Re: Going to the Mayo Clinic-Cheryle K.

[Guest guest]

Hi Cheryle,

Just a quick reply - I was referred to Mayo in Rochester MN in 2005. They

referred me to MDACC in Houston TX. So be prepared, they may do the same for

you. Looking forward to your update on your meeting with them.

Jackie S.

Iowa

From: cocobluejamaica <ckonze@...>

Subject: [ ] Going to the Mayo Clinic

Date: Tuesday, June 22, 2010, 8:15 PM

 

Hi - my name is Cheryl K.(yes - another Cheryl) and I've been lurking for

a couple of years. My CML was diagnosed in March of 2007. I've been in and out

of remission as my onc and I try to figure out the maximum dosage of Gleevec vs.

side effects. Right now I taking 500 mg over all by taking 400 mg one day and

600 mg (a pill and a half) the next day. I can live with the 400 mg - side

effects wise (except maybe the fatigue), but not so good on 600 mg. As of May

4th, I was undetectable per my latest fish test. So I'm back into remission

once again. Zavie - may I have a number please?

Next week I have an appointment at the Mayo Clinic in Rochester, MN to consult

with a specialist. I am seeing Dr. Hogan. I hope to learn more about

my CML and how to cope with it. I know I have an unusual mutation of the

Phildelphia chromosone(at least one that U of MN labs hadn't seen before). So I

hope to learn more about that. Also at 61, I bring a host of other medical

issues to the table so it will be good, I think, to look at the whole picture.

Has anyone been to the Mayo? If so, what was your experience?

[Guest guest]

That's interesting. I know for sure that Mayo has a CML Specialist at their

sdale, Arizona campus.

>

> Hi Cheryle,

> Just a quick reply - I was referred to Mayo in Rochester MN in 2005. They

referred me to MDACC in Houston TX. So be prepared, they may do the same for

you. Looking forward to your update on your meeting with them.

>

> Jackie S.

> Iowa

>

>