Guest guest Posted September 15, 2000 Report Share Posted September 15, 2000 Hi Davena, > Does anyone ever have muscle spasams? Yes! That's what was my worst problem and made me so desperate to find help but not quite anything like yours. > <snip> I have yet > to see my GP but was interested to know if anyone else has had these? Keep us posted on what your GP tells you. Patty B in the Pineywoods of East Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2000 Report Share Posted September 16, 2000 Re: muscles spasms, early on Wayne had muscles spasms in his feet and ankles, he takes flexeril 10 mg at bedtime and that has taken care of it. Sharon Re: [ ] muscle spasms Hi Davena,> Does anyone ever have muscle spasams?Yes! That's what was my worst problem and made meso desperate to find help but not quite anything like yours.> <snip> I have yet> to see my GP but was interested to know if anyone else has had these?Keep us posted on what your GP tells you.Patty B in the Pineywoods of East TexasPlease visit our new web page at:http://www.wpunj.edu/icip/paWe are currently discussing new chat times. moderates a chat on arthritis atwww.about.com on Thursday evenings, so check thatout in the meantime! E mail at RA@... for details. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2002 Report Share Posted August 6, 2002 > B, > > I don't have restless leg syndrome but I do have muscle spasms in my hands. This all occurred after I was diagnosed with carpal tunnel syndrome. I had surgery in my right hand and it is feelng better (the arthritis is still bugging though) but I am stll havng the muscle spasms in both hands. Makes it hard to type, grasp things, etc. It seems like things are always slipping through my fingers. Anyway I have PA and fibromyalgia too. I am taking Enbrel, methodone for pain, ambien to sleep, flexeril when needed for muscle spasms and neurontin every night (it is supposed to be for pain but I really notice no difference). You might want to ask your doctor about putting you on neurontin. It is supposed to work well for restless leg syndrome and help with sleep too. I should probably be on a higher dose but it makes me feel too loopy. > > Thanks for your response. I haven't had muscle spasms in my hands, although I do experience a lot of pain in my fingers. I tried Neurontin and didn't notice any improvement. I take Baclofen for muscle spasms, but I'm going to ask my Rheumy on my next visit to try something else. The spasms are in my back, arms and shoulders...I might ask her to let me try Flexeril. Thanks for sharing... B > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2005 Report Share Posted July 25, 2005 muscle spasms? what do they feel like? > Has anyone gotten a good answer to WHY we get muscle > spasms? > > I just had another MRI of my neck, and the short > answer is that " it looks normal " . > > So the question remains.... what's triggering the > muscle spasms in my back, neck, and head, and why are > they constant despite round-the-clock muscle > relaxants? (And NSAIDs, and Remicade, and > methotrexate....) > > Any clues? > > -- > > ===================================================== > Stein > http://www.noblefusion.com/astein > http://www.livejournal.com/users/astein142/ > http://darkart42.deviantart.com/ > ----------------------------------------------------- > " Do or do not. There is no try. " - Yoda > ----------------------------------------------------- > " If you're tired of fighting battles with yourself > If you want to be somebody else, change your mind... " > -- Sister Hazel > ===================================================== > > > > ____________________________________________________ > Start your day with - make it your home page > http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2005 Report Share Posted July 25, 2005 Hi , re: muscle spasms -- I used to get them ALL THE TIME (in my 20s and early to mid 30s). I even lost a job over the issue. I've gotten them less frequently as I've aged, and one reason is that I tend to move much more CAREFULLY now. Almost subconsciously, I've trained myself NEVER to make sudden movements, and to stretch a lot and warm up before getting out of bed. That being said, one thing that's known for sure to help prevent them is exercise (I do light swimming 4 times a week), and one thing that will for sure trigger them for me is taking muscle relaxants, such as flexeril. Yes, in the past I've used them to get out of an acute spasm, but the rebound effect frequently seems to occur when I do. One alternative to the relaxants is Cal-Mag (the calcium magnesium powder that you mix with boiling water, and sweeten with apple juice because it's really tart). I've actually gotten out of an acute spasm by taking some cal-mag, which those of us with PA should all be taking anyway, drinking A TON OF WATER (dehydration alone can trigger a spasm, and I think my " drink tons of water " policy of the last few years has actually staved off a number of acute episodes!) and hopping (well, carefully stepping, actually) into a hot bath, WATER BOTTLE IN HAND! Good luck, -sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2005 Report Share Posted August 9, 2005 I actually just received a new diagnosis on Monday - Firbromyalgia. My Rheum said that the spasms are not caused by the arthritis, but were classic fibro symptoms. I don't know much about Fibro yet, so I can't really provide anything but my personal experience. I have constant pain in the back of my head, neck and shoulder blades (more intense at the insertions) which are very tender at times. It feels like I have a metal spike in the base of my skull and it radiates pain forward to my forehead. I also get fluid-like " bubbles near my cervical vertebrae. For the past month, the joint pain has taken a back-seat to these muscle spasms. My PA is relatively mild right now, but I'm sure it would make the Fibro more complicated if it wasn't. I've been taking Skelakin (muscle relaxer) 3x a day for 1 month and have been skipping the relafen so I can take excederin or I take 3 tylenol w/ the relafen for the headaches, depending on how bad they are. The skelakin helps symptoms, but they are still there just less severe. Massage helps immensely, but finding the time/money can be hard. I find myself digging my own knuckle into the back of my head constantly to try to get the " spike " to go away, but it never seems to. I also do an ice compress, then heat compress and this helps too. My doctor said that since I'm responding to exercise (yoga at least every other day) and massage therapy, that there is no nerve damage. He stated a regular exercise routine would make symptoms disappear, but the catch is, I went to the gym 4 days a week before I had my first PA flare, and had to stop because it was too painful. He suggested water exercise, but I have no idea how to fit that into my schedule, so I'm going to stick with yoga every other day and cardio 4 days a week. Hope this helps! Jenn in Baltimore, MD Stein <darkart42@...> wrote: Has anyone gotten a good answer to WHY we get muscle spasms? I just had another MRI of my neck, and the short answer is that " it looks normal " . So the question remains.... what's triggering the muscle spasms in my back, neck, and head, and why are they constant despite round-the-clock muscle relaxants? (And NSAIDs, and Remicade, and methotrexate....) Any clues? -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 My husband gets them too, we don't know why he gets them, either. I think they are a part of CMT. I remember my husband's doc talking about them. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 Yes, but could be something simple like potassium shortage in system. Standing barefoot on cold marble with stop cramping. Calicum is a nerve calmer. You could try to either take supplements for a while or eat more bananas and drink more milk to see if it helps. It could be the CMT which warm massage or warmth would help. Donna B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 So, quinine helps? My mother has taken this and I was considering it as well. Any side-effects? I was told by a doctor that the non-painful spasms (called fasciculations?) are the result of nerve damage. It may also indicate that a muscle is atrophying -- at least that's been my experience. The fasciculations will come in cycles and I notice that my muscles are weaker afterwards. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 So the muscle spasms could be from overuse and an indication that the muscles are becoming weaker?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 I have a demylenating form. I have really paid attention to it today and when ever I relax my legs they are " jumping " all over. Little spasms everywhere but mostly in my calfs. It is kinda scary for me. Do you know of any research/articles on muscle spasms and CMT? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2006 Report Share Posted February 16, 2006 That's MY understanding...I could be wrong. scottbree wrote: > So the muscle spasms could be from overuse and an >indication that the muscles are becoming weaker?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2008 Report Share Posted April 9, 2008 > > If anyone needs a med that will help your muscle spasms then have your doctor prescribe tegretol. I was having muscle spasms constantly and was put on tegretol. If I am under a lot of stress then I will still feel some minor spasms but normally they are under control. I have been on tegretol since 1987. > Good Luck > Marie > I tried tegretol once, but it made my libido disappear. In the interest of marital harmony I had to get off of it. Fran Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2010 Report Share Posted August 6, 2010 Has anyone had weird muscles spasms causing involuntary movement of one finger going under another one while taking gleevec. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2010 Report Share Posted August 6, 2010 Yes. That's one of the funnier ones. It also happens with toes. I am not on gleevec anymore. For some periods (weeks) I had nightly cramps in weird places like on my ankles or the sides of my knees. They would go away with a combination of my husband massaging the cramp and walking it out. On sprycel now. No cramps or digestive problems. So far, so good. Sent from my iPhone On Aug 5, 2010, at 10:35 PM, " Karine " <karinevallier@...> wrote: Has anyone had weird muscles spasms causing involuntary movement of one finger going under another one while taking gleevec. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2010 Report Share Posted August 6, 2010 YES!!! It was the little finger of my right hand. That went on for a few months, then suddenly I started getting the same thing with my right foot. It was so persistent I started worrying whether it was an early precursor of Parkinson's, which my mom had. I saw a neurologist and he confirmed I did not have Parkison's. He prescribed Neurontin, which ended up making a rather horrible match with Gleevec. After a few months, I quit taking the Neurontin, and the spasms never came back. I moved onto Sprycel then Tasigna, but never had a recurrence of anything like that. I'd forgotten about that. It was really quite creepy. On Thu, Aug 5, 2010 at 7:35 PM, Karine <karinevallier@...> wrote: > > > Has anyone had weird muscles spasms causing involuntary movement of one > finger going under another one while taking gleevec. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2010 Report Share Posted August 6, 2010 Yes, my fingers get all twisted up and they bend different directions. The pain is unreal when I get them, and it goes up my arm sometimes. Same thing happens to my toes, and I was driving the other day and got it in both feet. I was close to home, otherwise I would have to pull over and walk it out. I have had to do that already. From: Karine <karinevallier@...> Subject: [ ] muscle spasms Date: Thursday, August 5, 2010, 10:35 PM  Has anyone had weird muscles spasms causing involuntary movement of one finger going under another one while taking gleevec. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2010 Report Share Posted August 6, 2010 I have had these for years. sometimes they are so bad that I just want to cry. I find that if I don't drink enough plaink water, they get worse. On Aug 6, 2010, at 3:12 PM, Armour wrote: > > > > Has anyone had weird muscles spasms causing involuntary movement of one finger going under another one while taking gleevec. > > Quote Link to comment Share on other sites More sharing options...
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