Neurontin

[Guest guest]

Pooh,

Neurontin does not have 'toxic' side effects that directly affect our

nerves, like the other meds on the list, but Neurontin can have some

wierd effects of it's own.

http://www.rxlist.com/cgi/generic/gabapent_ad.htm

Neurontin made my tremors surge - after about 6 - 7 months on it at

900 mgs a day. So the last 1/2 of that year I took 600 mgs of it each

day. It did quell the wierd electrical type sparks shooting up my arm

while at rest, and that hasn't come back (all that was about 6 or 7

years ago I think, maybe longer)

~ Gretchen

[Guest guest]

I took Neurontin/Gabapentin for about 2 years and it helped my neuropathic pain

quite a bit. I started out on a lower dose, but eventually was taking 2400

mg/day.

As far as side effects...the only thing that I remember was, in the beginning,

my head was really " fuzzy " . As my body got used to it, that seemed to go away a

bit.

I had a very bad experience coming off of Neurontin about 9 months ago when I

found out that I was pregnant. This led to panic attacks and about a week in the

hospital. Note: I have no history of panic/anxiety issues.

I have done a ton of research on the drug and found out that although they do

not know exactly the mechanism by which it works, it seems to increase your

GABA levels in your brain. GABA is a neurotransmitter and is what gives you a

sense of " calm " .

One of you mentioned that you were in a better mood since taking Neurontin...I

suppose the calming effect might put you in a better mood:)

If I had it to do over again, I would have weaned myself off and not stopped it

cold turkey. My neuro was freaking out that I was pregnant, so that is why he

wanted me to get off the drug immediately.

Amy Hodge

[Guest guest]

Hi Matt,

I don't know what type I have. I am thinking about getting a second opinion.

The neurologist told me I could get the DNA test but that my insurance wouldn't

pay for it and since I just got laid off two weeks ago, I can't pay for the

test. My doctor didn't really give me much information on this disease. He

just told me I have it and that's there no cure and nothing to slow the progress

down.

I have been taking Neurontin since April when my primary put me on it and I

weened myself off of it and this neurologist told me to go back on it and wants

me to go up to 2700 mg. I got up to 1800 mg and I can't stand the way I feel.

It makes me feel dopey and I'm tired all the time. And it doesn't help with the

pain anyway.

Joy

[Guest guest]

My friend was on it too and he said it didn't help him at all.

Geri

[Guest guest]

When Neurontin first came out, I tried it for some 'electric sparks

type pain' at 900mg a day. It worked to stop the pain, at about 6-7

months, I noticed the N was causing a tremor surge, so dropped it back

to 600mg a day. Was still drinking coffee then, not the best to mix

with. After 1 year on N, stopped taking it, the pain was gone, and

hasn't returned. Tremor surge stopped when I stopped the N.

Gretchen

[Guest guest]

Neurotin can be taken with LDN...I know quite a few people taking Neurotin and Baclofen together and on LDN with no problems. I don't see how they can take either Neurontin or Baclofen because Baclofen made me so I couldn't get out of bed and Neurontin gave me bad tremors.

Hugs & Blessings,

Crystal

LDN_Users Group Owner

Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 2 years & 6 months on LDN with Skip's Pharmacy.....

Crystal's MS,TM & LDN Website

Crystal's LDN Gift Shop

Crystal's LDN Support Group

Skip's Compounding Pharmacy

LDN Website

[low dose naltrexone] Neurontin

Is anyone on Neurontin and LDN? Are there any side effects to expectbeing on Neurontin? I don't know what dose my doctor wants me on yet.Thanks- Gisele

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[Guest guest]

"Is anyone on Neurontin and LDN?" ************************************************************** My husband has taken both Neurontin & Lyrica (at different times) and has not had any unhappy issues. Warm wishes, Jan

[Guest guest]

I take Neurontin and LDN and have not had any bad issues. I take both

of them at bedtime.

Jan Buskell wrote:

> " Is anyone on Neurontin and LDN? "

> **************************************************************

>

> My husband has taken both Neurontin & Lyrica (at different times) and

> has not had any unhappy issues.

>

> Warm wishes,

>

> Jan

>

[Guest guest]

Yes i took neurontin. Ummm not sure if you know that lyrica is a derivitive

of neurontin. I cannot

take neurontin i had a bad reaction and ended up in the er.. I was give this

for my chronic regional pain syndrome. It is used to neuropothy as well as

crps. They use a lot of anti convulsants for nerve pain. Good luck.

Jolene

In a message dated 4/25/2008 9:22:20 A.M. Eastern Daylight Time,

kmitch1966@... writes:

My RA doc prescribed me Neurontin yesterday. She had me try Lyrica

first and I had a reaction to it so I didnt take it long enough to feel

a difference. Has anyone out there taken this before if so how did it

work ? I have RA and some Neuropathy. I hope everyone has a pain free

day !

**************Need a new ride? Check out the largest site for U.S. used car

listings at AOL Autos.

(http://autos.aol.com/used?NCID=aolcmp00300000002851)

[Guest guest]

they also use neurotin for bipolar as well.

Re: [ ] Neurontin

Yes i took neurontin. Ummm not sure if you know that lyrica is a derivitive

of neurontin. I cannot

take neurontin i had a bad reaction and ended up in the er.. I was give this

for my chronic regional pain syndrome. It is used to neuropothy as well as

crps. They use a lot of anti convulsants for nerve pain. Good luck.

Jolene

In a message dated 4/25/2008 9:22:20 A.M. Eastern Daylight Time,

kmitch1966@... writes:

My RA doc prescribed me Neurontin yesterday. She had me try Lyrica

first and I had a reaction to it so I didnt take it long enough to feel

a difference. Has anyone out there taken this before if so how did it

work ? I have RA and some Neuropathy. I hope everyone has a pain free

day !

**************Need a new ride? Check out the largest site for U.S. used car

listings at AOL Autos.

(http://autos.aol.com/used?NCID=aolcmp00300000002851)

[Guest guest]

I was taken off Lyrica due to side effects and reactions. My doctor said that

they could not give me Neurontin as it would be pretty much the same as giving

me the Lyrica

kmitch1966 <kmitch1966@...> wrote:

My RA doc prescribed me Neurontin yesterday. She had me try Lyrica

first and I had a reaction to it so I didnt take it long enough to feel

a difference. Has anyone out there taken this before if so how did it

work ? I have RA and some Neuropathy. I hope everyone has a pain free

day !

---------------------------------

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[Guest guest]

my husband takes neurontin every day 3 a day for over 5 years and no problems at

all.  rita

[ ] Neurontin

My RA doc prescribed me Neurontin yesterday. She had me try Lyrica

first and I had a reaction to it so I didnt take it long enough to feel

a difference. Has anyone out there taken this before if so how did it

work ? I have RA and some Neuropathy. I hope everyone has a pain free

day !

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

hi, my name is melynda & i have severe ra,osteo, & neuropathy. i have been taking

neurontin for about 7 months or so. i can say it has helped releave the pain

from the neuropathy... the only thing i can say is give it some time to work..

everybody is different when taking meds.. god bless,melyndagamez 4/25/08

7:25p.m.central time

[ ] Neurontin

My RA doc prescribed me Neurontin yesterday. She had me try Lyrica

first and I had a reaction to it so I didnt take it long enough to feel

a difference. Has anyone out there taken this before if so how did it

work ?  I have RA and some Neuropathy. I hope everyone has a pain free

day !

------------------------------------

[Guest guest]

Yes, I can get a little dizzy, but the pain management is way more important.  I

have learned to deal with it.  Once in a while, I just have a cup of coffee. 

Never had Lyrica.

As for balance, I fell a lot with Neurontin and much less now.  Have you

considered using a cane?  It would help stabilize you.

Lj

From: Marietta <Mlette_97 (DOT) com>

Subject: More pain

Scoliosis Treatment

Date: Friday, July 25, 2008, 3:46 PM

Hi,

I'm still new to the group and am not the best in

keeping up...

I had aqua therapy Tuesday night for the first time.

I was hurting a bit while doing this and asked the

therapist about this. The next morning I woke up and

felt wonderful! No pain! Pain didn't start until

after I did a couple of errands around town and was

headed in to work. But even then it wasn't bad. That

was Wednesday morning. Thursday morning and this

morning I've woken up basically screaming and crying

with pain from head to foot. I feel like it is hard

to move and every muscle hurts. An hour after I take

my morning meds I'm usually okay but still feeling

achy and like I really can't do anything any more. Is

this from the aqua therapy I had 3 days ago? Is it

from my meds I'm taking for pain? Right now I'm up to

1200 mg neurontin, 4 percocets and 200 mg provigil (I

know this doesn't have anything to do with pain but it

seems to help the pain settle down). In addition, I

know I am depressed and I take 60 mg of cymbalta for

that. Is this just a reaction that I'm having because

both DH and DS are not home? I'm used to DH not being

home but this is the first time DS (16 yo) been away

when he's not with his relatives. I'm confused. I

don't know what to do. I feel like I have to back out

of all my commitments and I just can't do anything any

more. Suggestions? I'm desparate.

Thanks,

Marietta

[Guest guest]

I use a walker but it is hard to do anything in the kitchen or laundry room

while using a walker. I just push it to the side and use nothing while cooking

or folding laundry. These are usually the times I fall.

More pain

Scoliosis Treatment

Date: Friday, July 25, 2008, 3:46 PM

Hi,

I'm still new to the group and am not the best in

keeping up...

I had aqua therapy Tuesday night for the first time.

I was hurting a bit while doing this and asked the

therapist about this. The next morning I woke up and

felt wonderful! No pain! Pain didn't start until

after I did a couple of errands around town and was

headed in to work. But even then it wasn't bad. That

was Wednesday morning. Thursday morning and this

morning I've woken up basically screaming and crying

with pain from head to foot. I feel like it is hard

to move and every muscle hurts. An hour after I take

my morning meds I'm usually okay but still feeling

achy and like I really can't do anything any more. Is

this from the aqua therapy I had 3 days ago? Is it

from my meds I'm taking for pain? Right now I'm up to

1200 mg neurontin, 4 percocets and 200 mg provigil (I

know this doesn't have anything to do with pain but it

seems to help the pain settle down). In addition, I

know I am depressed and I take 60 mg of cymbalta for

that. Is this just a reaction that I'm having because

both DH and DS are not home? I'm used to DH not being

home but this is the first time DS (16 yo) been away

when he's not with his relatives. I'm confused. I

don't know what to do. I feel like I have to back out

of all my commitments and I just can't do anything any

more. Suggestions? I'm desparate.

Thanks,

Marietta

[Guest guest]

Clarification.  I just read my note below.  I meant to write I fell a lot BEFORE

neurontin.  I haven't fell at all since taking it.

From: Marietta <Mlette_97 (DOT) com>

Subject: More pain

Scoliosis Treatment

Date: Friday, July 25, 2008, 3:46 PM

Hi,

I'm still new to the group and am not the best in

keeping up...

I had aqua therapy Tuesday night for the first time.

I was hurting a bit while doing this and asked the

therapist about this. The next morning I woke up and

felt wonderful! No pain! Pain didn't start until

after I did a couple of errands around town and was

headed in to work. But even then it wasn't bad. That

was Wednesday morning. Thursday morning and this

morning I've woken up basically screaming and crying

with pain from head to foot. I feel like it is hard

to move and every muscle hurts. An hour after I take

my morning meds I'm usually okay but still feeling

achy and like I really can't do anything any more. Is

this from the aqua therapy I had 3 days ago? Is it

from my meds I'm taking for pain? Right now I'm up to

1200 mg neurontin, 4 percocets and 200 mg provigil (I

know this doesn't have anything to do with pain but it

seems to help the pain settle down). In addition, I

know I am depressed and I take 60 mg of cymbalta for

that. Is this just a reaction that I'm having because

both DH and DS are not home? I'm used to DH not being

home but this is the first time DS (16 yo) been away

when he's not with his relatives. I'm confused. I

don't know what to do. I feel like I have to back out

of all my commitments and I just can't do anything any

more. Suggestions? I'm desparate.

Thanks,

Marietta

[Guest guest]

Hi

I take it I take one in the morning and two at night. Been taking it for about a year now. It has helped me a lot.

Huggers,

Debbie

-- Neurontin

does anyone here take neurontin....or Gabapentin is the generic name ? what mg ?.My doctor has raised my meds by about 1/3 and i think its helping some.Does anyone else take this?....

Reveal your inner athlete and share it with friends on Windows Live. Share now!

[Guest guest]

,

I used to take it (Neurontin) for a few years, but stopped because I couldn't tell if it was helping me or not. My Therapist prescribed it, not my Dr. (NP). Originally my Neurologist prescribed it after I had a stroke in 1997.

T.**************Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. (http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017 )

[Guest guest]

I take 300 mg of Gabapentin 5-6 times a day

I take one in Am 30 Min after I take my thyroid medication

1 to 2 in afternoon depending on my pain level

1 to 2 at night also depending on my pain level.

Then if I am really aching or in a bid bag ugly flare where you hurt

from your eyelashes down to your toenails where it even hurts to sit

down.

I can take one to two extra.

Myself is prior medical and I know my body so well I can tell when

something is up so my Dr. told me I could do this. Yes it helps me.

Gentle {{{{Fibro Hugs}}}}

Heidi

[Guest guest]

--- In dominie , " heidi " <heidilhlokey@...> wrot

I took Gabapentin for 5 years. It was a huge help with pain and and

sleep for me. Then I started having word retrieval and memory issues

beyond my Fibro fog. I did some research and found out that this is

an issue with Gabapentin. I made the decision with my doctor to wean

myself off. Which was long and very painful. I miss the

Gabapentin,the pain has been off the charts ever since. The word

retrieval did get gradually better though. I am not willing to mess

with my head and I am working on other options for pain. However if

it does not have that effect on others I think it works really really

well.

Sue

e:

>

> I take 300 mg of Gabapentin 5-6 times a day

>

> I take one in Am 30 Min after I take my thyroid medication

> 1 to 2 in afternoon depending on my pain level

> 1 to 2 at night also depending on my pain level.

>

> Then if I am really aching or in a bid bag ugly flare where you

hurt

> from your eyelashes down to your toenails where it even hurts to

sit

> down.

> I can take one to two extra.

>

> Myself is prior medical and I know my body so well I can tell when

> something is up so my Dr. told me I could do this. Yes it helps

me.

>

> Gentle {{{{Fibro Hugs}}}}

>

> Heidi

>

[Guest guest]

>

> I take 300 mg of Gabapentin 5-6 times a day

>

> I take one in Am 30 Min after I take my thyroid medication

> 1 to 2 in afternoon depending on my pain level

> 1 to 2 at night also depending on my pain level.

>

> Then if I am really aching or in a bid bag ugly flare where you

hurt

> from your eyelashes down to your toenails where it even hurts to

sit

> down.

> I can take one to two extra.

>

> Myself is prior medical and I know my body so well I can tell when

> something is up so my Dr. told me I could do this. Yes it helps

me.

>

> Gentle {{{{Fibro Hugs}}}}

>

> Heidi

>

[Guest guest]

>Thanks Sue:)

I checked in my PDR nothing about this so thanks for

letting me and others know.

Like with elavil causes heart palpitations too is a rare side effect.

IS this a rare side effect of gabapentin or a regular side effect?

Also what are you doing for pain now?

Heidi

> --- In dominie ,

>

> I took Gabapentin for 5 years. It was a huge help with pain and and

> sleep for me. Then I started having word retrieval and memory

issues

> beyond my Fibro fog. I did some research and found out that this is

> an issue with Gabapentin. I made the decision with my doctor to

wean

> myself off. Which was long and very painful. I miss the

> Gabapentin,the pain has been off the charts ever since. The word

> retrieval did get gradually better though. I am not willing to mess

> with my head and I am working on other options for pain. However if

> it does not have that effect on others I think it works really

really

> well.

> Sue

>

>

>

> e:

> >

> > I take 300 mg of Gabapentin 5-6 times a day

> >

> > I take one in Am 30 Min after I take my thyroid medication

> > 1 to 2 in afternoon depending on my pain level

> > 1 to 2 at night also depending on my pain level.

> >

> > Then if I am really aching or in a bid bag ugly flare where you

> hurt

> > from your eyelashes down to your toenails where it even hurts

to

> sit

> > down.

> > I can take one to two extra.

> >

> > Myself is prior medical and I know my body so well I can tell

when

> > something is up so my Dr. told me I could do this. Yes it helps

> me.

> >

> > Gentle {{{{Fibro Hugs}}}}

> >

> > Heidi

> >

>

[Guest guest]

I take Neurontin--400 mg 3x a day. It does help considerably. I think that Lyrica helped even more, but I couldn't stand the side effect and finally had to give up on it and go back to Neurontin. I get no side effects at all from Neurontin.

Pam

Neurontin

does anyone here take neurontin....or Gabapentin is the generic name ? what mg ?.My doctor has raised my meds by about 1/3 and i think its helping some.Does anyone else take this?....

Reveal your inner athlete and share it with friends on Windows Live. Share now!

[Guest guest]

I have word-retrieval issues with or without Gabapentin.

Pam

Re: Neurontin

--- In dominie , "heidi" <heidilhlokey@...> wrotI took Gabapentin for 5 years. It was a huge help with pain and and sleep for me. Then I started having word retrieval and memory issues beyond my Fibro fog. I did some research and found out that this is an issue with Gabapentin. I made the decision with my doctor to wean myself off. Which was long and very painful. I miss the Gabapentin,the pain has been off the charts ever since. The word retrieval did get gradually better though. I am not willing to mess with my head and I am working on other options for pain. However if it does not have that effect on others I think it works really really well.Sue e:>> I take 300 mg of Gabapentin 5-6 times a day> > I take one in Am 30 Min after I take my thyroid medication> 1 to 2 in afternoon depending on my pain level> 1 to 2 at night also depending on my pain level.> > Then if I am really aching or in a bid bag ugly flare where you hurt > from your eyelashes down to your toenails where it even hurts to sit > down.> I can take one to two extra.> > Myself is prior medical and I know my body so well I can tell when > something is up so my Dr. told me I could do this. Yes it helps me.> > Gentle {{{{Fibro Hugs}}}}> > Heidi>

[Guest guest]

I just saw my primary physician today due to lack of sleep issues.

I take Neurontin 1x a.a. and 1X pm for headaches.She told me to take two at

night.

My question is;

Does it make you feel sluggish the next morning?

I am on so much already and do not need another side effaect to deal with.

TY

L. Culp

www.blessedtoys.com/members/elizabethlculp

>From: " Debbie " <stardustlite@...>

>Reply-dominie

><dominie >

>Subject: Re: Neurontin

>Date: Thu, 7 Aug 2008 01:20:04 -0400 (Eastern Daylight Time)

>

>Hi

>I take it I take one in the morning and two at night. Been taking it for

>about a year now. It has helped me a lot.

>Huggers,

>Debbie

>

>-- Neurontin

>

>does anyone here take neurontin....or Gabapentin is the generic name ? what

>mg ?.My doctor has raised my meds by about 1/3 and i think its helping some

>Does anyone else take this?....

>

>

>

>Reveal your inner athlete and share it with friends on Windows Live. Share

>now!

>