Re: Complementary & Alternative Medicine

[Guest guest]

Thank you Lottie for all your knowledgable information you share with this

group! I have found that swedish massage once a week does help with the pain

and my close friend is a chiropractor and doesn't even charge me co-pay which

helps a lot. The massage is covered by my insurance, but it's a 40 minute drive

from my home, and sometimes I'm just not feeling up to the drive with the side

effects. It does help if anyone is interested in massage. The chiro care

doesn't really work that well for me.

Love,

Peggy Becker

Connected by MOTOBLURâ„¢ on T-Mobile

[ ] Complementary & Alternative Medicine

Has anyone tried complementary or alternaive medicine? I'm going to fess up and

tell you that I did try it, because a friend of mine sent me all kinds of

literature that looked good and followed up by giving me the name of an Indian

doctor who worked at the U of Washington. He was an .D. in India, but did not

have a license to practice medicine here, but taught other subjects and did

research. He has now moved to another hospital on the east coast, but I only

remember his last name as Singh. He called me the next morning at 7:00 a.m and

told me exactly where to buy the purest (the name of the company was Pure) and

best as far as he was concerned. I don't even remember the name of it now. I

think it came from China (used for centuries) and was made of some kind of

straw, but that was a long time ago, so I don't recall all the details. Here

are some references:

" Complementary and alternative medicine (CAM) is the term for medical products

and practices that are not part of standard medical care. " Complementary

medicine " refers to treatments that are used with standard treatment.

" Alternative medicine " refers to treatments that are used instead of standard

treatment. "

http://www.cancer.gov/cancertopics/treatment/cam

" Alternative medicine means treatments that you use instead of standard ones.

Complementary medicine means nonstandard treatments that you use along with

standard ones. Examples of CAM therapies are acupuncture, chiropractic, and

herbal medicines. CAM treatments do not work for everyone

[Guest guest]

Hahaha. I meant faking being " into it " /acting like you actually desire it.

Body says yes, brain says " I'd rather be sleeping " and " don't press on my

stomach to hard or I might spew " . Obviously at some point I am no longer

acting.

I'm going to get a medical marijuana card on Monday and give that a try, if

that counts. I'll let you know if it helps dealing with side effects. Enough

people sent me their experiences to get me interested, and interestingly

myeloid leukemia is listed as an officially valid condition, so what the

heck. Who would've thought that I'd make it through high school and college

without trying it, only to start in my 30s?

[ ] Complementary & Alternative Medicine

Has anyone tried complementary or alternaive medicine? I'm going to fess up

and tell you that I did try it, because a friend of mine sent me all kinds

of literature that looked good and followed up by giving me the name of an

Indian doctor who worked at the U of Washington. He was an .D. in India, but

did not have a license to practice medicine here, but taught other subjects

and did research. He has now moved to another hospital on the east coast,

but I only remember his last name as Singh. He called me the next morning at

7:00 a.m and told me exactly where to buy the purest (the name of the

company was Pure) and best as far as he was concerned. I don't even remember

the name of it now. I think it came from China (used for centuries) and was

made of some kind of straw, but that was a long time ago, so I don't recall

all the details. Here are some references:

" Complementary and alternative medicine (CAM) is the term for medical

products and practices that are not part of standard medical care.

" Complementary medicine " refers to treatments that are used with standard

treatment. " Alternative medicine " refers to treatments that are used instead

of standard treatment. "

http://www.cancer.gov/cancertopics/treatment/cam

" Alternative medicine means treatments that you use instead of standard

ones. Complementary medicine means nonstandard treatments that you use along

with standard ones. Examples of CAM therapies are acupuncture, chiropractic,

and herbal medicines. CAM treatments do not work for everyone, but some

methods such as acupuncture might help with nausea, pain and other side

effects of cancer treatment. In general, researchers know more about the

safety and effectiveness of standard cancer treatments than they do about

CAM. To make sure nothing gets in the way of your cancer care, talk to your

doctor before you try anything new. "

http://www.nlm.nih.gov/medlineplus/canceralternativetherapies.html

I will say this, my friend had CML and she died because I think she turned

up her nose at conventional medicine. She didn't want my Gleevec eyes and

weight gain. If you have tried anything that is not considered conventional,

let us know what you tried and was it useful to you? No one will prejudge

you, we just want to know what works and what doesn't. There is a doctor in

Houston who uses urine to treat for brain cancer, so nothing is off limits

here. We have covered everything, including sex. What I want to know is, how

does a man " fake it " ?

Carpe diem,

Lottie Duthu

Something I never knew existed, a book about CML by Drs. Talpaz & Kantarjian

http://tinyurl.com/244uv6k

[Guest guest]

Here's my take on the subject.  Any woman who has had children, knows fatigue

at it's best.  Having had 6 children in 9 years, I well remember the fatigue,

and never ever getting a full night's sleep.  And I also remember too well

thinking, Oh please, not tonight, I am too damned tired!!  God made us so

different, what is very important to some men, is not all that important to some

women, and I think that is because in raising our children we give them all of

our time, energy and love, and unfortunately that does not leave a lot left over

for dad.  I think it makes a huge difference, who has the cml, mom or dad?  If

anything, this dire situation and this on going fight for life should bring two

people closer together , and make them realize life itself is so precious, that

lovemaking may be the frosting on the cake, but cake is pretty good without

it.  That's my two cents worth , Bobby

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

From: Neal <nwatson@...>

Subject: RE: [ ] Complementary & Alternative Medicine

Date: Wednesday, September 29, 2010, 3:06 PM

 

Hahaha. I meant faking being " into it " /acting like you actually desire it.

Body says yes, brain says " I'd rather be sleeping " and " don't press on my

stomach to hard or I might spew " . Obviously at some point I am no longer

acting.

I'm going to get a medical marijuana card on Monday and give that a try, if

that counts. I'll let you know if it helps dealing with side effects. Enough

people sent me their experiences to get me interested, and interestingly

myeloid leukemia is listed as an officially valid condition, so what the

heck. Who would've thought that I'd make it through high school and college

without trying it, only to start in my 30s?

[ ] Complementary & Alternative Medicine

Has anyone tried complementary or alternaive medicine? I'm going to fess up

and tell you that I did try it, because a friend of mine sent me all kinds

of literature that looked good and followed up by giving me the name of an

Indian doctor who worked at the U of Washington. He was an .D. in India, but

did not have a license to practice medicine here, but taught other subjects

and did research. He has now moved to another hospital on the east coast,

but I only remember his last name as Singh. He called me the next morning at

7:00 a.m and told me exactly where to buy the purest (the name of the

company was Pure) and best as far as he was concerned. I don't even remember

the name of it now. I think it came from China (used for centuries) and was

made of some kind of straw, but that was a long time ago, so I don't recall

all the details. Here are some references:

" Complementary and alternative medicine (CAM) is the term for medical

products and practices that are not part of standard medical care.

" Complementary medicine " refers to treatments that are used with standard

treatment. " Alternative medicine " refers to treatments that are used instead

of standard treatment. "

http://www.cancer.gov/cancertopics/treatment/cam

" Alternative medicine means treatments that you use instead of standard

ones. Complementary medicine means nonstandard treatments that you use along

with standard ones. Examples of CAM therapies are acupuncture, chiropractic,

and herbal medicines. CAM treatments do not work for everyone, but some

methods such as acupuncture might help with nausea, pain and other side

effects of cancer treatment. In general, researchers know more about the

safety and effectiveness of standard cancer treatments than they do about

CAM. To make sure nothing gets in the way of your cancer care, talk to your

doctor before you try anything new. "

http://www.nlm.nih.gov/medlineplus/canceralternativetherapies.html

I will say this, my friend had CML and she died because I think she turned

up her nose at conventional medicine. She didn't want my Gleevec eyes and

weight gain. If you have tried anything that is not considered conventional,

let us know what you tried and was it useful to you? No one will prejudge

you, we just want to know what works and what doesn't. There is a doctor in

Houston who uses urine to treat for brain cancer, so nothing is off limits

here. We have covered everything, including sex. What I want to know is, how

does a man " fake it " ?

Carpe diem,

Lottie Duthu

Something I never knew existed, a book about CML by Drs. Talpaz & Kantarjian

http://tinyurl.com/244uv6k

[Guest guest]

Green Tea, Green Tea, Green Tea and lots of it. I can't praise green tea enough!

It allowed my baby to be born at home at 41 weeks of gestation instead of being

cut out of me via C-section at 30 weeks. I truly can't praise it enough.

I also tried:

bio-curcumin (that proved to oppose EGCG in green tea but works on deeper level

though wasn't strong enough or bio available enough to fight cml effectively in

my case),

shitake and maitake mushroom containing polysaccharides (to improve immunity),

bio-bran containing arabinoxal complex (enhancement of natural killer cells

activity in blood),

galangal containing ACA (my WBC count was slowly coming down when I was eating

grated galangal root in a sandwich 3 times a day but it was quite impossible to

continue taking it in a raw form, it's stronger than ginger, something like

ginger enhanced by garlic...)

barbery root bark containing berbamine (can't say if this was effective at all)

hops tea containing xanthohumol (tried it just in case it did something)

red wine containing resveratrol

All that allowed me to stay off glivec for 5 months after giving birth to

Matilda so I could breastfeed her without putting her health at risk. By then I

managed to get her on some bottle milk feeds during the day and start her on

solids. She's still having breastfeeds at night despite me being on glivec but

I'm slowly fading them away though with a broken heart. All of my other children

were breastfed 2 years plus.

I don't think that complimentary, alternative medication and diet should be

ignored in treating, managing and curing any disease. Also state of mind,

emotional health, amount and type of stress takes part in overall health picture

and that's never taken into account when pharmacological medication is applied.

Patient's life forms background for any illness developed in that patient yet

nobody asks a single question about it.

I strongly believe we all have ability to cure ourselves when we acquire an

illness. For me there is no premature death from any type of acquired disease,

only a desire to die prematurely and a disease comes along to do it for us.

From: Lottie Duthu

Sent: Wednesday, September 29, 2010 7:20 PM

CML

Subject: [ ] Complementary & Alternative Medicine

Has anyone tried complementary or alternaive medicine? I'm going to fess up and

tell you that I did try it, because a friend of mine sent me all kinds of

literature that looked good and followed up by giving me the name of an Indian

doctor who worked at the U of Washington. He was an .D. in India, but did not

have a license to practice medicine here, but taught other subjects and did

research. He has now moved to another hospital on the east coast, but I only

remember his last name as Singh. He called me the next morning at 7:00 a.m and

told me exactly where to buy the purest (the name of the company was Pure) and

best as far as he was concerned. I don't even remember the name of it now. I

think it came from China (used for centuries) and was made of some kind of

straw, but that was a long time ago, so I don't recall all the details. Here are

some references:

" Complementary and alternative medicine (CAM) is the term for medical products

and practices that are not part of standard medical care. " Complementary

medicine " refers to treatments that are used with standard treatment.

" Alternative medicine " refers to treatments that are used instead of standard

treatment. "

http://www.cancer.gov/cancertopics/treatment/cam

" Alternative medicine means treatments that you use instead of standard ones.

Complementary medicine means nonstandard treatments that you use along with

standard ones. Examples of CAM therapies are acupuncture, chiropractic, and

herbal medicines. CAM treatments do not work for everyone, but some methods such

as acupuncture might help with nausea, pain and other side effects of cancer

treatment. In general, researchers know more about the safety and effectiveness

of standard cancer treatments than they do about CAM. To make sure nothing gets

in the way of your cancer care, talk to your doctor before you try anything

new. "

http://www.nlm.nih.gov/medlineplus/canceralternativetherapies.html

I will say this, my friend had CML and she died because I think she turned up

her nose at conventional medicine. She didn't want my Gleevec eyes and weight

gain. If you have tried anything that is not considered conventional, let us

know what you tried and was it useful to you? No one will prejudge you, we just

want to know what works and what doesn't. There is a doctor in Houston who uses

urine to treat for brain cancer, so nothing is off limits here. We have covered

everything, including sex. What I want to know is, how does a man " fake it " ?

Carpe diem,

Lottie Duthu

Something I never knew existed, a book about CML by Drs. Talpaz & Kantarjian

http://tinyurl.com/244uv6k

[Guest guest]

AMEN Bobby

________________________________

From: ROBERTA DOYLE <rcd1929@...>

Sent: Wed, September 29, 2010 3:05:58 PM

Subject: RE: [ ] Complementary & Alternative Medicine

Here's my take on the subject. Any woman who has had children, knows fatigue at

it's best. Having had 6 children in 9 years, I well remember the fatigue, and

never ever getting a full night's sleep. And I also remember too well thinking,

Oh please, not tonight, I am too damned tired!! God made us so different, what

is very important to some men, is not all that important to some women, and I

think that is because in raising our children we give them all of our time,

energy and love, and unfortunately that does not leave a lot left over for dad.

I think it makes a huge difference, who has the cml, mom or dad? If anything,

this dire situation and this on going fight for life should bring two people

closer together , and make them realize life itself is so precious, that

lovemaking may be the frosting on the cake, but cake is pretty good without it.

That's my two cents worth , Bobby

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

From: Neal <nwatson@...>

Subject: RE: [ ] Complementary & Alternative Medicine

Date: Wednesday, September 29, 2010, 3:06 PM

Hahaha. I meant faking being " into it " /acting like you actually desire it.

Body says yes, brain says " I'd rather be sleeping " and " don't press on my

stomach to hard or I might spew " . Obviously at some point I am no longer

acting.

I'm going to get a medical marijuana card on Monday and give that a try, if

that counts. I'll let you know if it helps dealing with side effects. Enough

people sent me their experiences to get me interested, and interestingly

myeloid leukemia is listed as an officially valid condition, so what the

heck. Who would've thought that I'd make it through high school and college

without trying it, only to start in my 30s?

[ ] Complementary & Alternative Medicine

Has anyone tried complementary or alternaive medicine? I'm going to fess up

and tell you that I did try it, because a friend of mine sent me all kinds

of literature that looked good and followed up by giving me the name of an

Indian doctor who worked at the U of Washington. He was an .D. in India, but

did not have a license to practice medicine here, but taught other subjects

and did research. He has now moved to another hospital on the east coast,

but I only remember his last name as Singh. He called me the next morning at

7:00 a.m and told me exactly where to buy the purest (the name of the

company was Pure) and best as far as he was concerned. I don't even remember

the name of it now. I think it came from China (used for centuries) and was

made of some kind of straw, but that was a long time ago, so I don't recall

all the details. Here are some references:

" Complementary and alternative medicine (CAM) is the term for medical

products and practices that are not part of standard medical care.

" Complementary medicine " refers to treatments that are used with standard

treatment. " Alternative medicine " refers to treatments that are used instead

of standard treatment. "

http://www.cancer.gov/cancertopics/treatment/cam

" Alternative medicine means treatments that you use instead of standard

ones. Complementary medicine means nonstandard treatments that you use along

with standard ones. Examples of CAM therapies are acupuncture, chiropractic,

and herbal medicines. CAM treatments do not work for everyone, but some

methods such as acupuncture might help with nausea, pain and other side

effects of cancer treatment. In general, researchers know more about the

safety and effectiveness of standard cancer treatments than they do about

CAM. To make sure nothing gets in the way of your cancer care, talk to your

doctor before you try anything new. "

http://www.nlm.nih.gov/medlineplus/canceralternativetherapies.html

I will say this, my friend had CML and she died because I think she turned

up her nose at conventional medicine. She didn't want my Gleevec eyes and

weight gain. If you have tried anything that is not considered conventional,

let us know what you tried and was it useful to you? No one will prejudge

you, we just want to know what works and what doesn't. There is a doctor in

Houston who uses urine to treat for brain cancer, so nothing is off limits

here. We have covered everything, including sex. What I want to know is, how

does a man " fake it " ?

Carpe diem,

Lottie Duthu

Something I never knew existed, a book about CML by Drs. Talpaz & Kantarjian

http://tinyurl.com/244uv6k