I am happy I feel more energetic where taking a break from gleevec is the best think ha penning to me today. T Sent from my Verizon Wireless BlackBerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2010 Report Share Posted July 5, 2010 , I lost my appetite too. for the first couple of weeks. Suddenly, it has come back full force. I'm trying to be good as I have lost about 15 lbs since I was weighed right before starting the Tasigna. (And I'd love to lose 50 more!) But, having to fast is wonderful. Like, last night, I would have had WAY too much junk food if I wasn't waiting to take the meds. Tammy _____ From: mtadros9@... [mailto:mtadros9@...] Sent: Monday, July 05, 2010 1:29 PM Cml Subject: Re: [ ] 1st day Tasigna ThAnks to everyone who reply to my email. To all my old folks I lost my phone last week and all email addresses. Please help me to build back my list. ZAvie I need you email please. I am now on the Tasigna fifth day. I feel fine still experience cramps And have a little higher heart beat that I feel. I will have my EKG done this coming. Wednesday. The good news Iis that lost my appetite and hope this help loose my stuburn gleevec weight. T Dxd 2003 Sent from my Verizon Wireless BlackBerry [ ] 1st day Tasigna I just had Tasigna for first time today 400 mg in the morning and I will take 200 in the evening. So far so good I feel more energetic. But I also find out when I am happy I feel more energetic where taking a break from gleevec is the best think ha penning to me today. T Sent from my Verizon Wireless BlackBerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2010 Report Share Posted July 6, 2010 Hi , Good luck with the Tasigna. My signature has all my coordinates. Zavie Zavie (age 72) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 4.4 log reduction Apr/10 e-mail: <mailto:zmiller@...> zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem From: [mailto: ] On Behalf Of mtadros9@... Sent: July-05-10 1:29 PM Cml Subject: Re: [ ] 1st day Tasigna ThAnks to everyone who reply to my email. To all my old folks I lost my phone last week and all email addresses. Please help me to build back my list. ZAvie I need you email please. I am now on the Tasigna fifth day. I feel fine still experience cramps And have a little higher heart beat that I feel. I will have my EKG done this coming. Wednesday. The good news Iis that lost my appetite and hope this help loose my stuburn gleevec weight. T Dxd 2003 Sent from my Verizon Wireless BlackBerry [ ] 1st day Tasigna I just had Tasigna for first time today 400 mg in the morning and I will take 200 in the evening. So far so good I feel more energetic. But I also find out when I am happy I feel more energetic where taking a break from gleevec is the best think ha penning to me today. T Sent from my Verizon Wireless BlackBerry Quote Link to comment Share on other sites More sharing options...
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