Guest guest Posted February 1, 2001 Report Share Posted February 1, 2001 Hi Jeannette, This group is mainly made up of patients with rheumatic illnesses who are treating them with antibiotics, a treatment we call " AP " , which is short for " antibiotic protocol " . I firmly believe in this treatment because I've seen people not only improve, but also manage to get off other, toxic arthritis medications, like prednisone and methotrexate and keep their illness in better control than when they were on the more toxic drugs. If you go to the rheumatic.org website and read through it, you'll find a wealth of information on the treatment, the research that has been done on it, patient testimonials, information for your doctor, etc. I would also recommend you read the book " The New Arthritis Breakthrough " by Henry Scammel, which clearly explains in English rather than " medicalese " the theory behind the treatment, how it works, how to do it and case histories of actual patients. Also, ask this group any questions you have and we'll do our best to answer them. You'll find many of us have had really good results from the AP, while others are in the beginning stages of the treatment and working their way to improvement so someone is usually able to help with just about any question you have. Hugs a Peden ednettieolson@... wrote: > > Hello folks: > >...Tell me about your group. Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 Hello , Welcome to the group Dr. Brown said that a very large percentage of osteoarthritis cases have a rheumatoid component, so the antibiotic approach may also be applicable to you. You might like to look at Dr. Gabe Mirkin's radio broadcasts on his website at www.drmirkin.com - Dr. Mirkin treated his wife successfully for osteoarthritis with doxycycline. Let us know how we can help, Chris. >Hello, > >My name is and I am 37years old in Dallas, Texas. I was diagnosed wit>h OA in June of this year and am currently on Aleve. I just wanted to say h>ello and intro- duce myself. Thank you! > > >Arthritically Yours, > >arthritic2000@... > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 and Chas Adlard wrote: > > > You might like to look at Dr. Gabe Mirkin's radio broadcasts on his website > at www.drmirkin.com - Dr. Mirkin treated his wife successfully for osteoarthritis > with doxycycline. > Yes, she's right, , and that reminds me -- I have a friend with osteo. who's also being successfully treated with doxy. In fact, she's the reason I started to look into the antibiotic protocol to begin with. (Unfortunately, I have psoriatic arthritis and that seems to be a little tougher nut to crack than osteo.) Good luck with your search for treatments; welcome! --Louise Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2001 Report Share Posted December 16, 2001 Hi , welcome aboard! Love your addy. Rheumatically yours, Kimmie rheumatic NEWBIE Hello, My name is and I am 37years old in Dallas, Texas. I was diagnosed with OA in June of this year and am currently on Aleve. I just wanted to say hello and intro- duce myself. Thank you! Arthritically Yours,arthritic2000@... To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 Hi, My name is Tina, I'm dx CFS, have a 12 yr old daughter dx ADHD/CFS/Learning Disability, and a 10 yr old daughter dx autism. I've posted a couple of times before introducing myself...life has been very busy preparing for an upcoming event. Our family has always been very active in advocacy and promoting progress for healing our diseases. I am looking forward to learning from and sharing with you all. Tina M. Hendrix Cure2000@... Vice-President, California Coalition Neuro-Immune Dysfunction Syndromes Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 Hi, My name is Tina, I'm dx CFS, have a 12 yr old daughter dx ADHD/CFS/Learning Disability, and a 10 yr old daughter dx autism. I've posted a couple of times before introducing myself...life has been very busy preparing for an upcoming event. Our family has always been very active in advocacy and promoting progress for healing our diseases. I am looking forward to learning from and sharing with you all. Tina M. Hendrix Cure2000@... Vice-President, California Coalition Neuro-Immune Dysfunction Syndromes Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2002 Report Share Posted July 26, 2002 I am new to the list and I have a question. I am wondering if anyone can tell me the real truth about Tetanus--the disease. Thanks. (I have twin boys, age 7, with autism.) Karla Akins <A HREF= " http://hometown.aol.com/selahdream/Viktor.html " >Viktor's Page</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 I don't know if this qualifies as 'the real truth', but my mother and her parents have always believed that her only sister died of tetanus contracted from a cut she got while on a family picnic. She was dead within within a few days of getting that cut. This was back in Germany in 1946, just a year or so after the family survived WWII and the #$%$ Nazis... By the way, tetanus is also known as " lock-jaw " because it causes severe muscle tightness. Max --- SelahDream@... wrote: > I am new to the list and I have a question. > > I am wondering if anyone can tell me the real truth > about Tetanus--the > disease. > > Thanks. > > (I have twin boys, age 7, with autism.) > > Karla Akins > <A > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2002 Report Share Posted September 18, 2002 In a message dated 9/18/2002 12:45:24 AM Eastern Daylight Time, ljm78@... writes: She has just started physical therapy to see if we can avoid getting "the helmet". HI LJM78, Welcome to the group! My son was dx with tort at 2 months and was in a DOC band at 5 months. There is a great torticollis support group at www.torticolliskids if you haven't checked them out yet- great tips and advice on treating tort. The physical therapy is really done to work out that tight neck muscle, this is what is creating the plagio, but its important to realize that tort can also cause upper scoliosis (they compensate posture imbalance which may shift the spine), and facial asymmetry- if the torticollis is not treated, the plagio can worsen, along with the other conditions secondary to torticollis. If you can effectively reposition your child off that flat spot, you may not need to get a helmet. We were not able to do this, my child had severe tort and was also in daycare, 8 hours of repositioning time we were not in control of. The more pt you can do for the tort, all the better to allow your child the mobility to turn or get off that flat spot physically himself. Many kids with torticollis cannot fully rotate their head left or right, so they favor one side, which creates the flat spot. The problem that you will be facing is deciding whether you feel the severity of the plagio is worsening, or not correcting with pt, and doing this evaluation while still within a good window of opportunity for the band to work- if you feel that it may be necessary. Check into www.cranialtech.com for before and after pics and see if your child resembles the headshapes shown. You'll get great advice from the many members on board, and there are lots of us with kids who have/had torticollis and plagio- so we all know the mixed bag of emotions, decisions, appts. your faced with- and you can count on us all to help you through it with great advice. Good luck and keep us posted on your little one! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2002 Report Share Posted September 18, 2002 In a message dated 9/18/2002 10:43:27 AM Eastern Daylight Time, rella1234@... writes: The problem that you will be facing is deciding whether you feel the severity of the plagio is worsening, or not correcting with pt, and doing this evaluation while still within a good window of opportunity for the band to work- if you feel that it may be necessary SORRY- I didn't mean to say that plagio will correct with pt- it will not. Physical therapy will only help to stretch out that muscle and allow more ability to turn in the direction they are not currently using. Either repositioning off that flat spot or the band/helmet are the only means of correction for plagio that I am aware of, unless you count the "it will round out on its own" theory from some Doctors, who also will recommend surgery later down the road for very severe cases- although rare. Sorry for any confusion. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2002 Report Share Posted September 18, 2002 Hi Lindsey, I hope you don't mind if I get lazy here. I should be cleaning my home because I have house guest coming tomorrow, but they are in-laws and I am not looking forward to it. Anyways, please read my post from a few days ago. You can find it by just typing 43162 in the box for Msg # It is message #43162 From: " wittfamily4 " Date: Sat Sep 14, 2002 7:26 am Subject: Re: 4 month old. Too late for repositioning? Referrals in Fremont California? If you can't find it let me know. I will paste it over for you. God Bless, Heidi - mom to 6, 4, 5 months (tort/plagio) > Hi all! New here to the group. My 6 month old daughter has positional > plagiocephaly and torticollis. She has just started physical therapy > to see if we can avoid getting " the helmet " . Any info or suggestion > would be great! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2002 Report Share Posted September 19, 2002 Hi & welcome to our group! Glad to hear your daughter has begun her pt for the tort., how is that going so far? Would you say your daughter's plagio is mild, moderate, severe? Has she been seen by a specialist for her plagio? Welcome again, please share some more of your daughter's story! Debbie Abby's mom DOCGrad MI > Hi all! New here to the group. My 6 month old daughter has positional > plagiocephaly and torticollis. She has just started physical therapy > to see if we can avoid getting " the helmet " . Any info or suggestion > would be great! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2002 Report Share Posted September 28, 2002 Thanks for that! Rylee will be going to PT every week for the next 2 months for her neck. We have an appt. with a Neurologist next Friday to go over whatever he does. I am not sure if he would fit the band or refer us to someone else?? We'll see. I am concerned daily about her little head but they assured me that her brain is in no way compromised by this so at least that is one relief! =) > In a message dated 9/18/2002 12:45:24 AM Eastern Daylight Time, > ljm78@a... writes: > > > > She has just started physical therapy > > to see if we can avoid getting " the helmet " . > > HI LJM78, > Welcome to the group! My son was dx with tort at 2 months and was in a DOC > band at 5 months. There is a great torticollis support group at > www.torticolliskids@y... if you haven't checked them out yet- > great tips and advice on treating tort. The physical therapy is really done > to work out that tight neck muscle, this is what is creating the plagio, but > its important to realize that tort can also cause upper scoliosis (they > compensate posture imbalance which may shift the spine), and facial > asymmetry- if the torticollis is not treated, the plagio can worsen, along > with the other conditions secondary to torticollis. If you can effectively > reposition your child off that flat spot, you may not need to get a helmet. > We were not able to do this, my child had severe tort and was also in > daycare, 8 hours of repositioning time we were not in control of. The more > pt you can do for the tort, all the better to allow your child the mobility > to turn or get off that flat spot physically himself. Many kids with > torticollis cannot fully rotate their head left or right, so they favor one > side, which creates the flat spot. The problem that you will be facing is > deciding whether you feel the severity of the plagio is worsening, or not > correcting with pt, and doing this evaluation while still within a good > window of opportunity for the band to work- if you feel that it may be > necessary. Check into www.cranialtech.com for before and after pics and see > if your child resembles the headshapes shown. You'll get great advice from > the many members on board, and there are lots of us with kids who have/had > torticollis and plagio- so we all know the mixed bag of emotions, decisions, > appts. your faced with- and you can count on us all to help you through it > with great advice. Good luck and keep us posted on your little one! > > ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2002 Report Share Posted October 21, 2002 Hi Ben, > I've been reading messages here for a couple of days and am VERY > interested in the process being adopted here. So.. > > -as a newbie where do i start to get specifics for pre-chelation > health set up for my 3 yr old son? Currently takes super-nu-thera, > DMG and cods liver oil (all kirkman) hummm --- well if you are asking about supplements needed prior to chelating, you can look here: /files/ANDY_INDEX Find the section on " supplements " and then read the 3 or 4 posts (at the beginning of that section) about supplements to use during chelation. Here is one about hair testing too: /files/HOW_TO_hair_test Many doctors do tests like liver funcion (and maybe kidney function too) prior to chelation. > -does the fact that I (his father) have tons of silver fillings > matter if I am chelating him? nope. It just means you can't chelate yourSELF yet. No problem for chelating him. If HE has any amalgam/silver fillings THAT is a problem (for chelating HIM). > -I was going to go to a DAN! doctor near here to help. Do we think > he will adopt Andy's protocol? no saying. If I were you I'd set the goal as allowing/supporting you (just you) in using whatever protocol you want (apparently Andy's). If the doctor is interested, he can adopt whatever he wants. I would simply focus on your kid and the treatment of your kid. > > Thanks to all for the help. I will buy the book if that's the best a > most comprehansive way to get all this..but my pile of ASD books is > getting very high! hahahah Mine is fairly big too Actually mine is ASD and metals and also a few books that I refer to a lot when writing here [e.g. milk thistle book....] Personally if I had it all to do again I would BOTH buy the book AND read ANDY_INDEX (URL above). The book goes into a lot of stuff that is not in ANDY_INDEX, but, then again, ANDY_INDEX is presented as a bunch of posts that say the same stuff (over and over) slightly differently each time...... best wishes, Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 HI, is this the same who posted to me on the Buffy and Angel forum over on Delphi? If so I am glad to see you made it over here! Lots of good info and advice to be had here. Welsome to all the new folks!!! Kari & Gracie North Carolina newbie > Hi, I just wanted to introduce myself and tell you about my son. Were > from australia. My son Blake is a plagio baby. He has flattening on > the side on head (right side). Right left side of the back of his > head and bossing on the front right side of his forehead. > > I have taken him to 2 family drs and a ped here in Australia. (I'm > orginally from the US. So a bit confused on how things work here) > They have all told me not to worry about his head shape it will > straigthen out on it's own. I have made a appointment for a cranio > specailist for the 6th of march. So hopefully I will get the > ansewers I want from there. All the drs I have spoken to told me to > let him sleep any way he wants and not do ANYTHING. I have kept him > off that side of his head. It hasn't gotten worse. I actually think > it looks a little better. > > I find that drs here don't want to use a helment, and I have a friend > in New Zealand, her sons head was quite bad and they told her the > same. His turned out great without any treatment. Just confused on > why in the US everyone seems to get a helment to straighten out even > of the most minor cases and here they tell you not to worry. That's > why I'm worried. I'm confused on whos right and wrong. Just want to > do the right thing. > > Sorry it's so long, just hoping maybe someone can help me with what > to do? > I have looked at some of your pictures in the (photos) find some look > like Blakes and some don't look quite so bad. No one tends to look > bad to me, does that make sense? like you don't pay too much > attention to someone elses, but you worry about your own childs head > shape? Being a mom is hard. lol to say the least. > > Ok, thanks for reading and any help. > mommy to nathan Tyler 8/2/00 and Blake 9/20/02 > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2003 Report Share Posted February 24, 2003 --- In Plagiocephaly , " Koskela " <jkoskela@n...> wrote: > HI, is this the same who posted to me on the Buffy and Angel forum > over on Delphi? If so I am glad to see you made it over here! Lots of good > info and advice to be had here. > > Welsome to all the new folks!!! > > Kari & Gracie > North Carolina > newbie > > > > Hi, I just wanted to introduce myself and tell you about my son. Were > > from australia. My son Blake is a plagio baby. He has flattening on > > the side on head (right side). Right left side of the back of his > > head and bossing on the front right side of his forehead. > > > > I have taken him to 2 family drs and a ped here in Australia. (I'm > > orginally from the US. So a bit confused on how things work here) > > They have all told me not to worry about his head shape it will > > straigthen out on it's own. I have made a appointment for a cranio > > specailist for the 6th of march. So hopefully I will get the > > ansewers I want from there. All the drs I have spoken to told me to > > let him sleep any way he wants and not do ANYTHING. I have kept him > > off that side of his head. It hasn't gotten worse. I actually think > > it looks a little better. > > > > I find that drs here don't want to use a helment, and I have a friend > > in New Zealand, her sons head was quite bad and they told her the > > same. His turned out great without any treatment. Just confused on > > why in the US everyone seems to get a helment to straighten out even > > of the most minor cases and here they tell you not to worry. That's > > why I'm worried. I'm confused on whos right and wrong. Just want to > > do the right thing. > > > > Sorry it's so long, just hoping maybe someone can help me with what > > to do? > > I have looked at some of your pictures in the (photos) find some look > > like Blakes and some don't look quite so bad. No one tends to look > > bad to me, does that make sense? like you don't pay too much > > attention to someone elses, but you worry about your own childs head > > shape? Being a mom is hard. lol to say the least. > > > > Ok, thanks for reading and any help. > > mommy to nathan Tyler 8/2/00 and Blake 9/20/02 > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 Welcome to the group. You will get alot of good info here. I know it seems like everyone gets helmets here but alot of people do have success repositioning. But to do nothing like your drs say I highly doubt you will recieve results. Alot of our drs told us to do nothing mine did until she was 8 mths old and it still was a fight to get a referal. You need to do what you think is right. I do think it is a good idea to get all the info and opinions you can to make up your mind. You will find alot of info here and help this is a great place. How old is your son? The older they are the more likely you are to need a helmet to get the correction. Welcome again Debbie-Belles mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 Hi Welcome to the group! I can't believe that doctors are telling parents not to do anything!! I believe your the second Mom this week, whose doctor told her that. On the Cranial Tech web site in the parents area, in the library folder is a wealth of information about plagio. No one can tell you for sure if your son's head will round out or not. Some babies do and some babies don't. I am hoping that someone here will be able to tell you if treatment is available for you in your area. That is if that is what you are looking for. Here are some links to help you reposition your son: http://www.geocities.com/alittleone2000/plagiopage.htm http://www.cappskids.org/CAPPSRepositioning.htm http://www.plagiocephaly.org/support/repotech.htm Good luck and please keep us posted. > Hi, I just wanted to introduce myself and tell you about my son. Were > from australia. My son Blake is a plagio baby. He has flattening on > the side on head (right side). Right left side of the back of his > head and bossing on the front right side of his forehead. > > I have taken him to 2 family drs and a ped here in Australia. (I'm > orginally from the US. So a bit confused on how things work here) > They have all told me not to worry about his head shape it will > straigthen out on it's own. I have made a appointment for a cranio > specailist for the 6th of march. So hopefully I will get the > ansewers I want from there. All the drs I have spoken to told me to > let him sleep any way he wants and not do ANYTHING. I have kept him > off that side of his head. It hasn't gotten worse. I actually think > it looks a little better. > > I find that drs here don't want to use a helment, and I have a friend > in New Zealand, her sons head was quite bad and they told her the > same. His turned out great without any treatment. Just confused on > why in the US everyone seems to get a helment to straighten out even > of the most minor cases and here they tell you not to worry. That's > why I'm worried. I'm confused on whos right and wrong. Just want to > do the right thing. > > Sorry it's so long, just hoping maybe someone can help me with what > to do? > I have looked at some of your pictures in the (photos) find some look > like Blakes and some don't look quite so bad. No one tends to look > bad to me, does that make sense? like you don't pay too much > attention to someone elses, but you worry about your own childs head > shape? Being a mom is hard. lol to say the least. > > Ok, thanks for reading and any help. > mommy to nathan Tyler 8/2/00 and Blake 9/20/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 , Welcome to the group! I know we have had members from Australia and New Zealand, and if I can remember, some found treatment in Brisbane- I hope others will chime in there for you (Dr. or Dr. Blecher sound right anyone?). I believe the American epidemic is more prevelant because we are adhering to the Back To Sleep Campaign, whereby putting all babies to sleep on their backs to reduce the risk of SIDS. Are most Docs in Australia advising to do this? We here in the U.S. also have many Docs that feel it is only cosmetic, and that it will round out. I think the reality may lie somewhere in the middle about the round out theory- my friend's son has severe brachy, and although it has rounded out some, its only to the point that its less shocking than it was, and he is turning 3 in May. In our situation, we felt that the facial asymmetry was the real need for banding, the flatness was not as bad as the misaligned ears and facial asymmetry (although it was the cause). Good luck finding answers, please use this Board for any questions you may have, there are literally hundreds of people here willing to help you, and with so many members you will find great resources! ' Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 Welcome to the group ! I see Debbie found the Aussie info I was unable to locate! I see you also got a lot of great repositioning links. A lot of members have had obstacles on the way to treatment. Plagio isn't just a cosmetic issue. It is believed to result in TMJ and migraines, etc. My son had a lot of facial and ear asymmetry. I think if you have eyes at different levels that can easily result in vision issues. Also my son was riddled with ear infections until his ears realigned. Getting the medical community to recognize this is rather challenging! Anyhow, basically I wanted to say welcome to the group! Dane's mom DOC Grad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 Hi I'm new to the group and I'm also from Australia (Canberra). Are there any other aussies out there?? My son Ethan (now almost 2) had a torticollis and a severe flattening on one side of his head. I wasn't able to get much information or advice at the time I needed it (I wish I'd known about this group!). After waiting 3 months to see a pediatrician he told us it was just cosmetic and would round out with time. We asked about helmets (heard about this from a physiotherapist I saw) and he said he'd never heard of such a thing and fobbed it off as completely unneccesary. With very little information and faced with a 3 month wait to see another pediatrician for a second opinion, we just followed the advice of the physiotherapist (who was very helpful - lots of tummy time, excercises etc). So, my experience with doctors sounds similar to yours! With the tummy time and excercises and as he became more mobile, Ethan's torticollis became less severe and now its barely noticeable. His head shape has improved dramatically and you can't really notice it unless you look down from the top of his head when his hair is wet. Its amazing how much it has improved because the flattening was very severe at 3 months - it looked completely weird! I've found an osteopath in Canberra who specialises in cranio-facial problems and we've had further improvement after some sessions with him. I think there are still some residual problems from the torticollis that we are keeping an eye on but there are no apparent developmental delays and the head shape looks pretty good. Love to hear from you or any others in Oz. Things seemed to have worked out OK in our case but I'm concerned about the lack of awareness of this problem in Australia! cheers (Canberra, Australia) > Hi, I just wanted to introduce myself and tell you about my son. Were > from australia. My son Blake is a plagio baby. He has flattening on > the side on head (right side). Right left side of the back of his > head and bossing on the front right side of his forehead. > > I have taken him to 2 family drs and a ped here in Australia. (I'm > orginally from the US. So a bit confused on how things work here) > They have all told me not to worry about his head shape it will > straigthen out on it's own. I have made a appointment for a cranio > specailist for the 6th of march. So hopefully I will get the > ansewers I want from there. All the drs I have spoken to told me to > let him sleep any way he wants and not do ANYTHING. I have kept him > off that side of his head. It hasn't gotten worse. I actually think > it looks a little better. > > I find that drs here don't want to use a helment, and I have a friend > in New Zealand, her sons head was quite bad and they told her the > same. His turned out great without any treatment. Just confused on > why in the US everyone seems to get a helment to straighten out even > of the most minor cases and here they tell you not to worry. That's > why I'm worried. I'm confused on whos right and wrong. Just want to > do the right thing. > > Sorry it's so long, just hoping maybe someone can help me with what > to do? > I have looked at some of your pictures in the (photos) find some look > like Blakes and some don't look quite so bad. No one tends to look > bad to me, does that make sense? like you don't pay too much > attention to someone elses, but you worry about your own childs head > shape? Being a mom is hard. lol to say the least. > > Ok, thanks for reading and any help. > mommy to nathan Tyler 8/2/00 and Blake 9/20/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2003 Report Share Posted April 18, 2003 > Hi All > Being new to the idea of chelation therapy,( have known about Mercury in > seafood/amalgam fillings etc for a while) would appreciate all advice, re > how to go about chelating etc etc etc. You can start with my general overview page, if you want http://www.danasview.net/chelate.htm Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2003 Report Share Posted April 18, 2003 > Hi All > Being new to the idea of chelation therapy,( have known about Mercury in > seafood/amalgam fillings etc for a while) would appreciate all advice, re > how to go about chelating etc etc etc. I'd suggest that you look at the files here: /files/ Poke around and see what is interesting. Oh, okay, here are a few to look at: /files/Mercury-Autism%20FAQ /files/ANDY_INDEX /files/HOW_TO_buy_DMSA /files/HOW_TO_find_doctor /files/Andy_dose_sched /files/Andy_protocol /files/Glossary /files/Books_about_autism /files/HOW_TO_hair_test best, Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2003 Report Share Posted April 19, 2003 hi julie, nice to see that you found your way here. merlin aka geraldine from tas. Message: 1 Date: Fri, 18 Apr 2003 20:10:13 +1000 From: " Livesey's " <couzensfamily@...> Subject: newbie Hi All Being new to the idea of chelation therapy,( have known about Mercury in seafood/amalgam fillings etc for a while) would appreciate all advice, re how to go about chelating etc etc etc. (anyone in the group live in Australia??) It seems chelation is not well known here (in regional Australia anyway) __________________________________________________________________ Try AOL and get 1045 hours FREE for 45 days! http://free.aol.com/tryaolfree/index.adp?375380 Get AOL Instant Messenger 5.1 for FREE! Download Now! http://aim.aol.com/aimnew/Aim/register.adp?promo=380455 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2003 Report Share Posted April 22, 2003 Dear Paige, You're going to be hearing from LOTS of people, but for starters please go to the rhumatic.org site: http://www.rheumatic.org/ and click on " medical histories. " Also, I am pasting in here a story that recently came through--gosh, I don't think it has been more than a couple of weeks ago. This following story will inspire and encourage you, I guarantee it. Good luck. Ellen McCool Debbie, Sero-Negative Rheumatoid Arthritis I feel incredibly privileged to be able to post my story on this website. When you can't bend your knees, make a fist with your hand, open a bottle of milk or play with your toddler, you need to hear some good news stories. I hope that my story in some small way gives people who are suffering from rheumatic diseases some much-needed hope. I know that the patient histories I read when I first came across the antibiotic protocol (AP) gave me a great sense of optimism at a time when I was incredibly despairing and uncertain of my future. So, here goes: I am 30 years old, from Melbourne, Australia, with an 18-month-old son. In August last year, whilst on holidays with my family and a couple of friends, I started to feel some pain in my groin area, which was preventing me from getting a good night's sleep. It went away after a couple of weeks and I forgot about it. A few months later, in October, just before my son's first birthday, my whole body started to ache. I am a pretty intense person who needs to keep busy and at the time I was really pushing myself - looking after my toddler, doing a few hours of postgraduate university study each week, as well as some freelance writing work here and there, playing tennis, doing the mothers' group thing and undertaking lots of other activities with my little boy. With uni exams looming, I was lucky to be getting 4 - 5 hours sleep a night. The day after 's birthday, my body suddenly seemed to pack up. I could barely squeeze toothpaste out of the tube and changing 's nappy (sorry ... diaper for all of the Americans reading this post!) was a real struggle. It hurt to hold a pen and write. I went to a GP (not my regular doc) who sent me off for some blood tests and told me to come back in a week. In the meantime, she prescribed some Celebrex. That week was hellish and I couldn't wait for my next appointment, to get some answers. Unfortunately I didn't get any. She didn't know what was going on, told me to keep up the Celebrex and said to come back in six weeks if I was still feeling sore. Five days later I went to see my regular GP. She was extremely distressed to see what a bad state I was in and ran a host of blood tests. She told me she hoped it was viral and got me an immediate appointment with a local rheumy. For the next month, I was in limbo, with constant blood tests and doctor's appointments. I was feeling increasingly despairing and depressed. I was up to about 400 mg a day of Celebrex by this stage and it wasn't helping a bit. Finally I was told that I had a form of arthritis - most probably sero-negative rheumatoid arthritis. My GP and rheumy wanted me to go on prednisilone immediately to 'turn off the tap' of inflammation, with a view to starting a disease-modifying drug, possibly methotrexate, soon after. I was horrified and asked about side-effects. The rheumy seemed to resent my questions and basically washed her hands of me when I said I didn't want to take the cortisone. She told me that the " problem " with people my age was that we thought we were invincible and that the worst thing that could happen to us was a cold or flu. She told me that I had a chronic health condition that was going to impact on my quality of life and that I would have a shorter life expectancy because I wouldn't be able to do any physical activity, leaving me vulnerable to a heart attack. I burst into tears and she kept talking all the while in this really detached voice, as though I wasn't even there! I felt like my life was over. With the support of my wonderful husband, family and some great friends, I started to look at alternatives. I saw a naturopath who got me off sugar, caffeine and alcohol and a few other things, and started drinking lots of water (previously, I would go a whole day without drinking any water - horrifying when I think about it now!). Although I could see a few minor improvements, I was still in a lot of pain and started to worry about doing long-term damage to my joints. At this time, I had massive nodules on my hands and my feet were extremely swollen. I didn't have much movement in my knees. A few days before Christmas I saw my grandmother's GP for a second opinion and fresh advice - she said he was pretty open-minded and might be able to suggest some other approach to my condition. Unfortunately he said he thought very highly of my rheumy and that if she had suggested cortisone and DMARDs that she wouldn't be doing so lightly. He said if I didn't take her advice, I could potentially end up crippled. I felt as though I was on the verge of a panic attack and felt that I was going to have to go down a path I hadn't wanted to take. That night my husband went Christmas shopping. The stores were open 24 hours and he didn't come home until around midnight. The next day he told me that he had been at Borders book store reading up on arthritic drugs and that he didn't want me to go down that path - he was scared of the side-effects they would have on me. On Christmas Eve he spent hours surfing the Internet and came across the Road Back site and rheumatic.org. Finally we had some hope! I was in tears as I read some of the stories and we couldn't wait to get our hands on Henry Scammell's book. We posted to the Road Back bulletin board and to Adlard and immediately had responses from three fellow Aussies. They were so encouraging and positive about the prospects of AP working for me and recommended a doctor. By late January we had an appointment with the AP doctor and a few weeks later I saw the naturopath she works closely with in Melbourne. My AP doctor believes that diet is an intrinsic part of antibiotic therapy. She warned me that unless I was prepared to make comprehensive lifestyle changes, she couldn't help me. In early February, I made some pretty radical changes to my diet - no wheat, no dairy, no products high in sulphur, no pork, and lots and lots of water. I also had to cut out salicylates for a month, and stay off sugar, caffeine and alcohol. At first I felt pretty down about it all ... what was left for me to eat?!!! I got over this pretty quickly, however, when after 10 days of cutting out the wheat and dairy the nodules on my hands completely disappeared and the swelling of my feet drastically reduced. I also started to get some movement back in my knees. At this time I also started a homeopathic combination - 15 drops twice a day before meals. On 17 February, I finally started the antibiotics! First up was erythromycin - 5 ml on Monday and Thursday mornings. Two weeks later, I added doxycycline (Vibratabs) - 50 mg on Monday and Thursday evenings. Since then I haven't looked back! I am completely pain-free and symptom-free, except for some slight swelling in my left ankle for the first few weeks I was taking the Vibratabs. Yesterday I saw my AP doctor and naturopath and they are thrilled with my progress. All signs point to remission!!! I have more energy now than I have ever had - I can roll around on the floor with my son, wear high heel shoes and am enjoying life more than ever before! With my doctor's support and encouragement I have also started a new job, working two days per week. My mother and a close girlfriend recently told me that I look 23 years old! At my initial appointment with my AP doctor she said I would have to wait at least 12 months on AP before I could consider having another child. Yesterday she told me that I could consider pregnancy in six months, if I felt I was ready! I feel on top of the world. Now that I am feeling so great, some friends are asking me if I am going to stop the antibiotics or ease up on the diet. My answer is NO WAY!!! I have learnt enough from this website and other books to know that I have a lifelong health condition, and it would be stupid of me to become complacent. Thanks to the pioneering work of Dr Brown and other enlightened health professionals, I am able to keep this disease under control with antibiotics. I know that all medications have side-effects, but I am happy to live with what I consider to be minimal or 'safe' side-effects of AP, particularly when I consider the side-effects of the drugs that my rheumy was pushing. I hope my story gives others out there some hope. I know that I would not have gotten through this without all of the wonderful people out there, who are so generous in sharing their experiences on the various AP websites. I know that I have been very fortunate and that not everyone will have the instant results that I have had with AP. However, please stick with it and retain your hope - there are many people who were sick for decades before coming across AP and many have had significant improvements. Good health to all of you. Debbie. You can reach me at d.fewster@... rheumatic newbie > Hi all, > > I'm a new member here, have been lurking for a couple of weeks and > thought I'd speak up and say hi. I'm 35, newly diagnosed with RA. I've > had joint pain, slowly increasing with severity, for the past 18 years. > I've been trying to find out why for about as long, and have been told > that its stress, depression, anxiety, repetative motion disorder, and my > personal favorite, gee I don't know, lets just try this and see if it > helps! I have little redness or swelling, all tests have come back > negative except for a positive rheum. factor. Several months ago I > started seeing an acupuncturist who recommended the book The Arthritis > Breakthrough and a local doctor who believes in the minocin protocol. > I'm getting ready to start on my minocin in the next few days. > > If you will be so kind as to indulge me, I have a few questions. First > of all, what is the difference between rheumatoid and reactive > arthritis? My doc, as well as other info sources, refer to my arthritis > as both, but I've seen on the list that some people refer to them as > separate conditions. And I'm having trouble figuring out some of the > acronyms used here: AP=antibiotic protocol? Lots of names of meds I've > never heard of, have no idea what they do, but I guess I'll keep reading > along and see what I can learn! Someone asked about Rheumax - is that > the same as RheumaPlus? I've been taking that - seems to be helping a > little. I'm taking a whole cocktail of herbal supplements, but no other > drugs besides the mino. > > I feel fortunate in that it seems I may have caught the RA early enough > to actually do something about it... cure it? So, here's my next > question: has anyone here, or does anyone know of someone, who has > actually been CURED by antibiotics? I'm hopeful, but I'm a skeptic by > nature. > > Thanks much, and I look forward to learning from everyone here, and I > hope I can contribute in a positive way to your health as well! > > Blessings, > Paige > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
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