Expenses

[Guest guest]

Dear Bobby,

You have said it so eloquently. I have been saying that all along, that the

drug companies conducting the trials should put up or shut up as my dad used to

say.

I have been in many trials, too and when I go back to MDACC in November, you and

I will be even, I think.

I wholeheartedly agree with you that they should be kicking in for these tests

that they require to benefit them. And yes, we do put up our bodies and entrust

our lives to them. As history will record it, some of them just didn't work

out, but I am yet to see one check, or even a " thank you for your time and

money, not to mention nausea, vomiting and diarrhea " . LLS used to be a big help

in helping to pay for some of our travel expense and CML drugs, but that is no

longer true. I am grateful for any help I can get, but it is very small in

comparison to what we actually spend.

I have already spent my children's inheritance and if this continues I will have

to mortgage my house. If my car wears out, I will not be able to replace it

with the limited income we are trying to get by on. I really feel bad that my

husband is suffering because I have this disease. We don't go to movies or eat

out, except for our anniversary. This will be next month (No. 55) and I don't

see enough money in the kitty to even do that. I say this knowing that there

are many others in my same situation, I am not alone. After all this bitching,

I still believe in not giving up, I will be the last one out to turn the lights

off.

Carpe diem,

Lottie