Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 Hi everyone, I have a question. Has anyone had problems with the white of the eye bleeding while on Gleevec? Thanks, Karine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 Yes I had it happen only twice in 10 years, and my Oncologist was not concerned. The one was really bad. It took about 2 weeks to clear up. It is one of the possible side effects of the Gleevec. From: Karine Vallier <karinevallier@...> Subject: [ ] retinal hemmorrhaging Date: Friday, September 17, 2010, 2:19 PM  Hi everyone, I have a question. Has anyone had problems with the white of the eye bleeding while on Gleevec? Thanks, Karine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 Hi Karine, Eye bleeds are a common side effect of Gleevec. I get them onee every 2 or 3 months. They look terrible, but that's all. Zavie Zavie (age 72) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 4.4 log reduction Apr/10 e-mail: <mailto:zmiller@...> zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem From: [mailto: ] On Behalf Of Karine Vallier Sent: September-17-10 2:20 PM Subject: [ ] retinal hemmorrhaging Hi everyone, I have a question. Has anyone had problems with the white of the eye bleeding while on Gleevec? Thanks, Karine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2010 Report Share Posted September 18, 2010 , Thank you so much for responding!!!! Thanks, Karine ________________________________ From: Armour <suzzienovember@...> Sent: Fri, September 17, 2010 2:51:48 PM Subject: Re: [ ] retinal hemmorrhaging  Yes I had it happen only twice in 10 years, and my Oncologist was not concerned. The one was really bad. It took about 2 weeks to clear up. It is one of the possible side effects of the Gleevec. From: Karine Vallier <karinevallier@...> Subject: [ ] retinal hemmorrhaging Date: Friday, September 17, 2010, 2:19 PM  Hi everyone, I have a question. Has anyone had problems with the white of the eye bleeding while on Gleevec? Thanks, Karine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2010 Report Share Posted September 18, 2010 Thak you for your response. Can I ask you was the CHF caused by Gleevec? ________________________________ From: Zavie <zmiller@...> Sent: Fri, September 17, 2010 3:05:14 PM Subject: RE: [ ] retinal hemmorrhaging  Hi Karine, Eye bleeds are a common side effect of Gleevec. I get them onee every 2 or 3 months. They look terrible, but that's all. Zavie Zavie (age 72) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 4.4 log reduction Apr/10 e-mail: <mailto:zmiller@...> zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem From: [mailto: ] On Behalf Of Karine Vallier Sent: September-17-10 2:20 PM Subject: [ ] retinal hemmorrhaging Hi everyone, I have a question. Has anyone had problems with the white of the eye bleeding while on Gleevec? Thanks, Karine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2010 Report Share Posted September 18, 2010 It was caused by the Interferon. Zavie Zavie (age 72) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 4.4 log reduction Apr/10 e-mail: <mailto:zmiller@...> zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem From: [mailto: ] On Behalf Of Karine Vallier Sent: September-17-10 7:34 PM Subject: Re: [ ] retinal hemmorrhaging Thak you for your response. Can I ask you was the CHF caused by Gleevec? ________________________________ From: Zavie <zmiller@... <mailto:zmiller%40sympatico.ca> > <mailto:%40> Sent: Fri, September 17, 2010 3:05:14 PM Subject: RE: [ ] retinal hemmorrhaging Hi Karine, Eye bleeds are a common side effect of Gleevec. I get them onee every 2 or 3 months. They look terrible, but that's all. Zavie Zavie (age 72) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 4.4 log reduction Apr/10 e-mail: <mailto:zmiller@... <mailto:zmiller%40sympatico.ca> > zmiller@... <mailto:zmiller%40sympatico.ca> Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of Karine Vallier Sent: September-17-10 2:20 PM <mailto:%40> Subject: [ ] retinal hemmorrhaging Hi everyone, I have a question. Has anyone had problems with the white of the eye bleeding while on Gleevec? Thanks, Karine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2010 Report Share Posted September 18, 2010 Interesting that you say that because I'm a cardiovascular nurse and I had a patient that had CML for 14yrs and was in the hospital because of his heart failure acting up and he told me when he first started treatment fpr CML  in 1999 he was also on Interferon and it made him sick. ________________________________ From: Zavie <zmiller@...> Sent: Fri, September 17, 2010 8:01:41 PM Subject: RE: [ ] retinal hemmorrhaging  It was caused by the Interferon. Zavie Zavie (age 72) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 4.4 log reduction Apr/10 e-mail: <mailto:zmiller@...> zmiller@... Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem From: [mailto: ] On Behalf Of Karine Vallier Sent: September-17-10 7:34 PM Subject: Re: [ ] retinal hemmorrhaging Thak you for your response. Can I ask you was the CHF caused by Gleevec? ________________________________ From: Zavie <zmiller@... <mailto:zmiller%40sympatico.ca> > <mailto:%40> Sent: Fri, September 17, 2010 3:05:14 PM Subject: RE: [ ] retinal hemmorrhaging Hi Karine, Eye bleeds are a common side effect of Gleevec. I get them onee every 2 or 3 months. They look terrible, but that's all. Zavie Zavie (age 72) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 4.4 log reduction Apr/10 e-mail: <mailto:zmiller@... <mailto:zmiller%40sympatico.ca> > zmiller@... <mailto:zmiller%40sympatico.ca> Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of Karine Vallier Sent: September-17-10 2:20 PM <mailto:%40> Subject: [ ] retinal hemmorrhaging Hi everyone, I have a question. Has anyone had problems with the white of the eye bleeding while on Gleevec? Thanks, Karine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2010 Report Share Posted September 18, 2010 Hi Karine: I was following the posts, and I did not realize that Zavie had CHF from the Interferon. It did a lot of things to a lot of people. For me it was destroying my liver, and thats how most us qualifed to go into the clinical trial for Gleevec. You had to show first that the Interferon did not work. I know besides me, that others were doing Ara-C along with the Interferon. That was a real rough time, and our only alternative back then was to see if the Gleevec would work. I started the Interferon in 1999 also. > > Interesting that you say that because I'm a cardiovascular nurse and I had a > patient that had CML for 14yrs and was in the hospital because of his heart > failure acting up and he told me when he first started treatment fpr CML Â in > 1999 he was also on Interferon and it made him sick. > > > > > ________________________________ > From: Zavie <zmiller@...> > > Sent: Fri, September 17, 2010 8:01:41 PM > Subject: RE: [ ] retinal hemmorrhaging > > Â > It was caused by the Interferon. > > Zavie > > Zavie (age 72) > > 67 Shoreham Avenue > > Ottawa, Canada, K2G 3X3 > > dxd AUG/99 > > INF OCT/99 to FEB/00, CHF > > No meds FEB/00 to JAN/01 > > Gleevec since MAR/27/01 (400 mg) > > CCR SEP/01. #102 in Zero Club > > 2.8 log reduction Sep/05 > > 3.0 log reduction Jan/06 > > 2.9 log reduction Feb/07 > > 3.6 log reduction Apr/08 > > 3.6 log reduction Sep/08 > > 3.7 log reduction Jan/09 > > 3.8 log reduction May/09 > > 3.8 log reduction Aug/09 > > 4.0 log reduction Dec/09 > > 4.4 log reduction Apr/10 > > e-mail: <mailto:zmiller@...> zmiller@... > > Tel: 613-726-1117 > > Fax: 613-482-4801 > > Cell: 613-282-0204 > > ID: zaviem > > From: [mailto: ] On Behalf Of Karine > Vallier > Sent: September-17-10 7:34 PM > > Subject: Re: [ ] retinal hemmorrhaging > > Thak you for your response. Can I ask you was the CHF caused by Gleevec? > > ________________________________ > From: Zavie <zmiller@... <mailto:zmiller%40sympatico.ca> > > <mailto:%40> > Sent: Fri, September 17, 2010 3:05:14 PM > Subject: RE: [ ] retinal hemmorrhaging > > Hi Karine, > > Eye bleeds are a common side effect of Gleevec. I get them onee every 2 or 3 > months. They look terrible, but that's all. > > Zavie > > Zavie (age 72) > > 67 Shoreham Avenue > > Ottawa, Canada, K2G 3X3 > > dxd AUG/99 > > INF OCT/99 to FEB/00, CHF > > No meds FEB/00 to JAN/01 > > Gleevec since MAR/27/01 (400 mg) > > CCR SEP/01. #102 in Zero Club > > 2.8 log reduction Sep/05 > > 3.0 log reduction Jan/06 > > 2.9 log reduction Feb/07 > > 3.6 log reduction Apr/08 > > 3.6 log reduction Sep/08 > > 3.7 log reduction Jan/09 > > 3.8 log reduction May/09 > > 3.8 log reduction Aug/09 > > 4.0 log reduction Dec/09 > > 4.4 log reduction Apr/10 > > e-mail: <mailto:zmiller@... <mailto:zmiller%40sympatico.ca> > > zmiller@... <mailto:zmiller%40sympatico.ca> > > > Tel: 613-726-1117 > > Fax: 613-482-4801 > > Cell: 613-282-0204 > > ID: zaviem > > From: <mailto:%40> > [mailto: <mailto:%40> ] On Behalf Of > Karine > Vallier > Sent: September-17-10 2:20 PM > <mailto:%40> > Subject: [ ] retinal hemmorrhaging > > Hi everyone, > I have a question. Has anyone had problems with the white of the eye > bleeding > while on Gleevec? > > Thanks, > > Karine > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2010 Report Share Posted September 18, 2010 Congestive Heart Failure is a known side effect of Interferon. In my case, my doctor had me stay on Interferon way too long. The side effects were devastating. What saved me was my wife’s quick action. We went to the hospital emergency and they weren’t able to figure it out. My wife insisted that something had to be done. They wanted to send me home. I couldn’t help because I was so spaced out from the interferon, I didn’t even know my own name. My wife said, look at him, he is dying. I’m not taking him home. I was eventually seen by an internist who figured it out. Stopped the interferon immediately and within 2 days my mind was clear again and I was feeling much better. This was in Jan 2000. I remained off all medication and watched my counts increase. I got into a trial at OHSU in March 2001 with Dr. Druker and Dr. Mauro. The rest is history. I started counting Zero Club members the day I took my first dose of Gleevec (it was called STI571 back then). Six months later I became # 102 in my own Zero Club. Zavie From: [mailto: ] On Behalf Of Karine Vallier Sent: September-17-10 9:55 PM Subject: Re: [ ] retinal hemmorrhaging Interesting that you say that because I'm a cardiovascular nurse and I had a patient that had CML for 14yrs and was in the hospital because of his heart failure acting up and he told me when he first started treatment fpr CML in 1999 he was also on Interferon and it made him sick. ________________________________ From: Zavie <zmiller@... <mailto:zmiller%40sympatico.ca> > <mailto:%40> Sent: Fri, September 17, 2010 8:01:41 PM Subject: RE: [ ] retinal hemmorrhaging It was caused by the Interferon. Zavie Zavie (age 72) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 4.4 log reduction Apr/10 e-mail: <mailto:zmiller@... <mailto:zmiller%40sympatico.ca> > zmiller@... <mailto:zmiller%40sympatico.ca> Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of Karine Vallier Sent: September-17-10 7:34 PM <mailto:%40> Subject: Re: [ ] retinal hemmorrhaging Thak you for your response. Can I ask you was the CHF caused by Gleevec? ________________________________ From: Zavie <zmiller@... <mailto:zmiller%40sympatico.ca> <mailto:zmiller%40sympatico.ca> > <mailto:%40> <mailto:%40> Sent: Fri, September 17, 2010 3:05:14 PM Subject: RE: [ ] retinal hemmorrhaging Hi Karine, Eye bleeds are a common side effect of Gleevec. I get them onee every 2 or 3 months. They look terrible, but that's all. Zavie Zavie (age 72) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 4.4 log reduction Apr/10 e-mail: <mailto:zmiller@... <mailto:zmiller%40sympatico.ca> <mailto:zmiller%40sympatico.ca> > zmiller@... <mailto:zmiller%40sympatico.ca> <mailto:zmiller%40sympatico.ca> Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem From: <mailto:%40> <mailto:%40> [mailto: <mailto:%40> <mailto:%40> ] On Behalf Of Karine Vallier Sent: September-17-10 2:20 PM <mailto:%40> <mailto:%40> Subject: [ ] retinal hemmorrhaging Hi everyone, I have a question. Has anyone had problems with the white of the eye bleeding while on Gleevec? Thanks, Karine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2010 Report Share Posted September 18, 2010 Many people have bleeding of the eyes with glivec A side effect Sue __________ Information from ESET NOD32 Antivirus, version of virus signature database 5458 (20100917) __________ The message was checked by ESET NOD32 Antivirus. http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2010 Report Share Posted September 18, 2010 Hi Zavie: That Interferon really did a job on a lot of us. I too had to wait until I could get into the clinical trial for the STI-571, and I just did the Hydrea till I could get started. I did my trial at NY Presbyterian Hospital in NY. I started mine in Oct. of 2000. We have all been blessed who survived the Interferon, and with all the treatments available to everyone now that was not there for us. I am #293 in your Zero Club. God Bless You From: Zavie <zmiller@...> Subject: RE: [ ] retinal hemmorrhaging Date: Saturday, September 18, 2010, 1:00 AM  Congestive Heart Failure is a known side effect of Interferon. In my case, my doctor had me stay on Interferon way too long. The side effects were devastating. What saved me was my wife’s quick action. We went to the hospital emergency and they weren’t able to figure it out. My wife insisted that something had to be done. They wanted to send me home. I couldn’t help because I was so spaced out from the interferon, I didn’t even know my own name. My wife said, look at him, he is dying. I’m not taking him home. I was eventually seen by an internist who figured it out. Stopped the interferon immediately and within 2 days my mind was clear again and I was feeling much better. This was in Jan 2000. I remained off all medication and watched my counts increase. I got into a trial at OHSU in March 2001 with Dr. Druker and Dr. Mauro. The rest is history. I started counting Zero Club members the day I took my first dose of Gleevec (it was called STI571 back then). Six months later I became # 102 in my own Zero Club. Zavie From: [mailto: ] On Behalf Of Karine Vallier Sent: September-17-10 9:55 PM Subject: Re: [ ] retinal hemmorrhaging Interesting that you say that because I'm a cardiovascular nurse and I had a patient that had CML for 14yrs and was in the hospital because of his heart failure acting up and he told me when he first started treatment fpr CML in 1999 he was also on Interferon and it made him sick. ________________________________ From: Zavie <zmiller@... <mailto:zmiller%40sympatico.ca> > <mailto:%40> Sent: Fri, September 17, 2010 8:01:41 PM Subject: RE: [ ] retinal hemmorrhaging It was caused by the Interferon. Zavie Zavie (age 72) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 4.4 log reduction Apr/10 e-mail: <mailto:zmiller@... <mailto:zmiller%40sympatico.ca> > zmiller@... <mailto:zmiller%40sympatico.ca> Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem From: <mailto:%40> [mailto: <mailto:%40> ] On Behalf Of Karine Vallier Sent: September-17-10 7:34 PM <mailto:%40> Subject: Re: [ ] retinal hemmorrhaging Thak you for your response. Can I ask you was the CHF caused by Gleevec? ________________________________ From: Zavie <zmiller@... <mailto:zmiller%40sympatico.ca> <mailto:zmiller%40sympatico.ca> > <mailto:%40> <mailto:%40> Sent: Fri, September 17, 2010 3:05:14 PM Subject: RE: [ ] retinal hemmorrhaging Hi Karine, Eye bleeds are a common side effect of Gleevec. I get them onee every 2 or 3 months. They look terrible, but that's all. Zavie Zavie (age 72) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.6 log reduction Apr/08 3.6 log reduction Sep/08 3.7 log reduction Jan/09 3.8 log reduction May/09 3.8 log reduction Aug/09 4.0 log reduction Dec/09 4.4 log reduction Apr/10 e-mail: <mailto:zmiller@... <mailto:zmiller%40sympatico.ca> <mailto:zmiller%40sympatico.ca> > zmiller@... <mailto:zmiller%40sympatico.ca> <mailto:zmiller%40sympatico.ca> Tel: 613-726-1117 Fax: 613-482-4801 Cell: 613-282-0204 ID: zaviem From: <mailto:%40> <mailto:%40> [mailto: <mailto:%40> <mailto:%40> ] On Behalf Of Karine Vallier Sent: September-17-10 2:20 PM <mailto:%40> <mailto:%40> Subject: [ ] retinal hemmorrhaging Hi everyone, I have a question. Has anyone had problems with the white of the eye bleeding while on Gleevec? Thanks, Karine Quote Link to comment Share on other sites More sharing options...
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