Update

[Guest guest]

I am so glad doesn't have cranio. I am so glad you were able to get an

appointment so quickly. Please let us know how monday goes.

Angie and Jenna(STAR grad)

update

>

>

> Well his x-rays last Friday showed that his sutures are open so no

> cranio and no surgery.

>

> We've been referred to an orthotist at UCSF Medical Center in San

> Francisco. I managed to get an appt for Monday for an evaluation and

> probable casting at the same time. My pediatrician's office is now

> working to quickly approach our insurance for the pre-approval or

> denial. Not sure if we can get it by Monday but we're hoping for

> that. I figure if they're going to deny it (which we expect),

> they'll probably do it fairly quickly.

>

> Does anyone know if we should have the denial in writing in our hands

> before we go to the appt or is it OK to have just received a verbal

> answer if we ask them to follow it up with a formal denial letter?

>

> I asked the woman who made the appt what type of bands they use and

> she believes that they use the STARBands. She recognized the name

> OrthoAmerica when I asked her. So it looks like could be casted

> on Monday and hopefully get his band towards the end of this month.

>

> Thanks again for all the support and info on this board.

>

> Jules

> Mom to 02/02/04

> Soon to be STARBanded we hope

> http://www.yourkutekidz.com

>

>

>

>

>

>

> For more plagio info

[Guest guest]

Hi Jules

I am keeping my fingers crossed that the insurance will come through

for you. I think that if they approve it would be more important to

have it in writting vs a denial.

Let us know how it goes

Sandy Willow's Mom

--- In Plagiocephaly , " jadegnan " <jadegnan@y...>

wrote:

>

> Well his x-rays last Friday showed that his sutures are open so no

> cranio and no surgery.

>

> We've been referred to an orthotist at UCSF Medical Center in San

> Francisco. I managed to get an appt for Monday for an evaluation

and

> probable casting at the same time. My pediatrician's office is

now

> working to quickly approach our insurance for the pre-approval or

> denial. Not sure if we can get it by Monday but we're hoping for

> that. I figure if they're going to deny it (which we expect),

> they'll probably do it fairly quickly.

>

> Does anyone know if we should have the denial in writing in our

hands

> before we go to the appt or is it OK to have just received a

verbal

> answer if we ask them to follow it up with a formal denial letter?

>

> I asked the woman who made the appt what type of bands they use

and

> she believes that they use the STARBands. She recognized the name

> OrthoAmerica when I asked her. So it looks like could be

casted

> on Monday and hopefully get his band towards the end of this month.

>

> Thanks again for all the support and info on this board.

>

> Jules

> Mom to 02/02/04

> Soon to be STARBanded we hope

> http://www.yourkutekidz.com

[Guest guest]

What a relief. I'm sure it feels good to move forward. I would say

that the verbal is fine. I have faith that you can overturn the

denial as many others have. Good luck

Sue

Colin F., 13 mos.

STARband grad 9/04

brachy

--- In Plagiocephaly , " jadegnan " <jadegnan@y...>

wrote:

>

> Well his x-rays last Friday showed that his sutures are open so no

> cranio and no surgery.

>

> We've been referred to an orthotist at UCSF Medical Center in San

> Francisco. I managed to get an appt for Monday for an evaluation

and

> probable casting at the same time. My pediatrician's office is now

> working to quickly approach our insurance for the pre-approval or

> denial. Not sure if we can get it by Monday but we're hoping for

> that. I figure if they're going to deny it (which we expect),

> they'll probably do it fairly quickly.

>

> Does anyone know if we should have the denial in writing in our

hands

> before we go to the appt or is it OK to have just received a verbal

> answer if we ask them to follow it up with a formal denial letter?

>

> I asked the woman who made the appt what type of bands they use and

> she believes that they use the STARBands. She recognized the name

> OrthoAmerica when I asked her. So it looks like could be

casted

> on Monday and hopefully get his band towards the end of this month.

>

> Thanks again for all the support and info on this board.

>

> Jules

> Mom to 02/02/04

> Soon to be STARBanded we hope

> http://www.yourkutekidz.com

[Guest guest]

Hello Crista,

It is great to hear about rounding some more. Willow also

had postgrad rounding.

Thanks for sharing

Sandy Willow's Mom

>

>

>

> Hi,

>

>

> Wow, does time fly or what? It really seems like he's been out

of

> his band for over a year now, but it's been just a couple of

months.

> I'm pleased that I have seen some postband rounding. Wasn't

expecting

> much, but hoping for additional correction as he grew. I'm sure

it's

> not just because he's finally getting some hair either. The hair

that

> is growing in is still wispy and light so you can see his head

shape

> very clearly. I no longer am worried about regression now that

he's

> over a year old. Hope everybody else is doing well.

>

> Take care,

>

> Crista-Grayslake, IL

> D-13 mo old-brachy DOCgrad

[Guest guest]

That's for the great update on ! It is always great to her about

postband rounding.

Angie and Jenna

Update

>

>

>

>

> Hi,

>

>

> Wow, does time fly or what? It really seems like he's been out of

> his band for over a year now, but it's been just a couple of months.

> I'm pleased that I have seen some postband rounding. Wasn't expecting

> much, but hoping for additional correction as he grew. I'm sure it's

> not just because he's finally getting some hair either. The hair that

> is growing in is still wispy and light so you can see his head shape

> very clearly. I no longer am worried about regression now that he's

> over a year old. Hope everybody else is doing well.

>

> Take care,

>

> Crista-Grayslake, IL

> D-13 mo old-brachy DOCgrad

>

>

>

>

>

>

>

>

>

> For more plagio info

[Guest guest]

Hi Crista!

That's great to hear. I'm glad that you still check in and am so

happy that you are lovin' life with that cutie pie.

Sue and Colin

>

>

>

> Hi,

>

>

> Wow, does time fly or what? It really seems like he's been out of

> his band for over a year now, but it's been just a couple of

months.

> I'm pleased that I have seen some postband rounding. Wasn't

expecting

> much, but hoping for additional correction as he grew. I'm sure

it's

> not just because he's finally getting some hair either. The hair

that

> is growing in is still wispy and light so you can see his head

shape

> very clearly. I no longer am worried about regression now that he's

> over a year old. Hope everybody else is doing well.

>

> Take care,

>

> Crista-Grayslake, IL

> D-13 mo old-brachy DOCgrad

[Guest guest]

Hi Christa…glad to hear about

’s additional progress. You must be so pleased every time you see

it. Thanks for letting us know!

Becky (’s mom) in Pgh, PA

Update

Hi,

Wow, does time fly or what? It really seems

like he's been out of

his band for over a year now, but it's been just a

couple of months.

I'm pleased that I have seen some postband

rounding. Wasn't expecting

much, but hoping for additional correction as he

grew. I'm sure it's

not just because he's finally getting some hair

either. The hair that

is growing in is still wispy and light so you can

see his head shape

very clearly. I no longer am worried about regression

now that he's

over a year old. Hope everybody else is doing

well.

Take care,

Crista-Grayslake, IL

D-13 mo old-brachy DOCgrad

For more

plagio info

[Guest guest]

Hi ,

Bummer about the growth, but maybe she's saving up for a big spurt

instead! I'm so glad you like your now orthotist so much. That

definitely helps! I hope all her bloodwork comes back fine.

, mom to Hannah, DOCgrad

Cape Cod, Ma

>

> Hello,

>

> had her check up yesterday and has no growth for three

weeks,

> but previously had a huge growth spurt. We have a new Orthotist

> since ours has moved away. She seemed wonderful and so gentle.

We

> are really going to like her as well. I can't believe has

> been in her second band for 9 weeks already. It make five months

> all together and she is now 9 1/2 months. We have to go to the

> blood lab today at 1:45 and the geneticist wants to run a panel of

> things on . It will take a month to get results back and I

> will be questioning them as to what they are all testing her for?

> But all in all a good check up. Going back in two weeks.

> We are looking at a bigger car seat and I really like the Cosco

> Alpha Omega Elite. Our orthotist said that she will check it out!

> They are always looking for new gadgets or suggestions for parents

> with the helmeted babies. Wow. How nice.

> Thanks all,

>

> Mommy to

[Guest guest]

---

Thank you so much for the encouraging words. Plan on getting the

seat by the end of December.

Thanks

In Plagiocephaly , Filyaw <monicash@y...>

wrote:

> Hi courtney,

> Thanks for the update on . Shucks no growth you're going

to have to start feeding her spinach. Good luck with blood

testing. I would be a mess if I had to wait a month. Of course

they are probably going to test for everything under the sun so

please try not to worry too much. I had an unknown origin medical

issue in March. They tested for everything. The dr was very good

at putting my mind at ease. He had to write all the possible

diagnosis on the blood work sheet but he kept telling me this is

just precautionary. Everything came back fine so there never was

any explanation for my problem and it went away. I'll keep you in

my thoughts and prayers.

>

> As for the car seat. We have the alpha omega elite and I really

like it. I don't have any problems getting it in our Explorer, my

mil's Envoy, my dad's lincoln, my sister's minivan, or an airline

seat. It is rather big, especially in rear facing. But na

really seems to be comfortable.

>

>

> mom to na

> shrrcd <shrrcd@y...> wrote:

>

> Hello,

>

> had her check up yesterday and has no growth for three

weeks,

> but previously had a huge growth spurt. We have a new Orthotist

> since ours has moved away. She seemed wonderful and so gentle.

We

> are really going to like her as well. I can't believe has

> been in her second band for 9 weeks already. It make five months

> all together and she is now 9 1/2 months. We have to go to the

> blood lab today at 1:45 and the geneticist wants to run a panel of

> things on . It will take a month to get results back and I

> will be questioning them as to what they are all testing her for?

> But all in all a good check up. Going back in two weeks.

> We are looking at a bigger car seat and I really like the Cosco

> Alpha Omega Elite. Our orthotist said that she will check it out!

> They are always looking for new gadgets or suggestions for parents

> with the helmeted babies. Wow. How nice.

> Thanks all,

>

> Mommy to

>

>

>

>

>

> For more plagio info

[Guest guest]

,

Thanks for the update. She is bound to " spurt " again! Please try not

to worry too much and please keep us posted.

Sue

Colin F., 13 mos.

STARband grad

brachy

>

> Hello,

>

> had her check up yesterday and has no growth for three weeks,

> but previously had a huge growth spurt. We have a new Orthotist

> since ours has moved away. She seemed wonderful and so gentle. We

> are really going to like her as well. I can't believe has

> been in her second band for 9 weeks already. It make five months

> all together and she is now 9 1/2 months. We have to go to the

> blood lab today at 1:45 and the geneticist wants to run a panel of

> things on . It will take a month to get results back and I

> will be questioning them as to what they are all testing her for?

> But all in all a good check up. Going back in two weeks.

> We are looking at a bigger car seat and I really like the Cosco

> Alpha Omega Elite. Our orthotist said that she will check it out!

> They are always looking for new gadgets or suggestions for parents

> with the helmeted babies. Wow. How nice.

> Thanks all,

>

> Mommy to

[Guest guest]

angela-

do you have pic's of heather's starband posted anywhere?

>From: " " <angembal@...>

>Reply-Plagiocephaly

>Plagiocephaly

>Subject: update

>Date: Thu, 13 Jan 2005 22:57:23 -0000

>

>

>We went o Providence today for our appt. They said they had never

>seen a helmet as bad as 's current Starband. They said that

>the forehead was cropped way too high and that they shouldnt have

>ever added foam. So they ordered her a new Starband and put a rush

>on it. It should be ready next week. They seemed very good there and

>seemed to know what they were talking about. Keep your fingers

>crossed we get good correction!

>- B's mom

>Starbanded August 04

>new band on it's way

>

>

>

_________________________________________________________________

Express yourself instantly with MSN Messenger! Download today - it's FREE!

hthttp://messenger.msn.click-url.com/go/onm00200471ave/direct/01/

[Guest guest]

I'm glad that you found someone who is experienced. Hopefully you

get her new band ASAP!

Natasha

>

> We went o Providence today for our appt. They said they had never

> seen a helmet as bad as 's current Starband. They said that

> the forehead was cropped way too high and that they shouldnt have

> ever added foam. So they ordered her a new Starband and put a rush

> on it. It should be ready next week. They seemed very good there

and

> seemed to know what they were talking about. Keep your fingers

> crossed we get good correction!

> - B's mom

> Starbanded August 04

> new band on it's way

[Guest guest]

,

I am so happy to hear an update on 's consult. It's easy to

understand why received no correction if the band she was in

was the worst one they had ever seen (!) It's a great sign that

this new ortho/facility can see the defects with her old band and

can speak so frankly and candidly to you about it. I sincerely hope

gets the results she deserves from a talented ortho.

Please let us know how the fitting goes,

Christie (Mom to Repo'd Remy)

>

> We went o Providence today for our appt. They said they had never

> seen a helmet as bad as 's current Starband. They said that

> the forehead was cropped way too high and that they shouldnt have

> ever added foam. So they ordered her a new Starband and put a rush

> on it. It should be ready next week. They seemed very good there

and

> seemed to know what they were talking about. Keep your fingers

> crossed we get good correction!

> - B's mom

> Starbanded August 04

> new band on it's way

[Guest guest]

Hi

I can't tell you how happy I am to hear that you are going somewhere

else now. I think the other place should be banned from EVER doing

another helmet. I'm sending lots of growthspurt vibes your way. Did

they cast , or scan her?

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad

http://www.geocities.com/samipa74/Willow_Lanette.html

>

> We went o Providence today for our appt. They said they had never

> seen a helmet as bad as 's current Starband. They said that

> the forehead was cropped way too high and that they shouldnt have

> ever added foam. So they ordered her a new Starband and put a rush

> on it. It should be ready next week. They seemed very good there

and

> seemed to know what they were talking about. Keep your fingers

> crossed we get good correction!

> - B's mom

> Starbanded August 04

> new band on it's way

[Guest guest]

I more than have my fingers crossed for you guys. Enough is enough

already! I added her pics last night in our files/getting a good

fit section. I hope her story will help others indentify a good vs.

bad fit.

, mom to Hannah, DOCgrad

Cape Cod, Ma

>

> We went o Providence today for our appt. They said they had never

> seen a helmet as bad as 's current Starband. They said that

> the forehead was cropped way too high and that they shouldnt have

> ever added foam. So they ordered her a new Starband and put a rush

> on it. It should be ready next week. They seemed very good there

and

> seemed to know what they were talking about. Keep your fingers

> crossed we get good correction!

> - B's mom

> Starbanded August 04

> new band on it's way

[Guest guest]

,

Yeah!!! I can't wait to see how the new band fits. I'm glad they seem more experienced.

mom to na

DOC Grad 2/04

Tort Resolved

South Carolina

www.thefilyaws.com <angembal@...> wrote:

We went o Providence today for our appt. They said they had never seen a helmet as bad as 's current Starband. They said that the forehead was cropped way too high and that they shouldnt have ever added foam. So they ordered her a new Starband and put a rush on it. It should be ready next week. They seemed very good there and seemed to know what they were talking about. Keep your fingers crossed we get good correction!- B's momStarbanded August 04new band on it's wayFor more plagio info

[Guest guest]

I am so glad to hear that all is well for you and the baby! Let us

know after the next sono if you find out the sex of the baby. You

remain in my prayers for a healthy pregnancy and delivery for you

and baby!

love,kathy

>

[Guest guest]

Dear -

What TERRIFIC news - CONGRATULATIONS on taking such good care of

yourselves/both of you!

Regards,

[Guest guest]

,

I'm thrilled for you! . . . I can't believe you are

already starting your fifth month! . . . What does you

son think of a new baby brother or sister? . . .

I got so tickled at my nephew's daughter . . . she was

extremely possessive of everybody in her world . . .

then she had a brother and she's crazy about him! . .

.. I asked her if she'd like another brother or sister

.. . . Nope, her brother is the only one she wants!

He's fine!

You've worked very hard to ensure this baby is

perfect! . . . He/she will have one of the best

mothers he/she could ask for!

Love,

Rogene

[Guest guest]

Rogene, you are REAL GEM. How sweet. That is so sweet about your niece. Aw...

Tyler is excited, he was worried a little in the beginning . But, Rogene, he is such a sweet quiet little boy, that loves to snuggle and read books, loves to tell women, young and old alike that they are sooo BEAUTIFUL. I swear on it! And he gets so much attention, I was a little worried too. But he really isn't the jealous type and we have been including him a lot. We went for the ultrasound together, he loved it! Was wowed out! He comes and feels the baby every morning. We talk about the baby and how much crying there will be at first, and how mommy will be so busy for a while, but God made us to be patient, and I know he will help me. My mother lives about a mile from me, so I plan to take out two nights a week all alone for him and I. Just for a hour or two. While she watches the baby to get the adjustment going and have out private time! We do spend a lot of time alone, baking, making crafts, going to the library, taking walks to the park across the street. He sure does repeat one thing I told him a few months ago. I may have a new baby, but Tyler is very special, because he is my 1st baby.No baby can change that. He says it about everyday "But, I'm your first baby, right? No matter what. " Its like he is reassuring himself. Its so cute, melts my heart, brings tears. All that motherly stuff...

Re: update

,I'm thrilled for you! . . . I can't believe you arealready starting your fifth month! . . . What does youson think of a new baby brother or sister? . . . I got so tickled at my nephew's daughter . . . she wasextremely possessive of everybody in her world . . .then she had a brother and she's crazy about him! . .. I asked her if she'd like another brother or sister. . . Nope, her brother is the only one she wants!He's fine!You've worked very hard to ensure this baby isperfect! . . . He/she will have one of the bestmothers he/she could ask for!Love,Rogene

[Guest guest]

I am so excited for you!!! I am jealous too - I only can hope that I can heal so I can have that wonderful feeling of God's miracle poking around inside me again before I am too old!! I loved being pregnant with Logan - I was 30 when he was born, also!! 34 now.... hope to have another but I wouldn't chance it with the body I have now. I am sop happy that you have healed and can experience that miracle again!!!

FYI - It took FOREVER to get a pic of Logan's "sex" - everytime I tried he was crossing his legs!!! Little punky!! I don't know if I would want to know if there is a next time - I might like the surprise.

Good luck asnd happy baby growing!!

love

shari

[Guest guest]

-

What an uplifting post! I am always so glad to hear your story again

as it is so encouraging. Thanks for taking the time to tell it

again. How is your pregnancy coming along? Keep us posted.

Hugs

kathy

-- In , " JOSEPH PALANCA " <juliejp61@m...>

wrote:

>

[Guest guest]

Kathy, very well. I am very excited about the baby and feel wonderful. A little tired at night, but thats it.I figure there are women that haven't heard my story, so I like to update and tell it when I'm havin a good day. Thank you! AS usual, I always love to hear your messages too! Kathy, they are wonderful to read! Love

>From: "mikat828" <mikat828@...> >Reply- > >Subject: Re: update >Date: Thu, 07 Apr 2005 17:40:44 -0000 > > > >- > > > >What an uplifting post! I am always so glad to hear your story again >as it is so encouraging. Thanks for taking the time to tell it >again. How is your pregnancy coming along? Keep us posted. >Hugs >kathy > > > > >-- In , "JOSEPH PALANCA" <juliejp61@m...> >wrote: > > > > > > > >

[Guest guest]

Wow! Thank you for such an encouraging letter. We need that on this site sometimes. I am so happy that you are doing so well and that you are getting your life back!

Thanks for making my day with such a happy and encouraging note.

Marie

update

I have been explanted now for over 2 years, going on three, and wanted to uplift anyone that is confused or scared or very ill. I havent posted much these last few weeks, but daily check in ! This site has uplifted me so many times, and we need to keep that up for others. I want to put this out-Especially our new comers- if you don't know me. I was very ill from my breast implants that I had inside my body for over 9 years. I was very young, to be so ill. I got them at 19 and had them removed when suddenly was hit with illness at the age of 27. I was diagnosed with thyroid auto immune disease, as well as Rheuamtoid arthrits and many, many neuro symtpoms, atypical ms like. For months before my explant- I was tested, prodded, pricked and scolded by many docs. Being told many times- it was not my implants. "Silly girl"

I knew it was. I had found this site, and had what all the others did. I was ill, very ill. It was my only hope. I had them removed by Dr Kolb and the surgery took over 6 hours. My capsules and implants were badly infected, and it took hours to scrape the gunk out of me, literally. Getting them out was my only hope to get well. I ended up extremly pleased with the results and immediatly felt better. Not all the way better, but improvement. Afterwards, I then began taking supplements and detoxing kits, as well as detox baths, and walking (I stopped the strenous workouts) changed my diet, tested my hormones and food allergies and have come a long way.

I no longer have RA, my thyroid condition has improved, ms like symptoms are gone, joint pain gone, fatigue too, and have my life back. I am a 30 old woman with lots of life to live. And energy! I am also pregnant- 7 months and so far, all is well! My 4 year old son, anxiouly awaits!

I just wanted to say, go for explant, dont be fearful. Our docs are great! And also be discouraged after explant. Some takre longer to heal, depending on the damage and the length of time implanted, some have to try harder, look deeper, read more, like me! But it is for yourself and you are so worth it.I saw it as my healing time and just dove in, and am so glad I did it! Love ,julie

Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment. "Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world." - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)

[Guest guest]

julie, that was a great post....there are still so so many women that don't know that it is their implants. iam am glad to hear that you are doing well. we are so fortunate....like i have said many times if it wasn't for this site i would not be here....or i would be still in my bed so ill....life would not be worth living. it is because of these women that iam explanted, healed, and a strong young woman once again....thankyou all....dianaDIANA D

>From: "JOSEPH PALANCA" <juliejp61@...>

>Reply-

>

>Subject: update

>Date: Thu, 07 Apr 2005 17:35:26 +0000

>

I have been explanted now for over 2 years, going on three, and wanted to uplift anyone that is confused or scared or very ill. I havent posted much these last few weeks, but daily check in ! This site has uplifted me so many times, and we need to keep that up for others. I want to put this out-Especially our new comers- if you don't know me. I was very ill from my breast implants that I had inside my body for over 9 years. I was very young, to be so ill. I got them at 19 and had them removed when suddenly was hit with illness at the age of 27. I was diagnosed with thyroid auto immune disease, as well as Rheuamtoid arthrits and many, many neuro symtpoms, atypical ms like. For months before my explant- I was tested, prodded, pricked and scolded by many docs. Being told many times- it was not my implants. "Silly girl"

I knew it was. I had found this site, and had what all the others did. I was ill, very ill. It was my only hope. I had them removed by Dr Kolb and the surgery took over 6 hours. My capsules and implants were badly infected, and it took hours to scrape the gunk out of me, literally. Getting them out was my only hope to get well. I ended up extremly pleased with the results and immediatly felt better. Not all the way better, but improvement. Afterwards, I then began taking supplements and detoxing kits, as well as detox baths, and walking (I stopped the strenous workouts) changed my diet, tested my hormones and food allergies and have come a long way.

I no longer have RA, my thyroid condition has improved, ms like symptoms are gone, joint pain gone, fatigue too, and have my life back. I am a 30 old woman with lots of life to live. And energy! I am also pregnant- 7 months and so far, all is well! My 4 year old son, anxiouly awaits!

I just wanted to say, go for explant, dont be fearful. Our docs are great! And also be discouraged after explant. Some takre longer to heal, depending on the damage and the length of time implanted, some have to try harder, look deeper, read more, like me! But it is for yourself and you are so worth it.I saw it as my healing time and just dove in, and am so glad I did it! Love ,julie

Opinions expressed are NOT meant to take the place of advice given by licensed health care professionals. Consult your physician or licensed health care professional before commencing any medical treatment.

" Do not let either the medical authorities or the politicians mislead you. Find out what the facts are, and make your own decisions about how to live a happy life and how to work for a better world. " - Linus ing, two-time Nobel Prize Winner (1954, Chemistry; 1963, Peace)