Jackie Schneider

[Guest guest]

I spoke to Jackie tonight and she is very upbeat. She understands what she is

facing and is ready to start her battle with Lukie. I am hoping to be able to

see her next week. I will be leaving to go to MDACC to start the tests to see

if I am eligible for this trial.

Please hold all my emails until I return. I'll check in when I get back, but if

I get in, I will be making the trip to Houston every week for a while and then

once a month. I am so weary of this, getting off one trial to get into another.

It's like a vicious cycle.

Here is the information about the DCC 2036 trial:

http://clinicaltrials.gov/ct2/show/NCT00827138

Here is the information about the Ariad trial:

http://www.ariad.com/wt/tertiarypage/AP24534

FYI,

Lottie Duthu

[Guest guest]

Hi - Jackie has a Care Page through MD . You have to register with

them to be able to see her page. You can find the main website here:

http://www.carepages.com/

Pat in Phoenix

> Hi Lottie,

> I asked Jackie if she has a CaringBridge page and she wrote that she did, with

just her name.....but I cannot figure out how to find it?

> Do you know or can you figure it out.....or maybe someone else knows how to

find her page and can post the full link to it.

>

> I would like to follow her progress and send her some support.

> C.

>

[Guest guest]

thanks , I went there, found a Jack Schneider, that is all.    Will work

on that tomorrow.  Bobby

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

From: hey00nanc <ncogan@...>

Subject: [ ] Re: Jackie Schneider

Date: Monday, September 13, 2010, 12:31 AM

>

> Hi - Jackie has a Care Page through MD . You have to

register with them to be able to see her page. You can find the main website

here:

> http://www.carepages.com/

>

> Pat in Phoenix

-----------------------------

Thanks for this info Pat.

I did get signed up, but still could not find a page for Jackie?

but I have an old and slow computer, and usually either it or I give up when

there are too many things to try.

in Eugene, OR

home of the DUCKS

[Guest guest]

Yes Lottie, please tell her that I am praying for her and to keep her great

attitude.  She is a very encouraging person to others who are struggling with

decisions and treatments.

From: Lottie Duthu <lotajam@...>

Subject: [ ] Jackie Schneider

" CML " < >

Date: Saturday, September 25, 2010, 11:23 PM

 

I have an email from Jackie Schneider. She is having trouble with her vision.

The chemo caused her to have blurry vision. She also lost her taste buds, so she

doesn't feel like eating anything. When I hear anything, I will post it, but she

hasn't had the transplant just yet. She is still maintaining her good and

positive attitude. Can I tell her if you are praying for her? I will list your

names to her, I know she would like that from the group, so I can forward your

good wishes if you so desire.

FYI,

Lottie Duthu

[Guest guest]

Sure thing, Lottie, I pray for all my CML friends around the world every night,

but the BMTers top the prayer list. bobby

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

From: Lottie Duthu <lotajam@...>

Subject: [ ] Jackie Schneider

" CML " < >

Date: Saturday, September 25, 2010, 11:23 PM

 

I have an email from Jackie Schneider. She is having trouble with her

vision. The chemo caused her to have blurry vision. She also lost her taste

buds, so she doesn't feel like eating anything. When I hear anything, I will

post it, but she hasn't had the transplant just yet. She is still maintaining

her good and positive attitude. Can I tell her if you are praying for her? I

will list your names to her, I know she would like that from the group, so I can

forward your good wishes if you so desire.

FYI,

Lottie Duthu

[Guest guest]

I cannot seem to connect to Jackie's site either Lottie, must be my lack of

knowledge???

To me it seems like such a short time that she started chemo, hard to believe

she has already been transplanted.  I'm sure it's like a life time to her

though, she is a very brave and courageous woman. Bobby

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

From: Lottie Duthu <lotajam@...>

Subject: [ ] Jackie Schneider

" CML " < >

Date: Saturday, September 25, 2010, 11:23 PM

 

I have an email from Jackie Schneider. She is having trouble with her vision.

The chemo caused her to have blurry vision. She also lost her taste buds, so

she doesn't feel like eating anything. When I hear anything, I will post it,

but she hasn't had the transplant just yet. She is still maintaining her good

and positive attitude. Can I tell her if you are praying for her? I will list

your names to her, I know she would like that from the group, so I can forward

your good wishes if you so desire.

FYI,

Lottie Duthu