Thank you!

[Guest guest]

Dear Dina,

I've been somewhat bloated lately. What food combining are you doing that

has helped? Thanks in advance for any info you might send.

AntJoan

------------------------------------------------------------------------

[Guest guest]

Hi AntJoan,

I have been doing no meat dairy or sugar,from Marilu Henner's book,

but the article in Woamns days also did the same thing from food

combining. Also eating sprouted bread instead of yeast bread has

really made a difference.

ALL YOU CAN EAT

Proteins

*Meat & Fish

*Dairy Products

*Whole eggs

*Fruits

(Because they require acid to be digested properly)

except those on the starch list.

Now in Marilu Henner's book she says not to eat fruit with 2 hours of

eating anything else. Eat fruit first thing in the morning and then 2

hours later eat your oatmeal. And your in between meals eat fruit.

STARCHES

*Poatoes

*Grains, including bread rice & pasta

*Egg Yolks

*Soy Products

*Beans, Peas and lentils

*Bananas, pears, grapes, dates and figs (Becuase they require alkaline

enzymes to be digested properly)

NEUTRAL FOODS

*Vegetables

*Salads

*Herbs

*Nuts and seeds

*Fats and Oils

Each day eat one meal that includes protein, one meal that has starch

and one meal that's neutral or alkaline. And portions are unlimited.

To ensure proper digestion, space your meals four hours apart. If you

get hungry between meals enjoy fresh fruit, nuts and seeds.

>From: AntJoan@...

>Reply-hyperthyroidismegroups

>hyperthyroidismegroups

>Subject: Re: Thank you!

>Date: Fri, 23 Apr 1999 19:08:54 EDT

>

>Dear Dina,

>

>I've been somewhat bloated lately. What food combining are you doing

that

>has helped? Thanks in advance for any info you might send.

>

>AntJoan

>

>---------------------------------------------------------------------

---

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>Sync! Shock Resistant and Loaded with Features! Electo-luminescent,

>Satisfaction Guaranteed*No-Hassle Returns*Only $69 Free Freight in US

>http://clickhere./click/143

>

>

[Guest guest]

Hello again <smile>

As I haven't been with the group for a while I really don't know 'where

you're at,' but obviously now is not a good time for you.....really sorry to

hear that. The symptoms you describe below must be very trying to say the

least! <caring hug>

Assuming you're on the AP (sorry I don't remember!) a backward step can be a

good sign, a sign that things are definitely getting stirred up. All the

'critters' are getting chased out of their hiding places and into the blood

stream causing havoc as they go. But the operative word is 'GO' they are

heading out and that's good news!! Are you drinking looooooooooooooooots of

water to help them on their way? Look for that forward step, it's coming!

I'm sure you know all this already so I'm sorry if it's repeating the

obvious, hopefully a gentle reminder for all of us isn't to much out of

place<smile>

Depression is a real bummer, it's so hard to stay up when things just go on

and on and on and never seem to let up. Having that work commitment makes it

extra hard for you as you simply can't take time out and let your body

rest:-( Don't feel badly about the 5mg of Prednisone, at that low dose it's

better to take it and manage on a day to day basis than to be in pain and

miserable. It's the high long term doses that take such a terrible toll on

the system, short, low doses are much more palatable... so to speak<smile>

Even Dr Brown used it when he felt it was necessary.

one does come out the other end with the depression and despite how

you feel right now I think you are coping really well. You are still able

to find things to be positive about so your 'attitude' is good and that's

just great..............well done<warm hug>

Atta girl you'll have this beat in no time at all.

hugs,

lisbeth

rheumatic Thank you!

>From: M Carroll <LCARROLL@...>

>

>Dear , Liz G, Lisbeth, Luann, ,Carol E, (gosh ladies we have

>a lotta " L's " in this group!) and anyone I may have left out...

>

>Thank you so much for your support and your advice. I was so down as the

>quality of my life has been so reduced but I have to believe it is

>temporary. I definalty must be in the get worse stage. This is the first

>time in the course of the disease that the depression has set in. I am

>crying at the drop of a hat and have zero appetite ( but who would with

>this mouth condition where your mouth feels like I have been sucking on a

>penny coated with acid!)

>

>

>I hated to, but gave in to taking 5 mg of prednisone and it has helped my

>mobility today. Will be starting VIOXX tomorrow . I thought the Celebrex

>wasn't doing very much good but since my stomach has been messed up and I

>had to be off of it for three days boy can I tell a difference. I guess if

>I didn't have to work I could be stronger and suffer out the stiffness and

>pain a little better but that isn't an option right now.

>

>, the burning tongue articles really helped as the bitter taste with

>the burning tounge suited to a " T " .

>

>Carol E, after reading the sjogren's symptoms I may not have as many as I

>thought. ]

>You seven ladies were such a great help in my " crisis " .

>Fire in the joints and fire in the tougue. ( whew....) My internist did a

>B-12 test yesterday . Will let you know if that is the cause as some of you

>may get these unexpected symptoms.

>

>On the positive side... I have great hair and nails since the AP! This is

>the first time in almost 15 years that I have been able to grow my hair and

>nails long. Guess I need to be searching for the positive things and try to

>stay away from the negative thoughts.

>

>Thanks again!

>

> C

>

>>

[Guest guest]

HI ,

My tongue bothered me in a similar way.......it felt like I had touched it to

one of those 9 volt batteries......sort of a burning sensation. In my case, I

felt like it was a yeast problem. It pretty much continued until I ordered

some Olive Leaf Extract from East Park. (pretty expensive stuff....but worth

it) I had tried Dr. Franco's Candida Plus, but it gave me horrendously bad

breath! My family stayed clear away from me and I can only imagine what other

people thought :-) Well, the olive leaf has cleared up my tongue

discomfort....as long as I stay off the sugar.

This just a suggestion. You might want to look into other options. Also, I

had sort of a herx when I started the olive leaf....the rash part of my disease

(dermatomyositis) flared quite a bit. I took this as a positive sign that the

olive leaf (a natural antibiotic) was working in other areas, too.

take care,

Connie

M Carroll wrote:

> From: M Carroll <LCARROLL@...>

>

> this mouth condition where your mouth feels like I have been sucking on a

> penny coated with acid!)

>

[Guest guest]

Connie and all,

This was a most interesting post. I have a different diagnosis from most on

this list, Chronic Fatigue Syndrome, but since I have mycoplasma incognitus

infection, I suspect we are all in the same ball park. It is interesting in

my case, that my very first symptom was a constantly burning tongue. Of

course, I assumed it was candidiasis. Only nothing for yeast ever touched

it. My doctor also suggested zinc which I learned later was actually a good

idea, but it didn't help the tongue.

Now, if I stay on antibiotics the burning tongue eventually clears. It was

my first symptom and is also the last to go away. IT comes back when I

overdo - like too much stress.

I suspect that the olive leaf extract is really working as a natural

antibiotic and the burning tongue is mild nerve damage caused by

inflamation. Not that the yeast thing is no a major factor is

desregulating our immune sytem - just that the tongue symptom is probably

NOT thrush. I am basing this on my experience - so take it for what it is

worth.

a Carnes

> From: Connie Hache <jhache@...>

>

> HI ,

> My tongue bothered me in a similar way.......it felt like I had touched it

to

> one of those 9 volt batteries......sort of a burning sensation. In my

case, I

> felt like it was a yeast problem. It pretty much continued until I

ordered

> some Olive Leaf Extract from East Park. (pretty expensive stuff....but

worth

> it) I had tried Dr. Franco's Candida Plus, but it gave me horrendously

bad

> breath! My family stayed clear away from me and I can only imagine what

other

> people thought :-) Well, the olive leaf has cleared up my tongue

> discomfort....as long as I stay off the sugar.

>

> This just a suggestion. You might want to look into other options. Also,

I

> had sort of a herx when I started the olive leaf....the rash part of my

disease

> (dermatomyositis) flared quite a bit. I took this as a positive sign that

the

> olive leaf (a natural antibiotic) was working in other areas, too.

>

> take care,

>

> Connie

>

> M Carroll wrote:

>

> > From: M Carroll <LCARROLL@...>

> >

> > this mouth condition where your mouth feels like I have been sucking on

a

> > penny coated with acid!)

> >

>

>

[Guest guest]

Hi Kim:

So what meds is Casey on right now?

Squirt324@... on 11/10/99 11:49:21 AM

Please respond to onelist

onelist

cc: (bcc: Afsi Goodarzpoor/C/Fairfax/Mobil-Notes)

Subject: [ ] Thank you!

Hey all,

I just wanted to send a quick thank you to those of you who " nudged " me in

the right direction. I called Casey's doctor and they took her off Naprosyn

and on Ibuprofen. They also upped the dosage. So far all she is doing is

sleeping, and has developed a small rash in her diaper area, so I don't know

how well this will take, but at least I called. And my Dr. actually called

me back..wow! I like that. So thank you, for lending your ears, shoulders,

and advise to me.

Kim

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Date: Sun, 07 Nov 1999 17:23:33 -1000

From: Georgina <gmckin@...>

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From: Georgina <gmckin@...>

Oh, Janet! And here I thought that maybe it was some of my stories that

might have scared Kim :-) These kids, when being treated correctly, can

be in great shape for long periods of time. It's just these darn flares,

that when they come along seem to turn the whole world upside down.

Take care,

Georgina

> From: " Janet & Gilbert Moyer " <gjam@...>

> Hi Kim,

>

> I hope I did not scare you..... I was just amazed at how similar our

> children are. Mandy has also gone through periods where she is totally pain

> free. Some children have been known to grow out of JRA. Several times I

> thought she was, as she could run circles around her brother...... Once

> again, I do hope I did not scare you in any way. Take care, Janet

>

> ----- Original Message -----

> > From: Georgina <gmckin@...>

> > Hi Kim,

> >

> > I sure hope some of the recent emails haven't scared you. Though there's

> > still no cure for JRA, there are lots of different treatments. And a lot

> > of times they work really well to help control this illness. JRA

> > symptoms can range from being very mild to severe. JRA can affect just

> > one joint or many. The systemic type can affect other organs as well,

> > causing fevers, rash and inflammation all over. It's different for each

> > person and can change over time. With proper treatment JRA can be

> > controlled ... and the children often times won't have any outward

> > symptoms at all.

> >

> > I think it's great that your doctors are at least exploring the

> > possibility of JRA. In the past, it used to go untreated for long

> > periods and there was greater chance of joint damage occurring. If it is

> > JRA and you catch it early on, you may be able to prevent this from

> > happening. Or at least slow it down. Has your daughter seen a

> > rheumatologist or just her pediatrician? A rheumatologist would probably

> > be better qualified to treat her and have more knowledge and experience.

> >

> > Naprocyn was one of the first meds they prescribed for my son josh.

> > Unfortunately, it didn't do a darn thing for him. Didn't stop the fevers

> > or help the inflammation or pain much, either. When they tried another

> > NSAID, indomethacin, we saw a positive difference.

> > He also needed other meds too but your daughter may not. If your

> > daughter does in fact have JRA and the NSAID's alone don't give enough

> > effect, they may mention trying methotrexate. It's more commonly being

> > prescribed earlier in the treatment plan and often has very good

> > results. I guess the doctors will talk more about these kinds of options

> > when you see them next month. If she seems to be in a lot of pain still,

> > or any other symptoms get worse, you might want to call them earlier.

> > They'll probably be very glad to be informed of her progress or lack of

> > progress.

> >

> > My son hasn't used leg splints. He's needed them for both his wrists,

> > though. Sometimes during the night, most times during waking hours. Josh

> > has never had steroid injections into his joints. He's needed to take

> > them orally though, to help control the systemic symptoms. Others here

> > can offer their personal experiences and that might help a little.

> >

> > Try not to feel too pressured by concerned family members and friends.

> > They want to understand this better and know what they can do to help.

> > It's a great feeling to know that you have supportive people close by

> > but sometimes this illness can be very hard to understand. Sometimes

> > everything seems just fine and without warning, things can take a turn

> > for the worse. Or vice versa. I think it gets easier to deal with over

> > time but it can still be stressful when unexpected things pop up. You

> > really have to take things one day at a time and learn to be ready for

> > whatever comes up, while appreciating those periods when everything is

> > going really well.

> >

> > We're here for you, whenever you need some cyber support. Anytime you

> > have worries or questions, just send a note. I'm sure you'll get

> > responses from those of us who have already been there and done that.

> > Let us know how everything's going, okay?

> >

> > Aloha,

> > Georgina

> >

Visit my homepage for a list of sites with info on childhood arthritis:

http://www.geocities.com/Heartland/Village/8414/

[Guest guest]

Afsi,

Casey is on Ibuprofen right now. it is making her very tired and cranky (or

it may be that it's not working right.) I am calling the doctor on Monday.

Kim

[Guest guest]

Hi Ben,

My heart goes out to you at this time, and I will send peaceful prayers to

you.

God Bless you as you remain strong and steadfast.

Diane

At 09:13 AM 12/30/99 -0500, you wrote:

>I would like to thank you all for all the information and help you have

>given me, especially to Ginny Darby who offered me a free months supply of

>her Just-t. Unfortunatly, the love of my life, Francesca Elise Bishop, or

>ie as she liked to be called, passed away tuesday mourning at 6:45

>a.m. of complications from leukemia and pneumonia. She was 28. I loved her

>very much and will miss her terribly. Thank you all for all your help, and

>I hope you all find the cure you need. I will continue to support

>alternative medicine, for I believe that if I had had access to this

>information months ago, things might have turned out differently. Thank you

>all, and god bless you. Love, Ben

[Guest guest]

Thank you!

>Thanks Gillian,

>

>This is just a quick note to let you know that your message went through.

>

>As you may have assumed, we get too many messages to answer personally, but

we

>do read them all. If a producer takes interest in what you wrote, you'll

>likely be getting a call or an email back. That could be soon or later on.

>

>We are grateful that you wrote to The Oprah Winfrey Show!

>

>Sincerely,

>The Oprah Online Staff

>

[Guest guest]

Debbie.. The Cleveland Clinic is one of the best if not the best in the

U.S. See Dr. Wm. Carey who is head of Hepatology he has a terrfic staff.

I go there and had my transplant there. You cant get better help

anywhere else..

Jerry

My name is Debbie (not sure how to edit & put that in this system). I

was diagnosed HepB in 1979 (then it " resolved " ). In 1986 or so came

home from work one day & couldn't get into bed quickly enough & then

couldn't move. I went to every specialist my internist could find.

Considered Lupus, CFS, RA, & many other diagnoses. Went to Cleveland

Clinic & they determined Hep C & Autoimmune. Wouldn't put me on

Imuran or Interferon because they said treatment for one type would

exacerbate the other type of Hep. Told to have regular tests & take

it easy. I work 7 days a week in stressful job. Every Fall I have a

relapse of sorts. Have always had problems with sinus, allergic

rhinitis, etc. Am nearly 50 years old. My internist wants me to see a

hepatologist. Anyone suggest a good Doctor or Center in Ohio or

nearby? Sorry this is so long. I am glad I found this group-have

already checked into some of the sites you have suggested! Debbie

[Guest guest]

Dear Debbie,

Randy and I go to the Cleveland Clinic also. I agree with Jerry, they are first class there. We see Dr. who works with Dr. Carey. Great bunch of doctors.

Cheryl & Randy

Randy tx 12-14-99 AIH

Cheryl is his donor

Cleveland Clinic Foundation in Ohio

[Guest guest]

Hello!

Thanks for the info.....I kind of suspect that both

are related....have autopsy report from my mother when

she died and I am planning to contact her doctors to

find out if thyroid was ever checked and if she had

any thyroid problems....

I am learning very quickly about the thyroid and when

I see the specialist, I will take all my info with

me...Thanks again for your help!

Dianna Oliver

PS. Thank goodness for the net, and this site as

e-mailing your members has helped me and certainly

makes me feel that I am not alone with this health

problem. I wish that my mom who died in 1989 could

have had the same resources in Belleville, Ontario,

Canada. Thanks again all!

--- daisyelaine@... wrote:

> Hi Dianna,

> Celiac disease (gluten sensitivity enteropathy or

> GSE) and Graves' disease

> are very much related. The same immune system

> antigens HLA DR3 and B8 that

> make one susceptible to Graves' disease make one

> susceptible to developing

> insulin dependent diabetes mellitus (IDDM), GSE, and

> several other disorders.

>

> Of interest, several recent studies indicate that

> following a gluten free

> diet for 3-6 months will lower both gliadin and

> thyroid antibody titers.

>

> My article, Graves' disease and Gluten Sensitivity

> can be found on my suite

> 101 thyroid site. just go to www.suite101.com and

> look up graves' disease or

> elaine moore for a list of my articles. This article

> is from Jan 5, 2001

>

>

> Visit my Web Site at

> http://daisyelaine_co.tripod.com/gravesdisease/

>

__________________________________________________

[Guest guest]

I want to thank

you sincerely for this article.  This is

an issue that affects the world as is everyone who suffers from autoimmune

disease or other diseases.  God Bless.

Darcy

[ ] from a

Canadian newspaper,

This, from a

Canadian newspaper, is worth sharing.

America: The Good Neighbor.

Widespread

but only partial news coverage was given recently to a remarkable editorial

broadcast from Toronto by Gordon Sinclair, a Canadian

television commentator.

What follows

is the full text of his trenchant remarks as printed in the Congressional

Record:

" This

Canadian thinks it is time to speak up for the Americans as the most generous

and possibly the least appreciated people on all the earth.

Germany, Japan and, to a lesser extent, Britain and Italy were lifted out of the debris of war

by the Americans who poured in billions of dollars and forgave other billions

in debts. None of these countries is today paying even the interest on

its remaining debts to the United States.

When France was in danger of collapsing in 1956,

it was the Americans who propped it up, and their reward was to be insulted and

swindled on the streets of Paris. I was there. I saw it.

When

earthquakes hit distant cities, it is the United States that hurries in to help. This

spring, 59 American communities were flattened by tornadoes.

Nobody

helped.

The Marshall

Plan and the Truman Policy pumped billions of dollars into discouraged

countries. Now newspapers in those countries are writing about the

Decadent, warmongering Americans.

I'd like to

see just one of those countries that is gloating over the erosion of the United States dollar build its own airplane.

Does any other country in the world have a plane to equal the Boeing Jumbo Jet,

the Lockheed Tri-Star, or the DC10?

If so, why

don't they fly them? Why do all the International lines except Russia fly American Planes?

Why does no

other land on earth even consider putting a man or woman on the moon? You

talk about Japanese technocracy, and you get radios.

You talk

about German technocracy, and you get automobiles. You talk about

American technocracy, and you find men on the moon - not once, but several

times -and safely home again.

You talk

about scandals, and the Americans put theirs right in the store window for

everybody to look at .

Even their

draft-dodgers are not pursued and hounded. They are here on our streets,

and most of them, unless they are breaking Canadian laws, are getting American

dollars from ma and pa at home to spend here.

When the

railways of France, Germany and India were breaking down through age, it was

the Americans who rebuilt them. When the Pennsylvania Railroad and the

New York Central went broke, nobody loaned them an old caboose. Both are

still broke.

I can name

you 5000 times when the Americans raced to the help of other people in

trouble. Can you name me even one time when someone else raced to the

Americans in trouble? I don't think there was outside help even during

the San Francisco earthquake.

Our

neighbors have faced it alone, and I'm one Canadian who is damned tired of

hearing them get kicked around. They will come out of this thing with

their flag high. And when they do, they are entitled to thumb their nose

at the lands that are gloating over their present troubles. I hope Canada is not one of those. "

* * * * * *

* * * *

Stand proud,

America!

This is one of the best editorials that I have ever read regarding the United States. It is nice that one man

realizes it. I only wish that the rest of the world would realize

it. We are always blamed for everything, and never even get a thank you

for the things we do.

I would hope

that each of you would send this to as many people as you can and emphasize

that they should send it to as many of their friends until this letter is sent

to every person on the web. I am just a single American that has read

this. I

SURE HOPE THAT A LOT MORE READ IT SOON.

Your eyes

are the windows to your soul, your soul is the door to your heart, your heart

is a portrait of who you are, your eyes speak from your soul, your

smile is your welcome mat. Soooooo, smile at everyone, laugh at everything, it

is contagious, music to the heart, makes people wonder what the heck you are up

too... and be healthy, love a lot, the more love you give the more you get in

return.....

Be An ORGAN DONOR, you could save a life.....

Joan

Fox 's Den

http://foxdianasden.com

Foxy's Health

http://www.foxdianasden.com/Health.htm

My

http://www.foxdianasden.com/spinalcordinjuries.htm

Domestic Violence - My Story

http://foxdianasden.com/domesticviolence.htm

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[Guest guest]

Uh, excuse me, what do you mean by good by? You're surely not leaving us are

you? I hope that was simply the end of that email!

Thank You!

I just wish to take a moment to say thank you to everyone, for lending an

ear when it has been needed.

This e-list has given me a great deal of understanding, assisting me in

acquiring a greater knowledge to better deal with, something I have living

with for so long.

Inwardly I have lived my life as though I was sealed in a bubble, feeling so

set apart from others. Even though I did attend a school that seen to the

needs of the blind and visually impaired, there was still that square peg in

the round hole syndrome. This group has helped me in so many ways of

acceptance, acceptance of my place in society. So very much . The wealth of

knowledge that is available in this group is so invaluable. So again I say,

Thank You and Good bye.

Morse

[Guest guest]

why good bye ?

Robbin

[Guest guest]

That is exactly what went through my mind.You better not leave us,whos going to

make me laugh when all I want to do is cry. Becki and barefooten Dave

Tepper, Michele wrote:

> Uh, excuse me, what do you mean by good by? You're surely not leaving us are

> you? I hope that was simply the end of that email!

>

> Thank You!

>

> I just wish to take a moment to say thank you to everyone, for lending an

> ear when it has been needed.

> This e-list has given me a great deal of understanding, assisting me in

> acquiring a greater knowledge to better deal with, something I have living

> with for so long.

> Inwardly I have lived my life as though I was sealed in a bubble, feeling so

> set apart from others. Even though I did attend a school that seen to the

> needs of the blind and visually impaired, there was still that square peg in

> the round hole syndrome. This group has helped me in so many ways of

> acceptance, acceptance of my place in society. So very much . The wealth of

> knowledge that is available in this group is so invaluable. So again I say,

> Thank You and Good bye.

> Morse

>

>

[Guest guest]

--- A Morse <dam755@...> wrote:

> I just wish to take a moment to say thank you to

> everyone, for lending an

> ear when it has been needed.

> This e-list has given me a great deal of

> understanding, assisting me in

> acquiring a greater knowledge to better deal with,

> something I have

> living with for so long.

> Inwardly I have lived my life as though I was sealed

> in a bubble, feeling

> so set apart from others. Even though I did attend

> a school that seen to

> the needs of the blind and visually impaired, there

> was still that square

> peg in the round hole syndrome. This group has

> helped me in so many ways

> of acceptance, acceptance of my place in society.

> So very much .

> The wealth of knowledge that is available in this

> group is so invaluable.

> So again I say, Thank You and Good bye.

> Morse

> Dear , where are you going?

__________________________________________________

[Guest guest]

..you have me puzzled..are you leaving us..I hope not ..I look forward

to reading what you have to say..I feel you are apart of the family..please

let us know..what is going on and if you are leaving..why?

karen(tab17..poly)

From: A Morse <dam755@...>

Reply-

Subject: Thank You!

Date: Wed, 10 Apr 2002 10:51:12 -0400

I just wish to take a moment to say thank you to everyone, for lending an

ear when it has been needed.

This e-list has given me a great deal of understanding, assisting me in

acquiring a greater knowledge to better deal with, something I have

living with for so long.

Inwardly I have lived my life as though I was sealed in a bubble, feeling

so set apart from others. Even though I did attend a school that seen to

the needs of the blind and visually impaired, there was still that square

peg in the round hole syndrome. This group has helped me in so many ways

of acceptance, acceptance of my place in society. So very much .

The wealth of knowledge that is available in this group is so invaluable.

So again I say, Thank You and Good bye.

Morse

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

Hi ,

That message was very warm and touching. I'm so glad you found us too ... or that we found you. You fit in just perfectly here : ) You've become a very special friend to many of us here and we look forward to your postings.

Thanks,

Georgina

----- Original Message -----

From: A Morse

I just wish to take a moment to say thank you to everyone, for lending anear when it has been needed. This e-list has given me a great deal of understanding, assisting me inacquiring a greater knowledge to better deal with, something I haveliving with for so long. Inwardly I have lived my life as though I was sealed in a bubble, feelingso set apart from others. Even though I did attend a school that seen tothe needs of the blind and visually impaired, there was still that squarepeg in the round hole syndrome. This group has helped me in so many waysof acceptance, acceptance of my place in society. So very much .The wealth of knowledge that is available in this group is so invaluable.So again I say, Thank You and Good bye. Morse

[Guest guest]

Dear ...learning to balance life is one of the hardest though most

important parts of coping with these illnesses. We're all in different

stages & seasons of learning.

Don't worry about developing a sense of humor...stick around here awhile

and you'll find we are a WILD and CRAZY bunch! Our dear Debs, who is

recovering from a double-dose of knee surgery, keeps us all hopping!

And we all have our silly streaks...it keeps us sane in the midst of it

all!

Welcome again. I wish you a peaceful, pain-free night.

Hugs of Hope....

Tess

[Guest guest]

<< Use to be highly

energetic...so to top things off, when I don't feel well, I tend to

feel guilty like I should be doing something instead of nothing. I

just end up going in circles...(Just like a dog chasing his tail!!)>>

Hi , and welcome! I have family in town, so I'm late getting to my

email right now. As you can see by all the quick replies, this is a great

bunch of friends. Our moderators, and a, also share lots of

cutting edge articles on RA and other autoimmune disorders. They're right

there with sound information if we have a question or problem, too.

I do the same thing you do, spinning my wheels and getting nowhere fast. I'

m sorry you're hurting right now. I just got my first Remicade infusion the

other day, and I've been overdoing it, too. I woke up this morning and can

feel the effects. Ouch! Hopefully today will be a pain free day.

Love and hugs,

Carol (36/FL)

[ ] Thank you!

Wow!

Thank you for all the wonderful welcomes!

Just typing to all of you earlier made me feel better...

Sometimes this whole mess is just SOoooo Frustrating!! I agree with

you Tess, it IS VERY difficult sometimes to tell where the RA leaves

off and where the fibro begins.

My toes, knees, hands & fingers hurt so bad, knuckles feel like glass

today.. my upper arms/muscles feel like I'm pulling cement. Funny

thing, 2 days ago I felt great, probably did to much and triggered

all this. The frustrating part is I just don't know when to

" draw the line " when I am feeling good. Use to be highly

energetic...so to top things off, when I don't feel well, I tend to

feel guilty like I should be doing something instead of nothing. I

just end up going in circles...(Just like a dog chasing his tail!!)

Trying to understand myself and realize this is a part of me now..and

MOVE FORWARD!! I Seriously need to develope a sense of Humor!!

" Bark-Bark " Ha Ha

Thanks again everyone,

/38/CA

[Guest guest]

Hi ,

I tend to do the same thing, Good days I push like crazy then pay for

it the next week or so. Problem is I have been doing this for years!!!

Maybe I'm a little slow??? Giggle Giggle. I just wasn't raised to sit

around and let the world go by. Heres to more good days!!!!

Huggs

Lena

Funny

> thing, 2 days ago I felt great, probably did to much and triggered

> all this. The frustrating part is I just don't know when to

> " draw the line " when I am feeling good. Use to be highly

> energetic...so to top things off, when I don't feel well, I tend to

> feel guilty like I should be doing something instead of nothing. I

> just end up going in circles...(Just like a dog chasing his tail!!)

>

> Trying to understand myself and realize this is a part of me

now..and

> MOVE FORWARD!! I Seriously need to develope a sense of Humor!!

>

> " Bark-Bark " Ha Ha

> Thanks again everyone,

> /38/CA

[Guest guest]

Where are you located?

(Delaware)

heis1am@...

[Guest guest]

You have every reason to feel hopeful. When you worry its like paying interest

on a loan that hasn't been made yet. Just hold on to that hope. What ever you do

dont give that up! As for your kids I have 3. Thats something to think about.I

don't know what I would do. If it would make you feel better, maybe. BK

rie19464 wrote:Thank you everyone for your kind responses. I have to be honest

-

I'm scared to death now. I was feeling pretty hopeful but now -

WOW. I printed your posts to give to my doctor so I know what

questions to ask and what information I need. I'll try and find out

if the infectious disease guy that I'm seeing in September is

an " LLMD " . I have another question. I take my kids everywhere I go

and chances are wherever I was when I was bit by the tick my kids

were standing next to me. Should I have them tested also?

Thanks again for all the information.

[Guest guest]

Sorry we are bombarding you with so much information. We are only

trying to inform you of the myriad of mistakes which have put most of

the people on this list in the " chronic " category, so that you can

avoid them and successfully treat yourself in the short term. You

have every reason to be hopeful and with the understanding you are

gaining should come through everything with minimal difficulty. One

of the most tragic mistakes is to undertreat someone who actually

gets an early diagnosis. You are very lucky to have found it early.

Just don't stop treatment too soon and you will most likely be fine.

I am treating in the early stages as well and, even after having gone

through 4 years of this disease with my husband, I am very positive

that I will kick it soon. Your fear is normal, but once you have

processed all this new information it will hopefully subside and you

can move forward.

Tamara

>

>rie19464 wrote:Thank you everyone for your kind responses. I have

>to be honest -

>I'm scared to death now. I was feeling pretty hopeful but now -

>WOW. I printed your posts to give to my doctor so I know what

>questions to ask and what information I need. I'll try and find out

>if the infectious disease guy that I'm seeing in September is

>an " LLMD " . I have another question. I take my kids everywhere I go

>and chances are wherever I was when I was bit by the tick my kids

>were standing next to me. Should I have them tested also?

>

>Thanks again for all the information.