Re: other possible problems with gleevic

[Guest guest]

no Mel I have not heard of that but maybe someone else has.

I was only Gleevec for 9 months tho.

did you have any symptoms?

Sharon T

_____

From: [mailto: ] On Behalf Of MEL

SWERLEIN

Sent: Friday, May 28, 2010 3:24 PM

Subject: [ ] other possible problems with gleevic

hi all i had my testing at the Cleveland clinic and am still waiting for

some results...however, a tumor was found behind my right eye. does anyone

know at this point...could this be gleevec related? has anyone had a

similar diagnosis? it will be a couple of weeks before i actually get to

see the team. thanks to all

MEL SWERLEIN

[Guest guest]

Hi Mel: I never heard of anyone getting this from Gleevec, but I do know people

who have had a tumor behind the eye. Once it was removed they were fine.

Praying you do well with the final results, and please let us know how you are

doing.

A.

>

> hi all   i had my testing at the Cleveland clinic and am still waiting for

some results...however,  a tumor was found behind my right eye.  does anyone

know at this point...could this be gleevec related?  has anyone had a similar

diagnosis?  it will be a couple of weeks before i actually get to see the team. 

thanks to all

>  

> MEL SWERLEIN

>

>

>

>

>

[Guest guest]

I in seven years I have never heard of tumors being caused by CML or Gleevec. I

will be praying for good results on your tests.

H.

>

> hi all   i had my testing at the Cleveland clinic and am still waiting for

some results...however,  a tumor was found behind my right eye.  does anyone

know at this point...could this be gleevec related?  has anyone had a similar

diagnosis?  it will be a couple of weeks before i actually get to see the team. 

thanks to all

>  

> MEL SWERLEIN

>

>

>

>

>

[Guest guest]

Hi All.

I haven't heard of people getting a tumor behind the eye as a result of taking

Gleevec. I do know eyebleed is a side effect. The strange thing is that my

daughter, Robyn, who has been in total remission since October started having

eyebleeds often in one eye. Each lasted for 10 days. Now she has eyebleed in

the other eye, and it seems to be lasting longer. I find it odd that this side

effect waited until after she was taking Gleevec for a little over a year. Has

anyone found this to be the case?

> >

> > hi all   i had my testing at the Cleveland clinic and am still waiting for

some results...however,  a tumor was found behind my right eye.  does anyone

know at this point...could this be gleevec related?  has anyone had a similar

diagnosis?  it will be a couple of weeks before i actually get to see the team. 

thanks to all

> >  

> > MEL SWERLEIN

> >

> >

> >

> >

> >

[Guest guest]

I have been getting eye bleeds over the many years of taking Gleevec. They seem

to run in spurts in my case. I can get a few in a short period of time, and

then not again for months to a year. I have heard of swelling behind the eye

with Gleevec, but not any tumors. You can always get in touch with Dr. Druker

and ask him if there is any data on it.

On May 29, 2010, at 3:56 PM, Sandy wrote:

> Hi All.

> I haven't heard of people getting a tumor behind the eye as a result of taking

Gleevec. I do know eyebleed is a side effect. The strange thing is that my

daughter, Robyn, who has been in total remission since October started having

eyebleeds often in one eye. Each lasted for 10 days. Now she has eyebleed in the

other eye, and it seems to be lasting longer. I find it odd that this side

effect waited until after she was taking Gleevec for a little over a year. Has

anyone found this to be the case?

>

> --

[Guest guest]

Hi Sandy:  I was on Gleevec for 8 years before I got my first eyebleed, and

then I got another one only 6 or 7 months later. Now I have not had one in over

a year.  I do not think they can say why we get them, or how often.  Some

people have never gotten them at all.

Thats the thing with Gleevec.  There are so many different side effects, but

not everyone gets the same ones.

From: Sandy <sandi3533@...>

Subject: [ ] Re: other possible problems with gleevic

Date: Saturday, May 29, 2010, 3:56 PM

 

Hi All.

I haven't heard of people getting a tumor behind the eye as a result of taking

Gleevec. I do know eyebleed is a side effect. The strange thing is that my

daughter, Robyn, who has been in total remission since October started having

eyebleeds often in one eye. Each lasted for 10 days. Now she has eyebleed in the

other eye, and it seems to be lasting longer. I find it odd that this side

effect waited until after she was taking Gleevec for a little over a year. Has

anyone found this to be the case?

> >

> > hi all   i had my testing at the Cleveland clinic and am still waiting for

some results...however,  a tumor was found behind my right eye.  does anyone

know at this point...could this be gleevec related?  has anyone had a similar

diagnosis?  it will be a couple of weeks before i actually get to see the

team.  thanks to all

> >  

> > MEL SWERLEIN

> >

> >

> >

> >

> >

[Guest guest]

Hi Mel,

Sorry to hear about the tumour. Do you know what type of tumour it is?

I'm not aware of any type of tumour that would be related to Gleevec use but

there is a type of tumour that can be caused by CML. It's called a chloroma and

it's a very specific type of tumour which is made up of CML cells. Here is a

brief description of it:

http://tinyurl.com/2d47uam

Best of luck,

Tracey

>

> hi all   i had my testing at the Cleveland clinic and am still waiting for

some results...however,  a tumor was found behind my right eye.  does anyone

know at this point...could this be gleevec related?  has anyone had a similar

diagnosis?  it will be a couple of weeks before i actually get to see the team. 

thanks to all

>  

> MEL SWERLEIN

>

>

>

>

>

[Guest guest]

Mel,

I have been on Gleevec for two years and a few months and have not heard of

this.  Anyone else??

Jo-Dee

From: MEL SWERLEIN <mswerlein@...>

Subject: [ ] other possible problems with gleevic

Date: Friday, May 28, 2010, 6:23 PM

 

hi all   i had my testing at the Cleveland clinic and am still waiting

for some results...however,  a tumor was found behind my right eye.  does

anyone know at this point...could this be gleevec related?  has anyone had a

similar diagnosis?  it will be a couple of weeks before i actually get to see

the team.  thanks to all

 

MEL SWERLEIN