Guest guest Posted March 30, 2009 Report Share Posted March 30, 2009 Hi Geri, You know what....if other people don't like the way your house looks.... then tell them to come on over and clean it for you! lol I try to do as much as I can...my hubby does the rest. But, it's my Mom who's the clean freak! Granted not as much as when she was younger....but one time when I was really not feeling well....she came over....was rubbing my legs....and all of a sudden decided to dust! Hmmmm, now, that pissed me off! Mainly cause she thought that dusting the apartment would make me feel better than rubbing my legs. I know she meant well, but hey????!!!!???? lol I laugh now...it's all in the past. I do know what you mean about getting overwelmed about things...I want to do more and just can't...and that in itself is depressing. But seriously....if someone does say something about the way your house looks.....tell them, if you don't like it....you're welcome to come on over and clean for me! lol Hope you're doing ok today....try to enjoy and have a good day hon. Hugs, Sherry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 Ok, I have a dilemma. I am 29 years old and was DX 7 years ago on Thanksgiving day. I have been with my husband for 10.5 years and we just celebrated our 4th wedding Anniversary in July. I WANT A FAMILY. I am soooo confused, I am on 400mg Gleevec and they are working, so I know it would not be a wise move to get of my meds to carry a child. My husband doesn't want to adopt, and we have looked into a surrogate and it can cost anywhere from 65k - 100k+. I am VERY grateful that I am doing well on Gleevac, but at the same time I am angry, My MIL told me to kiss my dreams of being a mother good bye ( I really hate her right now ) Anyone out there can help me? I am also starting to question myself If I want a child only because I know I cant have one? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 - A writer/editor  for Glamour magazine, Zammett, was diagnosed with CML at 23 and I think she has had two children since then.  If you google her you can read her blog about her experience. It is a very personal decision. I was unable to have children due to an operation , so when i got married adoption was our choice.  I have never regretted it....well she's a teenager now so I guess there may be days. Seriously, she is a gift and I am a better person because of her. As Zavie said you wouldn't be the first to have a child after dx. I think it is important to have a good team of physicians to guide you on the journey. There must be some research about the level of risk, windows before reoccurance, breast feeding, possible impact on babies etc. No doubt Mama Lottie will be providing them shortly- smile. Best wishes and blessing for you . Chi ________________________________ From: andrea silveira <formiga101@...> Sent: Fri, September 17, 2010 10:11:07 AM Subject: [ ] Family  Ok, I have a dilemma. I am 29 years old and was DX 7 years ago on Thanksgiving day. I have been with my husband for 10.5 years and we just celebrated our 4th wedding Anniversary in July. I WANT A FAMILY. I am soooo confused, I am on 400mg Gleevec and they are working, so I know it would not be a wise move to get of my meds to carry a child. My husband doesn't want to adopt, and we have looked into a surrogate and it can cost anywhere from 65k - 100k+. I am VERY grateful that I am doing well on Gleevac, but at the same time I am angry, My MIL told me to kiss my dreams of being a mother good bye ( I really hate her right now ) Anyone out there can help me? I am also starting to question myself If I want a child only because I know I cant have one?    Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 Hi Zavie  I have spoke to my doctor she is 100% agaisnt it. I have been PCRU for about 5 years. Maybe time for anotheopinionon. Zavie do you know anyone other then that has gone this route ( Youreferreded me to 's blog when she gopregnantnt with :-) Still reading her posts, she was lucky to have been blessed with 2 ) My husband and mother arterrifieded of me getting off Gleevac ( My grandmother passed away during childbirth due tLeukemiaia, but I am trying to explain that alot has changed since 1950) From: Zavie <zmiller@...> Subject: RE: [ ] Family Date: Friday, September 17, 2010, 11:00 AM  Hi , There are many women who have had children with CML. It is much easier if you are in deep remission (PCRU) but still possible if not. If the CML comes back to a level where you must be treated for the CML, the drug Interferon is used. You need to speak to your doctor to see what he thinks and if he is prepared to treat you if you get pregnant. Zavie Zavie (age 72) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 4.4 log reduction Apr/10 e-mail: <mailto:zmiller@...> zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem From: [mailto: ] On Behalf Of andrea silveira Sent: September-17-10 1:11 PM Subject: [ ] Family Ok, I have a dilemma. I am 29 years old and was DX 7 years ago on Thanksgiving day. I have been with my husband for 10.5 years and we just celebrated our 4th wedding Anniversary in July. I WANT A FAMILY. I am soooo confused, I am on 400mg Gleevec and they are working, so I know it would not be a wise move to get of my meds to carry a child. My husband doesn't want to adopt, and we have looked into a surrogate and it can cost anywhere from 65k - 100k+. I am VERY grateful that I am doing well on Gleevac, but at the same time I am angry, My MIL told me to kiss my dreams of being a mother good bye ( I really hate her right now ) Anyone out there can help me? I am also starting to question myself If I want a child only because I know I cant have one? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 Hi , Where are you located? It looks like you need to find another doctor if this one is unwilling to help you. Dr. Mauro was ’s doctor. He’s at OHSU in Portland, Oregon. You might want to write him and ask who he would suggest in your neck of the woods. Dr. Mauro maurom@... 503-494-0376 Zavie Zavie (age 72) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 4.4 log reduction Apr/10 e-mail: <mailto:zmiller@...> zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem From: [mailto: ] On Behalf Of andrea silveira Sent: September-17-10 2:21 PM Subject: RE: [ ] Family Hi Zavie I have spoke to my doctor she is 100% agaisnt it. I have been PCRU for about 5 years. Maybe time for anotheopinionon. Zavie do you know anyone other then that has gone this route ( Youreferreded me to 's blog when she gopregnantnt with :-) Still reading her posts, she was lucky to have been blessed with 2 ) My husband and mother arterrifieded of me getting off Gleevac ( My grandmother passed away during childbirth due tLeukemiaia, but I am trying to explain that alot has changed since 1950) From: Zavie <zmiller@... <mailto:zmiller%40sympatico.ca> > Subject: RE: [ ] Family <mailto:%40> Date: Friday, September 17, 2010, 11:00 AM Hi , There are many women who have had children with CML. It is much easier if you are in deep remission (PCRU) but still possible if not. If the CML comes back to a level where you must be treated for the CML, the drug Interferon is used. You need to speak to your doctor to see what he thinks and if he is prepared to treat you if you get pregnant. Zavie Zavie (age 72) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 4.4 log reduction Apr/10 e-mail: <mailto:zmiller@... <mailto:zmiller%40sympatico.ca> > zmiller@... <mailto:zmiller%40sympatico.ca> Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of andrea silveira Sent: September-17-10 1:11 PM <mailto:%40> Subject: [ ] Family Ok, I have a dilemma. I am 29 years old and was DX 7 years ago on Thanksgiving day. I have been with my husband for 10.5 years and we just celebrated our 4th wedding Anniversary in July. I WANT A FAMILY. I am soooo confused, I am on 400mg Gleevec and they are working, so I know it would not be a wise move to get of my meds to carry a child. My husband doesn't want to adopt, and we have looked into a surrogate and it can cost anywhere from 65k - 100k+. I am VERY grateful that I am doing well on Gleevac, but at the same time I am angry, My MIL told me to kiss my dreams of being a mother good bye ( I really hate her right now ) Anyone out there can help me? I am also starting to question myself If I want a child only because I know I cant have one? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2010 Report Share Posted September 18, 2010 > > Hi Zavie > Â > I have spoke to my doctor she is 100% agaisnt it. I have been PCRU for about 5 years. Maybe time for anotheopinionon. Zavie do you know anyone other then that has gone this route ( Youreferreded me to 's blog when she gopregnantnt with :-) Still reading her posts, she was lucky to have been blessed with 2 ) My husband and mother arterrifieded of me getting off Gleevac ( My grandmother passed away during childbirth due tLeukemiaia, but I am trying to explain that alot has changed since 1950) ______________________________ Hi , This is NOT your doctor's life. She probably has the kids she wants or maybe she did not want any. If you have been PCRU for 5 years, I think you are a GOOD candidate to go through a pregnancy with a top cml doctor and a good gyn. There are others who have gone through pregnancy by choice or just because they did get pregnant. I am not sure how many on this list, but post a question on CML Talk on Jerry's list.......www. newcmldrug.com (no spaces). I know there have been pregnancies on that list. Because your doctor is so set in her answer, and not willing to explore this option for you, she is NOT the right doctor for you. Find where you can see a cml specialist (or one with strong credentials) close to you. Your grandmother might have gotten an acute leukemia during her pregnancy....that is totally different. When you have a supportive doctor, your mother and husband will come around. Don't give up your dream without more information. C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2010 Report Share Posted September 18, 2010 Hi There are heaps of young women now having families while having CML Most are PCRU and then decide to have a family Quite a few young women were diagnosed while pregnant and did not abort. Having said this - to carry a pregnancy with CML is not for the faint hearted and you need to have all the facts and what type of treatment and both the CML and Pregnancy management can be tricky. The long term CML management while pregnant will need to have continual monitoring. But for your specialist to say throw your dreams away - change your specialist and get one who will share care you with a top of the game obstetrician and you will need both. Cheers Sue __________ Information from ESET NOD32 Antivirus, version of virus signature database 5458 (20100917) __________ The message was checked by ESET NOD32 Antivirus. http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2010 Report Share Posted September 18, 2010 If you email me privately - I will send you contact information from another CMLer who was diagnosed with CML while pregnant and went onto have a gorgeous little girl who is now 2 years old. Sue __________ Information from ESET NOD32 Antivirus, version of virus signature database 5458 (20100917) __________ The message was checked by ESET NOD32 Antivirus. http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2010 Report Share Posted September 19, 2010 Hi , I was diagnosed in my pregnancy (PCR 134%), never been on interferon during pregnancy (just on green tea), had my very healthy 3.7kg baby 1 week overdue (on my own, it was medically unassisted birth), breastfed exclusively up until I had to go on glivec 3rd of July this year (after exhausting all alternative possibilities), I'm still breastfeeding but only at night. My PCR before I went on glivec was 136% so during the whole period since diagnosis in Oct '09 till July '10 it went up 2%. Can't say if that's expected or unexpected as I'm not an expert in the illness I just unwillingly have it. All I've got to say: Having CML I delivered baby on my own. I was told by doctors she would have to be delivered by c-section at 30 weeks. That's big enough for me. I don't even need to go into what I actually manage to avoid! My perfectly healthy baby is 7 months tomorrow! I'd say, go for it! Oh, and drink green tea as well as this will definitely keep CML at bay as it did with me and I wasn't PCRU. The only problem is if you get off glivec to get pregnant you may develop resistance to it (but not necessarily) From: Sue Sent: Saturday, September 18, 2010 7:19 AM Subject: [ ] Re: Family If you email me privately - I will send you contact information from another CMLer who was diagnosed with CML while pregnant and went onto have a gorgeous little girl who is now 2 years old. Sue __________ Information from ESET NOD32 Antivirus, version of virus signature database 5458 (20100917) __________ The message was checked by ESET NOD32 Antivirus. http://www.eset.com Quote Link to comment Share on other sites More sharing options...
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