Shots

[Guest guest]

Seems very low to me. I am 5' 8 " and 160 lbs. and do a total of 100 mgs every

week (2 50 mg shots a week) and this keeps my T ~ 700.

Arkansas - Dan

andy+jill <jillandy@...> wrote:

Got nowhere with my request for an aromtise inhibitor,so I asked could

I get some shots to try instead of the gel,I am now on 100 mg every

three weeks,makes no imapct on the way I feel.Is 100 mg enough?I am

5ft8 and 210 pounds in weight.

---------------------------------

Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and

lay it on us.

[Guest guest]

>

> Hey guys,

> quick question for anyone having the steroid shots to nerve

> in the back..i had them done a week ago today..dont want to do that

> again. wow did it hurt. anyway i am not feeling any relief yet matter

> of fact it seems worse in my leg i used to not have sever pain in my

> leg until i have been up on it for 10 - 20 minutes now its immediate

> has anyone else had this result,Dr did say i might have slightly more

> pain for 2 weeks after due to irritation from shots but its not even a

> little better after a week..any info would be appreciated.

> Thanks,

>

,

I am sorry that you are having all this pain. I have gotten one

steroid shot (epidural) in L5 for a herniated disc. Is this what you

had? It was awful and hurt bad for a week and a half. The shot

itself made me scream I am embarassed to admit. I get little info

from my doctor so I do not know if what you had is the same as what I

had. I am havin a double this coming Monday, the 28th and am scared

to death. I have been feeling relief for about 3 or 4 days now. I

hope that you do too. I pray that this helps.

Cheryl

[Guest guest]

>

> Hey guys,

> quick question for anyone having the steroid shots to nerve

> in the back..i had them done a week ago today..dont want to do that

> again. wow did it hurt. anyway i am not feeling any relief yet matter

> of fact it seems worse in my leg i used to not have sever pain in my

> leg until i have been up on it for 10 - 20 minutes now its immediate

> has anyone else had this result,Dr did say i might have slightly more

> pain for 2 weeks after due to irritation from shots but its not even a

> little better after a week..any info would be appreciated.

> Thanks,

>

,

I am sorry that you are having all this pain. I have gotten one

steroid shot (epidural) in L5 for a herniated disc. Is this what you

had? It was awful and hurt bad for a week and a half. The shot

itself made me scream I am embarassed to admit. I get little info

from my doctor so I do not know if what you had is the same as what I

had. I am havin a double this coming Monday, the 28th and am scared

to death. I have been feeling relief for about 3 or 4 days now. I

hope that you do too. I pray that this helps.

Cheryl

[Guest guest]

> >

> > Hey guys,

> > quick question for anyone having the steroid shots to nerve

> > in the back..i had them done a week ago today..dont want to do

that

> > again. wow did it hurt. anyway i am not feeling any relief yet

matter

> > of fact it seems worse in my leg i used to not have sever pain in

my

> > leg until i have been up on it for 10 - 20 minutes now its

immediate

> > has anyone else had this result,Dr did say i might have slightly

more

> > pain for 2 weeks after due to irritation from shots but its not

even a

> > little better after a week..any info would be appreciated.

> > Thanks,

> >

> ,

> I am sorry that you are having all this pain. I have gotten one

> steroid shot (epidural) in L5 for a herniated disc. Is this what

you

> had? It was awful and hurt bad for a week and a half. The shot

> itself made me scream I am embarassed to admit. I get little info

> from my doctor so I do not know if what you had is the same as what

I

> had. I am havin a double this coming Monday, the 28th and am scared

> to death. I have been feeling relief for about 3 or 4 days now. I

> hope that you do too. I pray that this helps.

> Cheryl

>

Cheryl,

I believe what i had was a facet procedure, did you get anesthesia

with your last one? i was suppose to but my blood sugar was too high

so all i got was IV sedation didnt seem to help with the pain or to

relax me. i came off the table and yes i screamed also and cried like

a baby so dont be embarassed,just thinking about needles being stuck

in your back would make most people scream in my opinion.I'm pretty

sure these shots i am getting is just a patch on the problem.. my

disks

are deteriating L4 is gone and 3 and 5 are on there way out..i see a

spinal fusion in my future.I just want relief and to get back to work

and my life. as im sure we all do in the group.just take it day by day

and keep faith.will pray for you on monday good luck and let me know

how it went when you can thanks for being here.

[Guest guest]

> >

> > Hey guys,

> > quick question for anyone having the steroid shots to nerve

> > in the back..i had them done a week ago today..dont want to do

that

> > again. wow did it hurt. anyway i am not feeling any relief yet

matter

> > of fact it seems worse in my leg i used to not have sever pain in

my

> > leg until i have been up on it for 10 - 20 minutes now its

immediate

> > has anyone else had this result,Dr did say i might have slightly

more

> > pain for 2 weeks after due to irritation from shots but its not

even a

> > little better after a week..any info would be appreciated.

> > Thanks,

> >

> ,

> I am sorry that you are having all this pain. I have gotten one

> steroid shot (epidural) in L5 for a herniated disc. Is this what

you

> had? It was awful and hurt bad for a week and a half. The shot

> itself made me scream I am embarassed to admit. I get little info

> from my doctor so I do not know if what you had is the same as what

I

> had. I am havin a double this coming Monday, the 28th and am scared

> to death. I have been feeling relief for about 3 or 4 days now. I

> hope that you do too. I pray that this helps.

> Cheryl

>

Cheryl,

I believe what i had was a facet procedure, did you get anesthesia

with your last one? i was suppose to but my blood sugar was too high

so all i got was IV sedation didnt seem to help with the pain or to

relax me. i came off the table and yes i screamed also and cried like

a baby so dont be embarassed,just thinking about needles being stuck

in your back would make most people scream in my opinion.I'm pretty

sure these shots i am getting is just a patch on the problem.. my

disks

are deteriating L4 is gone and 3 and 5 are on there way out..i see a

spinal fusion in my future.I just want relief and to get back to work

and my life. as im sure we all do in the group.just take it day by day

and keep faith.will pray for you on monday good luck and let me know

how it went when you can thanks for being here.

[Guest guest]

> > >

> > > Hey guys,

> > > quick question for anyone having the steroid shots to nerve

> > > in the back..i had them done a week ago today..dont want to do

> that

> > > again. wow did it hurt. anyway i am not feeling any relief yet

> matter

> > > of fact it seems worse in my leg i used to not have sever pain in

> my

> > > leg until i have been up on it for 10 - 20 minutes now its

> immediate

> > > has anyone else had this result,Dr did say i might have slightly

> more

> > > pain for 2 weeks after due to irritation from shots but its not

> even a

> > > little better after a week..any info would be appreciated.

> > > Thanks,

> > >

> > ,

> > I am sorry that you are having all this pain. I have gotten one

> > steroid shot (epidural) in L5 for a herniated disc. Is this what

> you

> > had? It was awful and hurt bad for a week and a half. The shot

> > itself made me scream I am embarassed to admit. I get little info

> > from my doctor so I do not know if what you had is the same as what

> I

> > had. I am havin a double this coming Monday, the 28th and am scared

> > to death. I have been feeling relief for about 3 or 4 days now. I

> > hope that you do too. I pray that this helps.

> > Cheryl

> >

>

>

> Cheryl,

> I believe what i had was a facet procedure, did you get anesthesia

> with your last one? i was suppose to but my blood sugar was too high

> so all i got was IV sedation didnt seem to help with the pain or to

> relax me. i came off the table and yes i screamed also and cried like

> a baby so dont be embarassed,just thinking about needles being stuck

> in your back would make most people scream in my opinion.I'm pretty

> sure these shots i am getting is just a patch on the problem.. my

> disks

> are deteriating L4 is gone and 3 and 5 are on there way out..i see a

> spinal fusion in my future.I just want relief and to get back to work

> and my life. as im sure we all do in the group.just take it day by day

> and keep faith.will pray for you on monday good luck and let me know

> how it went when you can thanks for being here.

>

It must be different. I was told to lay on my stomach and they made

me put my legs up on a pillow and did that hurt in itself. I was

awake all of the time. The gave me a local. And never once warned me

when they were going to slop some ice cold betadine on my back. These

people are cruel. I do not have the option of seeing another doctor

because my husband has an HMO. Thanks for the well wishes I double

them and return them to you. Cheryl

[Guest guest]

Phyllis, you're a brave girl!!! I don't know if I could inject myself.

On the other hand...it's no picnic when someone else does it either!

Take good care,

Sharon in NJ

>

> One thing I have learned about the Enbrel is that if I take the area

I'm injecting, and pinch up the skin and hold it for about 30 seconds,

I won't feel the needle at all.

>

> Phyllis

>

>

>

[Guest guest]

I don't think you are paranoid. With all shots, you have to balance

the risk with the " reward " . Some diseases are more prevalent and/or

more scary than others. Many people use the slower vaccine schedules

or postpone shots until they are more comfortable with their child's

development. We have postponed Tyler's remaining shots until he's

closer to kindergarten age, and at that time, we will split the MMR

into three shots for added safety.

I have a friend who's child stopped breathing upon administration of

the Dtap vaccine while she was still at the pediatrician's office.

Scary! It turns out she was allergic to one component (petussis, I

think).

My personal interpretation of the information out there is that there

are many ways children end up with neuro. conditions like apraxia.

Mostly, it is a combination of factors, both genetic and

environmental. Vaccines are one possible environmental trigger, but

there are others for sure. I knew had dyspraxia before getting

pregnant with Tyler, but I didn't change much in my approach, except

that I took a lot of fish oil while pregnant. (Didn't help, sorry to

say.) I don't think vaccines were a part of his problems -- he was a

month early, had torticollis just like his brother (which I am

convinced is related, even if everybody says it's not), was late on all

his early milestones, etc. In fact, I would go as far as to say that

different environmental factors may have triggered the dyspraxia in

each of them, and different approaches are going to be required to help

them overcome it. (e.g. Fish oil was fantastic for , but not

for Tyler. mB12 shots have been awesome for Tyler, but I never tried

them with .)

You have to be comfortable with everything you do (or not) with your

child. There are no certain answers with vaccines these days, and both

sides of the argument are sure they are right. It's a tough decision

for parents. Good luck with your decision!

in NJ

>

> hi, i was wondering if anyone has heard that in the manufacturers

> statement in the dtap vaccine... " giving this to people with neoro

> issues is contradicting " i was wondering what everyone thought about

> this since apraxia/dyspraxia is a " neurological based speech

disorder "

> i have my 2nd childs 6 mo. check up on tuesday so maybe i am just

> getting paranoid??? thanks for your input!! -darcy mom of rocco 2.10

> severe dyspraxia and vistibular movement issues and giovanni 6 mo.

> pudgy and babbling up a storm

>

[Guest guest]

If it helps I hear Dr. Cave's book tells you about scheduling. Also,

if you want to avoid preservatives, split up stuff, hopewell pharmacy

is online and delivers and takes insurance. If you are concerned

about ingredients other than preservatives which can also be an issue

there are many sites to review for that.

's post is so generous and true. I have two kids with " stuff. "

Not all of it is the same, some I believe is genetic, some is

environmental. In my most affected kid I think nature and nurture

play a big role and he has improved dramatically. My least affected

kid is getting worse and I think vaccines were a bigger part of her

deal. I will figure this out and get her help. Still, every kid is

different. We must all make the decisions we are most comfortable

with. No easy answers.

> >

> > hi, i was wondering if anyone has heard that in the manufacturers

> > statement in the dtap vaccine... " giving this to people with

neoro

> > issues is contradicting " i was wondering what everyone thought

about

> > this since apraxia/dyspraxia is a " neurological based speech

> disorder "

> > i have my 2nd childs 6 mo. check up on tuesday so maybe i am just

> > getting paranoid??? thanks for your input!! -darcy mom of rocco

2.10

> > severe dyspraxia and vistibular movement issues and giovanni 6

mo.

> > pudgy and babbling up a storm

> >

>

[Guest guest]

Back in the day when Dr.'s gave T shots every 2 to 3 weeks you had a high level

of T that went down by your next shot. To over come this as listed in the AACE

Guildeline we do the shots smaller dose every 7 days some men do better doing

them 2x's a week. You start at 100mgs and retest in 6 to 8 weeks trying to get

your TT and FT up into the upper 1/3 of your labs range. Also trying to keep

your Estradiol " E2 " down around 20 pg/ml.

When Dr.'s did shots every 3 weeks the shot you with 300mgs at every 2 weeks

200mgs these big shots had you very high in levels falling way down by the 10th

day leaving you feeling like your on a Roller Coaster Ride. And this high dose

made your E2 levels go very high and this takes away the good the T shots did.

Doing shots is the lowest cost form of TRT you get a 10ml. vile of 200mgs/ml

Depo Testosteron then you do a shot a week that is only .5 mls.=ing 100 mgs. so

you get 20 shots from this vile.

Most of us use a 25g x 1 " lg. needle or a smaller 27g x 1/2 " lg. needle shooting

into the thigh.

http://www.aace.com/pub/pdf/guidelines/hypogonadism.pdf

http://spotinjections.com/index3.htm

You don't ask your Dr. if you can do the shots because you can't afford the Gels

you tell him.

Co-Moderator

Phil

> From: myroncasey <myroncasey@...>

> Subject: Shots

>

> Date: Friday, June 27, 2008, 5:42 PM

> Greeting,

>

> I am currently on Androgel, but will soon get to the point

> where I can

> no longer afford it. I asked my PCP about shots and he

> mostly just

> blew me off. Can someone tell me how best to phrase a

> request for

> shots and what the medication is? Maybe I didn't do a

> good job of

> explaining my situation. He basically said, " on shots

> you get alot of

> RX at once and then it dissipates. " Are there shots

> that don't come

> with this problem. How much cheaper are the shots?

>

> Thanks to all. I have learned so much from this group.

>

> Myron

>

>

> ------------------------------------

>

>

[Guest guest]

On Fri, 27 Jun 2008 21:42:47 -0000, you wrote:

>

>Greeting,

>

>I am currently on Androgel, but will soon get to the point where I can

>no longer afford it. I asked my PCP about shots and he mostly just

>blew me off. Can someone tell me how best to phrase a request for

>shots and what the medication is? Maybe I didn't do a good job of

>explaining my situation. He basically said, " on shots you get alot of

>RX at once and then it dissipates. " Are there shots that don't come

>with this problem. How much cheaper are the shots?

>

>Thanks to all. I have learned so much from this group.

You might just point out that Androgel costs over $2000 a year and

shots cost about $300. And the American Association of Clinical

Endocrinologists says shots are fine, on a 7 to 10 day cycle.

[Guest guest]

myroncasey wrote:

> Greeting,

>

> I am currently on Androgel, but will soon get to the point where I can

> no longer afford it. I asked my PCP about shots and he mostly just

> blew me off. Can someone tell me how best to phrase a request for

> shots and what the medication is? Maybe I didn't do a good job of

> explaining my situation. He basically said, " on shots you get alot of

> RX at once and then it dissipates. " Are there shots that don't come

> with this problem. How much cheaper are the shots?

>

> Thanks to all. I have learned so much from this group.

Androgel was terribly expensive for me... my insurance just would -not-

pay for it... however, the shots are paid full in FULL with no

co-payment. It was like that with Anthem and Humana insurances.

Try this case with your doctor from a $$ standpoint.

I also feel much better on shorts and do not have irritation on my back

like I did with the gels.

[Guest guest]

time to get a new doctor. a vial for me costs about $120 and lasts about 5 to 6

months. syringes and other accessories are relatively cheap too. if your doc is

going to blow you off like my first one..... well first through fifth, got to

find someone who will work with you.

 

you also need instructions on how to inject, never hit a vein, you don't want

this stuff directly into your blood, these kinds of things I learned in the

forum that docs never told me.

 

it's simple, you can become self sufficient, but you need that doctor who will

work with you. If you can just get a prescription for a vial of T........

From: myroncasey <myroncasey@...>

Subject: Shots

Date: Friday, June 27, 2008, 4:42 PM

Greeting,

I am currently on Androgel, but will soon get to the point where I can

no longer afford it. I asked my PCP about shots and he mostly just

blew me off. Can someone tell me how best to phrase a request for

shots and what the medication is? Maybe I didn't do a good job of

explaining my situation. He basically said, " on shots you get alot of

RX at once and then it dissipates. " Are there shots that don't come

with this problem. How much cheaper are the shots?

Thanks to all. I have learned so much from this group.

Myron

[Guest guest]

you're going to want to make a copy of this. It worked for me and I used it to

convince my doctor to go out on my own.

> From: myroncasey <myroncasey (DOT) com>

> Subject: Shots

>

> Date: Friday, June 27, 2008, 5:42 PM

> Greeting,

>

> I am currently on Androgel, but will soon get to the point

> where I can

> no longer afford it. I asked my PCP about shots and he

> mostly just

> blew me off. Can someone tell me how best to phrase a

> request for

> shots and what the medication is? Maybe I didn't do a

> good job of

> explaining my situation. He basically said, " on shots

> you get alot of

> RX at once and then it dissipates. " Are there shots

> that don't come

> with this problem. How much cheaper are the shots?

>

> Thanks to all. I have learned so much from this group.

>

> Myron

>

>

> ------------ --------- --------- ------

>

>

[Guest guest]

On Sat, 28 Jun 2008 09:20:19 -0400, you wrote:

>myroncasey wrote:

>> Greeting,

>>

>> I am currently on Androgel, but will soon get to the point where I can

>> no longer afford it. I asked my PCP about shots and he mostly just

>> blew me off. Can someone tell me how best to phrase a request for

>> shots and what the medication is? Maybe I didn't do a good job of

>> explaining my situation. He basically said, " on shots you get alot of

>> RX at once and then it dissipates. " Are there shots that don't come

>> with this problem. How much cheaper are the shots?

>>

>> Thanks to all. I have learned so much from this group.

>Androgel was terribly expensive for me... my insurance just would -not-

>pay for it... however, the shots are paid full in FULL with no

>co-payment. It was like that with Anthem and Humana insurances.

Others have had insurance companies that would pay for androgel but

not shots. A letter pointing out the costs savings got them free

shots.

>

>Try this case with your doctor from a $$ standpoint.

>

>I also feel much better on shorts and do not have irritation on my back

>like I did with the gels.

>

>

[Guest guest]

After you mixed the novare did you put it in the fridge to keep it cold if not

it will go bad not work. If you felt the first shot you should have felt them

all for a good 30 days. I do my shots IM I feel that feeling of well being

doing them this way. I have some novarel that was past the good date and it

worked fine after I mixed it.

Co-Moderator

Phil

> From: Stephan Pochet <spochet@...>

> Subject: SHOTS

>

> Date: Monday, June 30, 2008, 6:21 PM

> I have the same problem, as I lost my job and at $458 a

> month Cobra does not make any sense, I will go on shots

> which are much cheaper for a while. After being on 2 packs

> a day I understand that 100mg per week is starting point. I

> also do HCG with some results but never as great as the

> first shot which is AMAZING, then not much action in the

> balls after that, but my stash of NOVAREL expired in the

> last 2 months. I will try OVIDREL which is said to be

> better.

> So you say that shots are much better? Glad to hear it I

> cant wait to start.

> Thanks to all for your continuous advice.

>

>

>

>

>

[Guest guest]

Hi ,

I've got a prescription through one of these longevity clinics.

The only problem is that it is too expensive! These guys fill

through their own compounding pharmacy, and charge $195

for 2 months worth! Where do you get your T that it is only

$120 for 5 or 6 months worth?

Thanks,

-Mike

> time to get a new doctor. a vial for me costs about $120 and lasts about 5 to

6 months.

syringes and other accessories are relatively cheap too. if your doc is going to

blow you off

like my first one..... well first through fifth, got to find someone who will

work with you.

>  

> you also need instructions on how to inject, never hit a vein, you don't want

this stuff

directly into your blood, these kinds of things I learned in the forum that docs

never told

me.

>  

> it's simple, you can become self sufficient, but you need that doctor who will

work with

you. If you can just get a prescription for a vial of T........

[Guest guest]

I get mine at CareMart through the mail but others go to Sam's Club, Wall

Greens. They get 200mgs/ml comes in a 10ml. vile so doing a shot at 100mgs a

week it's good for 20 shots each shot is .5 mls = 100 mgs call around and ask

for the cost.

Co-Moderator

Phil

> From: Mike Lawson <mlawson66@...>

> Subject: Re: Shots

>

> Date: Wednesday, July 2, 2008, 7:49 AM

> Hi ,

>

> I've got a prescription through one of these longevity

> clinics.

> The only problem is that it is too expensive! These guys

> fill

> through their own compounding pharmacy, and charge $195

> for 2 months worth! Where do you get your T that it is only

> $120 for 5 or 6 months worth?

>

> Thanks,

>

> -Mike

>

> > time to get a new doctor. a vial for me costs about

> $120 and lasts about 5 to 6 months.

> syringes and other accessories are relatively cheap too. if

> your doc is going to blow you off

> like my first one..... well first through fifth, got to

> find someone who will work with you.

> >  

> > you also need instructions on how to inject, never hit

> a vein, you don't want this stuff

> directly into your blood, these kinds of things I learned

> in the forum that docs never told

> me.

> >  

> > it's simple, you can become self sufficient, but

> you need that doctor who will work with

> you. If you can just get a prescription for a vial of

> T........

>

>

>

>

> ------------------------------------

>

>

[Guest guest]

shots

Hello,

I was hoping to find some answers on how to handle shots.... my son has been on

injections for about 2 yrs now. He started out with mtx and had no trouble.

Then we added Enbrel and still had no trouble.

Now he is on Humira and it is awful. He says it hurts and burns really bad.

He gets so nervous that he ends up vomiting and crying. Most of the time he

falls right to sleep from being so exhausted from getting so worked up.

If you have any recommendations that would help please let me know. Thank you.

, mom to Chase (9yr old Poly)

[Guest guest]

Hi

I would put on Emla cream. Not a substitute/generic but the real Emla. I give

that to my daughter before they draw blood. From personal experience, it makes a

big difference. Maybe cooling it down/numming the injection site with ice before

giving it helps too.

Good Luck

mom to Jackie 13 poly system JRA

From: gmckin11@...

Date: Sun, 23 Aug 2009 14:33:27 -1000

Subject: Fw: shots

shots

Hello,

I was hoping to find some answers on how to handle shots.... my son has been on

injections for about 2 yrs now. He started out with mtx and had no trouble. Then

we added Enbrel and still had no trouble.

Now he is on Humira and it is awful. He says it hurts and burns really bad.

He gets so nervous that he ends up vomiting and crying. Most of the time he

falls right to sleep from being so exhausted from getting so worked up.

If you have any recommendations that would help please let me know. Thank you.

, mom to Chase (9yr old Poly)

[Guest guest]

- If you haven't already, you need to let your ped rheumy know about this.

It needs to be addressed asap so things don't get any worse. We waited too long

to tell our ped rheumy about our troubles with the mtx injection. We finally

just had to stop the injection and switch to pills. We were lucky that the

pills have still worked at keeping away his inflammation. Grant still has

problems with nausea before he takes the pills but not as bad as with the

injection. Our next step is to see a psychologist, which we are seriously

considering right now, which would give him ways to calm himself before the

medication.

& Grant (12, psoriatic/uveitis)

>

>

> Hi

>

> I would put on Emla cream. Not a substitute/generic but the real Emla. I give

that to my daughter before they draw blood. From personal experience, it makes a

big difference. Maybe cooling it down/numming the injection site with ice before

giving it helps too.

>

>

>

> Good Luck

>

> mom to Jackie 13 poly system JRA

>

>

>

>

> From: gmckin11@...

> Date: Sun, 23 Aug 2009 14:33:27 -1000

> Subject: Fw: shots

>

>

>

>

>

>

> shots

>

> Hello,

>

> I was hoping to find some answers on how to handle shots.... my son has been

on injections for about 2 yrs now. He started out with mtx and had no trouble.

Then we added Enbrel and still had no trouble.

>

> Now he is on Humira and it is awful. He says it hurts and burns really bad.

>

> He gets so nervous that he ends up vomiting and crying. Most of the time he

falls right to sleep from being so exhausted from getting so worked up.

>

> If you have any recommendations that would help please let me know. Thank you.

>

> , mom to Chase (9yr old Poly)

>

>

[Guest guest]

Oh forgot to mention that I do use the Emla cream but its not the stick it is

the burn of the medication.

________________________________

From: Gentile <scandinavia_today@...>

Sent: Sunday, August 23, 2009 11:01:26 PM

Subject: RE: Fw: shots

 

Hi

I would put on Emla cream. Not a substitute/generic but the real Emla. I give

that to my daughter before they draw blood. From personal experience, it makes a

big difference. Maybe cooling it down/numming the injection site with ice before

giving it helps too.

Good Luck

mom to Jackie 13 poly system JRA

@group s.com

From: gmckin11@hawaiiante l.net

Date: Sun, 23 Aug 2009 14:33:27 -1000

Subject: Fw: shots

shots

Hello,

I was hoping to find some answers on how to handle shots.... my son has been on

injections for about 2 yrs now. He started out with mtx and had no trouble. Then

we added Enbrel and still had no trouble.

Now he is on Humira and it is awful. He says it hurts and burns really bad.

He gets so nervous that he ends up vomiting and crying. Most of the time he

falls right to sleep from being so exhausted from getting so worked up.

If you have any recommendations that would help please let me know. Thank you.

, mom to Chase (9yr old Poly)

[Guest guest]

Hey,

Chase did see a psychologist for about 9 months and it didn't help (maybe we

should try a different one).  I just feel like he needs something to calm him

down.... he gets so worked up.  I think I will call them today.

Thanks,

________________________________

From: toivonen4 <toivonen4@...>

Sent: Monday, August 24, 2009 9:57:16 AM

Subject: Re: Fw: shots

 

- If you haven't already, you need to let your ped rheumy know about this.

It needs to be addressed asap so things don't get any worse. We waited too long

to tell our ped rheumy about our troubles with the mtx injection. We finally

just had to stop the injection and switch to pills. We were lucky that the pills

have still worked at keeping away his inflammation. Grant still has problems

with nausea before he takes the pills but not as bad as with the injection. Our

next step is to see a psychologist, which we are seriously considering right

now, which would give him ways to calm himself before the medication.

& Grant (12, psoriatic/uveitis)

>

>

> Hi

>

> I would put on Emla cream. Not a substitute/generic but the real Emla. I give

that to my daughter before they draw blood. From personal experience, it makes a

big difference. Maybe cooling it down/numming the injection site with ice before

giving it helps too.

>

>

>

> Good Luck

>

> mom to Jackie 13 poly system JRA

>

>

>

> @group s.com

> From: gmckin11@...

> Date: Sun, 23 Aug 2009 14:33:27 -1000

> Subject: Fw: shots

>

>

>

>

>

>

> shots

>

> Hello,

>

> I was hoping to find some answers on how to handle shots.... my son has been

on injections for about 2 yrs now. He started out with mtx and had no trouble.

Then we added Enbrel and still had no trouble.

>

> Now he is on Humira and it is awful. He says it hurts and burns really bad.

>

> He gets so nervous that he ends up vomiting and crying. Most of the time he

falls right to sleep from being so exhausted from getting so worked up.

>

> If you have any recommendations that would help please let me know. Thank you.

>

> , mom to Chase (9yr old Poly)

>

>

[Guest guest]

I was on Humira myself at one time and it is like hot sauce going in your skin.

I hated it. I can't imagine how a little one would deal with it. Ice might be

the best bet.

, adult onset RA, mom to Rob, 20, JAS

shots

>

> Hello,

>

> I was hoping to find some answers on how to handle shots.... my

> son has been on injections for about 2 yrs now. He started out

> with mtx and had no trouble. Then we added Enbrel and still had

> no trouble.

>

> Now he is on Humira and it is awful. He says it hurts and burns

> really bad.

>

> He gets so nervous that he ends up vomiting and crying. Most of

> the time he falls right to sleep from being so exhausted from

> getting so worked up.

>

> If you have any recommendations that would help please let me

> know. Thank you.

>

> , mom to Chase (9yr old Poly)

>

>

[Guest guest]

Gloria,When I picked up my first months supply of medication I almost fainted at the pharmacy counter. I saw that my insurance had saved me over 8 thousand dollars. The Ribavirin and Peg-Interfuron were over 8 grand a month. My co-pay was 50 for the interfuron cause it was an injectable and 10 for the ribavirin. I wanted to die. I couldn't believe this stuff was so expensive. My insurance changed half way thru treatment... Now I had to pay a percentage of the cost of the drugs... it was equal to or more than a car payment and I couldn't afford it. The doctor's office got Schering to supply my drugs for the rest of the treatment at no charge. It was amazing. But every time I went to pick

up a package of meds... like 3 months worth at a time, I felt like I needed a cop to walk me to the car cause I knew how much that stuff was worth. It's unbelievable what we pay for this stuff. I couldn't have done it without the great insurance for the first half and the great doctors office that sweet talked the drug rep for the second half. Teri From: Gloria

<gadamscan@...> Sent: Sun, April 25, 2010 1:57:23 PMSubject: [ ] Shots

TeriI first started with the two syringes back in 2004. I absolutely hated that because I swear the needle that was going to stick into me was already dull because I had to draw it from a bottle. Then, about 6 mons in, the pens came out!! For me, the pen was bulky, but better because the needle was so small.Now, they package the whole medication together in one syringe (no mixing or playing around). Basically, you just pull the cap off the needle and do the stick. Also, the stuff is still major expensive and I hope that everyone that is waiting for the new meds with the Protease Inhibitor understand that it's going to be that much more expensive!! I know it cost us over $20,000 the first time around and that only because I was not able to file our

taxes in time. This last one was a Clinical Trial and has only cost me the price of gas to get back and forth. I've heard figures of up to $40,000 for the new trio...Gloria

You've got to be kidding me... are you telling me that the Peg interfuron is not a pen shot anymore? You have to do this with a syringe? OH LORD. That's just dumb.Everything was a pen shot for awhile there.. even my migraine med was a pen shot. I imagine it's cheaper to have it just as a fluid with syringes... that stuff was expensive and I'm sure the packaging had something to do with the price.. but oh man I had no idea.Teri