Guest guest Posted August 26, 2010 Report Share Posted August 26, 2010 Thanks ! From: [mailto: ] On Behalf Of A Sent: Thursday, August 26, 2010 9:33 AM Subject: [sPAM] Re: [ ] Bouncing PCR's Importance: Low Hi : I have not been on as much as I would like to, but I did read the messages, and Lottie always explains things just the way they should be. My Gosh!! You have a lifetime ahead of you, and I was always told that getting to PCRU is a blessing, but you do not have to get there to continue a good remission. You certainly have seen that a lot of people are holding very well without getting to PCRU yet. I was diagnosed in 1998, and did not get to my PCRU until 2003. I have been on Gleevec 400mg. since Oct. of 2000, but from my diagnosis there was no Gleevec, and I had to do the old Interferon Shots along with Ara-C shots to start off with. So much available to us now. To me that is a real blessing. I think even if I did not reach the PCRU that I would still be doing what I am doing now 12 years later. Will look for your new results in a few weeks. Take Care > > Thanks Lottie! Your emails are so inspiring! I read them all! I will > keep everyone posted on the new results I get in a few weeks! > > > > Take care Lottie! > > > > Chemo-Sabi > > Romero > > 28 year old male in Santa , California > > DX-10.22.09 > > Hydroxeuya-10.22.09-10.29.09 > > Gleevec 400MG-10.29.09-11.06.09 > > Gleevec Reduction 200MG-11.06.09-01.04.10 > > Gleevec increase 300MG-01.05.10-01.13.10 > > BCR-ABL-126% or 0.2637 > > 0.6 Log Reduction 02.05.10 > > Gleevec increase 400MG 01.14.10-Present > > 1.8 Log Reduction 06.12.10 > > > > From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of > Lottie Duthu > Sent: Wednesday, August 25, 2010 9:41 AM > CML > Subject: [ ] Bouncing PCR's > > > > > > Dear , > I must respond to your post because you remind me so much of myself. > Fifteen years ago, I used to panic with every white blood count. That is > all I looked at, I didn't know anything about what the other readings > meant. We were told we had 3 1/2 to 5 years to live and I counted every > day, counted them down on the calendar. I don't care what age you are, > you panic and I was 67 when I was diagnosed. > > We are here to assure you that those numbers are not signs that have > skull and bones on them. This disease is unpredicable, but with the new > drugs, they can be kept more in check. Looking back in retrospect, I > wonder what all the hullabalo was about. We were told that we had to > reach PCRU to be in a good place. I can testify that that just ain't so. > > > You are fairly new at this game, so I think it is incumbent upon those > of us who have been here a while and experienced all the yo yos to share > our experience with you. We also have good medical evidence that we do > not have to live with gloom and doom. I marvel at some of the things our > members are doing and have nothing but admiration for them. Their > enthusiasm moves me and encourages me. Every day is different and you > will not be 100% every day, or as in my case, mostly 50%, but you move > on with the faith and knowledge that you have and soon you will be > looking after the newcomers like a mother hen looks after her chicks. > Never stop sharing, we all walked in your shoes at one time. Live one > day at a time and remember that even if you didn't have CML, you > wouldn't feel well every day. Spend your time thinking positive > thoughts. Life is here to live and we all do it to our very best > abilities by learning and listening to our peers. We know things our > doctors don't kn ow because we are living in the moment that they may > never experience. Have a wonderful life!!!!!!!! > > Carpe diem, > Lottie Duthu > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2010 Report Share Posted August 30, 2010 Lottie-- Well spoken! Like the true Cajun Warrior that you are! , be sure to listen to this lady--she knows whereof she speaks! Vicki > > > > Thanks Lottie! Your emails are so inspiring! I read them all! I will > > keep everyone posted on the new results I get in a few weeks! > > > > > > > > Take care Lottie! > > > > > > > > Chemo-Sabi > > > > Romero > > > > 28 year old male in Santa , California > > > > DX-10.22.09 > > > > Hydroxeuya-10.22.09-10.29.09 > > > > Gleevec 400MG-10.29.09-11.06.09 > > > > Gleevec Reduction 200MG-11.06.09-01.04.10 > > > > Gleevec increase 300MG-01.05.10-01.13.10 > > > > BCR-ABL-126% or 0.2637 > > > > 0.6 Log Reduction 02.05.10 > > > > Gleevec increase 400MG 01.14.10-Present > > > > 1.8 Log Reduction 06.12.10 > > > > > > > > From: <mailto:%40> [mailto: > <mailto:%40> ] On Behalf Of > > Lottie Duthu > > Sent: Wednesday, August 25, 2010 9:41 AM > > CML > > Subject: [ ] Bouncing PCR's > > > > > > > > > > > > Dear , > > I must respond to your post because you remind me so much of myself. > > Fifteen years ago, I used to panic with every white blood count. That > is > > all I looked at, I didn't know anything about what the other readings > > meant. We were told we had 3 1/2 to 5 years to live and I counted > every > > day, counted them down on the calendar. I don't care what age you are, > > you panic and I was 67 when I was diagnosed. > > > > We are here to assure you that those numbers are not signs that have > > skull and bones on them. This disease is unpredicable, but with the > new > > drugs, they can be kept more in check. Looking back in retrospect, I > > wonder what all the hullabalo was about. We were told that we had to > > reach PCRU to be in a good place. I can testify that that just ain't > so. > > > > > > You are fairly new at this game, so I think it is incumbent upon those > > of us who have been here a while and experienced all the yo yos to > share > > our experience with you. We also have good medical evidence that we do > > not have to live with gloom and doom. I marvel at some of the things > our > > members are doing and have nothing but admiration for them. Their > > enthusiasm moves me and encourages me. Every day is different and you > > will not be 100% every day, or as in my case, mostly 50%, but you move > > on with the faith and knowledge that you have and soon you will be > > looking after the newcomers like a mother hen looks after her chicks. > > Never stop sharing, we all walked in your shoes at one time. Live one > > day at a time and remember that even if you didn't have CML, you > > wouldn't feel well every day. Spend your time thinking positive > > thoughts. Life is here to live and we all do it to our very best > > abilities by learning and listening to our peers. We know things our > > doctors don't kn ow because we are living in the moment that they may > > never experience. Have a wonderful life!!!!!!!! > > > > Carpe diem, > > Lottie Duthu > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.