Vitamin D deficiency

[Guest guest]

This may come as a surprise to you, but your asthma could be caused by a

deficiency in Vitamin D. Just a little bug in your ear for today. I remember

when the doctor told my mother it could cause rickets, so she gave me cod liver

oil in a brown bottle that looked like a fish. How many of you remember that,

let's see a show of hands. Boy are you ever old. LOL

" Your vitamin D status is dependent on several factors, such as the color of

your skin, your location, and how much sunshine you’re exposed to on a regular

basis. So, although these recommendations may put you closer to the level of

what most people likely need, it is virtually impossible to make a blanket

recommendation that will cover everyone. The only accurate way to determine your

optimal dose is to get your blood tested. Ideally, you’ll want to maintain a

vitamin D level of at least 50ng/ml and perhaps as high as 80-90 ng/ml

year-round. "

Read the rest in Dr. Mercola's newsletter if you want to know more. Sometimes

less is not more, the more we know, the better we can fight off disease and keep

it at bay. I didn't know I was deficient, though I should have, I never venture

outside for fear of mosquitoes, so now I have to take it in pill form. A simple

blood test will uncover it and your good doctor will tell you how much you need.

I often think that if I had not inquired and asked unusual questions and/or

insisted that I may not be here today. There is 90# less of me, but my husband

is glad to have that.

http://articles.mercola.com/sites/articles/archive/2010/07/13/insufficient-vitam\

in-d-tied-to-severe-asthma-attacks.aspx

Cheers,

Lottie Duthu

[Guest guest]

Just prior to my diffuse systemic scleroderma, sjogrens, and raynauds

diagnosis, I found out I was dangerously low in vitamin D. I did 8 weeks of

50,000 iu and then took over the counter D, and have supposedly been fine since.

At my suggestion, when I saw my Dr. on Monday I asked to have bloodwork

taken again to check levels, and of course, dangerously low again! I cannot

go in the sun because of total intolerance, plus minocycline, and it seems a

vicious circle. Can anyone tell me if being so low in vitamin D can

increase pain levels????

[Guest guest]

I use 2000 mg of Vit d3 every day and mine is in the normal range. I was very

low for a long time. Make sure you use krill oil.

Eva

From: ONYX8257@... <ONYX8257@...>

Subject: rheumatic Re:Vitamin D Deficiency

rheumatic

Date: Wednesday, September 29, 2010, 7:01 PM

 

Just prior to my diffuse systemic scleroderma, sjogrens, and raynauds

diagnosis, I found out I was dangerously low in vitamin D. I did 8 weeks of

50,000 iu and then took over the counter D, and have supposedly been fine since.

At my suggestion, when I saw my Dr. on Monday I asked to have bloodwork

taken again to check levels, and of course, dangerously low again! I cannot

go in the sun because of total intolerance, plus minocycline, and it seems a

vicious circle. Can anyone tell me if being so low in vitamin D can

increase pain levels????

[Guest guest]

onyx,

there is another school of thought on vit d deficiency:

rheumatic

From: holloway-eva@...

Date: Wed, 29 Sep 2010 17:16:49 -0700

Subject: Re: rheumatic Re:Vitamin D Deficiency

I use 2000 mg of Vit d3 every day and mine is in the normal range. I was very

low for a long time. Make sure you use krill oil.

Eva

From: ONYX8257@... <ONYX8257@...>

Subject: rheumatic Re:Vitamin D Deficiency

rheumatic

Date: Wednesday, September 29, 2010, 7:01 PM

Just prior to my diffuse systemic scleroderma, sjogrens, and raynauds

diagnosis, I found out I was dangerously low in vitamin D. I did 8 weeks of

50,000 iu and then took over the counter D, and have supposedly been fine since.

At my suggestion, when I saw my Dr. on Monday I asked to have bloodwork

taken again to check levels, and of course, dangerously low again! I cannot

go in the sun because of total intolerance, plus minocycline, and it seems a

vicious circle. Can anyone tell me if being so low in vitamin D can

increase pain levels????

[Guest guest]

My AP doc/ Rheumatologist suggests 5000 to 10000 IU of D3 daily.

There is much scientific evidence that the current US RDA amounts are the

minimum, healthful amounts are much higher.

Cheryl

Sent from my Verizon Wireless BlackBerry

rheumatic Re:Vitamin D Deficiency

rheumatic

Date: Wednesday, September 29, 2010, 7:01 PM

 

Just prior to my diffuse systemic scleroderma, sjogrens, and raynauds

diagnosis, I found out I was dangerously low in vitamin D. I did 8 weeks of

50,000 iu and then took over the counter D, and have supposedly been fine since.

At my suggestion, when I saw my Dr. on Monday I asked to have bloodwork

taken again to check levels, and of course, dangerously low again! I cannot

go in the sun because of total intolerance, plus minocycline, and it seems a

vicious circle. Can anyone tell me if being so low in vitamin D can

increase pain levels????

[Guest guest]

When tested for D3 several years ago - 2004 - my level was at 18. Normal is

60-80. It's taken years to get it to 64. I started at 2,000 IUs a day and

with each blood test it was increased by 2,000 until I finally reached to

20,000 IU dose. I took different brands of D3 and my numbers just barely

increased. I finally found a liquid form of D3 from NSI via Vitacost.com

and I think that worked for me. I think I've been deficient for many many

years and wonder if it's a big part of my immune issues/chemical

sensitivities. I've heard that 10,000 IUs is a good daily dose but I

suspect FDA will never recommend that dosage. I'm good with it though! I

have little confidence in much that the FDA says or does!!. El

_____

From: rheumatic [mailto:rheumatic ] On Behalf

Of cgjcferguson@...

Sent: Wednesday, September 29, 2010 10:32 PM

rheumatic

Subject: Re: rheumatic Re:Vitamin D Deficiency

My AP doc/ Rheumatologist suggests 5000 to 10000 IU of D3 daily.

There is much scientific evidence that the current US RDA amounts are the

minimum, healthful amounts are much higher.

Cheryl

Sent from my Verizon Wireless BlackBerry

rheumatic Re:Vitamin D Deficiency

rheumatic <mailto:rheumatic%40>

Date: Wednesday, September 29, 2010, 7:01 PM

Just prior to my diffuse systemic scleroderma, sjogrens, and raynauds

diagnosis, I found out I was dangerously low in vitamin D. I did 8 weeks of

50,000 iu and then took over the counter D, and have supposedly been fine

since.

At my suggestion, when I saw my Dr. on Monday I asked to have bloodwork

taken again to check levels, and of course, dangerously low again! I cannot

go in the sun because of total intolerance, plus minocycline, and it seems a

vicious circle. Can anyone tell me if being so low in vitamin D can

increase pain levels????

[Guest guest]

I did 50,000iu of Vitamin D 2x a week for 4 weeks before my Sjogren's symptoms

first appeared. I wonder if vitamin D really does make some of these autoimmune

diseases worse as the Marshall Protocol claims.

________________________________

From: " ONYX8257@... " <ONYX8257@...>

rheumatic

Sent: Wednesday, September 29, 2010 20:01:22

Subject: rheumatic Re:Vitamin D Deficiency

 

Just prior to my diffuse systemic scleroderma, sjogrens, and raynauds

diagnosis, I found out I was dangerously low in vitamin D. I did 8 weeks of

50,000 iu and then took over the counter D, and have supposedly been fine since.

At my suggestion, when I saw my Dr. on Monday I asked to have bloodwork

taken again to check levels, and of course, dangerously low again! I cannot

go in the sun because of total intolerance, plus minocycline, and it seems a

vicious circle. Can anyone tell me if being so low in vitamin D can

increase pain levels????

[Guest guest]

i know two other peoples who had the same experience - taking lots of

D and then got rheumatic disease. i think there maybe something to the MP.

monique

I did 50,000iu of Vitamin D 2x a week for 4 weeks before my Sjogren's

symptoms

first appeared. I wonder if vitamin D really does make some of these

autoimmune

diseases worse as the Marshall Protocol claims.

[Guest guest]

I think we should not all jump to conclusions. Rheumatic diseases existed long

before people started megadosing with Vitamin D. If there is a connection,

could it be that the huge supplemented doses cause problems? Could it be that

keeping a normal level of vitamin D for all the health benefits is just fine? I

just get concerned about jumping to conclusions based on knowing a few people

who have done something and making that the link to their diseases. Also, I

think we need to keep in mind that Trevor Marshall developed his protocol to

help his own sarcoidosis, not RA, psoriatic, reactive etc. The generalization

to all rheumatic diseases has not been studied, has it? I am not trying to be

argumentative, just advising caution based on sound knowledge and facts.

rheumatic Re: Vitamin D Deficiency

i know two other peoples who had the same experience - taking lots of

D and then got rheumatic disease. i think there maybe something to the MP.

monique

I did 50,000iu of Vitamin D 2x a week for 4 weeks before my Sjogren's

symptoms

first appeared. I wonder if vitamin D really does make some of these

autoimmune

diseases worse as the Marshall Protocol claims.

[Guest guest]

I had already been diagnosed with RA and DM  for 6 years and at one time my

level on Vit D was fine, then I had all the biological meds and my Vit D level

almost disappeared, so I don't think it causes the RA, etc.

Eva

From: Ken and <kglg@...>

Subject: Re: rheumatic Re: Vitamin D Deficiency

rheumatic

Date: Thursday, September 30, 2010, 1:27 PM

 

I think we should not all jump to conclusions. Rheumatic diseases existed

long before people started megadosing with Vitamin D. If there is a connection,

could it be that the huge supplemented doses cause problems? Could it be that

keeping a normal level of vitamin D for all the health benefits is just fine? I

just get concerned about jumping to conclusions based on knowing a few people

who have done something and making that the link to their diseases. Also, I

think we need to keep in mind that Trevor Marshall developed his protocol to

help his own sarcoidosis, not RA, psoriatic, reactive etc. The generalization

to all rheumatic diseases has not been studied, has it? I am not trying to be

argumentative, just advising caution based on sound knowledge and facts.

rheumatic Re: Vitamin D Deficiency

i know two other peoples who had the same experience - taking lots of

D and then got rheumatic disease. i think there maybe something to the MP.

monique

I did 50,000iu of Vitamin D 2x a week for 4 weeks before my Sjogren's

symptoms

first appeared. I wonder if vitamin D really does make some of these

autoimmune

diseases worse as the Marshall Protocol claims.

[Guest guest]

My naturopath said that there is a correlation between low Vit D and

inflammation. It takes 8000IU daily for my vit D levels to stay in a

good range. I certainly have not gotten worse for supplementing. I'm

doing pretty good these days but I'm careful to quickly attribute

changes, either way, to this or that supplement. Rheumatic diseases have

a tendency to wax an wane, so it is tricky, though not impossible. I

once tried higher doses of Vit C. At 8gram per day my pain levels came

down 80%. I thought I found the holy grail! A few weeks later pain

levels came back up and tweaking Vit C doses didn't affect one way of

the other. Go figure.

Take care,

Ute

[Guest guest]

there are many people with RA on the MP protocol. some with RA have

done very well on it - better than they did on ap and the nice thing

about is far lower doses of abx are used on MP. it works for some with

RA and not for others. we have to find what works for us but it is an

option for some to consider.

monique

[Guest guest]

M/P worked for me.  First I started on A/P and then went on M/P. Stayed on each

one for 2 years more or less and thenwent into remission... No longer on any

protocol, but choose to stay on 50mg of minocin on MWF just for prevention of

re-infection.  I went on the low vit D diet, dark shades and Noir glasses and

had no bad side effects.  Actually, it helped me to avoid

hyperpigmentation. What works for one person does not necessarily work for

others, but all antibiotic therapies are worth trying.  The other alternative

is to go with the toxic drugs which mask the symptoms , but does nothing for

the cure.  Take care, Dolores   

From: Sauve <moniquesauve@...>

Subject: rheumatic Re: Vitamin D Deficiency

rheumatic

Date: Friday, October 1, 2010, 3:40 PM

 

there are many people with RA on the MP protocol. some with RA have

done very well on it - better than they did on ap and the nice thing

about is far lower doses of abx are used on MP. it works for some with

RA and not for others. we have to find what works for us but it is an

option for some to consider.

monique

[Guest guest]

Please explain to me the difference from mp to ra treatme thank hou, kathy

egenbacher

From: mike rosner

Sent: Friday, October 01, 2010 10:43 PM

rheumatic

Subject: Re: rheumatic Re: Vitamin D Deficiency

M/P worked for me. First I started on A/P and then went on M/P. Stayed on each

one for 2 years more or less and thenwent into remission... No longer on any

protocol, but choose to stay on 50mg of minocin on MWF just for prevention of

re-infection. I went on the low vit D diet, dark shades and Noir glasses and

had no bad side effects. Actually, it helped me to avoid hyperpigmentation.

What works for one person does not necessarily work for others, but all

antibiotic therapies are worth trying. The other alternative is to go with the

toxic drugs which mask the symptoms , but does nothing for the cure. Take care,

Dolores

From: Sauve <moniquesauve@...>

Subject: rheumatic Re: Vitamin D Deficiency

rheumatic

Date: Friday, October 1, 2010, 3:40 PM

there are many people with RA on the MP protocol. some with RA have

done very well on it - better than they did on ap and the nice thing

about is far lower doses of abx are used on MP. it works for some with

RA and not for others. we have to find what works for us but it is an

option for some to consider.

monique

[Guest guest]

Hi A/P stands for Antibiotic Protocol.  Antibiotics of the Tetracycline family

have been shown to be successful in treating rheumatic type diseases.  There

are many of these diseases.  The theory is that these diseases are caused by a

(cell-wall-deficient) microorganism.  This was discovered in the 1940's by Dr.

Brown and if you google, The Antibiotic Protocol, It will give you all the

details.  Also google the FAQ sheet on Antibiotic Protocol and you will get the

story behind the protocol.

 

There are several books out by Henry Scammell & Dr. MacPherson Brown

which also explain the entire concept.  The books go into detail that I would

not be able to type up in a brief summary.  Please look them up.  Amazon.com

sells the books cheaply, new or used. " The New Arthitis Breakthrough is one

book, Scleroderma, The Proven Therapy that can save your life, is another

one,----Both are written by Henry Scammell. & then there is the Road Back by Dr.

Thomsas MacPhersen Brown.  This book is now out of print, but it can be found

in the, New Arthrits Breakthrough, mid way though the book.    I suggest you

all get these books and read them thoroughly before starting any protocols. 

That way you learn the reasoning behind the protocols and you know what to

expect.  

 

Getting well from these diseases is a long process which can go on for years. 

It took me 5 years to get to remission.  Some people do feel better, but never

achieve remission because they have other issues that need to be

treated concurrently.   

 

M/P stands for the Marshall Protocol.  It also uses antibiotics of the

tetracycline family, plus other antibiotic in different phases and different

amounts and introduces them slowly at different times.

 

The entire Protocol is not given out unless you commit to going on it and then

you would have to contact them on line. After you successfully finish the first

phase, they will send you the second, third and the modified version, if you

need it. 

 

You can also google Trevor Marshall.for the information.  He is a biologist who

has done much research in this field so you would have to have a doctor check

with Trevor to see if you are a good candidate for the protocol..  This

protocol was developed by Trevor Marshall to cure his own sarcoidosis and must

be followed precisely  from day 1 thru to the end.  When I did it, there

were 3 phases and one that was modified for people with heart disease.  These

protocols are not to be taken lightly.  If not done properly, you could get

into trouble with them....I could not possibly write down all the phases here

and what you have to do at each phase.  That would have to be between you,

Trevor Marshall,  Meg Mangin, the team and your doctor.  Trevor Marshall

suggests that your doctor call him before starting the protocol to be sure that

both the patient and the doctor understand all the rules and ramifications. 

Dr. Marshall will only speak with

Doctors re: the protocol as he is not an MD, he is a PHD.  Dr..and is not

allowed to prescribe medication.  He is the originator of the protocol and some

doctors find it controversial....I was one who was so determined to beat my

diseases that I followed exactly and much to my surprise, between both

protocols, I went into remission.  I am a success story.  Not all people are

able to do either A/P nor M/P successfully because they develop

complications.    I hope this helps you to understand. 

 

The internet is a wonderful tool!  Use it to look up many of your questions and

also check out the medications.  You can get a ton of information on both

protocols by looking them up.... Take care, Dolores 

From: Sauve <moniquesauve@...>

Subject: rheumatic Re: Vitamin D Deficiency

rheumatic

Date: Friday, October 1, 2010, 3:40 PM

there are many people with RA on the MP protocol. some with RA have

done very well on it - better than they did on ap and the nice thing

about is far lower doses of abx are used on MP. it works for some with

RA and not for others. we have to find what works for us but it is an

option for some to consider.

monique

[Guest guest]

Hi Delores and Group,

Met with my LDN/AP doc yesterday Dr. Ahner. He wants to continue with 4.5

ldn and add in either Doxy or generic Minocycline. He explained they both

are good and touch different things. He said that Doxy is free at Pulbix.

He prescribed Minocycline 100mg every day in the AM on an empty stomach with

1 full glass of water. He also said if i want to try the FREE Doxy as a

trial for a month he would write a scipt for that. Of course, I asked what

he thought was best. He explained that there are hundreds of different ways

to take each and attach the root of the problem. Each person is different.

So I wonder which direction to take?

I'm on a real small budget. This is getting very expensive. I have other

medications and huge co pays monthly.

He also suggested an all natural (nothing pharma) hormone cream.

Apparently, according to my blood work I have no hormones. Not a big

surprise to me. I have always had irregular periods but over the past 5

yeas as AI - RA has progressed its non existent. I have a lot of issues to

attack but to narrow them down to the top 2 he suggested to start here. He

mentioned low thyroid. I have my blood work but not sure how to read or

what these numbers mean?

The cream has 3 items compounded specially for what my body is severely

lacking; He said I will feel better, sleep better, hair will grow, desire

for intimacy will come back, skin improve and over all have a sense of well

being. Most importantly he said that women that have normal hormone levels

are less likely to have RA. ? That is something I have never heard of

before. Dr. Ahner, West Palm Beach, FL.

If I want to save the money would Doxy be equally a good place to start with

AP? Has anyone ever taken or know of these hormone creams? Excuse my

length in explanation.

Thank you.

Lindsey

On Fri, Oct 1, 2010 at 11:43 PM, mike rosner <martysfolks2004@...>wrote:

>

>

> M/P worked for me. First I started on A/P and then went on M/P. Stayed on

> each one for 2 years more or less and thenwent into remission... No longer

> on any protocol, but choose to stay on 50mg of minocin on MWF just for

> prevention of re-infection. I went on the low vit D diet, dark shades and

> Noir glasses and had no bad side effects. Actually, it helped me to avoid

> hyperpigmentation. What works for one person does not necessarily work for

> others, but all antibiotic therapies are worth trying. The other

> alternative is to go with the toxic drugs which mask the symptoms , but does

> nothing for the cure. Take care, Dolores

>

>

>

> From: Sauve <moniquesauve@... <moniquesauve%40shaw.ca>>

> Subject: rheumatic Re: Vitamin D Deficiency

> rheumatic <rheumatic%40>

> Date: Friday, October 1, 2010, 3:40 PM

>

>

>

> there are many people with RA on the MP protocol. some with RA have

> done very well on it - better than they did on ap and the nice thing

> about is far lower doses of abx are used on MP. it works for some with

> RA and not for others. we have to find what works for us but it is an

> option for some to consider.

>

> monique

>

>

[Guest guest]

Hi Lindsey,

It sounds like you are on a good path. I'd say start with the Doxy since

it's free; if it doesn't work you can try generic Minocycline. And if you

have no results from those two after some months maybe try the brand

Minocine.

As for thyroid, there is a book I use and have found very helpful. I have

my own copies but usually recommend people try to find a copy at their

public library. If you can do this and find it helpful then you can always

see about buying your own copy. It's called Prescription for Nutritional

Healing by Balch. You may want to look up Hypothyroid in it. It will tell

you foods & supplements to use and avoid that will help your thyroid

function better. You may also need meds; I take the natural Armour Thyroid

which I am able to obtain through Costco - no membership is needed for the

pharmacy. It's plenty cheap and works fine.

As for the hormones I have no experience with those. If you are going the

natural route though I'd think that would be a good thing.

This stuff is complicated, there is no one answer, many times it's a great

big mixing bowl of different issues. It's hard for us and the MDs to figure

it out. So I say small steady steps. I'm glad you found this group and I

hope we can help. Hang in there, be good to yourself. Regards, El

rheumatic Re: Vitamin D Deficiency

> rheumatic <rheumatic%40>

> Date: Friday, October 1, 2010, 3:40 PM

>

>

>

> there are many people with RA on the MP protocol. some with RA have

> done very well on it - better than they did on ap and the nice thing

> about is far lower doses of abx are used on MP. it works for some with

> RA and not for others. we have to find what works for us but it is an

> option for some to consider.

>

> monique

>

>

[Guest guest]

Hi E!

Thank you for your reply and great suggestions. I think will try the Doxy

and Monday have

Dr. Ahner's nurse call it into Publix... Free is good for me and like you

said if it

doesn't work then I try the brand Minocine. Skips pharmacy said it was $600

for one

month of the brand name Minocine? That seems rediculously over priced? You

are

suggestng brand name and not generic Minocycline to start if I go that

route?

All this is complicated. I get a little overwhelmed with all the good

information from the folks here.

You put it very well, " big mixing bowl of different issues. " Baby steps. I

am very glad to have

found this group.

LIndsey

On Sat, Oct 2, 2010 at 11:46 AM, ehgooding <ehgooding@...> wrote:

>

>

> Hi Lindsey,

>

> It sounds like you are on a good path. I'd say start with the Doxy since

> it's free; if it doesn't work you can try generic Minocycline. And if you

> have no results from those two after some months maybe try the brand

> Minocine.

>

> As for thyroid, there is a book I use and have found very helpful. I have

> my own copies but usually recommend people try to find a copy at their

> public library. If you can do this and find it helpful then you can always

> see about buying your own copy. It's called Prescription for Nutritional

> Healing by Balch. You may want to look up Hypothyroid in it. It will tell

> you foods & supplements to use and avoid that will help your thyroid

> function better. You may also need meds; I take the natural Armour Thyroid

> which I am able to obtain through Costco - no membership is needed for the

> pharmacy. It's plenty cheap and works fine.

>

> As for the hormones I have no experience with those. If you are going the

> natural route though I'd think that would be a good thing.

>

> This stuff is complicated, there is no one answer, many times it's a great

> big mixing bowl of different issues. It's hard for us and the MDs to figure

> it out. So I say small steady steps. I'm glad you found this group and I

> hope we can help. Hang in there, be good to yourself. Regards, El

>

>

> rheumatic Re: Vitamin D Deficiency

> > rheumatic <rheumatic%40> <rheumatic%

> 40>

>

> > Date: Friday, October 1, 2010, 3:40 PM

> >

> >

> >

> > there are many people with RA on the MP protocol. some with RA have

> > done very well on it - better than they did on ap and the nice thing

> > about is far lower doses of abx are used on MP. it works for some with

> > RA and not for others. we have to find what works for us but it is an

> > option for some to consider.

> >

> > monique

> >

> >

[Guest guest]

Hi Lindsey,

I agree with everything El said.

I have been on that type of hormone(bioidentical hormones) for about 7 or 8

years. If I was told not to take it anymore you would have to pry it out of

my cold dead hands. I wanted estrogen for the hot flashes that I was still

having at 55 but my compound pharmacist suggested to my doc that he add

progesterone, DHEA, and testosterone. This is the best thing since

antibiotics. I still don't sleep well(I have problems falling asleep) but

great for everything else. Your sense of well being will be amazing.

It did not help my RA that I know of but a lot of women on this site use

them also so maybe they can tell you how it helps auto immune diseases.

Hope you do well.

Cooky

,

Met with my LDN/AP doc yesterday Dr. Ahner. He wants to continue with 4.5

ldn and add in either Doxy or generic Minocycline. He explained they both

are good and touch different things. He said that Doxy is free at Pulbix.

He prescribed Minocycline 100mg every day in the AM on an empty stomach with

1 full glass of water. He also said if i want to try the FREE Doxy as a

trial for a month he would write a scipt for that. Of course, I asked what

he thought was best. He explained that there are hundreds of different ways

to take each and attach the root of the problem. Each person is different.

So I wonder which direction to take?

I'm on a real small budget. This is getting very expensive. I have other

medications and huge co pays monthly.

He also suggested an all natural (nothing pharma) hormone cream.

Apparently, according to my blood work I have no hormones. Not a big

surprise to me. I have always had irregular periods but over the past 5

yeas as AI - RA has progressed its non existent. I have a lot of issues to

attack but to narrow them down to the top 2 he suggested to start here. He

mentioned low thyroid. I have my blood work but not sure how to read or

what these numbers mean?

The cream has 3 items compounded specially for what my body is severely

lacking; He said I will feel better, sleep better, hair will grow, desire

for intimacy will come back, skin improve and over all have a sense of well

being. Most importantly he said that women that have normal hormone levels

are less likely to have RA. ? That is something I have never heard of

before. Dr. Ahner, West Palm Beach, FL.

If I want to save the money would Doxy be equally a good place to start with

AP? Has anyone ever taken or know of these hormone creams? Excuse my

length in explanation.

/info/terms/

[Guest guest]

Hi Lindsey,

I assumed at some point you would not be able to get the doxy for free and

then you might want to switch to minocycline which is the generic form/name

for minocin.

If the doxy is working for you then you may want to stay on it even if you

have to pay.

The minocycline is much cheaper then Minocin so you may want to try that if

you do not stay with the doxy. Minocycline may not be as effective as

Minocin but it should still work some. If it does not then you may want to

either stay with minocycline but find a different manufacturer of

minocycline or switch to the more expensive Minocin.

Harold has a website with good info about minocycline; the different

manufacturers and which worked etc.

I took generic minocycline to begin with and it worked great; the follow on

RX (from a different pharmacy/manufacturer) did not so my MD switched me to

Minocin. That worked great however it can be costly. I took 100 mg daily

for almost three years with no negative results; only good ones. If I had

to take the generic I might go to one 100 mg capsule in the a.m. and another

100 mg in the p.m. --- the thought being that if it only works at an 85%

level then two would be better then one.

I would think about giving my eye teeth to find out what Minocin cost in the

1970s! I bet it was pennies a pill. I'd love for the FDA (or someone) to

investigate why this med has been inflated to the point of

unaffordability!!! El

rheumatic Re: Vitamin D Deficiency

> > rheumatic <rheumatic%40> <rheumatic%

> 40>

>

> > Date: Friday, October 1, 2010, 3:40 PM

> >

> >

> >

> > there are many people with RA on the MP protocol. some with RA have

> > done very well on it - better than they did on ap and the nice thing

> > about is far lower doses of abx are used on MP. it works for some with

> > RA and not for others. we have to find what works for us but it is an

> > option for some to consider.

> >

> > monique

> >

> >

[Guest guest]

Reading over El's note I think she meant for you to start with the FREE

Doxycycline.

If after months nothing works (doxy or minocycline) you could get Minocin.

Most of us order it from Canada and pay out of pocket. IT is much cheeper by

about $500!

Hugs,

Cooky

Hi E!

Thank you for your reply and great suggestions. I think will try the Doxy

and Monday have

Dr. Ahner's nurse call it into Publix... Free is good for me and like you

said if it

doesn't work then I try the brand Minocine. Skips pharmacy said it was $600

for one

month of the brand name Minocine? That seems rediculously over priced? You

are

suggestng brand name and not generic Minocycline to start if I go that

route?

All this is complicated. I get a little overwhelmed with all the good

information from the folks here.

You put it very well, " big mixing bowl of different issues. " Baby steps. I

am very glad to have

found this group.

[Guest guest]

Yes, that's what I was trying to say - clear as mud huh? LOL

_____

From: rheumatic [mailto:rheumatic ] On Behalf

Of Cooky Stonkey

Sent: Saturday, October 02, 2010 12:48 PM

rheumatic

Subject: RE: rheumatic Re: Vitamin D Deficiency

Reading over El's note I think she meant for you to start with the FREE

Doxycycline.

If after months nothing works (doxy or minocycline) you could get Minocin.

Most of us order it from Canada and pay out of pocket. IT is much cheeper by

about $500!

Hugs,

Cooky

Hi E!

Thank you for your reply and great suggestions. I think will try the Doxy

and Monday have

Dr. Ahner's nurse call it into Publix... Free is good for me and like you

said if it

doesn't work then I try the brand Minocine. Skips pharmacy said it was $600

for one

month of the brand name Minocine? That seems rediculously over priced? You

are

suggestng brand name and not generic Minocycline to start if I go that

route?

All this is complicated. I get a little overwhelmed with all the good

information from the folks here.

You put it very well, " big mixing bowl of different issues. " Baby steps. I

am very glad to have

found this group.

[Guest guest]

Well.. remember back when you first started..?? I know how confused I was.

You did a great job of explaining. It's just so darn confusing when you

first start.

Hugs,

cooky

From: rheumatic [mailto:rheumatic ] On Behalf

Of ehgooding

Yes, that's what I was trying to say - clear as mud huh? LOL

[Guest guest]

Hi Cooky,

Oh, those are the three ingredients that Dr. Ahner requested to be

compounded .....

progesterone, DHEA, and testosterone. Apparently I am beyond deficient.

I've

been depressed forever it seems and if it brings me an amazing sense of ll

being then

they would have to " pry it out of my cold dead hands " * *too. I love that

Cooky.

Laughed out loud over here. I haven't slept well for years. I cant even

remember

sleeping more than 4 hours in a row. I have weened off Colonzapam

/Kolinipin (sp?) 1.5mg

to .05mg. I should just let it go entirely and try ala natural.

I am eager to begin the Doxy as a test but wonder if just a month would be

enough

time for a test? He will prescribe it to be taken every day.

Thank you for sharing your experience. I feel better starting the cream

today in fact,

I can't wait! I'm heading to pick it up right now.

Lindsey

..

On Sat, Oct 2, 2010 at 12:44 PM, Cooky Stonkey <cookee1@...> wrote:

>

>

> Hi Lindsey,

>

> I agree with everything El said.

>

> I have been on that type of hormone(bioidentical hormones) for about 7 or 8

> years. If I was told not to take it anymore you would have to pry it out of

> my cold dead hands. I wanted estrogen for the hot flashes that I was still

> having at 55 but my compound pharmacist suggested to my doc that he add

> progesterone, DHEA, and testosterone. This is the best thing since

> antibiotics. I still don't sleep well(I have problems falling asleep) but

> great for everything else. Your sense of well being will be amazing.

>

> It did not help my RA that I know of but a lot of women on this site use

> them also so maybe they can tell you how it helps auto immune diseases.

>

> Hope you do well.

>

> Cooky

>

> ,

>

> Met with my LDN/AP doc yesterday Dr. Ahner. He wants to continue with 4.5

> ldn and add in either Doxy or generic Minocycline. He explained they both

> are good and touch different things. He said that Doxy is free at Pulbix.

> He prescribed Minocycline 100mg every day in the AM on an empty stomach

> with

> 1 full glass of water. He also said if i want to try the FREE Doxy as a

> trial for a month he would write a scipt for that. Of course, I asked what

> he thought was best. He explained that there are hundreds of different ways

> to take each and attach the root of the problem. Each person is different.

> So I wonder which direction to take?

>

> I'm on a real small budget. This is getting very expensive. I have other

> medications and huge co pays monthly.

>

> He also suggested an all natural (nothing pharma) hormone cream.

> Apparently, according to my blood work I have no hormones. Not a big

> surprise to me. I have always had irregular periods but over the past 5

> yeas as AI - RA has progressed its non existent. I have a lot of issues to

> attack but to narrow them down to the top 2 he suggested to start here. He

> mentioned low thyroid. I have my blood work but not sure how to read or

> what these numbers mean?

>

> The cream has 3 items compounded specially for what my body is severely

> lacking; He said I will feel better, sleep better, hair will grow, desire

> for intimacy will come back, skin improve and over all have a sense of well

> being. Most importantly he said that women that have normal hormone levels

> are less likely to have RA. ? That is something I have never heard of

> before. Dr. Ahner, West Palm Beach, FL.

>

> If I want to save the money would Doxy be equally a good place to start

> with

> AP? Has anyone ever taken or know of these hormone creams? Excuse my

> length in explanation.

>

> /info/terms/

>

>

>

[Guest guest]

you're right ....overwhelm! I asked doc Sinnott about what brand of mino

he recommends...generic, etc. He said in 30 years using AP, he did not see a

big difference in any of them. This money thing/or lack of is a big problem in

focusing on wellness. Plus, having such a " tricky " disease/diseases, does not

help either. It does seem a little bleak at times......then I have to surrender

and know I'm doing the best I can, with what I have.....and move forward. I

understand the " baby steps " ....thats how I walk with my walker! I pray that all

our baby steps takes us to abundant wellness! sally

rheumatic Re: Vitamin D Deficiency

> rheumatic <rheumatic%40> <rheumatic%

40>

> Date: Friday, October 1, 2010, 3:40 PM

>

>

>

> there are many people with RA on the MP protocol. some with RA have

> done very well on it - better than they did on ap and the nice thing

> about is far lower doses of abx are used on MP. it works for some with

> RA and not for others. we have to find what works for us but it is an

> option for some to consider.

>

> monique

>

>