Re: The Lemming Compulsion, or How People With Neuropathy and HIV Wi

[Guest guest]

I

read this article to see what all the fuss was about.

Oh dear! It seems the author is 'projecting' a set of

behaviours that some people in distress

engage in some of the time, particularly

when they are lonely, isolated and have no support.

I have engaged in some of those behaviours but not for

many years and did so when I was 'dying' in the pre

HAART era.

I also have very bad neuropathy, I do NOT engage in them

now. Yes pain is very challenging but people's response

to it varies....though not according to the article.

Personally I didn't feel insulted by the article but I

did wonder at why 'The Body' published on line something

others would find offensive and which I

found ill informed, inaccurate and just plain

speculative amateurish nonsense.

[Guest guest]

I agree, I also wonder how some one with cronic or high level of pain would have the mental energy to engage in such behaviours.Granted as you stated any one reacts differently but personally I have found that chronic pain of any degree is more of a disablingfactor even in daily activities that a behaviour promoter.Mark B From: Zedakah <nathan.zedakah@...> Sent: Monday, January 16, 2012 7:33 AM Subject: Re: The Lemming Compulsion, or How People With Neuropathy and HIV Wi

I

read this article to see what all the fuss was about.

Oh dear! It seems the author is 'projecting' a set of

behaviours that some people in distress

engage in some of the time, particularly

when they are lonely, isolated and have no support.

I have engaged in some of those behaviours but not for

many years and did so when I was 'dying' in the pre

HAART era.

I also have very bad neuropathy, I do NOT engage in them

now. Yes pain is very challenging but people's response

to it varies....though not according to the article.

Personally I didn't feel insulted by the article but I

did wonder at why 'The Body' published on line something

others would find offensive and which I

found ill informed, inaccurate and just plain

speculative amateurish nonsense.

[Guest guest]

I just wanted to update everyone here that we leave to get the twins (the little girl is HIV+) on the 29th of this month. I will likely be asking a lot more questions soon! I also wanted to say thank you for providing this list because I found a wonderful list member that lives nearby us who has been a wonderful help already and makes me feel confident that I will have a good support system when we bring our daughter home. Thanks for allowing me to be here and for the kind reception I have received even though I am perhaps not the typical participant. :-)http://www.adreamadoption.blogspot.com From: [mailto: ] On Behalf Of Mark BSent: Monday, January 16, 2012 8:32 AM Zedakah; Subject: Re: Re: The Lemming Compulsion, or How People With Neuropathy and HIV Wi I agree, I also wonder how some one with cronic or high level of pain would have the mental energy to engage in such behaviours.Granted as you stated any one reacts differently but personally I have found that chronic pain of any degree is more of a disablingfactor even in daily activities that a behaviour promoter. Mark B From: Zedakah <nathan.zedakah@...> Sent: Monday, January 16, 2012 7:33 AMSubject: Re: The Lemming Compulsion, or How People With Neuropathy and HIV Wi I read this article to see what all the fuss was about. Oh dear! It seems the author is 'projecting' a set of behaviours that some people in distress engage in some of the time, particularly when they are lonely, isolated and have no support.I have engaged in some of those behaviours but not for many years and did so when I was 'dying' in the pre HAART era.I also have very bad neuropathy, I do NOT engage in them now. Yes pain is very challenging but people's response to it varies....though not according to the article.Personally I didn't feel insulted by the article but I did wonder at why 'The Body' published on line something others would find offensive and which I found ill informed, inaccurate and just plain speculative amateurish nonsense.

[Guest guest]

I think the author is saying that a person in neuropathic pain will

do anything they can to 'escape' from the pain.

Perhaps like I said some people may do that some

of the time by engaging in the things the author of the

article refers to but I agree with you Mark, I have known people so

disabled by the pain they can do nothing let alone engage in 'retail

therapy' etc. but I know others who do all they can to 'engage' with

their pain and try to deal with it.

Like I said I think the author is 'projecting', they have their

reasons for saying what they said and I suspect it is drawn from

their own lived experience which is fine but that is not everyone

else's and it is the generalisation that is the issue.

Best Wishes

On 16/01/2012 16:31, Mark B wrote:

I agree, I also wonder how some one with cronic or

high level of pain would have the mental energy to engage in

such behaviours.

Granted as you stated any one reacts differently but

personally I have found that chronic pain of any degree is

more of a disabling

factor even in daily activities that a behaviour

promoter.

Mark B

From:

Zedakah <nathan.zedakah@...>

To:

Sent:

Monday, January 16, 2012 7:33 AM

Subject:

Re: The Lemming Compulsion, or How People

With Neuropathy and HIV Wi

I read this article to see what

all the fuss was about.

Oh dear! It seems the author is 'projecting'

a set of behaviours that some people

in distress engage in some of

the time, particularly when they are lonely,

isolated and have no support.

I have engaged in some of those behaviours

but not for many years and did so when I was

'dying' in the pre HAART era.

I also have very bad neuropathy, I do NOT

engage in them now. Yes pain is very

challenging but people's response to it

varies....though not according to the

article.

Personally I didn't feel insulted by the

article but I did wonder at why 'The Body'

published on line something others would

find offensive and which I found ill

informed, inaccurate and just plain

speculative amateurish nonsense.

No virus

found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1901 / Virus Database: 2109/4746 - Release Date:

01/16/12

[Guest guest]

I believe you are absolutely right and very insightful, like everything else the devil is in the details,how much pain? Individual tendency and personality etc...And I believe the people we both have known with disabling pain are the ones that suffers from high levels of pain orhave the least capacity to deal with pain, and how can some people handle pain better then others is a big mystery to me :-)Perhaps the ones trying to distract themselves from pain are the ones that suffer from lower levels of pain yet it is a chronicle pain and as such a super stressy condition.Me, I don't feel like shopping or having sex when I am in

pain I just want to hold my partner LOL.Mark B From: Zedakah <nathan.zedakah@...> Mark B <markboothan@...> Cc: " " < > Sent: Monday, January 16, 2012 3:39 PM Subject: Re: Re: The Lemming Compulsion, or How People With Neuropathy and HIV Wi

I think the author is saying that a person in neuropathic pain will

do anything they can to 'escape' from the pain.

Perhaps like I said some people may do that some

of the time by engaging in the things the author of the

article refers to but I agree with you Mark, I have known people so

disabled by the pain they can do nothing let alone engage in 'retail

therapy' etc. but I know others who do all they can to 'engage' with

their pain and try to deal with it.

Like I said I think the author is 'projecting', they have their

reasons for saying what they said and I suspect it is drawn from

their own lived experience which is fine but that is not everyone

else's and it is the generalisation that is the issue.

Best Wishes

On 16/01/2012 16:31, Mark B wrote:

I agree, I also wonder how some one with cronic or

high level of pain would have the mental energy to engage in

such behaviours.

Granted as you stated any one reacts differently but

personally I have found that chronic pain of any degree is

more of a disabling

factor even in daily activities that a behaviour

promoter.

Mark B

From:

Zedakah <nathan.zedakah@...>

To:

Sent:

Monday, January 16, 2012 7:33 AM

Subject:

Re: The Lemming Compulsion, or How People

With Neuropathy and HIV Wi

I read this article to see what

all the fuss was about.

Oh dear! It seems the author is 'projecting'

a set of behaviours that some people

in distress engage in some of

the time, particularly when they are lonely,

isolated and have no support.

I have engaged in some of those behaviours

but not for many years and did so when I was

'dying' in the pre HAART era.

I also have very bad neuropathy, I do NOT

engage in them now. Yes pain is very

challenging but people's response to it

varies....though not according to the

article.

Personally I didn't feel insulted by the

article but I did wonder at why 'The Body'

published on line something others would

find offensive and which I found ill

informed, inaccurate and just plain

speculative amateurish nonsense.

No virus

found in this message.

Checked by AVG - www.avg.com

Version: 2012.0.1901 / Virus Database: 2109/4746 - Release Date:

01/16/12