MRI

[Guest guest]

I may be wrong about this, but I seem to recall reading somewhere that MRIs are

part of the standard of care for patients with autism. , would a CT scan

identify Chiari malformations?

TIA,

Robyn

LINDA A <lsa5885@...> wrote:

Hi ,

You know, once again your post if full of WRONG information. An MRI is the ONLY

way to correctly diagnose a child with Chiari Malformation. Please don't try to

argue this point with me as my son has had four brain surgeries and I spend much

of my time reading Chiari research papers (basically it's my life).

Good for you in finishing your doctorate in psychology, this still doesn't give

you a degree in neurosurgery now does it? As you know the two professions are

completely different. Neurosurgery requires medical school and then ten years of

hard work and study after to finally work in this field of medicine.

ALL CHILDREN WITH A DEVELOPMENTAL DELAY diagnoses should have an MRI as well as

an EEG to look for abnormalities in their brains. This advise was given to us

time and time again by the top neurosurgeons at s Hopkins , The University

of Chicago Children's Hospital and The Chiari Institute in New York. All places

that have treated our little boy.

As I said before, these kids present like children with AS but actually have

Chiari and can suffer brain damage as a result of being misdiagnosed.

Our son was misdiagnosed for five years before we found his chiari. He's not

alone, neurosurgeons are seeing these kids all the time and it's frustrating to

them that they get them later rather than as babies or toddlers.

A standard MRI will show a chiari in the right hands (neurosurgeon or at the

very least a neuro-radiologist). By the way a spect scan is used to look at

blood flow to the brain, useless in a chiari diagnoses( some do have lack of

blood flow but this test will not diagnose a chiari malformation). An MRI looks

at CSF flow, and this is what is often interrupted in the brain of a child with

chiari. Without proper CSF flow our bodies cannot function normally . My son was

in multisystem organ failure at the time of his diagnoses / and his immune

system doesn't function well due to his brainstem trauma.

And finally ,doctors who don't order MRI's are the one's who clearly need more

education. I can't tell you how many physicians who saw our son and neglected to

order an MRI, told me that they were sorry, after the fact. (By the way, my

husband is an adult gastroenterologist and we would never sue, so they felt

comfortable expressing there regret to us).

@...: jamieandsal@...: Wed, 7 Nov 2007

22:52:31 -0600Subject: Re: MRI

There has only been ONE study done using MRI's supporative of a solid diagnosis

of autism and that study is considered experimental. In this study there were

" special procedures " used not used in a typical MRI. The results showed

anomalies in the temporal lobe including decreased size of the left planum

temporal, bilateral reduction of temporal perfusion and abnormal activation of

the superior temporal sulcus in response to vocal sounds. MOST, if not ALL,

standard MRI's requested by unfamiliar doctors helping the thousands of families

with nueroimmune children are useless. So far SPECT Scans are the only useful

diagnostic tool we have, other than lab work and behavioral observation. This is

not a blanket statement. In finishing a behavioral medicine doctorate of

psychology and working fulltime as an autism consultant/marriage and family

therapist helping hundreds of families struggling with autism and adhd, blanket

statements would not be used lightly. For families that are

just entering this arena, please don't stop trying because a doctor told you

your child's MRI came out fine. And if you are worried about your child having

Chiari Malformations, even then, an MRI is not the best diagnostic tool. Seek

out professionals who are experts at what your concern is. That is why Dr.

Goldberg is the best in this field. He is an expert at Nueroimmune Deficiency

Syndrome. Doctors ordering MRI's for your child with autism clearly need more

education... Sincerely, Juarez, M.S., Marriage and Family Therapist

[Guest guest]

I have to say, , that I've known of enough autism kids that have

chiari that I absolutely agree that all of our children should be

given an MRI. It's not a super high percentage but it's enough that

I think that it should always be ruled out.

With that said, my son has never had an MRI or an EEG so I'm not

exactly taking my own advice. But we've never felt the need to

even *remotely* suspected seizure activity or chiari (not even the

slightest of symptoms), either. Maybe it's something I should run by

Dr. G, anyway and see what he says.

Cheryl

On Nov 8, 2007, at 11:37 AM, LINDA A wrote:

>

> Hi ,

>

> You know, once again your post if full of WRONG information. An MRI

> is the ONLY way to correctly diagnose a child with Chiari

> Malformation. Please don't try to argue this point with me as my

> son has had four brain surgeries and I spend much of my time

> reading Chiari research papers (basically it's my life).

>

> Good for you in finishing your doctorate in psychology, this still

> doesn't give you a degree in neurosurgery now does it? As you know

> the two professions are completely different. Neurosurgery requires

> medical school and then ten years of hard work and study after to

> finally work in this field of medicine.

>

> ALL CHILDREN WITH A DEVELOPMENTAL DELAY diagnoses should have an

> MRI as well as an EEG to look for abnormalities in their brains.

> This advise was given to us time and time again by the top

> neurosurgeons at s Hopkins , The University of Chicago

> Children's Hospital and The Chiari Institute in New York. All

> places that have treated our little boy.

>

> As I said before, these kids present like children with AS but

> actually have Chiari and can suffer brain damage as a result of

> being misdiagnosed.

>

> Our son was misdiagnosed for five years before we found his chiari.

> He's not alone, neurosurgeons are seeing these kids all the time

> and it's frustrating to them that they get them later rather than

> as babies or toddlers.

>

> A standard MRI will show a chiari in the right hands (neurosurgeon

> or at the very least a neuro-radiologist). By the way a spect scan

> is used to look at blood flow to the brain, useless in a chiari

> diagnoses( some do have lack of blood flow but this test will not

> diagnose a chiari malformation). An MRI looks at CSF flow, and this

> is what is often interrupted in the brain of a child with chiari.

> Without proper CSF flow our bodies cannot function normally . My

> son was in multisystem organ failure at the time of his diagnoses /

> and his immune system doesn't function well due to his brainstem

> trauma.

>

> And finally ,doctors who don't order MRI's are the one's who

> clearly need more education. I can't tell you how many physicians

> who saw our son and neglected to order an MRI, told me that they

> were sorry, after the fact. (By the way, my husband is an adult

> gastroenterologist and we would never sue, so they felt comfortable

> expressing there regret to us).

>

>

>

> @...: jamieandsal@...: Wed, 7

> Nov 2007 22:52:31 -0600Subject: Re: MRI

>

> There has only been ONE study done using MRI's supporative of a

> solid diagnosis of autism and that study is considered

> experimental. In this study there were " special procedures " used

> not used in a typical MRI. The results showed anomalies in the

> temporal lobe including decreased size of the left planum temporal,

> bilateral reduction of temporal perfusion and abnormal activation

> of the superior temporal sulcus in response to vocal sounds. MOST,

> if not ALL, standard MRI's requested by unfamiliar doctors helping

> the thousands of families with nueroimmune children are useless. So

> far SPECT Scans are the only useful diagnostic tool we have, other

> than lab work and behavioral observation. This is not a blanket

> statement. In finishing a behavioral medicine doctorate of

> psychology and working fulltime as an autism consultant/marriage

> and family therapist helping hundreds of families struggling with

> autism and adhd, blanket statements would not be used lightly. For

> families that are just entering this arena, please don't stop

> trying because a doctor told you your child's MRI came out fine.

> And if you are worried about your child having Chiari

> Malformations, even then, an MRI is not the best diagnostic tool.

> Seek out professionals who are experts at what your concern is.

> That is why Dr. Goldberg is the best in this field. He is an expert

> at Nueroimmune Deficiency Syndrome. Doctors ordering MRI's for your

> child with autism clearly need more education... Sincerely,

> Juarez, M.S., Marriage and Family Therapist

>

>

[Guest guest]

Hi Cheryl,

Often, after a child is dx.ed with Chiari , there symptoms start to make sense

to you. My son had tons of chiari symptoms but no one even thought about it. I

finally took him to the fourth neurologist and said that I wasn't leaving

without a RX. for an MRI.

had unequal dilated pupils, buzzing in his ears, ADHD-- off the wall, lost

speech, fine motor delays, upper body weakness, gagging and food aversions,

balance issues, grey hair , did not tan or burn in the sun ect.. and HEAD PAIN

(I found this out by accident as he couldn't tell us at that time), I gave him

Advil for a cold/fever and he became very typical and happy. He started to try

to communicate with us and kept repeating " I'm a sad boy " , over and over.... He

was back to his screaming, wild, self after a few hours, then Advil again, and

he was back with us again, trying to tell us that he had pain.

He was also calm for the first time in a long time. Looking around the house as

if it was the first time he really saw it. His head pain must have been horrible

for years. This haunts me all the time.

The neurologist told me that he would humor me and give me the MRI RX. but, he

didn't think that it would show a thing.

Boy was he sorry and remorseful, when he called us with the results. We already

knew because the radiologist had called me from the MRI dept. during the study

and told me to call a neurosurgeon right away. 's Chiari was so severe that

he had no CSF flow to his brain and a spinal cord and brainstem compression.

It all made sense to everyone after the fact, but the fourteen or more doctors

that saw were too quick to blame everything on his PDD-NOS diagnoses that

was given to him at two years old by a developmental ped.. I think that some

tried to find the answer, but most thought that I was a desperate mother with a

kid who has autism, and they had no idea how to help him.

That being said, I don't really know your son and what his symptoms are. All

kids with Chiari are different as are all kids with autism. BUT, you should get

an MRI and EEG for your son for completeness. IMHO .

Take care,

@...: c.lowrance@...: Thu, 8 Nov 2007 13:45:37

-0800Subject: Re: Re: MRI

I have to say, , that I've known of enough autism kids that have chiari

that I absolutely agree that all of our children should be given an MRI. It's

not a super high percentage but it's enough that I think that it should always

be ruled out.With that said, my son has never had an MRI or an EEG so I'm not

exactly taking my own advice. But we've never felt the need to even

*remotely* suspected seizure activity or chiari (not even the slightest of

symptoms), either. Maybe it's something I should run by Dr. G, anyway and see

what he says.CherylOn Nov 8, 2007, at 11:37 AM, LINDA A wrote:>> Hi ,>> You

know, once again your post if full of WRONG information. An MRI > is the ONLY

way to correctly diagnose a child with Chiari > Malformation. Please don't try

to argue this point with me as my > son has had four brain surgeries and I spend

much of my time > reading Chiari research papers (basically it's my life).>>

Good for you in finishing your doctorate in psychology, this still > doesn't

give you a degree in neurosurgery now does it? As you know > the two professions

are completely different. Neurosurgery requires > medical school and then ten

years of hard work and study after to > finally work in this field of

medicine.>> ALL CHILDREN WITH A DEVELOPMENTAL DELAY diagnoses should have an >

MRI as well as an EEG to look for abnormalities in their brains. > This advise

was given to us time and time again by the top > neurosurgeons at s Hopkins

, The University of Chicago > Children's Hospital and The Chiari Institute in

New York. All > places that have treated our little boy.>> As I said before,

these kids present like children with AS but > actually have Chiari and can

suffer brain damage as a result of > being misdiagnosed.>> Our son was

misdiagnosed for five years before we found his chiari. > He's not alone,

neurosurgeons are seeing these kids all the time > and it's frustrating to them

that they get them later rather than > as babies or toddlers.>> A standard MRI

will show a chiari in the right hands (neurosurgeon > or at the very least a

neuro-radiologist). By the way a spect scan > is used to look at blood flow to

the brain, useless in a chiari > diagnoses( some do have lack of blood flow but

this test will not > diagnose a chiari malformation). An MRI looks at CSF flow,

and this > is what is often interrupted in the brain of a child with chiari. >

Without proper CSF flow our bodies cannot function normally . My > son was in

multisystem organ failure at the time of his diagnoses / > and his immune system

doesn't function well due to his brainstem > trauma.>> And finally ,doctors who

don't order MRI's are the one's who > clearly need more education. I can't tell

you how many physicians > who saw our son and neglected to order an MRI, told me

that they > were sorry, after the fact. (By the way, my husband is an adult >

gastroenterologist and we would never sue, so they felt comfortable > expressing

there regret to us).>> >> @...:

jamieandsal@...: Wed, 7 > Nov 2007 22:52:31 -0600Subject: Re:

MRI>> There has only been ONE study done using MRI's supporative of a > solid

diagnosis of autism and that study is considered > experimental. In this study

there were " special procedures " used > not used in a typical MRI. The results

showed anomalies in the > temporal lobe including decreased size of the left

planum temporal, > bilateral reduction of temporal perfusion and abnormal

activation > of the superior temporal sulcus in response to vocal sounds. MOST,

> if not ALL, standard MRI's requested by unfamiliar doctors helping > the

thousands of families with nueroimmune children are useless. So > far SPECT

Scans are the only useful diagnostic tool we have, other > than lab work and

behavioral observation. This is not a blanket > statement. In finishing a

behavioral medicine doctorate of > psychology and working fulltime as an autism

consultant/marriage > and family therapist helping hundreds of families

struggling with > autism and adhd, blanket statements would not be used lightly.

For > families that are just entering this arena, please don't stop > trying

because a doctor told you your child's MRI came out fine. > And if you are

worried about your child having Chiari > Malformations, even then, an MRI is not

the best diagnostic tool. > Seek out professionals who are experts at what your

concern is. > That is why Dr. Goldberg is the best in this field. He is an

expert > at Nueroimmune Deficiency Syndrome. Doctors ordering MRI's for your >

child with autism clearly need more education... Sincerely, > Juarez,

M.S., Marriage and Family Therapist>> [Non-text portions of this message have

been removed]>>>

[Guest guest]

Melisa,Welcome to Saline Support! You've found the right place. We understand what you're going through.It's important that you get attention as soon as possible. I'd start with your primary care doctor. Where are you located? . . . maybe we can help you with some questions to ask so you can find a surgeon in your area. Unfortunately, Dr. Melmed is one doctor who doesn't think it's necessary to remove capsules from saline implants. Maybe hearing about your problem will make an impression on him. You may be able to find a doctor who generally works with women who've had breast cancer. . . It doesn't have to be a plastic surgeon.Hugs and

prayers,Rogene

[Guest guest]

Melisa,Welcome to Saline Support! You've found the right place. We understand what you're going through.It's important that you get attention as soon as possible. I'd start with your primary care doctor. Where are you located? . . . maybe we can help you with some questions to ask so you can find a surgeon in your area. Unfortunately, Dr. Melmed is one doctor who doesn't think it's necessary to remove capsules from saline implants. Maybe hearing about your problem will make an impression on him. You may be able to find a doctor who generally works with women who've had breast cancer. . . It doesn't have to be a plastic surgeon.Hugs and

prayers,Rogene

[Guest guest]

Thanks for getting back to me.

I'm in sdale, AZ. The doctors

on the recommended list don't accept Medicare.

I've been on Medicare since I was 21!

The green slime is coming out of my left armpit.

The implants went in transaxillary.

My left breast is also really swollen and it hurts.

What should I do?

[Guest guest]

Thanks for getting back to me.

I'm in sdale, AZ. The doctors

on the recommended list don't accept Medicare.

I've been on Medicare since I was 21!

The green slime is coming out of my left armpit.

The implants went in transaxillary.

My left breast is also really swollen and it hurts.

What should I do?

[Guest guest]

Melisa,I'm copying your message to one of our members in your area.Her doctor removed her implants properly. . . The doctor has an attitude, but you might find she would work with you.Hugs,Rogene Re: MRI

Thanks for getting back to me.

I'm in sdale, AZ. The doctors

on the recommended list don't accept Medicare.

I've been on Medicare since I was 21!

The green slime is coming out of my left armpit.

The implants went in transaxillary.

My left breast is also really swollen and it hurts.

What should I do?

[Guest guest]

Melisa,I'm copying your message to one of our members in your area.Her doctor removed her implants properly. . . The doctor has an attitude, but you might find she would work with you.Hugs,Rogene Re: MRI

Thanks for getting back to me.

I'm in sdale, AZ. The doctors

on the recommended list don't accept Medicare.

I've been on Medicare since I was 21!

The green slime is coming out of my left armpit.

The implants went in transaxillary.

My left breast is also really swollen and it hurts.

What should I do?

[Guest guest]

This is not a good situation at all.

You need to go through what just went through...a scar capsule

removal surgery.

We see over and over again women who have been explanted but have not

had the whole capsule removed, and they end up with this nasty,

festering glob in their breasts that is keeping them from healing.

I'm sorry you are going through this. Capsules do NOT dissolve. There

is no proof anywhere in the medical literature that they do, so I wish

this idea would just go away. Capsules need to be completely removed.

Can you see one of the recommended doctors, even if they do not accept

MEdicare?

Patty

--- In , " melisagayl " <mgmprincess1@...>

wrote:

>

> Thanks for getting back to me.

> I'm in sdale, AZ. The doctors

> on the recommended list don't accept Medicare.

> I've been on Medicare since I was 21!

> The green slime is coming out of my left armpit.

> The implants went in transaxillary.

> My left breast is also really swollen and it hurts.

> What should I do?

>

[Guest guest]

This is not a good situation at all.

You need to go through what just went through...a scar capsule

removal surgery.

We see over and over again women who have been explanted but have not

had the whole capsule removed, and they end up with this nasty,

festering glob in their breasts that is keeping them from healing.

I'm sorry you are going through this. Capsules do NOT dissolve. There

is no proof anywhere in the medical literature that they do, so I wish

this idea would just go away. Capsules need to be completely removed.

Can you see one of the recommended doctors, even if they do not accept

MEdicare?

Patty

--- In , " melisagayl " <mgmprincess1@...>

wrote:

>

> Thanks for getting back to me.

> I'm in sdale, AZ. The doctors

> on the recommended list don't accept Medicare.

> I've been on Medicare since I was 21!

> The green slime is coming out of my left armpit.

> The implants went in transaxillary.

> My left breast is also really swollen and it hurts.

> What should I do?

>

[Guest guest]

~ everything went good, actually better than i expected. he was fussy 4

the remainder of the day but thats all. now we play the waiting game! thank 2

every1 4 checking in.

> Mri > > > We are on our way

to get our sons mri done today at 7:30 am. Please keep us and lil jesse in your

thoughts today. thanks jessica > > > > >

[Guest guest]

, How goes the mri? Hope everything went well. Mri

We are on our way to get our sons mri done today at 7:30 am. Please keep us and lil jesse in your thoughts today. thanks jessica

[Guest guest]

Angie,

Shyann has only dx of apraxia. Never had MRI but has never seen a neurologist.

Will see one on 29th. Will post what ever happens.

Joy

[ ] MRI

Just curious about the kiddos who have only a apraxia diagnosis-have

you had an MRI? When I asked about this I was brushed off and I was

wondering if those with just a diagnosis of speech apraxia have had

an MRI and was it informative?

Smiles to All,

Angie

> > > >

> > > > Vitamin E reduces inflammation and is a powerful antioxidant.

I

> > do

> > > > wonder if the " negative " stories are simply of it working too

> > well if

> > > > you know what I am saying. I also wonder about the fish oil

> > rancidity

> > > > issues with the posts that claim a really fishy smell. I hope

> > this all

> > > > gets studied because for the right kids at the right doseage

I

> > bet this

> > > > could be a big help.

> > > >

> > > > In the interim, great food sources of vitamin k and E are

listed

> > at

> > > > whfoods.

> > > >

> > > > ---

> > > >

> > >

> >

>

[Guest guest]

My DD has an emlarged head and probable apraxia.  Her MRI showed mild

enlargement of the ventricles and a small amount of fluid in the front of her

head.  She also has an area of " non-specific white matter findings " .  They are

keeping an eye on her...

in OH

 

[ ] MRI

Just curious about the kiddos who have only a apraxia diagnosis-have

you had an MRI? When I asked about this I was brushed off and I was

wondering if those with just a diagnosis of speech apraxia have had

an MRI and was it informative?

Smiles to All,

Angie

> > > >

> > > > Vitamin E reduces inflammation and is a powerful antioxidant.

I

> > do

> > > > wonder if the " negative " stories are simply of it working too

> > well if

> > > > you know what I am saying. I also wonder about the fish oil

> > rancidity

> > > > issues with the posts that claim a really fishy smell. I hope

> > this all

> > > > gets studied because for the right kids at the right doseage

I

> > bet this

> > > > could be a big help.

> > > >

> > > > In the interim, great food sources of vitamin k and E are

listed

> > at

> > > > whfoods.

> > > >

> > > > ---

> > > >

> > >

> >

>

[Guest guest]

My 7dd has had numerous MRI's and CT's but they were due to her

Hydrocephalus. The Genetics doctor, Neurologist and Neurosurgeon have

said that the severe Apraxia is related to the Hydrocephalus- none of

them ever tried to explain the Apraxia from the MRI's, just that it

goes along with the Hydrocephalus and her left side weakness.

[Guest guest]

Were you brushed off -- or is it likely that many people either didn't have

anything to respond to or didn't see the post?

I know that this happens to me sometimes as well-- it's " par for the course "

I think, with the mode of communication we're using.

Hope you're able to get some answers

We ourselves have NOT had an MRI, but I will add " yet " -- because the Ped

Neuro that we saw wasn't terrific for u s in the first place, and we have an

upcoming appt with another one, whom I suspect will order one to be done.

Most of his specialists that we deal with are all surprised that the Ped

Neruro did not order an MRI, and each of THEM have wanted one done

Becky

In a message dated 10/7/2008 5:25:38 P.M. Eastern Daylight Time,

alinn@... writes:

Just curious about the kiddos who have only a apraxia diagnosis-have

you had an MRI? When I asked about this I was brushed of

**************New MapQuest Local shows what's happening at your destination.

Dining, Movies, Events, News & more. Try it out!

(http://local.mapquest.com/?ncid=emlcntnew00000001)

[Guest guest]

Krissy--

I'm not -- but no, this would not be from Apraxia-- and is not

connected. These sort of issues would be separate, underlying medical conditions

Becky

In a message dated 10/8/2008 3:15:16 P.M. Eastern Daylight Time,

scraphappykrissy@... writes:

, I am so sorry to hear that. waht is it from? the apraxia? is

an MRI something I should get for Cheesy or did something else happen

to her? and how is she now? what is the non specific white matter....I

hate when reports aren't specific! waht does that mean exactly?

I will be praying for your litte one

Krissy

**************New MapQuest Local shows what's happening at your destination.

Dining, Movies, Events, News & more. Try it out!

(http://local.mapquest.com/?ncid=emlcntnew00000001)

[Guest guest]

, I am so sorry to hear that. waht is it from? the apraxia? is

an MRI something I should get for Cheesy or did something else happen

to her? and how is she now? what is the non specific white matter....I

hate when reports aren't specific! waht does that mean exactly?

I will be praying for your litte one

Krissy

> > > > >

> > > > > Vitamin E reduces inflammation and is a powerful antioxidant.

> I

> > > do

> > > > > wonder if the " negative " stories are simply of it working too

> > > well if

> > > > > you know what I am saying. I also wonder about the fish oil

> > > rancidity

> > > > > issues with the posts that claim a really fishy smell. I hope

> > > this all

> > > > > gets studied because for the right kids at the right doseage

> I

> > > bet this

> > > > > could be a big help.

> > > > >

> > > > > In the interim, great food sources of vitamin k and E are

> listed

> > > at

> > > > > whfoods.

> > > > >

> > > > > ---

> > > > >

> > > >

> > >

> >

>

>

>

>

>

>

>

[Guest guest]

My son has hydrocephalus and is apraxic.  He is 2.  How is your daughter doing? 

Any good progress??  Do you have her on fish oils?

Yvette

From: Maureen <mosense@...>

Subject: [ ] Re: MRI

Date: Wednesday, October 8, 2008, 6:56 AM

My 7dd has had numerous MRI's and CT's but they were due to her

Hydrocephalus. The Genetics doctor, Neurologist and Neurosurgeon have

said that the severe Apraxia is related to the Hydrocephalus- none of

them ever tried to explain the Apraxia from the MRI's, just that it

goes along with the Hydrocephalus and her left side weakness.

[Guest guest]

My son had an MRI that showed nothing abnormal and he has Apraxia. It

cost us $1750 (and we have insurance) so I wouldn't get one just to

get one. Our neurologist recommended it for our then 3yo.

> > > > > >

> > > > > > Vitamin E reduces inflammation and is a powerful

antioxidant.

> > I

> > > > do

> > > > > > wonder if the " negative " stories are simply of it working

too

> > > > well if

> > > > > > you know what I am saying. I also wonder about the fish

oil

> > > > rancidity

> > > > > > issues with the posts that claim a really fishy smell. I

hope

> > > > this all

> > > > > > gets studied because for the right kids at the right

doseage

> > I

> > > > bet this

> > > > > > could be a big help.

> > > > > >

> > > > > > In the interim, great food sources of vitamin k and E are

> > listed

> > > > at

> > > > > > whfoods.

> > > > > >

> > > > > > ---

> > > > > >

> > > > >

> > > >

> > >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Krissy,

The Neuro said a lot of people have it and that they will keep an eye on her. 

She has ALWAYS had a large head (which is why they had to do a c-section on

me...she wasn't coming out!) and that, coupled with her lack of speech, was

enough for our NEW ped (the old one was worthless) to order it for her.   He is

really great and actually listens to me!

As for now she is fine...just doesn't say a lot!

Thanks for asking and for your well-wishes!

 

[ ] Re: MRI

, I am so sorry to hear that. waht is it from? the apraxia? is

an MRI something I should get for Cheesy or did something else happen

to her? and how is she now? what is the non specific white matter....I

hate when reports aren't specific! waht does that mean exactly?

I will be praying for your litte one

Krissy

> > > > >

> > > > > Vitamin E reduces inflammation and is a powerful antioxidant.

> I

> > > do

> > > > > wonder if the " negative " stories are simply of it working too

> > > well if

> > > > > you know what I am saying. I also wonder about the fish oil

> > > rancidity

> > > > > issues with the posts that claim a really fishy smell. I hope

> > > this all

> > > > > gets studied because for the right kids at the right doseage

> I

> > > bet this

> > > > > could be a big help.

> > > > >

> > > > > In the interim, great food sources of vitamin k and E are

> listed

> > > at

> > > > > whfoods.

> > > > >

> > > > > ---

> > > > >

> > > >

> > >

> >

>

>

>

>

>

>

>

[Guest guest]

That's because Apraxia WON'T show up on the MRI scans-- if there are signs

of something ELSE present, then most of the Neuros would request an MRI, but

if they only see evidence of Apraxia-- that really isn't justification for

getting one done, imho because anyone who deals in Apraxia knows that there

would be no evidence of it on the scan

becky

In a message dated 10/8/2008 6:35:23 P.M. Eastern Daylight Time,

debjward@... writes:

My son had an MRI that showed nothing abnormal and he has Apraxia.

**************New MapQuest Local shows what's happening at your destination.

Dining, Movies, Events, News & more. Try it out!

(http://local.mapquest.com/?ncid=emlcntnew00000001)

[Guest guest]

My wife has the same problem as you. She can't lie on her back and have a

cloth put over her face. She will throw up in an instant! The doctor gave

her 2 Valium tabs to take to calm her. It seemed to work, maybe you could

consider that?

Dennis in eastexas

On Thu, Apr 2, 2009 at 10:14 AM, tess1960 <tmyers1960@...> wrote:

> I am usually a lurker due to being in so much pain that it is the only

> thing I am capable of right now. I am severly claustrophobic, does anybody

> know of a place I can go in PA that has a MRI machine that is truely opened

> or maybe a stand up one. If not does anybody have any suggestions on how a

> person with claustrophobia can get through a MRI. Any help anybody can give

> me will be deeply appreciated.

>

>

[Guest guest]

Hi Tess - Valium works wonders.....Doreen

I am usually a lurker due to being in so much pain that it is the only thing I

am capable of right now. I am severly claustrophobic, does anybody know of a

place I can go in PA that has a MRI machine that is truely opened or maybe a

stand up one. If not does anybody have any suggestions on how a person with

claustrophobia can get through a MRI. Any help anybody can give me will be

deeply appreciated.