Guest guest Posted July 7, 2002 Report Share Posted July 7, 2002 interesting. i did that search just to see. some say its probably ok in normal doses but has not been tested!!! who would take that risk with a baby. some say no. sheesh. sltldab1@... wrote: >Subject: Ibuprofen >Click on URL. Also you can go to http://www.google.com type in ibuprofen, >and then ANY condition that you wish after it. Such as ibuprofen >breastfeeding, or ibuprofen pregnant, and so on. I wonder how asprin >breastfeeding would come out on a search also? ltldab1@ juno.com > >http://www.nursespdr.com/members/database/ndrhtml/ibuprofen.html > > >======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 The food helps comfort the stomach and helps with the absorbtion of the Ibuprofin. Long term use can cause GI Bleeds and even kidney problems. Not a Dr/Pharmacist--Char Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Dear Char and Pharmacytechgirl, Basically the mucosal lining is thinned out by ibuprofen. This causes stomach acid to eat through the lining which is the start of a gastric ulcer. An ulcer causes gastrointestinal bleeding which can lead to death. Food will help absorb the ACID, NOT the ibuprofen. Further if the food absorbed the ibuprofen, then there would be a reduced therapeutic effect of the drug (ibuprofen). Absorption of the ibuprofen is dependent upon the size and medium that it breaksdown into. The villi and microvilli can only accept (absorb) a particle size of approximately less than 50 micron. Food does not allow for better absorption of ibuprofen. It would be absorbed with or with out food. The reason Food is given with ibuprofen is to help absorb or utilize the acid, so that it will not lay on the flesh of the stomach. Simply put ibuprofen causes both a decrease in swelling/inflammation and an increase in the penetration the lining by acid, which leads to ulcers (GI upset or GI bleeding). The above is a more layman's approach to the understanding, what follows is more technical. 1)We need to begin with what condition Ibuprofin is used for. Ibuprofin is used for inflammation, usually due to injury. 2)The process of Inflammation is that it causes arachidonic acid to be made which causes I and II to be made (cyclooxygenase) which leads to pain, vasoconstriction 3) I and II leads to the manufacturing of prostaglandins, hormones which I will call PG I and PG II. 4) PGII leads to edema, redness, pain, warmth etc. 5) This leades to more inflammation. 6) More inflammed areas affect the nerves which inervate and get more injury from the inflammation itself. If inflammation is not stopped it becomes a disease in itself. 7) The cycle will continue, inflammation causes more arachidonic acid > I andII >> pain/VC>>>PGI and II>>>>edema,redness,warmth>>>>>more inflammation>>>>>more injury and/or nerve damage >>>arachidonic acid cycle continues...... I causes Prostaglandin I to be made. Prostaglandin I causes lining of the stomach to be thickened (or the viscosity increased.) A thick mucosal lining helps to prevent acid longer and more effectively. This is a good thing. II causes Prostaglandin II to be made. Prostaglandin II increases inflamation. This is a bad thing. Ibuprofen inhibits or blocks BOTH I and II. Now let us back up a bit. If Ibuprofen blocks or inhibits II then no PG II, which means NO swelling and NO inflammation. And that means no more arachidonic acid, no cycle. . It will stop the cycle of inflammation. That is a good thing Unfortunately inhibiting or blocking I blocks PGI, blocks the ability of the prostaglandin I to thicken the mucosal lining, but the lining will instead thin out or the viscosity of the stomach lining will become reduced. By thinning out this lining, the acid that is produced by digesting protein in the stomach will be able to 'eat' through the mucosal lining faster and easier (because it is a thinner lining). This will cause the acid to 'lay' upon the actual flesh of the stomach. This acid will eat its way through the flesh of the stomach and this is what is known as a gastric ulcer. This blocking of the I and PGI is a bad thing. So by taking Ibuprofen, blocking II/PGII one stops inflammation, at the risk of getting gastric ulcers, by also blocking I and PGI. About COX II Inhibitors, known as Celebrex and Viiox: They do NOT inhibit BOTH I and II . They only inhibit II. Therefore they only block PG II and there for reduce inflammation. Because I and PGI are not blocked or inhibited, they exist to do their job of keeping the viscosity or thickness of the mucosal lining to protect the stomach from acid, thus preventing ulcers, which prevents gastrointestinal bleeding. I hope that this helps you to know why food should be given with Ibuprofen. If you still have have any questions please feel free to let me know. Respectfully, Jeanetta Mastron CPhT BS Chemistry Pharmacy Program Director/Educator Founder/Owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2002 Report Share Posted October 18, 2002 Dear All, allow me to add and to clarify: I would like to add that while food will help absorb the acid, the food also will change the rate of absorption (slow it down) so it is possible that thisis what Char from Washington was refering to. Thanks Char, Jeanetta > Dear Char and Pharmacytechgirl, > > Basically the mucosal lining is thinned out by ibuprofen. This causes > stomach acid to eat through the lining which is the start of a > gastric ulcer. An ulcer causes gastrointestinal bleeding which can > lead to death. Food will help absorb the ACID, NOT the ibuprofen. > Further if the food absorbed the ibuprofen, then there would be a > reduced therapeutic effect of the drug (ibuprofen). Absorption of > the ibuprofen is dependent upon the size and medium that it > breaksdown into. The villi and microvilli can only accept (absorb) a > particle size of approximately less than 50 micron. Food does not > allow for better absorption of ibuprofen. It would be absorbed with > or with out food. The reason Food is given with ibuprofen is to help > absorb or utilize the acid, so that it will not lay on the flesh of > the stomach. Simply put ibuprofen causes both a decrease in > swelling/inflammation and an increase in the penetration the lining > by acid, which leads to ulcers (GI upset or GI bleeding). The above > is a more layman's approach to the understanding, what follows is > more technical. > > 1)We need to begin with what condition Ibuprofin is used for. > Ibuprofin is used for inflammation, usually due to injury. > 2)The process of Inflammation is that it causes arachidonic acid to > be made which causes I and II to be made (cyclooxygenase) > which leads to pain, vasoconstriction > 3) I and II leads to the manufacturing of prostaglandins, > hormones which I will call PG I and PG II. > 4) PGII leads to edema, redness, pain, warmth etc. > 5) This leades to more inflammation. > 6) More inflammed areas affect the nerves which inervate and get more > injury from the inflammation itself. If inflammation is not stopped > it becomes a disease in itself. > 7) The cycle will continue, inflammation causes more arachidonic acid > > I andII >> pain/VC>>>PGI and II>>>>edema,redness,warmth>>>>>more > inflammation>>>>>more injury and/or nerve damage >>>arachidonic acid > cycle continues...... > > I causes Prostaglandin I to be made. Prostaglandin I causes > lining of the stomach to be thickened (or the viscosity increased.) > A thick mucosal lining helps to prevent acid longer and more > effectively. This is a good thing. > II causes Prostaglandin II to be made. Prostaglandin II increases > inflamation. This is a bad thing. > > > Ibuprofen inhibits or blocks BOTH I and II. > Now let us back up a bit. If Ibuprofen blocks or inhibits II then > no PG II, which means NO swelling and NO inflammation. And that means > no more arachidonic acid, no cycle. . It will stop the cycle of > inflammation. That is a good thing > > Unfortunately inhibiting or blocking I blocks PGI, blocks the > ability of the prostaglandin I to thicken the mucosal lining, but the > lining will instead thin out or the viscosity of the stomach lining > will become reduced. By thinning out this lining, the acid that is > produced by digesting protein in the stomach will be able to 'eat' > through the mucosal lining faster and easier (because it is a thinner > lining). This will cause the acid to 'lay' upon the actual flesh of > the stomach. This acid will eat its way through the flesh of the > stomach and this is what is known as a gastric ulcer. This blocking > of the I and PGI is a bad thing. > > So by taking Ibuprofen, blocking II/PGII one stops inflammation, > at the risk of getting gastric ulcers, by also blocking I and PGI. > > > About COX II Inhibitors, known as Celebrex and Viiox: > > They do NOT inhibit BOTH I and II . They only inhibit II. > Therefore they only block PG II and there for reduce inflammation. > Because I and PGI are not blocked or inhibited, they exist to do > their job of keeping the viscosity or thickness of the mucosal lining > to protect the stomach from acid, thus preventing ulcers, which > prevents gastrointestinal bleeding. > > I hope that this helps you to know why food should be given with > Ibuprofen. If you still have have any questions please feel free to > let me know. > > Respectfully, > > Jeanetta Mastron CPhT BS Chemistry > Pharmacy Program Director/Educator > Founder/Owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 I don't know all the dangers, but too much ibuprofen can put a strain on the kidneys and digestive system. Personally, I've always avoided it because even when I didn't know much about the dangers of conventional drugs, it never had a beneficial effect and I'd always heard not to take too much. I treat muscle aches with LOTS of heat and massage, and rest. -Amy ibuprofen Guys what is the danger of Advil or other ibuprofen ? And what is a natural substitute? jen c Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 It's a drug. All drugs have side effects and risks. What are you wanting to suppress with ibuprofen? Homeopathy works nicely on just 'bout anything! Kay ibuprofen Guys what is the danger of Advil or other ibuprofen ? And what is a natural substitute? jen c Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 At 02:42 PM 5/16/2006 -0400, you wrote: >Guys what is the danger of Advil or other ibuprofen ? And what is a natural >substitute? > >jen c Those drugs are very toxic to the liver When you are ill your liver is working overtime to detox Many articles in the archives I will resend some The right remedy will relive pain. What specifically are you talking about? Sheri > -------------------------------------------------------- Sheri Nakken, R.N., MA, Hahnemannian Homeopath Vaccination Information & Choice Network, Nevada City CA & Wales UK $$ Donations to help in the work - accepted by Paypal account earthmysteriestours@... voicemail US 530-740-0561 (go to http://www.paypal.com) or by mail Vaccines - http://www.nccn.net/~wwithin/vaccine.htm Vaccine Dangers On-Line course - http://www.nccn.net/~wwithin/vaccineclass.htm Reality of the Diseases & Treatment - http://www.nccn.net/~wwithin/vaccineclass.htm Homeopathy On-Line course - http://www.nccn.net/~wwithin/homeo.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2007 Report Share Posted February 7, 2007 Hi Sara Sorry to hear Tom not well. They sure know when to time these things... is having another attack of bad bugs and yeast AGAIN so feeling guilty about leaving him BUT its all in our kids interests!! We use Nurofen for Children which has ibuprofen in it. Comes with syringe and v palitable. I know some use ibuprofen sachets from Sainsburys. Cant get them in our local one but you may be lucky? Good luck and see you soon! Helen x > Hello all > > There was a discussion on here recently about ibuprofen being good for our > kids. Tom's REALLY ill with a bad cough and cold (the day before the > conference!!!) and I wondered which brand people recommend as I feel I > should leave something for my mum to give him if need be. > > SARA > > > > Re: wow u guys u were brilliant on > meridian news!!!! > > > > Well done Mandi and Mel..absolutely fantastic.. > > Hopefully they will come back and film you next year when archie is > much better. > > You all need to watch Tina and on Friday. > That boy is going to recover. > > Joanne > > > > > GREAT STUFF, HAVN'T SEEN THE WHOLE FEATURE YET ONLY A TRAILER ON > LINE. > > > > THIS IS THE LINK HYPERLINK > " http://www.meridiantv.com/news/ " http://www.meridian-tv.com/news/ > > > > When it has been up loaded you have to click on tonights news on > the > > right hand side. > > > > The trailer is on lunchtime news, after the weather. > > > > I didn't find this it was DH, so I cant take any credit ! > > > > See you tommorow ( Can't wait now!) > > > > Lara x > > > > > > > -- > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.432 / Virus Database: 268.17.29/673 - Release Date: 06/02/2007 > 17:52 > > > > -- > No virus found in this outgoing message. > Checked by AVG Free Edition. > Version: 7.5.432 / Virus Database: 268.17.29/673 - Release Date: 06/02/2007 > 17:52 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2007 Report Share Posted February 7, 2007 Helen, thanks EVER so much for that, I really appreciate it. You know what I’ll be racing around doing tomorrow morning before leaving for Bournemouth. SARA x Re: wow u guys u were brilliant on > meridian news!!!! > > > > Well done Mandi and Mel..absolutely fantastic.. > > Hopefully they will come back and film you next year when archie is > much better. > > You all need to watch Tina and on Friday. > That boy is going to recover. > > Joanne > > > > > GREAT STUFF, HAVN'T SEEN THE WHOLE FEATURE YET ONLY A TRAILER ON > LINE. > > > > THIS IS THE LINK HYPERLINK > " http://www.meridiantv.com/news/ " http://www.meridian-tv.com/news/ > > > > When it has been up loaded you have to click on tonights news on > the > > right hand side. > > > > The trailer is on lunchtime news, after the weather. > > > > I didn't find this it was DH, so I cant take any credit ! > > > > See you tommorow ( Can't wait now!) > > > > Lara x > > > > > > > -- > No virus found in this incoming message. > Checked by AVG Free Edition. > Version: 7.5.432 / Virus Database: 268.17.29/673 - Release Date: 06/02/2007 > 17:52 > > > > -- > No virus found in this outgoing message. > Checked by AVG Free Edition. > Version: 7.5.432 / Virus Database: 268.17.29/673 - Release Date: 06/02/2007 > 17:52 > -- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.432 / Virus Database: 268.17.29/673 - Release Date: 06/02/2007 17:52 -- No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.432 / Virus Database: 268.17.29/673 - Release Date: 06/02/2007 17:52 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2007 Report Share Posted February 23, 2007 Cheri: I think there was some discussion on this topic a few months ago. You could try searching the archives on the list for this. Hannah is 10 and she takes the adult strength and we cut them in half so they are not so big. She can take up to 300mg at a time and has no problem swallowing pills. Beth (Hannah, 10, unspecified arthritis; asthma; gerd; migraines) Sending prayers & happy thoughts, Beth :-) Ibuprofen Where does everyone buy the Ibuprofen? Is there somewhere to buy it in bulk? I've been buying the 8oz liquid bottles and they last about 9 or 10 days. Do you think it's cheaper to buy the chewables for children? Thanks, Cheri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2007 Report Share Posted February 24, 2007 Hi Cheri, I do not buy Ibuprofen as most in my house is allergic to it. But I do know Walmart has the program for $4.00 per prescription. The choice of liquid to chewables depends on if the child likes one better than the other. Or you could switch it around. Robbin <BR><BR><BR>**************************************<BR> AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2007 Report Share Posted February 24, 2007 Cheri - I don't know anything about the cost or dosage - as our daughter takes naproxen. She gets a months supply and our insurance pays all but $15.00. Since both drugs are in the same family - did your doctor advise you about the possibility of stomach upset. It really helps to give the tummy food or milk when giving the anti-inflammatory. Our daughter ended up taking Zantac and then when that didn't work we had to go Prevacid. We also started watching the sodium intake that our daughter takes so as to avoid complications with the kidneys and the anti-inflammatory. With methotrexate and the anti-inflammatory it is so important to gets fluids through out the day. Our daughterr is allowed to have a bottle of water with her at school (specified in her 504 plan). We really don't want her using water fountains at school - while she is taking the methotrexate. A lot to learn but your life will get back to normal - hope the meds help really soon and she is painfree. Sandi Ken Hunter (Systemic 8 years old) <BR><BR><BR>**************************************<BR> AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2007 Report Share Posted March 10, 2007 Or my other thought as " Dr. Mom " is to have her up her steroids for a few days. Hmmm, maybe I will call her and tell her to do that. As you can tell, I play " doctor " much of the time. Our doc is used to it. e bound for london <boundforlondon@...> wrote: Okay, I know my daughter is only supposed to take Tylenol, not Ibuprofen because she takes MTX and Celebrex-along with all the others. But does anyone know if it would be truly harmful to take for 3 days? She is struggling these past few days-yesterday it was the wrist and elbow and today the neck. She has used arm packs and tried massage etc (they are stiff etc). She has a symphony concert Monday night and has been unable to play the past few days and really wants to play on Monday-it could be her last concert. She is at 4 weeks out from Remicade and this is when things raise their ugly head all the time. So, I told her to continue with the heat and massage and to take the Ibuprofen until after the concert. What do you think? Am I putting her at risk for complications? The mom in me that wants her to have a successful concert told her to do this, but the mom in me that worries is scared about what may happen. She deserves to be able to have an awesome concert, to be able to play her instrument, she has worked hard all quarter to have this concert but I also don't want her to have complications. So, help! (I know we aren't doctors but I also know that we all have learned from the trenches) e, mom to " joe " 20 poly + lupus (who really wants to play in her concert but can't play right now because of this stinking disease!!!!) --------------------------------- Sucker-punch spam with award-winning protection. Try the free Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2007 Report Share Posted March 12, 2007 Hi, e. That is a tough one. What did you end up deciding on - the ibuprofen or the extra steroids? I think I might have upped the steroids or Celebrex myself, just for the couple of days. How much steroids is she on? The Celebrex should do the same as the ibuprofen so I might have gone with that. I know what you mean about playing dr sometimes, we have read so much about all of this that we do know quite a bit about some things. I hope she is able to play tonight, Michele ( 19, spondy) ________________________________ From: [mailto: ] On Behalf Of bound for london Sent: Saturday, March 10, 2007 10:24 PM Subject: Ibuprofen Okay, I know my daughter is only supposed to take Tylenol, not Ibuprofen because she takes MTX and Celebrex-along with all the others. But does anyone know if it would be truly harmful to take for 3 days? She is struggling these past few days-yesterday it was the wrist and elbow and today the neck. She has used arm packs and tried massage etc (they are stiff etc). She has a symphony concert Monday night and has been unable to play the past few days and really wants to play on Monday-it could be her last concert. She is at 4 weeks out from Remicade and this is when things raise their ugly head all the time. So, I told her to continue with the heat and massage and to take the Ibuprofen until after the concert. What do you think? Am I putting her at risk for complications? The mom in me that wants her to have a successful concert told her to do this, but the mom in me that worries is scared about what may happen. She deserves to be able to have an awesome concert, to be able to play her instrument, she has worked hard all quarter to have this concert but I also don't want her to have complications. So, help! (I know we aren't doctors but I also know that we all have learned from the trenches) e, mom to " joe " 20 poly + lupus (who really wants to play in her concert but can't play right now because of this stinking disease!!!!) --------------------------------- Sucker-punch spam with award-winning protection. Try the free Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2007 Report Share Posted March 13, 2007 , She decided to do the Ibuprofen, continue with heat and increase her sleep (take a few naps). It worked. She has had such a hard time getting off the steroids that she decided against that one (and she had already taken the Ibuprofen when I called her back). She is down to 5mg of Prednisone and it took so long to get her there she didn't want to go back up if there was another way to help. She takes Celebrex 200mg twice a day which I think is the top dosage so that is why I thought of the Ibuprofen. She really could use the Remicade every 4 weeks but can't do it with her current schedule and next quarter will be no better. She has an appointment in a week and we are going to talk with her about something else she may be able to do for those 2-3 weeks when the arthritis regularly gets worse with this dosing schedule. The good news is that she played. It still was not as easy as it should be but the Ibuprofen gave her enough relief to move enough to be able to play. !! It was a wonderful concert--beautiful selections and beautiful musicians. All in all, a great night for those who were able to listen and watch. It is hard to know what to do sometimes, especially when you just want to get them over a hump, to let them do this certain thing. I'm just not certain if there is anything else they can really add. She is currently taking MTX, Celebrex, Remicade, Prednisone, Tylenol pretty regularly, Ultram plus a slew of other things for the side effects etc. Plaquenil did not help and actually made her worse. So many others did nothing or the side effects were awful. e, mom to joe 20 poly + lupus (who got to play in her concert last night--wahhoooo!!!) " Tepper, Michele " <MTepper@...> wrote: Hi, e. That is a tough one. What did you end up deciding on - the ibuprofen or the extra steroids? I think I might have upped the steroids or Celebrex myself, just for the couple of days. How much steroids is she on? The Celebrex should do the same as the ibuprofen so I might have gone with that. I know what you mean about playing dr sometimes, we have read so much about all of this that we do know quite a bit about some things. I hope she is able to play tonight, Michele ( 19, spondy) ________________________________ From: [mailto: ] On Behalf Of bound for london Sent: Saturday, March 10, 2007 10:24 PM Subject: Ibuprofen Okay, I know my daughter is only supposed to take Tylenol, not Ibuprofen because she takes MTX and Celebrex-along with all the others. But does anyone know if it would be truly harmful to take for 3 days? She is struggling these past few days-yesterday it was the wrist and elbow and today the neck. She has used arm packs and tried massage etc (they are stiff etc). She has a symphony concert Monday night and has been unable to play the past few days and really wants to play on Monday-it could be her last concert. She is at 4 weeks out from Remicade and this is when things raise their ugly head all the time. So, I told her to continue with the heat and massage and to take the Ibuprofen until after the concert. What do you think? Am I putting her at risk for complications? The mom in me that wants her to have a successful concert told her to do this, but the mom in me that worries is scared about what may happen. She deserves to be able to have an awesome concert, to be able to play her instrument, she has worked hard all quarter to have this concert but I also don't want her to have complications. So, help! (I know we aren't doctors but I also know that we all have learned from the trenches) e, mom to " joe " 20 poly + lupus (who really wants to play in her concert but can't play right now because of this stinking disease!!!!) --------------------------------- Sucker-punch spam with award-winning protection. Try the free Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2007 Report Share Posted March 14, 2007 Just curious, but my daughter takes MTX and Ibuprofen, and the doctor seems to be fine with that. Is the disagreement between medications in the Ibuprofen and the Celebrex, maybe? Or has anyone else been told not to use Ibuprofen with MTX? (Isabel, 3, pauci JRA) > Hi, e. That is a tough one. What did you end up deciding on - the > ibuprofen or the extra steroids? I think I might have upped the steroids > or Celebrex myself, just for the couple of days. How much steroids is > she on? The Celebrex should do the same as the ibuprofen so I might have > gone with that. I know what you mean about playing dr sometimes, we have > read so much about all of this that we do know quite a bit about some > things. I hope she is able to play tonight, Michele ( 19, spondy) > > ________________________________ > > From: [mailto: ] On > Behalf Of bound for london > Sent: Saturday, March 10, 2007 10:24 PM > > Subject: Ibuprofen > > Okay, I know my daughter is only supposed to take Tylenol, not Ibuprofen > because she takes MTX and Celebrex-along with all the others. But does > anyone know if it would be truly harmful to take for 3 days? She is > struggling these past few days-yesterday it was the wrist and elbow and > today the neck. She has used arm packs and tried massage etc (they are > stiff etc). She has a symphony concert Monday night and has been unable > to play the past few days and really wants to play on Monday-it could be > her last concert. She is at 4 weeks out from Remicade and this is when > things raise their ugly head all the time. So, I told her to continue > with the heat and massage and to take the Ibuprofen until after the > concert. What do you think? Am I putting her at risk for complications? > The mom in me that wants her to have a successful concert told her to do > this, but the mom in me that worries is scared about what may happen. > She deserves to be able to have an awesome concert, to be able > to play her instrument, she has worked hard all quarter to have this > concert but I also don't want her to have complications. So, help! (I > know we aren't doctors but I also know that we all have learned from the > trenches) > > e, mom to " joe " 20 poly + lupus (who really wants to play in her > concert but can't play right now because of this stinking disease!!!!) > > --------------------------------- > Sucker-punch spam with award-winning protection. > Try the free Beta. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2007 Report Share Posted March 14, 2007 The Ibuprofen and the MTX are fine. I probably misstated that somewhere. Sorry for the confusion. Celebrex is a COX-2 type of NSAID while Ibuprofen is a non-specific NSAID. She is at the max doseage for the Celebrex so adding Ibuprofen is not a good idea with the risk of increased liver enzymes, stomach bleed etc. So, the MTX is one that has the potential for liver problems, the Celebrex does too, adding the third is not a wise idea. So, yes your daughter is fine with MTX and Ibruprofen, just not adding another one. That is why they tell you to take Tylenol for fever, aches etc not adding another NSAID. Hope that makes sense. e, mom to " joe " 20 poly + lupus laurafinlinson <finnyla@...> wrote: Just curious, but my daughter takes MTX and Ibuprofen, and the doctor seems to be fine with that. Is the disagreement between medications in the Ibuprofen and the Celebrex, maybe? Or has anyone else been told not to use Ibuprofen with MTX? (Isabel, 3, pauci JRA) > Hi, e. That is a tough one. What did you end up deciding on - the > ibuprofen or the extra steroids? I think I might have upped the steroids > or Celebrex myself, just for the couple of days. How much steroids is > she on? The Celebrex should do the same as the ibuprofen so I might have > gone with that. I know what you mean about playing dr sometimes, we have > read so much about all of this that we do know quite a bit about some > things. I hope she is able to play tonight, Michele ( 19, spondy) > > ________________________________ > > From: [mailto: ] On > Behalf Of bound for london > Sent: Saturday, March 10, 2007 10:24 PM > > Subject: Ibuprofen > > Okay, I know my daughter is only supposed to take Tylenol, not Ibuprofen > because she takes MTX and Celebrex-along with all the others. But does > anyone know if it would be truly harmful to take for 3 days? She is > struggling these past few days-yesterday it was the wrist and elbow and > today the neck. She has used arm packs and tried massage etc (they are > stiff etc). She has a symphony concert Monday night and has been unable > to play the past few days and really wants to play on Monday-it could be > her last concert. She is at 4 weeks out from Remicade and this is when > things raise their ugly head all the time. So, I told her to continue > with the heat and massage and to take the Ibuprofen until after the > concert. What do you think? Am I putting her at risk for complications? > The mom in me that wants her to have a successful concert told her to do > this, but the mom in me that worries is scared about what may happen. > She deserves to be able to have an awesome concert, to be able > to play her instrument, she has worked hard all quarter to have this > concert but I also don't want her to have complications. So, help! (I > know we aren't doctors but I also know that we all have learned from the > trenches) > > e, mom to " joe " 20 poly + lupus (who really wants to play in her > concert but can't play right now because of this stinking disease!!!!) > > --------------------------------- > Sucker-punch spam with award-winning protection. > Try the free Beta. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2007 Report Share Posted March 15, 2007 So glad she was able to play!! That is really wonderful. I can understand her not wanting to go up on the prednisone. FYI - was on 800 mgs of Celebrex a day before he went on the MTX. He was about 14 and weighed around 165 pounds. I am not sure of joe's size, perhaps she is smaller than that and taking more Celebrex might not be possible. Luckily with the mtx, he was able to gradually go off of the Celebrex at the time. Michele ( 19, spondy) ________________________________ From: [mailto: ] On Behalf Of bound for london Sent: Tuesday, March 13, 2007 2:36 PM Subject: RE: Ibuprofen , She decided to do the Ibuprofen, continue with heat and increase her sleep (take a few naps). It worked. She has had such a hard time getting off the steroids that she decided against that one (and she had already taken the Ibuprofen when I called her back). She is down to 5mg of Prednisone and it took so long to get her there she didn't want to go back up if there was another way to help. She takes Celebrex 200mg twice a day which I think is the top dosage so that is why I thought of the Ibuprofen. She really could use the Remicade every 4 weeks but can't do it with her current schedule and next quarter will be no better. She has an appointment in a week and we are going to talk with her about something else she may be able to do for those 2-3 weeks when the arthritis regularly gets worse with this dosing schedule. The good news is that she played. It still was not as easy as it should be but the Ibuprofen gave her enough relief to move enough to be able to play. !! It was a wonderful concert--beautiful selections and beautiful musicians. All in all, a great night for those who were able to listen and watch. It is hard to know what to do sometimes, especially when you just want to get them over a hump, to let them do this certain thing. I'm just not certain if there is anything else they can really add. She is currently taking MTX, Celebrex, Remicade, Prednisone, Tylenol pretty regularly, Ultram plus a slew of other things for the side effects etc. Plaquenil did not help and actually made her worse. So many others did nothing or the side effects were awful. e, mom to joe 20 poly + lupus (who got to play in her concert last night--wahhoooo!!!) " Tepper, Michele " <MTepper@... <mailto:MTepper%40ftportfolios.com> > wrote: Hi, e. That is a tough one. What did you end up deciding on - the ibuprofen or the extra steroids? I think I might have upped the steroids or Celebrex myself, just for the couple of days. How much steroids is she on? The Celebrex should do the same as the ibuprofen so I might have gone with that. I know what you mean about playing dr sometimes, we have read so much about all of this that we do know quite a bit about some things. I hope she is able to play tonight, Michele ( 19, spondy) ________________________________ From: <mailto: %40> [mailto: <mailto: %40> ] On Behalf Of bound for london Sent: Saturday, March 10, 2007 10:24 PM <mailto: %40> Subject: Ibuprofen Okay, I know my daughter is only supposed to take Tylenol, not Ibuprofen because she takes MTX and Celebrex-along with all the others. But does anyone know if it would be truly harmful to take for 3 days? She is struggling these past few days-yesterday it was the wrist and elbow and today the neck. She has used arm packs and tried massage etc (they are stiff etc). She has a symphony concert Monday night and has been unable to play the past few days and really wants to play on Monday-it could be her last concert. She is at 4 weeks out from Remicade and this is when things raise their ugly head all the time. So, I told her to continue with the heat and massage and to take the Ibuprofen until after the concert. What do you think? Am I putting her at risk for complications? The mom in me that wants her to have a successful concert told her to do this, but the mom in me that worries is scared about what may happen. She deserves to be able to have an awesome concert, to be able to play her instrument, she has worked hard all quarter to have this concert but I also don't want her to have complications. So, help! (I know we aren't doctors but I also know that we all have learned from the trenches) e, mom to " joe " 20 poly + lupus (who really wants to play in her concert but can't play right now because of this stinking disease!!!!) --------------------------------- Sucker-punch spam with award-winning protection. Try the free Beta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 We just got home from the rheumy and I asked her what to do in the we event of the need something to get her over the hump when things just aren't right like we had the issue with a couple weeks ago. She told us not to increase the Celebrex because 200mg twice daily is the maximum dose. To continue with the Ultram and the Tylenol as she has been doing but to up her Prednisone for a few days to get her through. She has a hard time once Remicade hits 4-5 weeks (currently at 6 wk cycle because of school/travel). So, she wants her to up the pred until infusion and then back down. We are switching to a 5 wk cycle to see if that will help. She doesn't want to increase the amount of Remicade because it can put her in a Lupus flare. So, we will try that. If this does not work we will add Sulfasalazine to the mix since Plaquenil caused a funky rash. But no on the Ibuprofen (which I knew but didn't know what else to do)--puts her at too high of risk for complications. Just thought I would let you know our rheumys opinion. Thanks for the support. And hope everyone is having a wonderful pain free day! e, mom to joe 20 Poly + lupus --------------------------------- We won't tell. Get more on shows you hate to love (and love to hate): TV's Guilty Pleasures list. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 --kristine, i dont know if this is even possible, but could you go to remicade every 4 weeks?? It really has made a huge difference with . Even leaving it 5 weeks like i did the time before last was not good for him. We have to stick to every 4 weeks. How much remicade is she getting?? Are you doing MTX with the remicade too?? Sorry about the prednisone uppage ( hugs Helen and (9,systemic) - In , bound for london <boundforlondon@...> wrote: > > We just got home from the rheumy and I asked her what to do in the we event of the need something to get her over the hump when things just aren't right like we had the issue with a couple weeks ago. She told us not to increase the Celebrex because 200mg twice daily is the maximum dose. To continue with the Ultram and the Tylenol as she has been doing but to up her Prednisone for a few days to get her through. She has a hard time once Remicade hits 4-5 weeks (currently at 6 wk cycle because of school/travel). So, she wants her to up the pred until infusion and then back down. We are switching to a 5 wk cycle to see if that will help. She doesn't want to increase the amount of Remicade because it can put her in a Lupus flare. So, we will try that. If this does not work we will add Sulfasalazine to the mix since Plaquenil caused a funky rash. But no on the Ibuprofen (which I knew but didn't know what else to do)--puts her at too high of risk for complications. Just thought I > would let you know our rheumys opinion. Thanks for the support. And hope everyone is having a wonderful pain free day! > > e, mom to joe 20 Poly + lupus > > > --------------------------------- > We won't tell. Get more on shows you hate to love > (and love to hate): TV's Guilty Pleasures list. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2007 Report Share Posted March 31, 2007 Helen, 4 weeks would be just too hard. She is up at school which is 2.5 to 3.5 hours for me to drive to pick her up. Then I drive her back down to Seattle, which is at least 2 hours depending on time of day/traffic to hospital. She has her infusion over several hours and then I drive the 2+ hours to take her to school. Then I drive home, another 2.5+ hours. We have to work around her school schedule, so we are switching from Fridays to Thursdays this quarter. And then she generally is wiped out and sleeps for a day or more but this quarter she has to go to class the next day from 8-4, so I will be saying lots of prayers for her to have the energy to go to class. We can't move it closer to her because of insurance and nowhere to have it done at. I can't remember right now what her dosage is, but because of her Lupus with the JRA they don't want to increase the amount of medicine. I need to do some research there. She has never been off the Pred since she started in 2001 so for her the pred is a regular part of life. She will just increase to daily and then drop back to every other day after infusion. We're hoping it works. Of course, she looked good today, felt good in clinic --been home relaxing all week--then by about dinner her pain was horrid and she used every resource she had so that she could go out on a date. (the weather turned cold and wet and the more it changed the more she hurt). Oh and yes she does max dose MTX too. e hburger64 <hburger64@...> wrote: --kristine, i dont know if this is even possible, but could you go to remicade every 4 weeks?? It really has made a huge difference with . Even leaving it 5 weeks like i did the time before last was not good for him. We have to stick to every 4 weeks. How much remicade is she getting?? Are you doing MTX with the remicade too?? Sorry about the prednisone uppage ( hugs Helen and (9,systemic) - In , bound for london <boundforlondon@...> wrote: > > We just got home from the rheumy and I asked her what to do in the we event of the need something to get her over the hump when things just aren't right like we had the issue with a couple weeks ago. She told us not to increase the Celebrex because 200mg twice daily is the maximum dose. To continue with the Ultram and the Tylenol as she has been doing but to up her Prednisone for a few days to get her through. She has a hard time once Remicade hits 4-5 weeks (currently at 6 wk cycle because of school/travel). So, she wants her to up the pred until infusion and then back down. We are switching to a 5 wk cycle to see if that will help. She doesn't want to increase the amount of Remicade because it can put her in a Lupus flare. So, we will try that. If this does not work we will add Sulfasalazine to the mix since Plaquenil caused a funky rash. But no on the Ibuprofen (which I knew but didn't know what else to do)--puts her at too high of risk for complications. Just thought I > would let you know our rheumys opinion. Thanks for the support. And hope everyone is having a wonderful pain free day! > > e, mom to joe 20 Poly + lupus > > > --------------------------------- > We won't tell. Get more on shows you hate to love > (and love to hate): TV's Guilty Pleasures list. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2007 Report Share Posted March 31, 2007 --e, Im sorry that its so hard to get to joes infusions. That makes for such a LONG for you. Its so hard trying to get the right combo that also fits in with everyday life too. Any chance of doing the infusions on a saturday?? Nick has had a few on a saturday at the Childrens Hosptial here, the only problem was that it was taking 2 hours plus for the remicade to come up from the pharmacy, so we switched back to fridays. Good luck finding a senerio that works for you all.... hugs Helen and P.s Ill be interested to know why higher doses of remicade could flare her lupus. let us know what you find out. - In , bound for london <boundforlondon@...> wrote: > > Helen, > > 4 weeks would be just too hard. She is up at school which is 2.5 to 3.5 hours for me to drive to pick her up. Then I drive her back down to Seattle, which is at least 2 hours depending on time of day/traffic to hospital. She has her infusion over several hours and then I drive the 2+ hours to take her to school. Then I drive home, another 2.5+ hours. We have to work around her school schedule, so we are switching from Fridays to Thursdays this quarter. And then she generally is wiped out and sleeps for a day or more but this quarter she has to go to class the next day from 8-4, so I will be saying lots of prayers for her to have the energy to go to class. We can't move it closer to her because of insurance and nowhere to have it done at. > > I can't remember right now what her dosage is, but because of her Lupus with the JRA they don't want to increase the amount of medicine. I need to do some research there. She has never been off the Pred since she started in 2001 so for her the pred is a regular part of life. She will just increase to daily and then drop back to every other day after infusion. We're hoping it works. Of course, she looked good today, felt good in clinic --been home relaxing all week-- then by about dinner her pain was horrid and she used every resource she had so that she could go out on a date. (the weather turned cold and wet and the more it changed the more she hurt). Oh and yes she does max dose MTX too. > > e > > hburger64 <hburger64@...> wrote: > --kristine, > > i dont know if this is even possible, but could you go to remicade > every 4 weeks?? It really has made a huge difference with . > Even leaving it 5 weeks like i did the time before last was not good > for him. We have to stick to every 4 weeks. > > How much remicade is she getting?? Are you doing MTX with the > remicade too?? Sorry about the prednisone uppage ( > > hugs Helen and (9,systemic) > > - In , bound for london <boundforlondon@> > wrote: > > > > We just got home from the rheumy and I asked her what to do in the > we event of the need something to get her over the hump when things > just aren't right like we had the issue with a couple weeks ago. She > told us not to increase the Celebrex because 200mg twice daily is the > maximum dose. To continue with the Ultram and the Tylenol as she has > been doing but to up her Prednisone for a few days to get her > through. She has a hard time once Remicade hits 4-5 weeks (currently > at 6 wk cycle because of school/travel). So, she wants her to up the > pred until infusion and then back down. We are switching to a 5 wk > cycle to see if that will help. She doesn't want to increase the > amount of Remicade because it can put her in a Lupus flare. So, we > will try that. If this does not work we will add Sulfasalazine to the > mix since Plaquenil caused a funky rash. But no on the Ibuprofen > (which I knew but didn't know what else to do)--puts her at too high > of risk for complications. Just thought I > > would let you know our rheumys opinion. Thanks for the support. > And hope everyone is having a wonderful pain free day! > > > > e, mom to joe 20 Poly + lupus > > > > > > --------------------------------- > > We won't tell. Get more on shows you hate to love > > (and love to hate): TV's Guilty Pleasures list. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2007 Report Share Posted April 3, 2007 e - Have you looked into getting a home infusion service give Jo the Remicade. We are looking into doing that for Caroline, although I don't know if her rheumy will agree... It's an option if you can find one... Is she still on Cyclosporine? Caroline is on the max dose of Cyclosporine and we did see a slight improvement when we went up to the max. Caroline is also on 300mg of Remicade every four weeks and I see a major difference. Alia and Caroline, age 5, poly and uveitis Re: Ibuprofen Helen, 4 weeks would be just too hard. She is up at school which is 2.5 to 3.5 hours for me to drive to pick her up. Then I drive her back down to Seattle, which is at least 2 hours depending on time of day/traffic to hospital. She has her infusion over several hours and then I drive the 2+ hours to take her to school. Then I drive home, another 2.5+ hours. We have to work around her school schedule, so we are switching from Fridays to Thursdays this quarter. And then she generally is wiped out and sleeps for a day or more but this quarter she has to go to class the next day from 8-4, so I will be saying lots of prayers for her to have the energy to go to class. We can't move it closer to her because of insurance and nowhere to have it done at. I can't remember right now what her dosage is, but because of her Lupus with the JRA they don't want to increase the amount of medicine. I need to do some research there. She has never been off the Pred since she started in 2001 so for her the pred is a regular part of life. She will just increase to daily and then drop back to every other day after infusion. We're hoping it works. Of course, she looked good today, felt good in clinic --been home relaxing all week--then by about dinner her pain was horrid and she used every resource she had so that she could go out on a date. (the weather turned cold and wet and the more it changed the more she hurt). Oh and yes she does max dose MTX too. e hburger64 <hburger64@...> wrote: --kristine, i dont know if this is even possible, but could you go to remicade every 4 weeks?? It really has made a huge difference with . Even leaving it 5 weeks like i did the time before last was not good for him. We have to stick to every 4 weeks. How much remicade is she getting?? Are you doing MTX with the remicade too?? Sorry about the prednisone uppage ( hugs Helen and (9,systemic) - In , bound for london <boundforlondon@...> wrote: > > We just got home from the rheumy and I asked her what to do in the we event of the need something to get her over the hump when things just aren't right like we had the issue with a couple weeks ago. She told us not to increase the Celebrex because 200mg twice daily is the maximum dose. To continue with the Ultram and the Tylenol as she has been doing but to up her Prednisone for a few days to get her through. She has a hard time once Remicade hits 4-5 weeks (currently at 6 wk cycle because of school/travel). So, she wants her to up the pred until infusion and then back down. We are switching to a 5 wk cycle to see if that will help. She doesn't want to increase the amount of Remicade because it can put her in a Lupus flare. So, we will try that. If this does not work we will add Sulfasalazine to the mix since Plaquenil caused a funky rash. But no on the Ibuprofen (which I knew but didn't know what else to do)--puts her at too high of risk for complications. Just thought I > would let you know our rheumys opinion. Thanks for the support. And hope everyone is having a wonderful pain free day! > > e, mom to joe 20 Poly + lupus > > > --------------------------------- > We won't tell. Get more on shows you hate to love > (and love to hate): TV's Guilty Pleasures list. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2007 Report Share Posted April 4, 2007 Alia, That is a good idea but I am sure they won't do that. I asked about getting her infusion on a Saturday but was told that they don't do them on Saturday because if she has a reaction then there will be nobody around to help since the docs aren't in clinic on Saturday. She does not take Cyclosporine. I don't think she has tried that one. Glad to hear Caroline is doing better. They may add sulsasalazine to her regimen in 10 weeks. It depends on how she does with the 5 week cycle. e, mom to " joe " 20 poly + lupus aliaalan@... wrote: e - Have you looked into getting a home infusion service give Jo the Remicade. We are looking into doing that for Caroline, although I don't know if her rheumy will agree... It's an option if you can find one... Is she still on Cyclosporine? Caroline is on the max dose of Cyclosporine and we did see a slight improvement when we went up to the max. Caroline is also on 300mg of Remicade every four weeks and I see a major difference. Alia and Caroline, age 5, poly and uveitis Re: Ibuprofen Helen, 4 weeks would be just too hard. She is up at school which is 2.5 to 3.5 hours for me to drive to pick her up. Then I drive her back down to Seattle, which is at least 2 hours depending on time of day/traffic to hospital. She has her infusion over several hours and then I drive the 2+ hours to take her to school. Then I drive home, another 2.5+ hours. We have to work around her school schedule, so we are switching from Fridays to Thursdays this quarter. And then she generally is wiped out and sleeps for a day or more but this quarter she has to go to class the next day from 8-4, so I will be saying lots of prayers for her to have the energy to go to class. We can't move it closer to her because of insurance and nowhere to have it done at. I can't remember right now what her dosage is, but because of her Lupus with the JRA they don't want to increase the amount of medicine. I need to do some research there. She has never been off the Pred since she started in 2001 so for her the pred is a regular part of life. She will just increase to daily and then drop back to every other day after infusion. We're hoping it works. Of course, she looked good today, felt good in clinic --been home relaxing all week--then by about dinner her pain was horrid and she used every resource she had so that she could go out on a date. (the weather turned cold and wet and the more it changed the more she hurt). Oh and yes she does max dose MTX too. e hburger64 <hburger64@...> wrote: --kristine, i dont know if this is even possible, but could you go to remicade every 4 weeks?? It really has made a huge difference with . Even leaving it 5 weeks like i did the time before last was not good for him. We have to stick to every 4 weeks. How much remicade is she getting?? Are you doing MTX with the remicade too?? Sorry about the prednisone uppage ( hugs Helen and (9,systemic) - In , bound for london <boundforlondon@...> wrote: > > We just got home from the rheumy and I asked her what to do in the we event of the need something to get her over the hump when things just aren't right like we had the issue with a couple weeks ago. She told us not to increase the Celebrex because 200mg twice daily is the maximum dose. To continue with the Ultram and the Tylenol as she has been doing but to up her Prednisone for a few days to get her through. She has a hard time once Remicade hits 4-5 weeks (currently at 6 wk cycle because of school/travel). So, she wants her to up the pred until infusion and then back down. We are switching to a 5 wk cycle to see if that will help. She doesn't want to increase the amount of Remicade because it can put her in a Lupus flare. So, we will try that. If this does not work we will add Sulfasalazine to the mix since Plaquenil caused a funky rash. But no on the Ibuprofen (which I knew but didn't know what else to do)--puts her at too high of risk for complications. Just thought I > would let you know our rheumys opinion. Thanks for the support. And hope everyone is having a wonderful pain free day! > > e, mom to joe 20 Poly + lupus > > > --------------------------------- > We won't tell. Get more on shows you hate to love > (and love to hate): TV's Guilty Pleasures list. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2007 Report Share Posted April 4, 2007 > > > > > > We just got home from the rheumy and I asked her what to do in > the > > we event of the need something to get her over the hump when things > > just aren't right like we had the issue with a couple weeks ago. > She > > told us not to increase the Celebrex because 200mg twice daily is > the > > maximum dose. To continue with the Ultram and the Tylenol as she > has > > been doing but to up her Prednisone for a few days to get her > > through. She has a hard time once Remicade hits 4-5 weeks > (currently > > at 6 wk cycle because of school/travel). So, she wants her to up > the > > pred until infusion and then back down. We are switching to a 5 wk > > cycle to see if that will help. She doesn't want to increase the > > amount of Remicade because it can put her in a Lupus flare. So, we > > will try that. If this does not work we will add Sulfasalazine to > the > > mix since Plaquenil caused a funky rash. But no on the Ibuprofen > > (which I knew but didn't know what else to do)--puts her at too > high > > of risk for complications. Just thought I > > > would let you know our rheumys opinion. Thanks for the support. > > And hope everyone is having a wonderful pain free day! > > > > > > e, mom to joe 20 Poly + lupus > > > > > > > > > --------------------------------- > > > We won't tell. Get more on shows you hate to love > > > (and love to hate): TV's Guilty Pleasures list. > > > > > > Quote Link to comment Share on other sites More sharing options...
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