Re: back ache

[Guest guest]

I have actually been doing physical therapy three times a week but not

for back pain in that area. Mine is right at the waist level and then

in my neck - between my shoulder blades. I went to an orthopedist and

he says I have 2/10 arthritis in both my lower back and my neck but

surprisingly to me I have 4/10 in both hips - why wouldn't I have

arthritis after carrying around all this weight for years!!! He

suggested glucosamine/chondroitin which is available almost everywhere

and he said the cheapest generic is as good as the brand names. I am

taking it three times a day. It helps lubricate the joints. He said

that with this much weight loss I need to re-strengthen the muscles,

etc. which is what the physical therapy is doing.

in GA

Back Ache

Has anyone had a problem with upper back aches. Daily after is sit for

a

while in my chair at work I get a back ache right behind my left lung.

Its

not a grulling pain but it is noticable. My mom says its because of the

lack of water I am not drinking. Any thoughts.

Marilyn Drake

Live by God's light today;

and brighten your tomorrows

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

MARILYNN, I HAVE BEEN SURPRISED LATELY AT THE AMOUNT OF PAIN I HAVE IN MY

HIPS,FEET AND NECK AND KNEES. I THOUGHT THEY SHOULD NOT BE HURTING AS MUCH SINCE

I LOST 42 LBS. GO FIGURE. SURGERY WAS MAY 1ST. 2OO2. BONNIE T.

Marilyn Drake <aamarilyn@...> wrote: Has anyone had a problem with

upper back aches. Daily after is sit for a

while in my chair at work I get a back ache right behind my left lung. Its

not a grulling pain but it is noticable. My mom says its because of the

lack of water I am not drinking. Any thoughts.

Marilyn Drake

Live by God's light today;

and brighten your tomorrows

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

So glad your feeling better with the treatment.  Its so frustrating besides

painful when you get these pains all over, but really do not know what is

causing them.

You always have a way of making us laugh on our worst days, and make us realize

we are not the only ones with troubles.  God Bless You

From: ROBERTA DOYLE <rcd1929@...>

Subject: [ ] back ache

" " < >

Date: Friday, July 23, 2010, 10:39 PM

 

Hi Everyone, well I've had a rough month  starting with a slight ache on the

left side when I went to bed, to a back pain, a butt pain, a  leg pain etc. 

An MRI showed nothing that would cause this.  I finally went to see my

acupuncturist, and had two treatments, went back today and said I still hurt. 

So, something new.  Moxibustion.   After placing a lot of needles in both

ankle areas, and the left lower spine and surrounding area, he used something

that looked like a lit up crayon.  First he held it over my arm to show it

would not hurt, or burn, then he used it on all the heads of the needles.  It

was warm and felt great, and ha ha, smelled like pot.  I told him this and he

laughed and said he had patients that did not want him to use it for that

reason, the odor stayed in their clothes.  i told him I didn't mind, my grand

kids would think I was cool.  Anyway, when I left his office I had no more back

pain, will see what happens

tomorrow. I start physical therapy next Tues, have never done that, don't even

know what to expect,  Anyway, today was a new and enlightening experience, any

of you ever have it done?   I googled it, bless google, you sure find out a

lot of stuff.  Moxa is a Chinese herb, like acupuncture, very old.

Everyone have a great weekend, it's in the upper 90's here, been a record

breaking July for the Cleveland area.  Sort of like Houston in August.  Bobby

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

[Guest guest]

By any chance, were you diagnosed with sciatica.  It sounds the same as what I

have been going thru for over two months. I have had two cortizone shots, 8

chiropractor visits, 10 physical therapy visits and one epidural shot and now I

am on gabapentin.  I can get another epidural shot and then I am done. If I get

no relief I will start with acupuncture.

Jess

________________________________

From: ROBERTA DOYLE <rcd1929@...>

< >

Sent: Friday, July 23, 2010 22:39:08

Subject: [ ] back ache

 

Hi Everyone, well I've had a rough month  starting with a slight ache on the

left side when I went to bed, to a back pain, a butt pain, a  leg pain etc. 

An

MRI showed nothing that would cause this.  I finally went to see my

acupuncturist, and had two treatments, went back today and said I still hurt. 

So, something new.  Moxibustion.   After placing a lot of needles in both

ankle

areas, and the left lower spine and surrounding area, he used something that

looked like a lit up crayon.  First he held it over my arm to show it would not

hurt, or burn, then he used it on all the heads of the needles.  It was warm

and

felt great, and ha ha, smelled like pot.  I told him this and he laughed and

said he had patients that did not want him to use it for that reason, the odor

stayed in their clothes.  i told him I didn't mind, my grand kids would think I

was cool.  Anyway, when I left his office I had no more back pain, will see

what

happens

tomorrow. I start physical therapy next Tues, have never done that, don't even

know what to expect,  Anyway, today was a new and enlightening experience, any

of you ever have it done?   I googled it, bless google, you sure find out a

lot

of stuff.  Moxa is a Chinese herb, like acupuncture, very old.

Everyone have a great weekend, it's in the upper 90's here, been a record

breaking July for the Cleveland area.  Sort of like Houston in August.  Bobby

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

[Guest guest]

Back pain is horrible and it's a real drain on your physical and mental health.

I've had back pain, butt pain, leg pain, and even loss of sensation and muscle

use in part of my calf. I've been through three major episodes (to the point of

being stuck in bed and finally surgery for a herniated L5/S1 disc) and countless

minor ones.

I'm happy to play resource if you have any questions or need an alternative.

I've been through all the drugs (gabapentin, nortriptyline, pain pills, muscle

relaxants, steroids), steroid injections (some with better success than others),

chiropractic, acupuncture, physical therapy (pre and post surgery), minor

surgeries (2006 and 2009), and finally a fusion (two months ago).

I have seen all kinds of ignorance (from the standard doctors to the alternative

ones)and I'm happy to help someone avoid some of it if needed. I have

repeatedly been given treatment without alternatives that would maximize relief

and been given tons of mis-information.

Heres a few things I have learned:

*I would get minor relief from chiropractic or acupuncture, but nothing that

would be more than the afternoon of the treatment at best.

*Steroid injections work much better if you have never had surgery or build up

of scar tissue in the area. Even then, if you request anestethia be added to

the injection, you will most likely get at least 24-48 hours of instant relief

from the pain. I had to ask specifically for that from the pain management guys

the second and third rounds - I knew about it from the first round, but it

wasn't offered later. I knew it wasn't a long term fix, but I was grateful for

any relief at that point.

*Pain meds - I had enormous trouble with these, especially in combo with the

nausea I got from Gleevec. I finally settled on Tramadol (in large part because

it was billed as non-narcotic). Turns out it is just as addictive as the others

according to the doc I have now that is really helpful. I've had everything

from Tramadol to Methadone to Fentenyl patches (great because it was not on my

stomach with my meds). These are some wicked drugs to get off though - make

sure you are with a doctor that really understands these drugs and isn't just

using them to get rid of you and your complaints of back pain and use a good doc

when you are ready to stop.

* I had a WONDERFUL physical therapist who literally kept me going day to day

during round one and worked on my rehab after surgery. He preached CORE, CORE,

CORE and it did help initially. He was able to give me full pain relief many

times, just nothing that would stay. I have also used some bad physical

therapists who were worthless as far as help. They pushed a lot, but I never

got any results.

* At the start of round two, I received several torodol (anti-inflamatory)

injections and they worked really well. It gave me almost instant relief for

24-48 hours and if I needed to be somewhere and function, I could use them once

in a while for that. They would only give me 6 in a few months or year (I can't

remember), but again, it was something I had to ask for and wasn't offered to

me.

* Lastly, make sure your oncologist is aware of what you are doing and

participating in your treatment, especially if response to CML meds might be an

issue. There were several occasions where my back docs would recommend a med

selection that my oncologist would nix or change due to the affect on Gleevec.

They always worked it out, but they did have to talk a few times.

Sorry for the novel, but maybe it will help someone.

Mindy

[Guest guest]

No, I have not be dx with sciatica, my dr,. said it was faciitis of a

muscle, I think the BIG one, glutteous maxis? (sp) But I think things

went wrong when i went to the chiropractor and he put me on a machine that

pounded the hell out of my spine, up and down, like iron feet! Then I

really did hurt. An MRI did not show anything that would cause this, so I

am hoping physical therapy will help. Of course, if it's JUST old age,

guess I'll JUST have to live with it!! Bobby

On Sat, Jul 24, 2010 at 8:16 AM, <hughes.jessica@...>wrote:

>

>

> By any chance, were you diagnosed with sciatica. It sounds the same as

> what I

> have been going thru for over two months. I have had two cortizone shots, 8

>

> chiropractor visits, 10 physical therapy visits and one epidural shot and

> now I

> am on gabapentin. I can get another epidural shot and then I am done. If I

> get

> no relief I will start with acupuncture.

> Jess

>

> ________________________________

> From: ROBERTA DOYLE <rcd1929@... <rcd1929%40sbcglobal.net>>

> < <%40>>

> Sent: Friday, July 23, 2010 22:39:08

> Subject: [ ] back ache

>

>

> Hi Everyone, well I've had a rough month starting with a slight ache on

> the

> left side when I went to bed, to a back pain, a butt pain, a leg pain

> etc. An

> MRI showed nothing that would cause this. I finally went to see my

> acupuncturist, and had two treatments, went back today and said I still

> hurt.

> So, something new. Moxibustion. After placing a lot of needles in both

> ankle

> areas, and the left lower spine and surrounding area, he used something

> that

> looked like a lit up crayon. First he held it over my arm to show it would

> not

> hurt, or burn, then he used it on all the heads of the needles. It was

> warm and

> felt great, and ha ha, smelled like pot. I told him this and he laughed

> and

> said he had patients that did not want him to use it for that reason, the

> odor

> stayed in their clothes. i told him I didn't mind, my grand kids would

> think I

> was cool. Anyway, when I left his office I had no more back pain, will see

> what

> happens

> tomorrow. I start physical therapy next Tues, have never done that, don't

> even

> know what to expect, Anyway, today was a new and enlightening experience,

> any

> of you ever have it done? I googled it, bless google, you sure find out a

> lot

> of stuff. Moxa is a Chinese herb, like acupuncture, very old.

> Everyone have a great weekend, it's in the upper 90's here, been a record

> breaking July for the Cleveland area. Sort of like Houston in August.

> Bobby

>

> a ( Bobby ) Doyle, dob 12/17/29

> DX 5/1995

> Interferon 9 weeks/Hydroxyurea 5 years

> 02/2000 to 06/2002 Gleevec trial, OHSU

> 06/2002 Gleevec/Trisenox Trial, OHSU

> 06/2003 Gleevec/Zarnestra Trial, OHSU

> 04/2004 Sprycel Trial, MDACC, CCR in 10 months

> 04/2008 XL228 Trial, U of Mich.

> 01/2009 PCR 5.69

> 04/2009 Ariad Trial AP24534

> 09/2009 PCR 0.01

> 11/2009 PCR 0.034

> 02/2010 PCRU

> #840 Zavie's Zero Club

>

>

[Guest guest]

  Moxibustion.   After placing a lot of needles in both ankle areas, and the

left lower spine and surrounding area, he used something that looked like a lit

up crayon.  First he held it over my arm to show it would not hurt, or burn,

then he used it on all the heads of the needles.  It was warm and felt great,

and ha ha, smelled like pot.  I told him this and he laughed and said he had

patients that did not want him to use it for that reason, the odor stayed in

their clothes.  i told him I didn't mind, my grand kids would think I was cool. 

Anyway, when I left his office I had no more back pain, will see what happens

> tomorrow. I start physical therapy next Tues, have never done that, don't

even know what to expect,  Anyway, today was a new and enlightening experience,

any of you ever have it done?   I googled it, bless google, you sure find out a

lot of stuff.  Moxa is a Chinese herb, like acupuncture, very old.

> Everyone have a great weekend, it's in the upper 90's here, been a record

breaking July for the Cleveland area.  Sort of like Houston in August.  Bobby

__________________________________

Hi Bobby,

Yes, I am familiar with moxibustion....it is herbs, somewhat like Native

American stuff that they burn in ceremonies (can't think of the name).

I did read 's lengthy back history...and will say it is probably not

typical because usually something works, if you are seeing qualified people.

The physical therapist that you see for this should be a manually trained PT

(works like an osteopath)....and not someone doing heat, US, massage. Sound like

YOUR chiro did not use the right techniques on you. I am a 30+ year retired PT

and I am treated by a chiro. That person needs to be really skilled at

evaluation to determine if you have a pelvic rotation/dysfunction, etc. And he

needs a bag of options, because what works for one person may not work for the

next. Neither a PT or chiro should do the same treatment on you more than 2 or 3

times if it is not helping in a lasting way....they need to take another

approach. So, give the PT good feedback about exactly what you feel in your back

and leg.

Also, because you wake up sore, that suggests that it is what you are sleeping

on or the position you are sleeping in. Ask for guidance about that from the PT.

You may need a firmer bed. If you sleep on your side, put a large pillow between

your legs....and also maybe a small folded towel at your waist. You are tying to

align the spine in a neutral position. Sleeping on your back with a small pillow

under your knees is also a good position. You should expect to get practical

suggestions to try. The reason that accupuncture might not be long lasting for

you is that it is giving pain relief, but then you keep doing the thing that

causes the pain????

Good luck with this. Be an active participant in figuring out what works best

for you.

C. (former PT back specialist)

[Guest guest]

Thanks , as a matter of fact, pillows have helped.  If I lie on my stomach

I have one under my hips, and none under my head.  I find it comfortable to put

one under my upper legs if I lie on my back, and I do have a small one for

between the legs, that does not work  real well.  I have a bed that is

electric, I can raise the top half and the bottom half, so it is great for GERD,

good for the legs, and it also massages.I don't know if I can get a firmer

mattress  for this kind of bed, I will have to call and find out, it was

already on my to do list.,  I am feeling much better, so I am thinking my

Indian doctor has helped a great deal.

Thanks for the info about PT, I am looking forward to it.  Bobby

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

From: hey00nanc <ncogan@...>

Subject: [ ] Re: back ache

Date: Sunday, July 25, 2010, 3:43 PM

 

  Moxibustion.   After placing a lot of needles in both ankle areas, and the

left lower spine and surrounding area, he used something that looked like a lit

up crayon.  First he held it over my arm to show it would not hurt, or burn,

then he used it on all the heads of the needles.  It was warm and felt great,

and ha ha, smelled like pot.  I told him this and he laughed and said he had

patients that did not want him to use it for that reason, the odor stayed in

their clothes.  i told him I didn't mind, my grand kids would think I was

cool.  Anyway, when I left his office I had no more back pain, will see what

happens

> tomorrow. I start physical therapy next Tues, have never done that, don't

even know what to expect,  Anyway, today was a new and enlightening experience,

any of you ever have it done?   I googled it, bless google, you sure find out

a lot of stuff.  Moxa is a Chinese herb, like acupuncture, very old.

> Everyone have a great weekend, it's in the upper 90's here, been a record

breaking July for the Cleveland area.  Sort of like Houston in August.  Bobby

__________________________________

Hi Bobby,

Yes, I am familiar with moxibustion....it is herbs, somewhat like Native

American stuff that they burn in ceremonies (can't think of the name).

I did read 's lengthy back history...and will say it is probably not

typical because usually something works, if you are seeing qualified people.

The physical therapist that you see for this should be a manually trained PT

(works like an osteopath)....and not someone doing heat, US, massage. Sound like

YOUR chiro did not use the right techniques on you. I am a 30+ year retired PT

and I am treated by a chiro. That person needs to be really skilled at

evaluation to determine if you have a pelvic rotation/dysfunction, etc. And he

needs a bag of options, because what works for one person may not work for the

next. Neither a PT or chiro should do the same treatment on you more than 2 or 3

times if it is not helping in a lasting way....they need to take another

approach. So, give the PT good feedback about exactly what you feel in your back

and leg.

Also, because you wake up sore, that suggests that it is what you are sleeping

on or the position you are sleeping in. Ask for guidance about that from the PT.

You may need a firmer bed. If you sleep on your side, put a large pillow between

your legs....and also maybe a small folded towel at your waist. You are tying to

align the spine in a neutral position. Sleeping on your back with a small pillow

under your knees is also a good position. You should expect to get practical

suggestions to try. The reason that accupuncture might not be long lasting for

you is that it is giving pain relief, but then you keep doing the thing that

causes the pain????

Good luck with this. Be an active participant in figuring out what works best

for you.

C. (former PT back specialist)

[Guest guest]

P.S. BY THE WAY, I THINK I MADE A MISTAKE, THAT IS NOT MOXIBUSTION, IT IS

MOXIFUSION.......( tee hee, I have a pup named Moxi)

a ( Bobby ) Doyle, dob 12/17/29

DX 5/1995

Interferon 9 weeks/Hydroxyurea 5 years

02/2000 to 06/2002 Gleevec trial, OHSU

06/2002 Gleevec/Trisenox Trial, OHSU

06/2003 Gleevec/Zarnestra Trial, OHSU

04/2004 Sprycel Trial, MDACC, CCR in 10 months

04/2008 XL228 Trial, U of Mich.

01/2009 PCR 5.69

04/2009 Ariad Trial AP24534

09/2009 PCR 0.01

11/2009 PCR 0.034

02/2010 PCRU

#840 Zavie's Zero Club

From: hey00nanc <ncogan@...>

Subject: [ ] Re: back ache

Date: Sunday, July 25, 2010, 3:43 PM

 

  Moxibustion.   After placing a lot of needles in both ankle areas, and the

left lower spine and surrounding area, he used something that looked like a lit

up crayon.  First he held it over my arm to show it would not hurt, or burn,

then he used it on all the heads of the needles.  It was warm and felt great,

and ha ha, smelled like pot.  I told him this and he laughed and said he had

patients that did not want him to use it for that reason, the odor stayed in

their clothes.  i told him I didn't mind, my grand kids would think I was

cool.  Anyway, when I left his office I had no more back pain, will see what

happens

> tomorrow. I start physical therapy next Tues, have never done that, don't

even know what to expect,  Anyway, today was a new and enlightening experience,

any of you ever have it done?   I googled it, bless google, you sure find out

a lot of stuff.  Moxa is a Chinese herb, like acupuncture, very old.

> Everyone have a great weekend, it's in the upper 90's here, been a record

breaking July for the Cleveland area.  Sort of like Houston in August.  Bobby

__________________________________

Hi Bobby,

Yes, I am familiar with moxibustion....it is herbs, somewhat like Native

American stuff that they burn in ceremonies (can't think of the name).

I did read 's lengthy back history...and will say it is probably not

typical because usually something works, if you are seeing qualified people.

The physical therapist that you see for this should be a manually trained PT

(works like an osteopath)....and not someone doing heat, US, massage. Sound like

YOUR chiro did not use the right techniques on you. I am a 30+ year retired PT

and I am treated by a chiro. That person needs to be really skilled at

evaluation to determine if you have a pelvic rotation/dysfunction, etc. And he

needs a bag of options, because what works for one person may not work for the

next. Neither a PT or chiro should do the same treatment on you more than 2 or 3

times if it is not helping in a lasting way....they need to take another

approach. So, give the PT good feedback about exactly what you feel in your back

and leg.

Also, because you wake up sore, that suggests that it is what you are sleeping

on or the position you are sleeping in. Ask for guidance about that from the PT.

You may need a firmer bed. If you sleep on your side, put a large pillow between

your legs....and also maybe a small folded towel at your waist. You are tying to

align the spine in a neutral position. Sleeping on your back with a small pillow

under your knees is also a good position. You should expect to get practical

suggestions to try. The reason that accupuncture might not be long lasting for

you is that it is giving pain relief, but then you keep doing the thing that

causes the pain????

Good luck with this. Be an active participant in figuring out what works best

for you.

C. (former PT back specialist)