Posting letters

[Guest guest]

Thank you Sue, for your description of your experience and your compliment. We

each have our own style of writing which is unique to each of us. People

recognize you by the way you express yourself and you have a very warm way of

comforting people who may be experiencing some difficulties in their lives.

Your choice of words are very complimentary and personal to the person your

message is directed to and you should know that your expressions are a great

consolation to our friends in distress. I'm sure they will appreciate reading

about how you lived through those days (horse & buggy days). I know that not

all trials are the same as they progress in knowledge of how the patients react

to assimilating the drugs.

I know that not all of my trials were exactly the same, I was describing only 1.

The first time I went to MDACC they kept me 16 days straight running tests and

seeing how I would react. Jimmy had to go to classes on how to give me the INF

and how to change the dressings on my central venous catheter. It was nerve

wracking for him and he shook so much he would drop things that had to be

sterile and we would have to

open a new pack and start all over. Your spouse is just as involved in all of

this, it's like they are sharing your disease like everything else in your

marriage. I can't thank my Jimmy enough for his love and patience to drive me

back and forth to Houston, even when he is sick himself. I can't imagine how it

is for parents and their children.

So to everyone, I would ask that you share your story with us and give us a

glimpse as to how it was with you. It may be about how you traveled, how you

found your doctor, how you reacted to the drug or how well you accepted it,

someone you met that really impressed you, did you have a bad experience with

your luggage or at the hotel?

Carpe diem,

Lottie Duthu