Guest guest Posted October 2, 2010 Report Share Posted October 2, 2010 Great minds think alike Sally. So good to know that I am not alone in this journey. Dr. Ahner 30+ years in wellness said pretty much the same thing doc Sinnott did to me. It is what ever works and it may be a bit of trial and error. I hope that I land on the one that works for me. I am new to this protocol and this group. What tricky AI disease/diseases are you overcoming? Yes,yes, yes abundant Wellness!!! LIndsey On Sat, Oct 2, 2010 at 4:32 PM, <mannasal@...> wrote: > > > you're right ....overwhelm! I asked doc Sinnott about what brand of > mino he recommends...generic, etc. He said in 30 years using AP, he did not > see a big difference in any of them. This money thing/or lack of is a big > problem in focusing on wellness. Plus, having such a " tricky " > disease/diseases, does not help either. It does seem a little bleak at > times......then I have to surrender and know I'm doing the best I can, with > what I have.....and move forward. I understand the " baby steps " ....thats how > I walk with my walker! I pray that all our baby steps takes us to abundant > wellness! sally > > rheumatic Re: Vitamin D Deficiency > > rheumatic <rheumatic%40> <rheumatic% > 40> <rheumatic% > 40> > > > Date: Friday, October 1, 2010, 3:40 PM > > > > > > > > there are many people with RA on the MP protocol. some with RA have > > done very well on it - better than they did on ap and the nice thing > > about is far lower doses of abx are used on MP. it works for some with > > RA and not for others. we have to find what works for us but it is an > > option for some to consider. > > > > monique > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2010 Report Share Posted October 2, 2010 Lindsey....4 yrs RA, now having hip degeneration (haven't had the courage to check out the knees and shoulders!) don't know what else going on with me since I haven't been to rhemy over 2 yrs, and just recently went to GP for xrays. I have had so many hits and misses last 4 years with looking for cure/relief/answers for this cruel disease....that I pray for me/us that I don't have to spend years with hits/misses on AP treatment. i havne't done any IV's and want to. doc S. 5 hrs from me and says I need to come and stay a week. And I think he is around 70 years, so don't know how long he'll wait for me! I have to be doing much better to make such a trip, etc....this body hasn't been further than my front porch for 2 years (maybe 1 or 2 dr. apts). But the good news, I have a lovely front porch with south sun, and am in a sweet town where someone always seems to come by and sit with me on the porch and I can now get out there by myself!! The small precious things of life. sally rheumatic Re: Vitamin D Deficiency > rheumatic <rheumatic%40> <rheumatic% 40> <rheumatic% 40> > Date: Friday, October 1, 2010, 3:40 PM > > > > there are many people with RA on the MP protocol. some with RA have > done very well on it - better than they did on ap and the nice thing > about is far lower doses of abx are used on MP. it works for some with > RA and not for others. we have to find what works for us but it is an > option for some to consider. > > monique > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2010 Report Share Posted October 2, 2010 Oh Sally. I know your pain. I started LDN a month ago and will begin the AP on Monday. (The nurse forgot to call my scrip in Friday for my natural hormone cream and Mino) With the time and emails from others in the group I may ask him to call in for the Doxy since it's free at Publix. I don't know which direction to go honestly? I just want to be better, feel better, feel like the me I used to know. I am 46, single and just met the greatest man but I truly fear that when he learns all this about me he won't want to see me anymore. I just said a prayer for you Sally. Find the courage to keep on keeping on. I have had the same MISSES you have with them trying to diagnose me since 2000. I have seen 8 or so specialist for one thing or another and none of them seem to really know anything accept that I have RA (my numbers apparently are off the charts) In 2000 I had a stent put in my lower aorta and discovered RA, lost my middle toe to a clot, now neuropathy. I'm having a hard time walking. It's the right foot with this odd stabbing pain........and other AI issues. They thought I had Raynaud's then Berger's now they say my case is complicated. I understand. You would think that someone would be able to figure out what is wrong and get us to the right medication to fix it? My hope is with Dr. Ahner now, LDN and AP along with other treatments Ive learned through this group and Dr. Ahner to help manage and maintain until..... hopefully we both can say (as I have read before on this site).... " we are in remission!! " I didn't know Dr.S was 70? He must be a wise old soul. I have heard many talk about him here. I live in FL and fortunate to have My Doc local that knows of these treatments for 30+ years. When you say IV's what are you speaking of Sally? I imagine you in my minds eye on your fabulous front porch sipping ice tea... maybe sweet tea and greeting with a smile on your face all those that come by. Life is about those little precious moments. Enjoy. Lindsey On Sat, Oct 2, 2010 at 9:05 PM, <mannasal@...> wrote: > > > Lindsey....4 yrs RA, now having hip degeneration (haven't had the courage > to check out the knees and shoulders!) don't know what else going on with me > since I haven't been to rhemy over 2 yrs, and just recently went to GP for > xrays. I have had so many hits and misses last 4 years with looking for > cure/relief/answers for this cruel disease....that I pray for me/us that I > don't have to spend years with hits/misses on AP treatment. i havne't done > any IV's and want to. doc S. 5 hrs from me and says I need to come and stay > a week. And I think he is around 70 years, so don't know how long he'll wait > for me! I have to be doing much better to make such a trip, etc....this body > hasn't been further than my front porch for 2 years (maybe 1 or 2 dr. apts). > But the good news, I have a lovely front porch with south sun, and am in a > sweet town where someone always seems to come by and sit with me on the > porch and I can now get out there by myself!! The small precious things of > life. sally > > > rheumatic Re: Vitamin D Deficiency > > rheumatic <rheumatic%40> <rheumatic% > 40> <rheumatic% > 40> <rheumatic% > 40> > > > Date: Friday, October 1, 2010, 3:40 PM > > > > > > > > there are many people with RA on the MP protocol. some with RA have > > done very well on it - better than they did on ap and the nice thing > > about is far lower doses of abx are used on MP. it works for some with > > RA and not for others. we have to find what works for us but it is an > > option for some to consider. > > > > monique > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2010 Report Share Posted October 2, 2010 El, I think the high price of minocin in the US is so that people will get discouraged or too broke to buy it and go on the big pharma drugs. After all they do not want us to get well as then the cash cow they get will dry up. jmo carol_DM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2010 Report Share Posted October 2, 2010 Lindsey, You have one of the best AP docs in the country. He has done question and answer sessions on the chat forum at www.rheumaticsupport.net and there are a few ladies at that site who have him as their doctor. Patience and you will get to the light at the end of the tunnel. God Bless, Carol_DM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2010 Report Share Posted October 3, 2010 Hi Carol, I totally agree with you. I just don't like that the government isn't as diligent with big pharma as they should be. They go after and destroy small companies that are actually helping people and let big pharma run wild. Every time they approve a drug and then recall it I cheer because it brings attention to the fact that the PROCESS IS BROKEN! If I could find out the cost of Minocin in the 70s I would write my Congressional reps and ask them why the price has sky rocketed. In this time of trying to control the high cost of medicine/health care, why is this gouging being allowed. Maybe a little nosing around by Congress will bring at least the cost of this med back into a normal range. Rebel-want-to-be, El _____ From: rheumatic [mailto:rheumatic ] On Behalf Of Bob & Carol Zarn Sent: Sunday, October 03, 2010 1:33 AM rheumatic Subject: rheumatic Re: Vitamin D Deficiency El, I think the high price of minocin in the US is so that people will get discouraged or too broke to buy it and go on the big pharma drugs. After all they do not want us to get well as then the cash cow they get will dry up. jmo carol_DM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2010 Report Share Posted October 22, 2010 Lindsey, I keep reading your email and how fortunate to have all of you in this group. I feel your caring, and your struggling, and hold us all in my heart. Now you are starting this " I AM IN REMISSION " journey! Keep us all posted and any concerns, and WINS! I feel like the miners in the cave (now thank God out) in Chilie: It is only a WIN when we all get out! Blessings, Sally rheumatic Re: Vitamin D Deficiency > rheumatic <rheumatic%40> <rheumatic% 40> <rheumatic% 40> <rheumatic% 40> > Date: Friday, October 1, 2010, 3:40 PM > > > > there are many people with RA on the MP protocol. some with RA have > done very well on it - better than they did on ap and the nice thing > about is far lower doses of abx are used on MP. it works for some with > RA and not for others. we have to find what works for us but it is an > option for some to consider. > > monique > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 For those of us new to the group and new to RA and the therapies, the abbreviations you experienced folks use are Greek to me. May be someone needs to write a translator for us new folks? Thanks. EL You don't stop laughing because you grow old, You grow old because you stop laughing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2010 Report Share Posted October 23, 2010 Here are some abreviation that Dolores had put out not to long ago.If you need more let me know and I will help out. Eva  > > PCP- Primary Care Physician > ANA---Anti nuclear Antibiodies > MWF-----Monday - Wednesday - Friday > R/A---Rheumatoid Arthritis > A/P--Antibiotic Protocol > MP--Marshall Protocol > SD---Scleroderma > AS--Ankylosis Spondelytis > RF---Rheumatoid Factor From: LNWILD@... <LNWILD@...> Subject: rheumatic Re: Vitamin D Deficiency rheumatic Date: Saturday, October 23, 2010, 1:34 PM  For those of us new to the group and new to RA and the therapies, the abbreviations you experienced folks use are Greek to me. May be someone needs to write a translator for us new folks? Thanks. EL You don't stop laughing because you grow old, You grow old because you stop laughing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2010 Report Share Posted October 31, 2010 It is so hard to figure it all out. Doesn't the Marshall Protocol think one should avoid Vitamin D? I was talking to a holistic doctor that wanted me to go this route but I didn't like they way you had to stay out of sunlight, wear sunglasses at all times when outdoors and everything else they encourage one to do to avoid Vitamin D. Sue ---- " Uté " <nowyoga@...> wrote: > My naturopath said that there is a correlation between low Vit D and > inflammation. It takes 8000IU daily for my vit D levels to stay in a > good range. I certainly have not gotten worse for supplementing. I'm > doing pretty good these days but I'm careful to quickly attribute > changes, either way, to this or that supplement. Rheumatic diseases have > a tendency to wax an wane, so it is tricky, though not impossible. I > once tried higher doses of Vit C. At 8gram per day my pain levels came > down 80%. I thought I found the holy grail! A few weeks later pain > levels came back up and tweaking Vit C doses didn't affect one way of > the other. Go figure. > Take care, > Ute > > > Quote Link to comment Share on other sites More sharing options...
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