Drugs not working, what happens next??

[Guest guest]

Just had call from Darren macmillian nurse. His last results show very little

reduction in his BCR-ABL results eg gone from 13.8 to 5.56 in a year

His doctor wants to see us to discuss other options in 2 weeks. What will they

be? His had dx of CML 17months now, and always been on Glivec 400mg apart from

when first dx.

[Guest guest]

Hi

Go to your GP and tell them you want a referral to a specialist

centre, Royal Free, Cambridge or Hammersmith. You are entitled to it.

Your local hospital won't be licensed to carry out bone marrow

transplants if that is what they are thinking of. You need to have

access to other drugs in the first instance.

It is your right to have a second opinion, don't worry about your

local doctor. A good doctor does not mind patients exploring all

options.

www.caringbridge.org/visit/susanleigh

On 20 Jul 2010, at 11:42, lisadutton1981 wrote:

> Just had call from Darren macmillian nurse. His last results show

> very little reduction in his BCR-ABL results eg gone from 13.8 to

> 5.56 in a year

> His doctor wants to see us to discuss other options in 2 weeks.

> What will they be? His had dx of CML 17months now, and always been

> on Glivec 400mg apart from when first dx.

>

>