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Hi:

I had a long-time recurring athletes foot problem. It got cured with VCO in a

week. I applied liberal amount on it morning and evening. As maintenance, I

apply VCO on my feet 1 to 2 times a week in the morning before I wear shoes.

This problem completely gone for more than 2 years now.

Tony

Krtil <ckrtil@...> wrote:

Sounds like systemic candida, which needs major

dietary changes to heal.

--- honjanokyca <nighniesroc@...> wrote:

> hello all,

>

> i have had athlete's foot for 5 months now. i've

> tried several

> things even going to the doctor but nothing has

> worked. i was wanting

> to hear from anyone who has had athlete's foot and

> has used coconut oil

> to cure this. thank you so so much

>

>

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I make sure after washing my feet or shower that I use a hair dryer to

make sure they are really dry,esp during the 'season' of summer. BUT

not too hot as this makes your feet sweat again. So Low heat about a

400mm away so that its just above body temp. then VCO,but only a small

amount. But thats if there are signs of a problem.For 9 months of the

year,no problem,but if i dont dry them properly during the humidity,Im

in serious trouble. I wear sandals as much as possible as well.

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  • 2 weeks later...

, Is it possible that you need a fill? Also, remember, plateaus are very normal. All of us have them multiple times. Some will last longer than others. Since you have lost so much already, your body may have grown accustomed to the new eating habits you have established as well as the routine exercise you do. If you haven't already done it, perhaps it is time to re-evalute those areas too to sort of "trick" your body into that weight loss mode again. Cut back on what you are eating and crank up your exercise to a more stringent level. We constantly have to increase our exercise if we want to get more out of it. I don't know if all of this will work but this is basically what I find that I have to do. Jenni del Bosque <SDelBosque@...> wrote: I am very proud of myself, I have lost 104lbs in 10 months, but I have been plateaued for a month, what am I doing wrong? I don't eat that much, I watch my calories and I excersise. Any suggestions? Please help! delBosqueDOB 12/28/2006300/196/160 __________________________________________________

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OMG you are cruisin on your weight loss! Wow you have lost

104 lbs in 10months and I see that you are in onederland!!! I am so

freakin excited for you, and congrats on your accomplishment!!!. It

almost seems like a record!! :-) Give your body some time to adjust,

it is probably totally readjusting. Someone told me that when you

loose that much weight that even your organs have to reposition to

where to were supposed to be. I am just so proud of you, I cant

believe it!! :-)

I was just on a 4 week plateau, and I was so frustrated. I was

working out really super hard and watching what I was eating. And

finally my body gave way of pounds after not loosing for a month. It

was so frustrating! But I was loosing inches, because my clothes are

all huge on me. And then boom, I lost 10lbs. So, hang in there your

body will release again!! :-) Just keep watching those cals and

working out. I even took a week off of working out and I still

lost. I was talking to a jenny Craig consultant (one of my clients)

and she said that you have to do something to " shock " the body. and

for me after working out like a maniac, I think not working out for a

week shocked my body.? I dont know what else to tell you, because I

Just went through it myself and I was banging my head on the wall

trying to figure out when I would loose again!!!! But I eventually

did.

Do you have recent pics of you, cuz I want some pics!! :-)

take care and keep us posted, especially if you find any new secrets

about breaking plateaus!! :-)

hugs,

And again, I am so proud of you!!! :-)

>

> I am very proud of myself, I have lost 104lbs in 10 months, but I

have

> been plateaued for a month, what am I doing wrong? I don't eat that

> much, I watch my calories and I exercise. Any suggestions? Please

> help!

> del Bosque

> DOB 12/28/2006

> 300/196/160

>

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Thank you so much your words, brought me to tears! It is nice to know

you have people behind you to lift you up! I will take some pics and

get them posted. Are you going to the Seattle Bash? I would love to

meet some of these people like you! Thanks again andrea

Hugs,

> >

> > I am very proud of myself, I have lost 104lbs in 10 months, but I

> have

> > been plateaued for a month, what am I doing wrong? I don't eat

that

> > much, I watch my calories and I exercise. Any suggestions? Please

> > help!

> > del Bosque

> > DOB 12/28/2006

> > 300/196/160

> >

>

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Thank you Jenni it is nice to get your words of wisdom! I can't wait

to see you again. Keep your kind words coming!

> I am very proud of myself, I have lost 104lbs in 10

months, but I have

> been plateaued for a month, what am I doing wrong? I don't eat that

> much, I watch my calories and I excersise. Any suggestions? Please

> help!

> delBosque

> DOB 12/28/2006

> 300/196/160

>

>

>

>

>

> __________________________________________________

>

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HI . :-) I would love to go the bash this year. I missed it

last year. I did get a fill at the bash fill special and I got to

see Nina and some of the other bandsters. It was so great to see

them! and it is really amazing how much Nina is like family. When I

saw her it was like I had known her forever. That is what the Dr. A

family is like, they are like family in my eyes!! :-) So, this year

I would really love to go!! :-)

hugs,

> > >

> > > I am very proud of myself, I have lost 104lbs in 10 months, but

I

> > have

> > > been plateaued for a month, what am I doing wrong? I don't eat

> that

> > > much, I watch my calories and I exercise. Any suggestions?

Please

> > > help!

> > > del Bosque

> > > DOB 12/28/2006

> > > 300/196/160

> > >

> >

>

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HOW ABOUT SEND US ALL YOUR FOOD INTAKE WAHT ARE YOU DOING THIS IS GREAT...

SEND US YOUR DAILY FOOD INTAKE . WOULD BE GREAT TO TRACK EVEYONE TRYING THE SAME THING.

JO

JVC World Associates, LLC

828 Thistle Drive,

Spring Creek

Nevada 89815-USA

Telephone:540-322-3076

Fax: Worldwide 253-269-7122

Middle East Offices:

Telephone: +1-962-7-9571-8391

Telephone: +1-962-7-9646-7461

Quality Services - Quality Results

From: SDelBosque@...Date: Fri, 19 Oct 2007 17:48:18 +0000Subject: Re: HELP!!

Thank you so much your words, brought me to tears! It is nice to know you have people behind you to lift you up! I will take some pics and get them posted. Are you going to the Seattle Bash? I would love to meet some of these people like you! Thanks again andreaHugs, > >> > I am very proud of myself, I have lost 104lbs in 10 months, but I > have > > been plateaued for a month, what am I doing wrong? I don't eat that > > much, I watch my calories and I exercise. Any suggestions? Please > > help!> > del Bosque> > DOB 12/28/2006> > 300/196/160> >> Climb to the top of the charts!  Play Star Shuffle:  the word scramble challenge with star power. Play Now!

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  • 1 month later...

>

> what can i do too get my kid out of a crappy classroom!! if that is

the only

> as support class?? all advice needed and appreciated!

You can pull him out and homeschool him. I homeschool all four of my

kids.

Or, call an IEP meeting.

Dana

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  • 3 weeks later...

zicam seems to work for me..i use different ones..cold and flue, sinus...they have a variety now. but it does help me anytime i feel anything coming on..i chug some...good luck

Help!!

I need advise and help.... surgery scheduled for Jan 7th and woke up monday with a chest cold! I have been od'ing on Vit C and Zinc and really don't feel that bad but do have a heck of a barking cough! anyone had a cold before surgery? My plane tickets are bought and can't really just reschedule?Thanks for any ideas or help!Tracie

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Don't take any aspirin type products. Call at the office and see what she says.On Jan 2, 2008 11:50 AM, Tracie <tcboots@...> wrote:

I need advise and help.... surgery scheduled for Jan 7th and woke up

monday with a chest cold! I have been od'ing on Vit C and Zinc and

really don't feel that bad but do have a heck of a barking cough!

anyone had a cold before surgery? My plane tickets are bought and can't

really just reschedule?

Thanks for any ideas or help!

Tracie

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Tracie,

Id call or email Nina to make sure whatever you take is ok as far as being in your system before surgery. Just to be on safe side.

Best of luck on your surgery!!

DOB

8/1/07

207/164/130

[Dr-Aceves-bandster s] Help!!

I need advise and help.... surgery scheduled for Jan 7th and woke up monday with a chest cold! I have been od'ing on Vit C and Zinc and really don't feel that bad but do have a heck of a barking cough! anyone had a cold before surgery? My plane tickets are bought and can't really just reschedule?Thanks for any ideas or help!Tracie

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  • 7 months later...
Guest guest

Heidi, that is really scary, especially the hallucinations. I think

maybe you should go to the ER, just to be on the safe side.

Sue

On Monday, August 4, 2008, at 08:04 PM, Heidi Mendelsohn wrote:

> I woke up this morning so sick I could barely raise my head. I stayed

> in bed

> most of the day as I am too weak to move much. I have taken my meds as

> ordered with the exception I took a Vicodan this afternoon. I usually

> just

> take 2 in the morning, Anyway, I am dizzy, sweating, ( no chest pain

> or arm

> pain) But I have been having what I would call hallucinations things

> like I

> feel like I am part of the story on TV and I end up talking to it (

> weird

> huh)

> Anyway my DH is freaking out, anybody got any suggestions? I don't

> want to

> go to ER. My head is real fuzzy ( fog) but worse than I have had it in

> a

> while,

> So whats the consensus ? anybody have this happen and if so what do

> you do

> for it.I am kinda afraid to go to sleep.

> Any advice will be appreciated..

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Guest guest

Oh so sorry, dear Heidi,

Look I do really think you should go yo the emergency room URGENTLY and get

checked out. It sounds like some acute brain inflammation, kind of encephalitis

type picture?? A bit like can happen in Lyme disease rarely. It might be the

autoimmune process flaring, viral ,like herpes simplex or a drug effect or

interaction. Are you on a biologic? The hallucinations particularly should be

taken as sign of brain irritation unless proven otherwise

Think you were the one with another frightening symptom about a week back

suggesting nerve inflammation. Do PLEASE get checked out and get better.

Kind thoughts are with you and your caring husband,

retired doc,UK

From: Heidi Mendelsohn <hmendelsohn@...>

Subject: [ ] HELP!!

" fibromyalgia-cfs " <Fibromyalgia-cfs >, " " <RA-

 

 

 

 

 

 

Date: Tuesday, 5 August, 2008, 1:04 AM

I woke up this morning so sick I could barely raise my head. I stayed in bed

most of the day as I am too weak to move much. I have taken my meds as

ordered with the exception I took a Vicodan this afternoon. I usually just

take 2 in the morning, Anyway, I am dizzy, sweating, ( no chest pain or arm

pain) But I have been having what I would call hallucinations things like I

feel like I am part of the story on TV and I end up talking to it ( weird

huh)

Anyway my DH is freaking out, anybody got any suggestions? I don't want to

go to ER. My head is real fuzzy ( fog) but worse than I have had it in a

while,

So whats the consensus ? anybody have this happen and if so what do you do

for it.I am kinda afraid to go to sleep.

Any advice will be appreciated. .

Heidi M

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Guest guest

Heidi,

I know you don't want to go to the ER however you NEED TO SEEK MEDICAL ATTENTION

whether it be calling one of your doctors or the ER.

PLEASE- AT LEAST- CALL someone.

*~ Kami ~*

[ ] HELP!!

I woke up this morning so sick I could barely raise my head. I stayed in bed

most of the day as I am too weak to move much. I have taken my meds as

ordered with the exception I took a Vicodan this afternoon. I usually just

take 2 in the morning, Anyway, I am dizzy, sweating, ( no chest pain or arm

pain) But I have been having what I would call hallucinations things like I

feel like I am part of the story on TV and I end up talking to it ( weird

huh)

Anyway my DH is freaking out, anybody got any suggestions? I don't want to

go to ER. My head is real fuzzy ( fog) but worse than I have had it in a

while,

So whats the consensus ? anybody have this happen and if so what do you do

for it.I am kinda afraid to go to sleep.

Any advice will be appreciated..

Heidi M

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Guest guest

Heidi,

I am concerned about you. Please keep us posted on what is going on.

It does sound like you really need to get checked out asap.

Shirley

> On Monday, August 4, 2008, at 08:04 PM, Heidi Mendelsohn wrote:

>

> > I woke up this morning so sick I could barely raise my head. I

stayed

> > in bed

> > most of the day as I am too weak to move much. I have taken my

meds as

> > ordered with the exception I took a Vicodan this afternoon. I

usually

> > just

> > take 2 in the morning, Anyway, I am dizzy, sweating, ( no chest

pain

> > or arm

> > pain) But I have been having what I would call hallucinations

things

> > like I

> > feel like I am part of the story on TV and I end up talking to

it (

> > weird

> > huh)

> > Anyway my DH is freaking out, anybody got any suggestions? I

don't

> > want to

> > go to ER. My head is real fuzzy ( fog) but worse than I have had

it in

> > a

> > while,

> > So whats the consensus ? anybody have this happen and if so

what do

> > you do

> > for it.I am kinda afraid to go to sleep.

> > Any advice will be appreciated..

>

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  • 2 weeks later...

out. #1. Can they tell from one ultrasound that she will die?

> #2. Is is better to do a c-section or natural birth

> #3. Sould I be looking for a different doctor.

> #4. Is there any test or things that I sould be doing in order to be

> more prepared or educated. Thank you for your time.

>

#1?I do not think they can tell if your baby is going to die, just by?looking at

one ultrasound.??Sounds like they really didn't know anything at first, then you

say they think it will be dwarf.????I would not give up hope!!!? They may just

be looking at a healthy dwarf baby!!!? I know a couple who was told their baby

would be double dominant and not survive ...Today, she is a successful high

school student....

#2 If you are a little person (?) you would probably need to have a

C-section....

#3)? I would definitely refer to the websites that were mentioned in the prior

e-mails...I'm sure you will find some very helpful information...If your doctor

is willing to share your history?he has on you and your baby, with an LP

specialist, that would be good too!!

Good Luck!

Carole

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  • 7 months later...
Guest guest

>

> Hi there

>

> I am 24 and the beginning of this year I have had overwhelming sugar cravings

and have gained a huge amount of weight from succumbing to it. At first I

thought I was just indulging as I reintroduced sugar into my system as I went

sugar and wheat free for all of last year as a means of losing weight. However

in the last 6 weeks these cravings have become more intense.. sometimes I feel

like a drug addict needing a hit. It's ridiculous.

Hi Jess. Welcome to our group. Your cravings are very common for all candida

sufferers, since candida feeds off of sugars/carbs which makes you crave them.

We all understand what you are going through.

<snip>

> Anyhow up until the beginning of this year I was really fit (going to the gym

nearly every day) and felt great. Now I am constantly tired (I can barely get

out of bed), I get muscle cramps, My joints ache, I have acne (which I didn't

even have as a teenager), itchy feet and skin (like I have bugs crawling

underneath my skin), terrible night sweats, gas, bloating... the list of my

symptoms goes on. I can pretty much tick off nearly every one on the Candida

checklist. But worst of all I am severely depressed and for no reason. I feel

like I don't want to leave my room and have even had suicidal thoughts. I really

need to get out of this dark hole that I'm in.

+++You can get out of the dark hole you are in by doing my candida program (diet

plus supplements), which provide your body with what it needs to build up your

immune system, which is he only way candida is cured.

>

> I had never heard of Candida before and only came passed it a few days ago

when I started researching my symptoms. I have blood tests booked in a couple

days to check other possibilities but from all my research this Candida thing

seems the most likely culprit.

+++There are no tests that can confirm the presence of candida - see this

article: http://www.healingnaturallybybee.com/articles/intro3.php

>Since I've read that western doctors don't support the Candida diagnoses who do

I go to for help with finding the appropriate medicines?

+++There is no one that has success treating candida like this program, because

doctors, nutritionists, naturopaths and other holistic practitioners believe you

can cure candida by killing it off, but it doesn't work that way. Like I said

above, candida is only cured by building up the immune system, mainly with

proper nutrients (my diet plus supplements).

>

> I know the main part of this treatment is diet. And I plan to start it

tomorrow. But like I said my sugar cravings are extremely intense and I know the

detox is going to be very difficult. Is there anything I can take to help with

this?

+++Be sure to change over to this diet slowly - follow Curing Candida, How to

Get Started: http://www.healingnaturallybybee.com/articles/intro1.php

>

> Has anyone else experienced what I'm going through? I just feel so alone and

like I'm going a bit crazy. Would love to hear from you.

+++We have all experienced what you are going through, except I cured my candida

over 20 years ago. You are definitely not alone my friend. We are here to help

and support you. You can't go wrong following Nature's Fundamental Laws on

health so your body is able to heal itself naturally.

The best in health, Bee

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Guest guest

You sound just like me!!! I'm so sorry you're going through all of this. It's

an extremely difficult battle!! You can win, though!

Start slow....don't cut everything out of your diet all at once. That almost

never works. Start out slowly, first losing grains, then sugar, then cheese,

then nuts, etc...go at your own pace! It isn't a race...you'll get there when

you get there.

Every time you find yourself wanting to eat something you shouldn't, ask

yourself if this is a healthy food? Is this going to make you feel good or

bad?? Then tell yourself it's just food and think about how much better you'll

feel about yourself when you treat your body well but eating something GOOD for

you.

I cannot stress enough how important coconut oil is in your diet! I have a

smoothie for breakfast five times a week and it really helps curb those cravings

early in the day! I make my egg smoothie with alcohol free coffee and vanilla

extract. Tastes a lot like a vanilla latte. There are ways to make things

taste good without eating those over processed foods we crave, but are toxic to

our bodies!!

I completely understand the anxiety you have around food. Because this diet is

so strict, one almost acquires anxiety like one with an eating disorder.... " this

food is off limits! If I have one little piece I cannot contain myself and eat

the entire container! " Right...? You must center yourself and get over your

fear of losing control around food. Remember, you are in control of your life!

You can make conscious decisions to become healthy! You'll find that you have

so much inner strength. Much more than you've ever imagined. Just remember to

breathe! I used to think of Candida like an enemy and I hated it, which in turn

made me hate myself. I've recently decided to befriend it and actually have

compassion towards it...thinking about it as a living organism which is

struggling to survive. I am sad that I have to kill it, but that's the way of

the world. I know that sounds completely crazy, but it's actually worked!!

I've managed to make peace with myself and in return my body is responding much

more to treatment! You CAN do it!

As far as finding a doctor, good luck....I've yet to see a doctor who believes

in Candidiasis. I've been waiting to see a local holistic doctor since October

and FINALLY got an appointment to see her in mid July. I'm lucky enough to live

in Northern California where people lean towards alternative healing. Ask

people in your area...anybody you know. If you work in a public place, ask your

customers.

You are not alone. Don't forget that! We're all here to help! Giving up won't

solve anything. Just means you've lost the battle.

Stay strong! Good luck! I wish you the very best.

-Sascha

>

> Hi there

>

> I am 24 and the beginning of this year I have had overwhelming sugar cravings

and have gained a huge amount of weight from succumbing to it. At first I

thought I was just indulging as I reintroduced sugar into my system as I went

sugar and wheat free for all of last year as a means of losing weight. However

in the last 6 weeks these cravings have become more intense.. sometimes I feel

like a drug addict needing a hit. It's ridiculous. I even can feel myself

getting irritable and shaky if I try and fight it. No one seems to understand

how intense it is and after I go on a sugar binge I feel like crap. The urge to

get sugar is so strong that it's like my brain and hand are disconnected whilst

I'm shoveling cakes/chocolate/biscuits and bread into my mouth. It's just so

hard because unlike a real drug addict this stuff is all around me. I don't even

have any support at home with my family constantly filling up the cupboards and

fridge with these sugary excuses for food.

>

> Anyhow up until the beginning of this year I was really fit (going to the gym

nearly every day) and felt great. Now I am constantly tired (I can barely get

out of bed), I get muscle cramps, My joints ache, I have acne (which I didn't

even have as a teenager), itchy feet and skin (like I have bugs crawling

underneath my skin), terrible night sweats, gas, bloating... the list of my

symptoms goes on. I can pretty much tick off nearly every one on the Candida

checklist. But worst of all I am severely depressed and for no reason. I feel

like I don't want to leave my room and have even had suicidal thoughts.

>

> I really need to get out of this dark hole that I'm in.

>

> I had never heard of Candida before and only came passed it a few days ago

when I started researching my symptoms. I have blood tests booked in a couple

days to check other possibilities but from all my research this Candida thing

seems the most likely culprit.

>

> I did the spit test and it showed strong signs of Candida but can someone

please tell me firstly how I go about testing how much Candida I have in my

system. Does it make a difference to the treatment as to how much you have?

Since I've read that western doctors don't support the Candida diagnoses who do

I go to for help with finding the appropriate medicines?

>

> I know the main part of this treatment is diet. And I plan to start it

tomorrow. But like I said my sugar cravings are extremely intense and I know the

detox is going to be very difficult. Is there anything I can take to help with

this?

>

> Has anyone else experienced what I'm going through? I just feel so alone and

like I'm going a bit crazy. Would love to hear from you.

>

> In need of support and answers!

> Jess

>

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  • 3 weeks later...
Guest guest

Weclome Mel...

The school needs to be better at watching for and curbing any instances of

bullying. Lots of times staff are not too aware of ASD issues and advocating

effectively with intervention. Maybe start with them and finding out if they are

open to educating all the students as a whole on differences and acceptance of

others unconditionally.

Best wishes and maybe someone else can chime in with other responses.

: ) Velvet

>

> Hi

> I have joined your group hoping to get some information and support from

people who understand. I am a mum of 2 boys my youngest is a typical 9 year old

and my eldest is a 10 year old with Aspergers. I think he has suddenly realised

that he is different and has been having problems at school from others name

calling.

> If any one can offer me any advice on how I deal with this I'd realy

appriciate it.

> Thanks

> Mel

>

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  • 6 months later...

Hi Krista,

That is a great book! If you read through pages 126-140, it talks a lot about

" Adjustment, Side-Effects, and Troubleshooting " . The subheading " How Can I Tell

if This Reaction Is Good " can be found on page 139. Have you tried Enzymedica's

Virastop? I can send you some information and samples if you would like. Feel

free to ask me any questions.

Alessandra

Enzymedica's Education Department

Enzymedica.com

>

> I need some help with enzymes. I have the book Enzymes for Autism and have

followed what she said. My 4.5 yr. old son (who has ADHD) is currently on

Digest Gold before every meal and Candex once or twice a day, although rarely on

an empty stomach because he eats all the time. I don't know if he has a yeast

problem but I figured the chance were good and it's more expensive to take the

test than to just treat him.

> He also takes probiotics, magnesium, zinc, grapefruit seed extract, Juice Plus

fruit and veggie gummies, and a multivitamin.

> I'm getting frustrated because he's on a CF/GF diet and is taking enzymes, but

doesn't seem to be getting better. Once in a while we slip and let him him have

dairy or gluten, especially since Enzymes for Autism makes it seem like he

should be able to eat those things if he's taking enzymes as well. He just had

a week and 1/2 of good behavior and then one day (after eating both gluten and

dairy -- coincidence or not??) he just goes back to being oppositional. I'm

keeping a food and behavior diary but I don't know how everyone else seems to be

so sure of what their child can or can't eat. I find it nearly impossible to

isolate what might be causing the behavior. I feel like I'm stabbing in the

dark.

> Are enzymes not working for us? Should we try other ones? Use more? I'm

sick of spending the money on everything if nothing is working.

> Please help!

> Krista

>

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  • 10 months later...

I am so freaked out after 3 mos on Tasigna my hair is falling out!!!!!!!!!! I

noticed that the hair on my legs and under arms was not growing. My hair is

fairly long, my thinking is, if its not growing and falling out, I am going to

be bald. I am having nightmares about this. Did this happen to anyone else?? I

also have a very itchy head. I am on 800 mg a day and I think it is too strong

for me. I have told my Onc that when my BCR/ABL tests come back on Tues if I am

at zero I intend to go down on this dosage he indicated that he didnt agree....

hm we will see. I was not yet on zero after 3 yrs on Gleevec hence the change

(I know you dont agree with this Zavie) but my QOL was fairly poor too. My QOL

is so improved although there have been ups and downs over these last 3 mos my

fatigue level is much better.

I also have sore eyes that are quite often yellowish. Should I have some sort

of test done to test my levels of absorption (Lottie question).

Love to all

Donna Berry x

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Hello, I started Tasigna about a month ago and at first my scalp was very itchy.

Has decreased a lot as - continue to take the medication. As for the hair

thing, I also have long hair about 5 inches below my shoulders. My hair has

always been very thick and is thinning out. It is vary hard for me as I am only

30 years old and have always been very into my hair. Sorry I can't help but

atleast we are dealing with the same things. Thanks,

Sent from my Verizon Wireless BlackBerry

[ ] HELP!!

I am so freaked out after 3 mos on Tasigna my hair is falling out!!!!!!!!!! I

noticed that the hair on my legs and under arms was not growing. My hair is

fairly long, my thinking is, if its not growing and falling out, I am going to

be bald. I am having nightmares about this. Did this happen to anyone else?? I

also have a very itchy head. I am on 800 mg a day and I think it is too strong

for me. I have told my Onc that when my BCR/ABL tests come back on Tues if I am

at zero I intend to go down on this dosage he indicated that he didnt agree....

hm we will see. I was not yet on zero after 3 yrs on Gleevec hence the change

(I know you dont agree with this Zavie) but my QOL was fairly poor too. My QOL

is so improved although there have been ups and downs over these last 3 mos my

fatigue level is much better.

I also have sore eyes that are quite often yellowish. Should I have some sort

of test done to test my levels of absorption (Lottie question).

Love to all

Donna Berry x

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Hello, I have been on Tasigna a year now, and have had my share of side effects.

I have noticed in the last 3 months losing loads of strands of hair at a time,

thinning, and now hair totally stopped growing. I am 47, but losing your hair

like this is very upsetting. I have always tried to take good care of my hair,

and if we were on IV chemo this would be expected (also hard to deal with, I'm

sure). I just starting to take vitamins for my hair, but haven't noticed a

change yet. I baby my hair now. Use no more tangles and only comb it gently.

Because of all my side effects, including this one I am considering switching to

Spyrel...I just don't know. Your definitely not alone with this one. Last time

it was delivered to me, it finally listed hair loss as a side effect. Let's

keep in touch. Prayers to all.

Connected by MOTOBLURâ„¢ on T-Mobile

[ ] HELP!!

I am so freaked out after 3 mos on Tasigna my hair is falling out!!!!!!!!!! I

noticed that the hair on my legs and under arms was not growing. My hair is

fairly long, my thinking is, if its not growing and falling out, I am going to

be bald. I am having nightmares about this. Did this happen to anyone else?? I

also have a very itchy head. I am on 800 mg a day and I think it is too strong

for me. I have told my Onc that when my BCR/ABL tests come back on Tues if I am

at zero I intend to go down on this dosage he indicated that he didnt agree....

hm we will see. I was not yet on zero after 3 yrs on Gleevec hence the change

(I know you dont agree with this Zavie) but my QOL was fairly poor too. My QOL

is so improved although there have been ups and downs over these last 3 mos my

fatigue level i

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I have the same dose, 400 mg. in the a.m. and 400 in the p.m. I have that

itchy scalp -- it drives me crazy! -- but not the hair loss. I started out

at a half-dose, then went up to the full dose a month later. Did you do

likewise?

I had some hair loss with Gleevec, body hair and also the hair on my head,

although I have enough for five people so the loss was not discernible to

anyone but me.

At first everything was great on Tasigna. Then I got walloped with fatigue,

nausea and headaches. That was about at the three-month point.

I guess at this point it's been about six months, and I don't have the

fatigue anymore, and only slight queasiness and occasional headaches. So

maybe your hair loss will subside?

I can definitely appreciate your panic! That's a big one to deal with.

Very best of luck Donna -- let us know what happens.

On Sun, Sep 12, 2010 at 8:08 AM, donnaberry99 <no_reply >wrote:

>

>

> I am so freaked out after 3 mos on Tasigna my hair is falling out!!!!!!!!!!

> I noticed that the hair on my legs and under arms was not growing. My hair

> is fairly long, my thinking is, if its not growing and falling out, I am

> going to be bald. I am having nightmares about this. Did this happen to

> anyone else?? I also have a very itchy head. I am on 800 mg a day and I

> think it is too strong for me. I have told my Onc that when my BCR/ABL tests

> come back on Tues if I am at zero I intend to go down on this dosage he

> indicated that he didnt agree.... hm we will see. I was not yet on zero

> after 3 yrs on Gleevec hence the change (I know you dont agree with this

> Zavie) but my QOL was fairly poor too. My QOL is so improved although there

> have been ups and downs over these last 3 mos my fatigue level is much

> better.

> I also have sore eyes that are quite often yellowish. Should I have some

> sort of test done to test my levels of absorption (Lottie question).

> Love to all

> Donna Berry x

>

>

>

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