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Tammy's story

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Dear Tammy,

Thank you for sharing your story about fatigue with all of us. I'm sure not

one of us has not experienced fatigue to some degree, no matter what drug we are

on. Now there are some people like Zavie who wears a superman cape and he

never runs out of steam. The energizer bunny has nothing on him, he just keeps

going and going. I'd like to know what kind of batteries he uses and what kind

of Kool Aid he drinks. LOL

I am on Tasigna and experiencing different side effects not unlike Gleevec.

Now my feet and ankles are swollen and the home health nurse keeps telling me to

keep my feet above my head. They don't understand how these drugs affect us.

When I was off all drugs, the swelling went down completely and I had normal

ankles. Now I am back to itching and have to take Atarax and even then it does

not disappear. I realize that if I am going to go on living, I will have to put

up with a certain amount of fatigue, weight gain or loss, etc. I just lost 50#

on medical anoxeria and am now gaining it back on Tasigna, which seems to give

me an appetite. Go figure.

Carpe diem,

Lottie Duthu

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