Update

[Guest guest]

I am so sorry that you are going thru this. I have to say, some days just

suck!! I hope your rheumy will help you to control your pain levels. One thing

to remember, you hire these drs and by george you have the right to fire them

and find someone who treats you with dignity and respect as every person

deserves this at the minimum. I have to say, I'm blessed with my PCP. Monday

when I was in tears in his office, because my rheumy is a jerk (and I fired

him), my PCP gave me a hug and promised to help me in every way he can.

I will keep you in my thoughts and prayers!!

Big Gentle Hugs

[Guest guest]

So sorry, . I'm glad you're going to call your rheumatologist. I hope

you get some help.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] update

>

>

> soory haventposted till now. very upset w/ my PCP. I was rushed, wasnt

> listened to, and refered to a " counselor " what the hell. Didnt give me

> anything

> but the run around. Nopain med s since i am already on darvocet...cant

> seee

> rheumy till aug but callin tomorrow,cant stand this. woke up today and

> couldntmove. so much for enbrel.had to skip a dose because of women

> issues. when will

> the pain stop so i can resume a somewhat normal life? i hate this.

[Guest guest]

Hi :

I am so sorry to hear about your PCP visit. Is there

anyway you can change PCPs? You need one who will

listen and take care of you. I hope that your rheumy

is able to see you sooner. Sorry that the Enbrel

hasn't seemed to have helped, but don't give up, okay?

There are other meds out there - I know, great, other

meds, more pills, more shots, something new to learn

about and hear about more scary side effects.

Unfortunately, that is how we learn to fight this

thing - knowledge, information, and then jump in and

try different meds/combos and pray that this one will

help us. Forgive me, fibro fog, sorry, but I can't

remember if you are on anything other than the Enbrel,

if not, then another DMARD like mtx can be added and

that combo has been shown to have good success. That

is what I am on.

You are going through sooo much still with learning

how to be a single mom, the grieving of your husband's

early and sudden death, the money issues, how you will

support your family, so many very frightening issues,

and it's all coming down on you. My heart goes out to

you, my friend.

The counselor thing may not be that bad of an idea, if

that counselor can relate back to your PCP and rheumy

of your pain issues, and physical issues, and they

listen, and it will further help with your treatment

plan. It might be worth considering, but not if you

feel that your PCP is just trying to palm you off on

another doctor, or feels that your complaints are all

in your head.

Anyway, we are here for you, and know how frustrating

this all can get when you are in pain, and

experiencing problems with being able to get up and

about, let alone having to take care of two small

children on your own too. I hope the rheumy sees you

ASAP - keep calling and bugging them until they see

you - the squeaky wheel and all that - and hope he can

find something that will help you more.

Hang in there - Kathe in cA

--- N2kids@... wrote:>

>

> soory haventposted till now. very upset w/ my PCP. I

> was rushed, wasnt > listened to, and refered to a

" counselor " what the> hell. cant seee

> rheumy till aug but callin tomorrow,cant stand this.

> woke up today and couldnt move. so much for

enbrel.had to skip a dose > because of women issues.

when will > the pain stop so i can resume a somewhat

normal> life? i hate this.>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

>

>

> soory haventposted till now. very upset w/ my PCP. I was rushed,

wasnt

> listened to, and refered to a " counselor " what the hell. Didnt

give me anything

> but the run around. Nopain med s since i am already on

darvocet...cant seee

> rheumy till aug but callin tomorrow,cant stand this. woke up today

and

> couldntmove. so much for enbrel.had to skip a dose because of

women issues. when will

> the pain stop so i can resume a somewhat normal life? i hate this.

>

Hi ,

Sorry about your recent visit with the PCP. Been there a few times --

so totally understand. I don't have one here. I have always just

relied on my rheumatologists in this state. I had a very good PCP

elsewhere for a short time. And a few not so patient rheumys who

sound like your PCP.

Some RA sufferers find relief by going to a pain management clinic or

center. I haven't tried this but have thought about it. Many really

do not give us many pain relief options. Since I am on blood

thinners ibuprofen is no longer an option for me, but 800 mg worked

for me for awhile -- very temporary but took the edge off the pain,

and nothing else offered comes close. I was offered Darvocet this

last time which is really strange since I have elevated liver enzymes

already and may be from the Darvocet they had me on in the past.

Liver transplants aren't that easy to come by. I really don't want

to push my luck with the liver function in exchange for exremely

minimal pain relief. But Darvocet, prednisone, toradol, diclofenac,

and hydrocodone 15 tabs seem to be the only type medicine that is

offered for pain relief of long term illness like RA, and the

ibuprofen. Have you asked for ibuprofen and use nexium or prevacid

for your stomach protection? Sometimes a litre of water with a 15

minutes can bring enough relief to at least get moving an hour

later. So make sure you are drinking enough filtered water for your

weight, at least that seems to help some with me.

Another thing is your PCP may think the grief and stress surrounding

recent loss are bringing on your intense pain. He may feel a

counselor could eliminate some of the stress. Many feel grief is an

instant process. But it takes time to reduce the stress brought on

by such a loss even with a counselor, so in the meantime you need

something for the pain. I think that is where he was going with

that, not that you are looney or anything -- even though this auto-

immune condition can sometimes make you feel you are about to fly

away to la-la land. Like we are in our own personal torture chamber.

It can be just too much sometimes. I can totally imagine how things

must be for you -- having lost my Mom and daughter within the past 2

years. The stress of a that type of loss does increase your pain

level unfortunately and i have been bed-ridden regardless of what RA

med I am on. Hormones can play a part too such as just before cycle

time can bring on horrific flares that leave you bedridden for a day

or two. So many other levels of stress are involved when the loss is

your spouse and you have children.

Praying things improve soon.

Ebony

[Guest guest]

, hello there! I am so sorry that you are going through such a

difficult time. I, myself was referred to a counselor. However, I

was directly told that it was all in my head. He has since been

fired! I can be difficult at times, especially when you are not

feeling well , the thought of having to go and sit and talk about

stuff seems ridiculous! If I am having a bad day, I especially give

it hell to make it to my appt. and lay on the floor in front of my

counselor and say WANH!!!!! Seems all so silly. but on the other

hand, you can vent, express your concerns about your doc and they

have to document that! In my situation now with my doc being fired

and all, all my troubles are well documented! A matter of record, if

you will! They also can confer with you doc's and sometimes notice

things that we tend to overlook! I hope that you get to feeling

better really soon, like now would be good! Take care. Kim

>

> >

> > soory haventposted till now. very upset w/ my PCP. I

> > was rushed, wasnt > listened to, and refered to a

> " counselor " what the> hell. cant seee

> > rheumy till aug but callin tomorrow,cant stand this.

> > woke up today and couldnt move. so much for

> enbrel.had to skip a dose > because of women issues.

> when will > the pain stop so i can resume a somewhat

> normal> life? i hate this.>

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

That's great news! Hang in there.

Hugs,

Traci

--- foxygretchy <gretchenc@...> wrote:

> i am going to see kolb next week.

> i am on diflucan now and going to see her.

>

>

>

________________________________________________________________________________\

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[Guest guest]

Great!

Gretchy, Dr. Kolb knows how to get through this illness as she has experienced it herself. She will be able to help you!

Patty

update

i am going to see kolb next week. i am on diflucan now and going to see her.

Any questions? Get answers on any topic at Answers. Try it now.

[Guest guest]

In a message dated 3/17/07 11:19:34 AM, angie-long@... writes:

> Or it could just be the fibro I don't know what is causing it

> but I am tired of hurting. You guys are great you give great advice

> on here.

>

I get horrible cramps in my legs, but only take Immuran/Humira/preddy.

The doc said it wa a lack of potassium, from preddy, I take a prescription

pot. , but still get them....

Pris

**************************************

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[Guest guest]

> It worked that time and I've noticed that occasionally if I use

> my muscles too much, it will do the same thing. I quit pred for a few days

> and it goes away.>>>>

>

Exactly, if I exercise too much, it will happen too. The strange thing is,

it was always in my right calf. It has moved down to my ankle /foot (much more

painful).

Why would it move?

Pris

**************************************

AOL now offers free email to everyone.

Find out more about what's free from AOL at http://www.aol.com.

[Guest guest]

Pris, that's what I've been struggling with for the past few days, cramps

and extreme stiffness in my calves mostly. Way back when I was new at this

and started taking pred, I had the same cramps and pain, and the doc told me

it was from the pred. She told me to stop taking it for a week and it should

be better. It worked that time and I've noticed that occasionally if I use

my muscles too much, it will do the same thing. I quit pred for a few days

and it goes away.

Dennis in Eastexas

" It's not Rocket Surgery "

Re: [ ] update

>

> In a message dated 3/17/07 11:19:34 AM, angie-long@... writes:

>

>

>> Or it could just be the fibro I don't know what is causing it

>> but I am tired of hurting. You guys are great you give great advice

>> on here.

>>

>

> I get horrible cramps in my legs, but only take Immuran/Humira/preddy.

> The doc said it wa a lack of potassium, from preddy, I take a

> prescription

> pot. , but still get them....

> Pris

[Guest guest]

Pris,

Not sure if it is the same, but with horses if they have swelling it moves

down their legs, neck and chest it is a gravity thing. I know it does the same

thing in my legs.

Marsha

Re: [ ] update

> It worked that time and I've noticed that occasionally if I use

> my muscles too much, it will do the same thing. I quit pred for a few days

> and it goes away.>>>>

>

Exactly, if I exercise too much, it will happen too. The strange thing is,

it was always in my right calf. It has moved down to my ankle /foot (much more

painful).

Why would it move?

Pris

************ ********* ********* ********

AOL now offers free email to everyone.

Find out more about what's free from AOL at http://www.aol. com.

[Guest guest]

Thanks ladies for all your encourging words! You have told me just

what my gut has been telling me. I know that I will do well when

these things gets out. I got my packet in the mail today from Dr.

Huangs office for surgery so that really helped me feel that it's

getting closer. I am staying focused and most of all staying

positive! All of you have changed my life and saved my life! You are

all such a blessing to share your experiences to saves others. I

plan to do the same, you have all inspired me!

Cherie

>

> Cherie,

> I had the same problem with supplements and medications when I had

implants-- nothing agreed with me, everything gave me an extreme

reaction. My sense is that your body is so ultra-sensitive to

anything foreign right now that it flips out easily.

>

> The main thing to focus on now is getting those alien twins out!

After that, I'll bet things will settle down over time, and you can

experiment with supplements again. Some of the things I absolutely

could not do when I was sick with implants are no problem now.

>

> Keep the faith, you'll get there!

>

> Bindi

>

[Guest guest]

Cherie,

Sending you prayers and hope from Canada.

Hugs,

Traci

--- cannst42 <cannst42@...> wrote:

> Thanks ladies for all your encourging words! You

> have told me just

> what my gut has been telling me. I know that I will

> do well when

> these things gets out. I got my packet in the mail

> today from Dr.

> Huangs office for surgery so that really helped me

> feel that it's

> getting closer. I am staying focused and most of

> all staying

> positive! All of you have changed my life and saved

> my life! You are

> all such a blessing to share your experiences to

> saves others. I

> plan to do the same, you have all inspired me!

>

> Cherie

>

>

>

>

> >

> > Cherie,

> > I had the same problem with supplements and

> medications when I had

> implants-- nothing agreed with me, everything gave

> me an extreme

> reaction. My sense is that your body is so

> ultra-sensitive to

> anything foreign right now that it flips out easily.

>

> >

> > The main thing to focus on now is getting those

> alien twins out!

> After that, I'll bet things will settle down over

> time, and you can

> experiment with supplements again. Some of the

> things I absolutely

> could not do when I was sick with implants are no

> problem now.

> >

> > Keep the faith, you'll get there!

> >

> > Bindi

> >

>

>

>

No hour of life is wasted that is spent in the saddle. ~Winston Churchill

________________________________________________________________________________\

____

Building a website is a piece of cake. Small Business gives you all the

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[Guest guest]

Itching like you are describing can be associated with a liver issue. http://www.cumc.columbia.edu/dept/gi/itching.html You may want to do some liver supportive therapies while you are waiting for explant. Pattycannst42 <cannst42@...> wrote: Hi ladies,I haven't posted in a while, wasn't feeling too good. I had to stop taking the Pearls. My sinus got worse and worse. Sunday I thought my nose was going

to explode off my face....massive sinus infection feeling. It helped my itching but my sinus just couldn't handle it. My itching has toned down since I stopped too. My body is speaking to me and it doesn't want me to take any supplements right now.....so I've decided to listen to it. It does a fine job of speaking LOUDLY! I will wait until after my explant next month and see how I do. I will just continue to eat right until then. I seem to feel and do much better without taking anything. I discovered right after my implants were inserted that my body chemistry had changed completely because I would just take a Tylinol and I would itch horribly. I am staying positive that after explant my body will be much....much happier and will start to heal. I will keep you posted.....I'm counting down to explant....just 4 more weeks.Cherie __________________________________________________

[Guest guest]

Cherie ~

I am sorry you have been feeling so challenged.

It wont be long til you have the toxic waste

material out of your chest. God Bless YOU !

You are in my prayers !

Hugs DedeSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

,

I'm glad that you were able to tell your mother and she took it well. .. I'm sure you are relieved. I think you'll find your parents are going to be supportive through all of this!

You should be hearing from Dr. Kolb soon. . . She's a very busy woman. She's probably been taking a well deserved holiday.

Keep working on doing the things you need to do to get your health back on track. . . You're not likely to feel "well", but you can feel better.

Hugs and prayers,

Rogene

[Guest guest]

Rogene,

Thats what I figured. With it being the holidays she's probably just

real busy. I'm hoping for a call really soon so I can start figuring

out and planning the details.

Hope you had a great Christmas.

Love

>

> ,

>

> I'm glad that you were able to tell your mother and she took it

well. .. I'm sure you are relieved. I think you'll find your parents

are going to be supportive through all of this!

>

> You should be hearing from Dr. Kolb soon. . . She's a very busy

woman. She's probably been taking a well deserved holiday.

>

> Keep working on doing the things you need to do to get your health

back on track. . . You're not likely to feel " well " , but you can feel

better.

>

> Hugs and prayers,

>

> Rogene

>

[Guest guest]

,

Tell Dr. Kolb ~ referred you and call her back, better yet email her she will respond quicker... I heard if you complain of breast pain in both breast insurance will pay quicker...

www.plastikos.com find her email and get in contact with her... I can't wait til you get them bombs out of your body... Hang in there

God Bless,

~See AOL's top rated recipes and easy ways to stay in shape for winter.

[Guest guest]

hi heidi sorry to hear about your step-daughter. im glad shes getting stronger

it just takes time. im sure it can be hard at times but be patient because im

sure she does not like the way she is or feels!! she is LUCKY to have you in her

life. god bless,melyndagamez 5/19/08 11:15p.m.central

[ ] update

HI Y'all,

  I have my step-daughter home with me now and she is getting stronger

little by little. I don't have much time as she needs help walking and

bathing, also need to make her meal. Gee I feel like a nurse again. But I do

enjoy her company so much. I get to bed really early and am able to get the

needed rest. I hope everyone is doing well I am going to try to catch up on

some reading so I apoligize for any late answers. Thanks for all the prayers

and know I am praying for y'all. Hope to get back in the grove soon.

Heidi M

[Guest guest]

Hi Joy, Yes, they dont want us to know that avocados, nuts, seeds, eggs are good for us because these foods are high in calories. But yet they are high in good fats that our bodies and brain needs for functioning. I was on a calorie about a yr ago, this is a diet that "curves" has in their book, avocado and eggs and nuts and seeds are allowed, though its limited in the amount of intake because of the caloric count, I lost about 11 pounds on this diet, you eat 5 small meals a day. I went off the diet after about 9 months, and I have maintained my weight. I have learned to eat with portion control and still get to eat all the proteins I love..suggestion, get raw nuts and seeds, they are most digestable and you dont have to worry about what kind of oil you are eating with your nuts. I still eat 3 soft boiled eggs daily for breakfast. Eggs are brain food. And thanks for the heads

up, and the protein alert MicheleJoyce Hudson <bjoyful@...> wrote: Yes, I know, I sent a lot of articles tonight. Lol! I checked out one of my Google Alerts on Nutrition, and while reading that information, I wanted to know just where the information originally came from. It was from the Harvard, School of Public

Health. Now why isn't the FDA listening to them! ? ! From reading these articles, I discovered, a lot that I thought was confirmed. This is from reading other material and from noticing, how I feel when I eat things like nuts, eggs, avocadoes, ect. I felt a lot better, but they aren't suppose to be that good for us, or so we have been told. So, listen to your bodies!!! They are wiser than a lot of scientists. :-) Love, Joy

[Guest guest]

>

> The allergist/immunoligist I saw turns out to be one of the kindest

and most thorough docs I've encountered. What a surprise. (On the

other hand, sometimes the docs who've helped me most have been

outside the specialty which would seem most ovious. For example, many

years ago I got nowhere with orthopedic docs, but found a sports

medicine doc who dx'd and fixed a herniated disc w/o surgery).

>  

> This new doc has arranged appointments for me to rule out obvious

stuff. I'm having a CT scan of my sinuses today and have an

appointment with a neurologist next week for the migraines. I will

also have allergy testing done before moving on to immune system

stuff. He also asked me about my previous bacterial test results and

asked if I'd been treated by an infectious disease specialist.

That's ridiculously thorough compared to everyone else I've seen.

>  

> I don't know where this will lead, but it's really nice to meet an

intelligent, caring and thorough doctor for a change. I've got my

fingers crossed that at least something helpful will be gained. At

the very least, I'll have a more methodical and logical history of

testing done (by doctors he recommends which gives me more

confidence). Up til now, it's been me haphazardly trying to find

docs, most of whom have been major disappointments and anything BUT

thorough. I'm also encouraged because the neurologist is a woman. I'm

hoping she's a little bit less cold than other neurologists I've met

in the past. I'm not counting on her helping with the migraines

really. I mainly want to rule out the potential for venous

thrombosis/stroke, etc. that I've been warned of in the past.

>  

> I'll keep everyone filled in on whatever I learn from these various

exams.

>  

> penny

Hi Penny,

I am curious what your CT results will reveal.

I just had mine done last week to rule out anything out of the

ordinary that could be going on. I had NICO surgery last year in a

maxillary region, and had sinus infections and problems ever since.

Turns out I have retention cysts on both maxillary sinuses, and

surprisingly more so in the opposite maxillary area that the NICO was

in. I'm beginning to wonder if there is a direct link, and if the

surgery was not aggresive enough, and is still there? Certainly makes

you wonder.

Keep me posted.

~Jimmy

>  

>  

>

[Guest guest]

Who performed your NICO surgery? I really hope they included appropriate antibiotic treatment, blood thinners, follow up care etc.

NICO bums me out because they've basically got the problem identified but then proceed to treat it irresponsibily. That causes the rest of the medical profession to view NICO with disdain which results in the whole infection baby being thrown out with the NICO bath water.

NICO "doctors" should, but don't, follow the same procedures that Orthopedic surgeons follow when dealing with infected bone (osteomyelitis) in other parts of the body. That includes cultures and sensitivities, debridement of the bone, i.v. abx, blood thinners, and everything else that goes with that. Even with such complicated care the results are not guaranteed. Most NICO docs scrape the bone and send you on your way allowing the infection to spread. Makes me so upset.

I had areas of my jaw bone debrided without all the proper follow up care. I also had sinus surgery (baloon sinuplasty) as a result of jaw scans that revealed infected sinuses. Both procedures only made my health that much worse. It's been well over a year since I've had a CT scan and I'm also curious about what it will show especially after the "all clear" pronouncement of my ENT. My sinuses are clearly much worse than before the surgery. I have sinus symptoms I never had before the surgery and my migraines got a lot worse as well. To be honest, ENTs are about as clueless as NICO docs, IMO.

penny

From: jcarlozzi <jcarlozzi@...>Subject: [infections] Re: updateinfections Date: Thursday, August 14, 2008, 9:22 PM

>> The allergist/immunolig ist I saw turns out to be one of the kindest and most thorough docs I've encountered. What a surprise. (On the other hand, sometimes the docs who've helped me most have been outside the specialty which would seem most ovious. For example, many years ago I got nowhere with orthopedic docs, but found a sports medicine doc who dx'd and fixed a herniated disc w/o surgery). > > This new doc has arranged appointments for me to rule out obvious stuff. I'm having a CT scan of my sinuses today and have an appointment with a neurologist next week for the migraines. I will also have allergy testing done before moving on to immune system stuff. He also asked

me about my previous bacterial test results and asked if I'd been treated by an infectious disease specialist. That's ridiculously thorough compared to everyone else I've seen. > > I don't know where this will lead, but it's really nice to meet an intelligent, caring and thorough doctor for a change. I've got my fingers crossed that at least something helpful will be gained. At the very least, I'll have a more methodical and logical history of testing done (by doctors he recommends which gives me more confidence). Up til now, it's been me haphazardly trying to find docs, most of whom have been major disappointments and anything BUT thorough. I'm also encouraged because the neurologist is a woman. I'm hoping she's a little bit less cold than other neurologists I've met in the past. I'm not counting on her helping with the migraines really. I mainly want to rule out

the potential for venous thrombosis/stroke, etc. that I've been warned of in the past.> > I'll keep everyone filled in on whatever I learn from these various exams. > > pennyHi Penny,I am curious what your CT results will reveal. I just had mine done last week to rule out anything out of the ordinary that could be going on. I had NICO surgery last year in a maxillary region, and had sinus infections and problems ever since. Turns out I have retention cysts on both maxillary sinuses, and surprisingly more so in the opposite maxillary area that the NICO was in. I'm beginning to wonder if there is a direct link, and if the surgery was not aggresive enough, and is still there? Certainly makes you wonder.Keep me posted.~Jimmy> > >

[Guest guest]

Hi Penny,

My general dentist performed the surgery. We only used Clindamycin

post-op. There wasn't anything else done, after the fact, other than

X-rays to make sure that the bone filled in.

I tend to agree with you, that most practitioners do not take this

sort of thing seriously, or treat it aggresively. It is sad.

Jimmy

>

> Who performed your NICO surgery? I really hope they included

appropriate antibiotic treatment, blood thinners, follow up care etc.

>  

> NICO bums me out because they've basically got the problem

identified but then proceed to treat it irresponsibily. That causes

the rest of the medical profession to view NICO with disdain which

results in the whole infection baby being thrown out with the NICO

bath water.

>  

> NICO " doctors "  should, but don't, follow the same procedures that

Orthopedic surgeons follow when dealing with infected bone

(osteomyelitis) in other parts of the body. That includes cultures

and sensitivities, debridement of the bone, i.v. abx, blood thinners,

and everything else that goes with that. Even with such complicated

care the results are not guaranteed. Most NICO docs scrape the bone

and send you on your way allowing the infection to spread. Makes me

so upset.

>  

> I had areas of my jaw bone debrided without all the proper follow

up care.  I also had sinus surgery (baloon sinuplasty) as a result of

jaw scans that revealed infected sinuses. Both procedures only made

my health that much worse. It's been well over a year since I've had

a CT scan and I'm also curious about what it will show especially

after the " all clear " pronouncement of my ENT. My sinuses are clearly

much worse than before the surgery. I have sinus symptoms I never

had before the surgery and my migraines got a lot worse as well. To

be honest, ENTs are about as clueless as NICO docs, IMO.

>  

> penny

>  

>

>

>

>

> From: jcarlozzi <jcarlozzi@...>

> Subject: [infections] Re: update

> infections

> Date: Thursday, August 14, 2008, 9:22 PM

>

>

>

>

>

>

>

> >

> > The allergist/immunolig ist I saw turns out to be one of

the kindest

> and most thorough docs I've encountered.  What a surprise. (On the

> other hand, sometimes the docs who've helped me most have been

> outside the specialty which would seem most ovious. For example,

many

> years ago I got nowhere with orthopedic docs, but found a sports

> medicine doc who dx'd and fixed a herniated disc w/o surgery).

> >  

> > This new doc has arranged appointments for me to rule out obvious

> stuff. I'm having a CT scan of my sinuses today and have an

> appointment with a neurologist next week for the migraines. I will

> also have allergy testing done before moving on to immune system

> stuff. He also asked me about my previous bacterial test results

and

> asked if I'd been treated by an infectious disease specialist.

> That's ridiculously thorough compared to everyone else I've seen.

> >  

> > I don't know where this will lead, but it's really nice to meet

an

> intelligent, caring and thorough doctor for a change. I've got my

> fingers crossed that at least something helpful will be gained. At

> the very least, I'll have a more methodical and logical history of

> testing done (by doctors he recommends which gives me more

> confidence). Up til now, it's been me haphazardly trying to find

> docs, most of whom have been major disappointments and anything BUT

> thorough. I'm also encouraged because the neurologist is a woman.

I'm

> hoping she's a little bit less cold than other neurologists I've

met

> in the past. I'm not counting on her helping with the migraines

> really. I mainly want to rule out the potential for venous

> thrombosis/stroke, etc. that I've been warned of in the past.

> >  

> > I'll keep everyone filled in on whatever I learn from these

various

> exams.

> >  

> > penny

>

> Hi Penny,

>

> I am curious what your CT results will reveal.

>

> I just had mine done last week to rule out anything out of the

> ordinary that could be going on. I had NICO surgery last year in a

> maxillary region, and had sinus infections and problems ever since.

> Turns out I have retention cysts on both maxillary sinuses, and

> surprisingly more so in the opposite maxillary area that the NICO

was

> in. I'm beginning to wonder if there is a direct link, and if the

> surgery was not aggresive enough, and is still there? Certainly

makes

> you wonder.

>

> Keep me posted.

>

> ~Jimmy

>

> >  

> >  

> >

>

[Guest guest]

Group;

I was wondering why Barbara wasnt on line writting us. She always was

on when she could to encourage and show her feelings when someone

hurts. I was hoping she was out from having so much fun. I am so

sorry to hear she got hurt. Hurry back Barbara we love you and miss

you so much.

gentle hugs

Clora

[Guest guest]

, please send my best regards to your mom. Tell her that she will

be in my thoughts and prayers. I hope that her healing is swift.

Sue

On Tuesday, August 19, 2008, at 01:13 PM, Barbara wrote:

> Hi - I am Barbara's daughter . I wanted to let everyone know that

> My Mom fell while visiting her cousin & broke her left shoulder & left

> foot. She is currently in a rehab up here in Mass & the weather here

> is definitely not helping her RA. She will be out of commision for

> awhile but I can keep you updated.

> Thanks,

>