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Re: New on Tasigna

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I agree that the fasting period is a rough one -- I'm a grazer!

The tremors and the feet turning inward, I had that with Gleevec! I took

Neurontin for a while -- a few months, now that I think about it -- and that

chased it away. It was sure scary.

On Thu, Aug 12, 2010 at 10:38 PM, Lottie Duthu <lotajam@...> wrote:

>

>

> I just started Tasigna last Thursday on a low dose until my body adjusts to

> it. My side effects are itching in the worst way, but no rash appears. The

> other which has alarmed me is the tremors. I can barely hold anything in my

> hands I shake so much. I also have leg cramps in the sides of my legs and

> feet. If my feet are propped up, they begin to turn inward and there is

> nothing I can do to stop it, but jump up and walk around. Also, I don't like

> the 3 hr. period when you have to fast, that's when my desire to eat is the

> strongest. It seems to have given me an appetite when I have eaten so

> little, that I was losing 5# a week and was warned not to lose any more

> weight. I have now gained some weight since I started Tasigna. That is my

> experience with Tasigna for just a short time.

> Carpe diem,

> Lottie Duthu

>

>

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Hi Lottie - I'm so sorry to hear your trials with Tasigna and hope they soon

dissipate. Luckily I have never experienced any rashes except for some

foliculitis in my scalp. Do you take magnesium? It must be even harder for

you with all the drugs you have been on previously to not have some type of

side effect. Someone else on the list had similar symptoms with the tremors.

I find especially in the afternoon before fasting I have something a little

more substantial to eat so that your blood sugars don't drop too much and

before bed (I usually have a hot milk Milo). It is the worse part of Tasi

unfortunately.

Take care!



-- [ ] New on Tasigna

I just started Tasigna last Thursday on a low dose until my body adjusts to

it. My side effects are itching in the worst way, but no rash appears. The

other which has alarmed me is the tremors. I can barely hold anything in my

hands I shake so much. I also have leg cramps in the sides of my legs and

feet. If my feet are propped up, they begin to turn inward and there is

nothing I can do to stop it, but jump up and walk around. Also, I don't like

the 3 hr. period when you have to fast, that's when my desire to eat is the

strongest. It seems to have given me an appetite when I have eaten so little

that I was losing 5# a week and was warned not to lose any more weight. I

have now gained some weight since I started Tasigna. That is my experience

with Tasigna for just a short time.

Carpe diem,

Lottie Duthu

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>

> I just started Tasigna last Thursday on a low dose until my body adjusts to

it. My side effects are itching in the worst way, but no rash appears. The

other which has alarmed me is the tremors. I can barely hold anything in my

hands I shake so much. I also have leg cramps in the sides of my legs and feet.

If my feet are propped up, they begin to turn inward and there is nothing I can

do to stop it, but jump up and walk around. Also, I don't like the 3 hr. period

when you have to fast, that's when my desire to eat is the strongest.

__________________________

Hi Lottie,

I had a really bad itch (horrible) but also a little rash when I started Tasi. I

was on Benedryl even if it made me sleeply, also the other over the counter

stuff........and I soaked in the tub a lot which I think you said you can't do.

My itch was there for a few weeks.

About the tremors....do you know Barb Heathcote? I think she had them and maybe

even went off Tasi because of it????? she posts some, but I don't'know if she

reads all the time, so you might e-mail her directly. Let me know if you don't

already have her address.

Yes, the fasting you have to get used to......as soon as someone says you can't

eat, that is when I want to eat.....I am also a grazer. Eventually you work out

a schedule that fits your eating pattern best.

Hope things get better quickly.

C.

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