Neurontin

[Guest guest]

Sue,

I've been taking Neurontin for anxiety since 1999. Without it I would have

suicidal anxiety attacks. By doing this it has literally saved my life! I

would be in big trouble without it.

bb

[Guest guest]

I took neurontin twice and threw it away! Love, Anita Neurontin Neurontin was developed for seizures . . most docsprefered the tried and tested drug. So themanufacturer, in an effort to recoup their money andmake more, sent their sales reps across the country totell doctors the wonders of Neurontin - all off label,of course. They actually went into examining roomswith doctors, stepped out and recommended how muchNeurontin to prescribe, and told the doctors that, ifthat didn't work to double and redouble it. If the doctors prescribed enough, they were rewardedwith junkets. . . If they really got on the bandwagonand prescribed a lot, they were paid to be speakers toother doctors on these junkets.When I complained to my doctor's nurse about thescene, she told me this wasn't at all unusual! Thefeds fined the manufacturer's $430,000,000 for the waythey marketed the drug. There was an attempt for aclass action suit against the mfgs. because so manypeople either committed suicide, or succeded incommitting suicide while on the drugNeurontin has been prescribed repeatedly to me for avariety of reasons . . . It never was effective. Infact, my feet didn't start burning until after takingit. When I finally figure out what was going on withmy feet and found a support group, it was dismaying,everyone was going downhill - unfortunately everyonewas taking Neurontin! It was there that I found adoctor who recommended supplementing with Magnesium.Thank God that worked! . . .Most of the people on thesupport group were so wed to conventional medicinethat they ridiculed Dr. Mannsmann who tried to tellthem about Magnesium.Neurontin acts to block a particular nerve pathway. Italso depeletes the body's magnesium.Hugs,Rogene

[Guest guest]

,

I have had good results with Neurontin for the nerve pain I have. Most of

my pain is due to a large extruded disc at T6-7 compressing my spinal cord 6

mm. There are other thing such as small bone spurs, protruding discs, and

degeneration that all contribute to the pain. I am also on 125 ug/hr fentanyl,

10 mg oxycodone up to 4 time a day for breakthrough pain, Cymbalta also for

nerve pain, skelaxin (muscle relaxer), and 1800 mg/day Neurontin. I have also

been put on provigil to try and offset the sedative effect of the narcotics

and am having some benefits from it. If you have any questions, feel free to

ask.

[Guest guest]

I have been taking Neurontin since my spinal fusion in Nov 2004 due to nerve

damage as a result of surgery. There are side effects to any medication taken,

though I have not really seen to many except for some short term memory loss

(but when you grow old gracefully then memory loss is a blessing in disquise)

j/k

It helps with the nerve damage and will take it until 1 the nerve damage heals

or 2 it doesnt heal and I have this damage for life, either way I would rather

not walk around with what feels like fireworks going on in my foot and leg.

<watermelanie@...> wrote:

has anyone found neurontin helpful? my doc mentioned that too a while back

but i poo-poo'd the idea because i hadn't heard anything too great about it,

and heard a lot about side effects. also, i don't tolerate sides effects very

well,

they seem to be magnified in me, so i was hesitant to try it.

i have read some old posts and so far, haven't seen too much positive stuff

about neurontin. does anyone want to crawl out of the woodwork and say

anything nice about neurontin?

i will ask about the lidocaine patches. if they work for me, they would be a

life

saver.

-melanie

[Guest guest]

hello, i want to thank the people who were talking about the lidocaine patch.

i just got mine about one hour ago and i am praying this might be a solution.

i have stenosis, spondylothesis of the lumbar region. i think 4and 5. i

have had cortizone shots in my spine (epidurals) and that has helped. my

neurosurgeon and my pain management doctors both say that fusions are not always

the

solution. sometimes they help, sometimes they don't. so i am trying to not

ever do a fusion. the neurontin was a blessing when i was getting all that

electricity down my legs. the downside to the neurontin was that i was just

exhausted all the time and all i wanted to do was lay in bed. it made me very,

very tired. and since i couldn't do anything i was becoming depressed and i

gained weight from the depression and non movement i guess. i thank you all for

posting. marsha

[Guest guest]

please let us know how the lidocaine patches work for you!

-melanie

> hello, i want to thank the people who were talking about the

lidocaine patch.

> i just got mine about one hour ago and i am praying this might be a

solution.

> i have stenosis, spondylothesis of the lumbar region. i think 4and

5. i

> have had cortizone shots in my spine (epidurals) and that has

helped. my

> neurosurgeon and my pain management doctors both say that fusions

are not always the

> solution. sometimes they help, sometimes they don't. so i am

trying to not

> ever do a fusion. the neurontin was a blessing when i was getting

all that

> electricity down my legs. the downside to the neurontin was that i

was just

> exhausted all the time and all i wanted to do was lay in bed. it

made me very,

> very tired. and since i couldn't do anything i was becoming

depressed and i

> gained weight from the depression and non movement i guess. i thank

you all for

> posting. marsha

>

>

>

[Guest guest]

, I love the patches. It helps take the edge off for quite a while

without any medication side effects.

<watermelanie@...> wrote:please let us know how the lidocaine

patches work for you!

-melanie

> hello, i want to thank the people who were talking about the

lidocaine patch.

> i just got mine about one hour ago and i am praying this might be a

solution.

> i have stenosis, spondylothesis of the lumbar region. i think 4and

5. i

> have had cortizone shots in my spine (epidurals) and that has

helped. my

> neurosurgeon and my pain management doctors both say that fusions

are not always the

> solution. sometimes they help, sometimes they don't. so i am

trying to not

> ever do a fusion. the neurontin was a blessing when i was getting

all that

> electricity down my legs. the downside to the neurontin was that i

was just

> exhausted all the time and all i wanted to do was lay in bed. it

made me very,

> very tired. and since i couldn't do anything i was becoming

depressed and i

> gained weight from the depression and non movement i guess. i thank

you all for

> posting. marsha

>

>

>

[Guest guest]

> I would like to hear from anyone using the generic neurontin,

> gabapentin. I switched to the generic in March and since then the

pain

> in my legs has gotten worse. It might have nothing to do with this,

> but was just checking. Thanks for any responses you might have.

Hello Cowgirl, I took neurontin for four years for my syringomelia

(srynx in spinal cord) 300mg 3x a day. It made me sooo sleepy, but

helped with the pain. It did cause me to gain about 40lbs, and gave

me weird side effects like slurred speach, and problems connecting my

sentences. So I quite taking it 9mo ago and the symtoms from it

dissappeared. It does work well, but I did not like the side

effects. Also you should be having your blood monitered regularly

whil using it.

G-luck

Sincerely,

Shopgirlsw

[Guest guest]

My husband is taking gabapentin 2700 mg 4x a day for neurophy of the feet.

(pardon my spelling).

He has noticed no change from nuerontin.

[low dose naltrexone] Neurontin

I would like to hear from anyone using the generic neurontin,

gabapentin. I switched to the generic in March and since then the pain

in my legs has gotten worse. It might have nothing to do with this,

but was just checking. Thanks for any responses you might have.

[Guest guest]

Whoops! That's a total of 2700 mg of gabapentin broken up over a day.

:<

[low dose naltrexone] Neurontin

I would like to hear from anyone using the generic neurontin,

gabapentin. I switched to the generic in March and since then the pain

in my legs has gotten worse. It might have nothing to do with this,

but was just checking. Thanks for any responses you might have.

[Guest guest]

MY MOM HAS BURNING FEET ALOT.ALPHA LIPOIC FOR THAT? THNX KENT

[low dose naltrexone] Neurontin I would like to hear from anyone using the generic neurontin, gabapentin. I switched to the generic in March and since then the pain in my legs has gotten worse. It might have nothing to do with this, but was just checking. Thanks for any responses you might have.

[Guest guest]

alpha lipoic acid is for neuropathy of the feet and it won't hurt you. You have nothing to lose by trying it and everything to gain. It has numerous health benefits [low dose naltrexone] Neurontin I would like to hear from anyone using the generic neurontin, gabapentin. I switched to the generic in March and since then the pain in my legs has gotten worse. It might have nothing to do with this, but was just checking. Thanks for any responses you might have.

[Guest guest]

Pam, I started taking the generic neurontin around a year ao and while I was on the real stuff I would be using around 3 to 4 / 400 mg pillls 3 times a day. But on the geneic stuff I'm now down to just 1/ 300 mg pill twice a day plus I now take 2 pills at bedtime. My main reaon for cutting back was that my legs were retaining too much water and one of my Brain Dr's said that the Neurontin will do that. However, if I am having "RLS" at night I will take another 2 / 300 mg pills of either the real stuff or the generic crap.

RK

[low dose naltrexone] Neurontin I would like to hear from anyone using the generic neurontin, gabapentin. I switched to the generic in March and since then the pain in my legs has gotten worse. It might have nothing to do with this, but was just checking. Thanks for any responses you might have.

[Guest guest]

have you tried quinine for restless leg syndrome and large doses of magnesium?

[low dose naltrexone] Neurontin I would like to hear from anyone using the generic neurontin, gabapentin. I switched to the generic in March and since then the pain in my legs has gotten worse. It might have nothing to do with this, but was just checking. Thanks for any responses you might have.

[Guest guest]

Hi

i saw someone with a question about neurontin. I took it for a long

time, initially for sleep and hopefully for pain assistance. At

first it seemed to help, but soon lost its effectiveness. It doesn't

help me sleep, nor with the pain. But, it does for some, so give it

a try. Best of luck

[Guest guest]

Thanks so much for the neurontin information,.I think I

will try it.I'm pretty desperate to get a good nights sleep.

[Guest guest]

bb

You might want to take the free online test at _www.amenclinic.com_

(http://www.amenclinic.com) One facet of this test identifies under and over

methylators.

mjh

In a message dated 12/22/2005 6:31:22 PM Eastern Standard Time,

avefilo@... writes:

My experience with neurontin has been positive also.

I began taking it in '99 for suicidal anxiety attacks

which were horrific beyond description. I have taken

up to 6400mg without bad effects and was even forced

by food sensitivities to stop taking it for a few

months with no ill effects. Our reactions to it could

well be genetic because they are so different. Due to

recent very informative posts, I think I have the

problem of undermethylation and think that when I am

able to take Rich's suggested protocol for that, I

probably won't need the neurontin (for anxiety) and

Elavil (for depression) any more. That is because that

I have read that those two evils can be caused by

undermethylation. Will post my results.

bb

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

I think the recent posts about the dangers of Neurontin have been important but

my experience has been quite different.

I had severe food intolerances about eight years ago, i.e., I would pass out

after meals. I could never tie it to food allergies, leaky gut syndrome, etc. I

tried eliminating almost everything from my diet. I was close to being

suicidial. Jay Goldstein put me on Neurontin and the problem went away

OVERNIGHT. I was on doses of Neurontin up to 4800mg but found after 4 or 5

months that about 600 mg was enough. I didn't experience any other benefits

from the drug and it may have made my sleep worse.

Eventually, on the recommendation of a nuitritionist I tapered down the

neurontin and added Seacure (predigested fish protein) and found that Seacure

worked just as well. I'm still taking it. It's been several years. If I go below

5 capsules a day, I begin to have food problems again, otherwise I can eat

anything.

I also had no trouble going off of Neurontin.

So, the moral, I guess is the one we learn over and over again: we are

all different. All drugs and supplements should be approached cautiously;

weaning off of them should be done slowly, but some drugs and supplements

which are a disaster for some of us are great for others.

michael

[Guest guest]

>

> I think the recent posts about the dangers of Neurontin have been

important but my experience has been quite different.

We all seem to have different reactions to drugs. The first 22 years I

had CFS, my brain felt it was made of crystal and was going to shatter

any moment. I also felt disassociated with my surroundings. I could

hear people, see them and talk with them but I didn't feel connected

with anyone. I managed to work in sales with these feelings. It was

very hard at first but then you just accept what you are feeling. I

knew that my brain was made out of crystal and wasn't going to shatter

but that didn't stop the feeling it was.

Neurontin took those feelings away from me and I started being able

to " feel " a beautiful spring day instead of just seeing and knowing it

was.

Bob

[Guest guest]

My experience with neurontin has been positive also.

I began taking it in '99 for suicidal anxiety attacks

which were horrific beyond description. I have taken

up to 6400mg without bad effects and was even forced

by food sensitivities to stop taking it for a few

months with no ill effects. Our reactions to it could

well be genetic because they are so different. Due to

recent very informative posts, I think I have the

problem of undermethylation and think that when I am

able to take Rich's suggested protocol for that, I

probably won't need the neurontin (for anxiety) and

Elavil (for depression) any more. That is because that

I have read that those two evils can be caused by

undermethylation. Will post my results.

bb

.............................................................

--- MICHAEL ALLEN <msallen1984@...> wrote:

> I think the recent posts about the dangers of

> Neurontin have been important but my experience has

> been quite different.

>

> I had severe food intolerances about eight years

> ago, i.e., I would pass out after meals. I could

> never tie it to food allergies, leaky gut syndrome,

> etc. I tried eliminating almost everything from my

> diet. I was close to being suicidial. Jay Goldstein

> put me on Neurontin and the problem went away

> OVERNIGHT. I was on doses of Neurontin up to 4800mg

> but found after 4 or 5 months that about 600 mg

> was enough. I didn't experience any other benefits

> from the drug and it may have made my sleep worse.

>

> Eventually, on the recommendation of a

> nuitritionist I tapered down the neurontin and

> added Seacure (predigested fish protein) and found

> that Seacure worked just as well. I'm still taking

> it. It's been several years. If I go below 5

> capsules a day, I begin to have food problems

> again, otherwise I can eat anything.

>

> I also had no trouble going off of Neurontin.

>

> So, the moral, I guess is the one we learn

> over and over again: we are all different. All drugs

> and supplements should be approached cautiously;

> weaning off of them should be done slowly, but some

> drugs and supplements which are a disaster for some

> of us are great for others.

>

> michael

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________

DSL – Something to write home about.

Just $16.99/mo. or less.

dsl.

[Guest guest]

It is really interesting how these drugs affect people differently. I

remember for me, I had been 300 mgs of Neurontin at night for a year,

which did nothing discernible for me. I know now that it would have

washed out while I was asleep, you got to take it three times a day

to maintain a useful blood level.

I was going through a very tough time in my life which just got worse

and worse, and had been on klonopin again to sleep. When I tried to

go off it I got slammed and it took me three tries to get off it, and

2 years from start to finish. By the time I began my third taper with

the water method, I was already so depressed and it got worse and

worse. Every waking moment I wanted to die. Forty days into my taper,

going too fast for me, from .5 to .4, I crossed a line, and began to

plan to commit suicide.

Finally my appt with a doctor in Cincinnati four hours away came up

and a dear friend took me there. This doctor knew a lot about benzo

w/d, and also CFIDS. He told me to stop tapering and increase my

neurontin. I went up to 1200 mgs gradually over a few weeks, but

expected nothing, and continued my plans to end my life. One day I

woke up and felt like myself again. It was amazing. That night,

however, I woke up and then was awake for hours, and that made my

morning dose too late. I plunged back into the horrible depression.

But as soon as I got my doses back on schedule I pulled out of it.

Then with the help of friends I got out of my living situation with

abusive dysfunctional relatives, which has plagued so many of us

here, and moved far away. The neurontin saved my life, gave me the

energy to get the hell out of there, and I was blessed to have the

friends and resources to help me.

However I found the neurontin pooped out for me several months later,

got pretty depressed again, and I still had half my klonopin taper to

go, so I just had to slow down even more and tough it out.

Fortunately my personal circumstances improved miraculously and that

made it possible for me to get through it.

It's hard to find much online about how to deal with neurontin

tolerance and withdrawal, there are no groups like there are for

benzos, but the braintalk forum has some information. Then there were

those lawsuits about it causing some people to commit suicide, how

amazing that it had the opposite effect in me.

These drugs that affect the brain are really mysterious in how they

are so different for different people. It is something that doctors

and pharmaceutical companies need to pay more heed to in my opinion.

Having spent a lot of time in benzo forums, it is eerie how people's

experiences there parallel ours with CFIDS. Many of the symptoms are

the same, most experience poor treatment from people in their lives

and doctors who do not understand what they are going through, people

are accused of being mentally ill when they say they have a benzo w/d

symptom, etc.

I myself had the joy of being transferred for my disability to a

jackass of a shrink who upon hearing I had CFIDS did some research

and reported back to me that it was a psychiatric illness. When I

told him some information to the contrary, he refused to discuss it

anymore. When I had trouble with the klonopin and asked for his help

in getting a pharmaceutical liquid to taper with, he mocked me. When

I told him there were 3000 people in a group online having the same

problems, he informed that they were all just mentally ill too. When

I left town I got away from this jerk too, and was I ever glad.

Why I want off neurontin now is that it has subjectively divided my

IQ in two, although I score the same on online tests. However, I

wander around in a daze, I can't remember anything, I lack

motivation, and just in general don't feel like myself at all. My

benzo doctor thinks the klonopin did it to me, Cheney thinks it is

brain damage from the CFIDS, everyone has their pet theory. I think

it is the neurontin because the stupor came over me soon after I

increased my dose.

I am doing okay with my taper, down to 500 from 1200, but going very

slowly. Cheney wants me to stop at 300 mgs because he is concerned

about my having gone off klonopin. Although he said that the

magnesium/taurine injections would really help to take up the slack

there. So maybe I can eventually get to zero on neurontin and get my

brain back.

Seeing a lot of information posted here in support of

magnesium/taurine. The shots hurt a little bit but I think they are

well worth doing if you can get a doctor to prescribe it. Cheney said

that some people with CFIDS are unable to transport magnesium where

it needs to go in their cells because of an ATP deficit, he said I

would have a 50/50 chance, and that injections were better than

taking it orally. I think I feel a bit better, that it is helping

some.

Sorry to ramble.

Helen

> >

> > I think the recent posts about the dangers of Neurontin have been

> important but my experience has been quite different.

>

> We all seem to have different reactions to drugs. The first 22

years I

> had CFS, my brain felt it was made of crystal and was going to

shatter

> any moment. I also felt disassociated with my surroundings. I could

> hear people, see them and talk with them but I didn't feel

connected

> with anyone. I managed to work in sales with these feelings. It was

> very hard at first but then you just accept what you are feeling. I

> knew that my brain was made out of crystal and wasn't going to

shatter

> but that didn't stop the feeling it was.

>

> Neurontin took those feelings away from me and I started being able

> to " feel " a beautiful spring day instead of just seeing and knowing

it

> was.

>

> Bob

>

[Guest guest]

Thanks mjh

I performed the brain test.

Thanks God! Don't have ADD

all other parts of brain is problematic.

best wishes

nil

Re: Neurontin

>

>

> bb

>

> You might want to take the free online test at _www.amenclinic.com_

> (http://www.amenclinic.com) One facet of this test identifies under and

> over

>

[Guest guest]

Hi Helen,

How about doing the Sinatra protocol to get your ATP

levels up if that is what you need?

See: www.drmyhill.co..uk/article.cfm?id=373

bb

........................................................................

--- helen9jora <helenjora@...> wrote:

> It is really interesting how these drugs affect

> people differently. I

> remember for me, I had been 300 mgs of Neurontin at

> night for a year,

> which did nothing discernible for me. I know now

> that it would have

> washed out while I was asleep, you got to take it

> three times a day

> to maintain a useful blood level.

>

> I was going through a very tough time in my life

> which just got worse

> and worse, and had been on klonopin again to sleep.

> When I tried to

> go off it I got slammed and it took me three tries

> to get off it, and

> 2 years from start to finish. By the time I began my

> third taper with

> the water method, I was already so depressed and it

> got worse and

> worse. Every waking moment I wanted to die. Forty

> days into my taper,

> going too fast for me, from .5 to .4, I crossed a

> line, and began to

> plan to commit suicide.

>

> Finally my appt with a doctor in Cincinnati four

> hours away came up

> and a dear friend took me there. This doctor knew a

> lot about benzo

> w/d, and also CFIDS. He told me to stop tapering and

> increase my

> neurontin. I went up to 1200 mgs gradually over a

> few weeks, but

> expected nothing, and continued my plans to end my

> life. One day I

> woke up and felt like myself again. It was amazing.

> That night,

> however, I woke up and then was awake for hours, and

> that made my

> morning dose too late. I plunged back into the

> horrible depression.

> But as soon as I got my doses back on schedule I

> pulled out of it.

>

> Then with the help of friends I got out of my living

> situation with

> abusive dysfunctional relatives, which has plagued

> so many of us

> here, and moved far away. The neurontin saved my

> life, gave me the

> energy to get the hell out of there, and I was

> blessed to have the

> friends and resources to help me.

>

> However I found the neurontin pooped out for me

> several months later,

> got pretty depressed again, and I still had half my

> klonopin taper to

> go, so I just had to slow down even more and tough

> it out.

> Fortunately my personal circumstances improved

> miraculously and that

> made it possible for me to get through it.

>

> It's hard to find much online about how to deal with

> neurontin

> tolerance and withdrawal, there are no groups like

> there are for

> benzos, but the braintalk forum has some

> information. Then there were

> those lawsuits about it causing some people to

> commit suicide, how

> amazing that it had the opposite effect in me.

>

> These drugs that affect the brain are really

> mysterious in how they

> are so different for different people. It is

> something that doctors

> and pharmaceutical companies need to pay more heed

> to in my opinion.

> Having spent a lot of time in benzo forums, it is

> eerie how people's

> experiences there parallel ours with CFIDS. Many of

> the symptoms are

> the same, most experience poor treatment from people

> in their lives

> and doctors who do not understand what they are

> going through, people

> are accused of being mentally ill when they say they

> have a benzo w/d

> symptom, etc.

>

> I myself had the joy of being transferred for my

> disability to a

> jackass of a shrink who upon hearing I had CFIDS did

> some research

> and reported back to me that it was a psychiatric

> illness. When I

> told him some information to the contrary, he

> refused to discuss it

> anymore. When I had trouble with the klonopin and

> asked for his help

> in getting a pharmaceutical liquid to taper with, he

> mocked me. When

> I told him there were 3000 people in a group online

> having the same

> problems, he informed that they were all just

> mentally ill too. When

> I left town I got away from this jerk too, and was I

> ever glad.

>

> Why I want off neurontin now is that it has

> subjectively divided my

> IQ in two, although I score the same on online

> tests. However, I

> wander around in a daze, I can't remember anything,

> I lack

> motivation, and just in general don't feel like

> myself at all. My

> benzo doctor thinks the klonopin did it to me,

> Cheney thinks it is

> brain damage from the CFIDS, everyone has their pet

> theory. I think

> it is the neurontin because the stupor came over me

> soon after I

> increased my dose.

>

> I am doing okay with my taper, down to 500 from

> 1200, but going very

> slowly. Cheney wants me to stop at 300 mgs because

> he is concerned

> about my having gone off klonopin. Although he said

> that the

> magnesium/taurine injections would really help to

> take up the slack

> there. So maybe I can eventually get to zero on

> neurontin and get my

> brain back.

>

> Seeing a lot of information posted here in support

> of

> magnesium/taurine. The shots hurt a little bit but I

> think they are

> well worth doing if you can get a doctor to

> prescribe it. Cheney said

> that some people with CFIDS are unable to transport

> magnesium where

> it needs to go in their cells because of an ATP

> deficit, he said I

> would have a 50/50 chance, and that injections were

> better than

> taking it orally. I think I feel a bit better, that

> it is helping

> some.

>

> Sorry to ramble.

>

> Helen

>

>

>

>

> > >

> > > I think the recent posts about the dangers of

> Neurontin have been

> > important but my experience has been quite

> different.

> >

> > We all seem to have different reactions to drugs.

> The first 22

> years I

> > had CFS, my brain felt it was made of crystal and

> was going to

> shatter

> > any moment. I also felt disassociated with my

> surroundings. I could

> > hear people, see them and talk with them but I

> didn't feel

> connected

> > with anyone. I managed to work in sales with these

> feelings. It was

> > very hard at first but then you just accept what

> you are feeling. I

> > knew that my brain was made out of crystal and

> wasn't going to

> shatter

> > but that didn't stop the feeling it was.

> >

> > Neurontin took those feelings away from me and I

> started being able

> > to " feel " a beautiful spring day instead of just

> seeing and knowing

> it

> > was.

>

=== message truncated ===

__________________________________

for Good - Make a difference this year.

http://brand./cybergivingweek2005/

[Guest guest]

Thank you, I am on some of that but not the ribose. I really should

ask Cheney about it since I am doing his protocol. But he doesn't

have one protocol, it is individualized, so he might be open to these

other things that are in that article.

Helen

> > > >

> > > > I think the recent posts about the dangers of

> > Neurontin have been

> > > important but my experience has been quite

> > different.

> > >

> > > We all seem to have different reactions to drugs.

> > The first 22

> > years I

> > > had CFS, my brain felt it was made of crystal and

> > was going to

> > shatter

> > > any moment. I also felt disassociated with my

> > surroundings. I could

> > > hear people, see them and talk with them but I

> > didn't feel

> > connected

> > > with anyone. I managed to work in sales with these

> > feelings. It was

> > > very hard at first but then you just accept what

> > you are feeling. I

> > > knew that my brain was made out of crystal and

> > wasn't going to

> > shatter

> > > but that didn't stop the feeling it was.

> > >

> > > Neurontin took those feelings away from me and I

> > started being able

> > > to " feel " a beautiful spring day instead of just

> > seeing and knowing

> > it

> > > was.

> >

> === message truncated ===

>

>

>

>

> __________________________________

> for Good - Make a difference this year.

> http://brand./cybergivingweek2005/

>

[Guest guest]

Hi Christiane,

I don't quite understand your post.

1st of all,

*tiredness and low energy* are not what the DISEASE Chronic Fatigue Syndrome is.

*tiredness and low energy* is a symptom (chronic fatigue) that may accompany

anything from cancer to depression.

2nd,

I am not aware of Neurontin being prescribed for *tiredness and low energy*.

It is an anti-convulsant, used for many off-label purposes, including nerve

pain, and various brain damage and imbalances, mood disorders,etc. (also very

controversial, and with lawsuits for false advertising, over-prescribing, and

patient sx horror accounts)

Some were said to be helped with their MCS on very high doses.

In the 90s, I was given Neurontin for

A) Nerve pain

CFIDS articles reported patients having improvement Cognitively.

I worked s-l-o-w-l-y up to 200mg every 4 hours. Typical of beginning too

fast/too high is a very " drunk " feeling.

It is dose dependent. Some people take 4800mg a day.

Some side effects reported are weight gain and memory loss.

IT helped the nerve pain, it seemed to help my cognitive abilities,

significantly. I felt that it was what enabled me to study/learn/articulate

on-line. IT also calmed down my Movement Disorders (Essential tremor and

Dystonia). The latter being other common uses.

The improvements plateaued around 2 years....I remained on it for several more.

I came to hate this drug, and my dependency on so many pills a day. I felt I did

have more memory loss, and other things I could not put my finger on. I just

hated being on it. So, (over a year ago?), I went off...s-l-o-w-l-y. NO one told

me to, but my Dr. agreed to it.

Now...my CNS symptoms are still bad, even worsening. I can tolerate the nerve

pain, and trying other things for the other sx. I am thrilled to have gone off

of it, and feel like it has been a long de-tox.

Having said that, I would possibly try it again, temporarily, especially under

high emotional stress or tremors (uh, like maybe now, with so much trauma).

I just hate drugs, how they feel, especially with long term use. I feel like

they cause me harm over time, even though they were maybe a Godsend at first.

Neurontin seems to have as widely varying effects and dose tolerance on people

as about any drug.

I'm sure others have reports too. And there used to be forums on it.

Maybe you could be clearer, to list, or yourself, exactly what

symptoms/diagnosis, your Dr, is prescribing Neurontin for?

I hope this post makes sense to anyone. I am in a weird state due to events,

bacterial infection and Levaquin.

I hope for relief over the next week.

" Take what you can use and leave the rest "

Katrina

>

> hi everyone,

>

> My doctor prescribed me Neurontin today, and i was reading the

> previous posts on this medication, it does not seems very

> encouraging to start it. My doctor said it is not a dangerous drug

> since he prescribed me a low dose 100 mg a day for a week and

> increasde gradually to 300 mg a day.

>

> I am mainley CFS from 11 years, and a bit of fibromialgie means i

> struggle more with tiredness, low energy etc. than muscle pain.

>

> Would love to hear from some of you who have some experience with

> this drug

>

> - The reason why your doctor has prescribed it for you?

> - Was it benefit for you?

> - Would you encourage somebody to start taking this drug or is it

> better not to take it at all?

>

> Please any advice would be very appreciated. I am not very

> enthusiasm to start this medication, espacially that I can tolerate

> the muscle pain since i do not have them every day and i take

> tylenols for it even that tylenol does not really help me much, but

> may be it is preferable to tolerate some pain than taking something

> that would just make things worse later. any thoughts?

>

> thank you so much for repling.

> Christiane

>