Thank you!

August 20, 2002

Our experience with Infectious disease doc's is they take the CDC approach that

it's not lyme, it's old age, or someother ridiculous dodge. Expect an ache or

pain every now or then go home, take aspirin, die, who cares, just leave me

alone. If it is lyme, well then, 28 days of abx will do the trick. If it doesn't

you never had lyme. Hopefully there are some good ones out there, like the one

you're seeing. The ones out here in So. central PA are awful. I had one refuse

to treat me even though I was symptomatic as heck.

Having had symptoms for a few weeks prior to the dx is probably enough for the

doc to treat you til you feel better. 28 days won't likely be enough. I wouldn't

worry too much. It;s not like you had it for years. You might look into

alternatives too to take starting now and continuing past the cut off date of

the abx.

Don't test the kids unless they develop symptoms. Even if they were bitten,

remember not all ticks carry disaese. If they develop a rash and symtoms a LLMD

won't bother with testing. He/she will dx clinically.

Dave

[ ] Thank you!

Thank you everyone for your kind responses. I have to be honest -

I'm scared to death now. I was feeling pretty hopeful but now -

WOW. I printed your posts to give to my doctor so I know what

questions to ask and what information I need. I'll try and find out

if the infectious disease guy that I'm seeing in September is

an " LLMD " . I have another question. I take my kids everywhere I go

and chances are wherever I was when I was bit by the tick my kids

were standing next to me. Should I have them tested also?

Thanks again for all the information.

March 21, 2003

Just wanted to thank everyone for all the kind words you sent me. It really

made me feel good. Thank you for that.

Also, thanks for the decorating tips. I'll let you know what we come up with

April 9, 2003

You are welcome for the replies.

Most of our plagio cases are caused by sleep position....check out

this link for causes of plagio:

http://www.plagiocephaly.org/support/causes.htm

And about none of us in the group had ever heard of " plagio " or flat

heads until after our child had developed it.

You'll be in great hands with the DOCband. Cranial Technologies (maker

of the DOCband) are terrific and experts in treating plagio!! Check

out their webpage for more great plagio info:

http://www.cranialtech.com/

Debbie Abby's mom DOCGrad

MI

> Thanks to everyone who replied to my post. Baby Mo (Moira) will be

> in a DOC band, I believe. That's the booklet they gave me. I've

> never heard of any of this stuff, and I was in medical insurance for

> years! Thankfully, at this time, we have Moira on Medicaid, and

> they cover this. I've been reading that it can get rather

> expensive! Since I have a 2 1/2 year old and a 4 1/2 month old, I

> don't have a lot of time to sit and read, but I'll be looking

> through here and getting as much info as I can when I get the chance.

>

> Does anyone ever tell you what they believe may have caused your

> child's specific problem? I think it's one of two things with

> Moira. She sleeps with us, use to sleep mostly with her head on my

> arm on her right side. I can't imagine that would make her plates

> overlap on the left side, though. The other thing that I wonder

> about is that the Dr. who delivered her used the vacuum to get her

> out, because she was sort of wedged sideways in the birth canal.

> It's sounding like this may have been the culprit. Either the

> vacuum, or her being wedged, or perhaps both. My older daughter

> came out with the vacuum, as well, because she had turned facing the

> side, not that she was wedged sideways (if that makes sense), and

> she hasn't had any problem. With Moira, I was going to a midwife,

> and then at the end of the pregnancy, she was transverse, plus I had

> a low placenta, so the midwife and I both decided it would be best

> if I went to an OB, in case I needed a C-section. She did get into

> the correct position, and I was able to deliver her vaginally in the

> end, but it wasn't a very good experience. She and I have both had

> problems since, and I wonder how gentle the Dr. was with that

> vacuum. We didn't even realize she'd used it until we had watched

> the birth video, that my husband took, about 7 times, then I noticed

> her, at one time, say " vacuum " , and realized what she was doing.

> Didn't bother me, because, like I said, my first had it used on her

> with no problem. But, this was a different state, different Dr.,

> different hospital, and I just wonder....

>

> Any ideas?

>

> Caro (rowwith)...mom of Baby Mo (Moira) in Texas

April 9, 2003

I guess it's quite possible this was caused by her sleep position.

Maybe I just don't want to think of it as being my fault, but maybe

it was. My first daughter slept mostly in her bassinet and crib for

the first 6 months, before she ended up in our bed (a long story).

Moira has been in bed with us since night one, and I started

sleeping with her on my arm because we were in a full sized bed,

with my 2 1/2 year old there, as well, because I didn't want to roll

over on her and I didn't want my 2 1/2 year old rolling over on

her. Now we have a king sized bed, much more room, and she sleeps

more just on the bed. She did have a large lump on her head, due to

the vacuum I presume, for several weeks after she was born (my first

daughter's vacuum lump was smaller and went away faster). Then once

it went down, we noticed that the right side of her head was still

bigger or higher up than her left side, and the back of her head is

kind of smushed on the right side (that does look like how she

sleeps, I suppose). Her pediatrician said that it wasn't that the

right side was bigger or higher than the left side, it was the that

the left side was depressed, which lead her to believe it was the

cranio thing. Btw, her dad chose the nickname " Lumpy " for her

because of her vacuum lump! LOL! Anyway, who knows. What's

strange is that normally, I'd be stressing out about this terribly!

Strangely, I'm very peaceful about it, and have no doubt that this

will take care of her problem with no trouble. We've been praying

about this for the past few weeks, since her pediatrician first said

what it might be, and we've had lots of people praying for her, so I

believe that's where my peace is coming from.

Thanks again for everyone's welcome! I look forward to getting to

know you all better!

Caro (rowwith)...Baby Mo's mom

> You are welcome for the replies.

> Most of our plagio cases are caused by sleep position....check out

> this link for causes of plagio:

> http://www.plagiocephaly.org/support/causes.htm

> And about none of us in the group had ever heard of " plagio " or

flat

> heads until after our child had developed it.

> You'll be in great hands with the DOCband. Cranial Technologies

(maker

> of the DOCband) are terrific and experts in treating plagio!!

Check

> out their webpage for more great plagio info:

> http://www.cranialtech.com/

>

> Debbie Abby's mom DOCGrad

> MI

>

> --- In Plagiocephaly , " rowwith " <rowwith@y...>

wrote:

> > Thanks to everyone who replied to my post. Baby Mo (Moira) will

be

> > in a DOC band, I believe. That's the booklet they gave me.

I've

> > never heard of any of this stuff, and I was in medical insurance

for

> > years! Thankfully, at this time, we have Moira on Medicaid, and

> > they cover this. I've been reading that it can get rather

> > expensive! Since I have a 2 1/2 year old and a 4 1/2 month old,

I

> > don't have a lot of time to sit and read, but I'll be looking

> > through here and getting as much info as I can when I get the

chance.

> >

> > Does anyone ever tell you what they believe may have caused your

> > child's specific problem? I think it's one of two things with

> > Moira. She sleeps with us, use to sleep mostly with her head on

my

> > arm on her right side. I can't imagine that would make her

plates

> > overlap on the left side, though. The other thing that I wonder

> > about is that the Dr. who delivered her used the vacuum to get

her

> > out, because she was sort of wedged sideways in the birth

canal.

> > It's sounding like this may have been the culprit. Either the

> > vacuum, or her being wedged, or perhaps both. My older daughter

> > came out with the vacuum, as well, because she had turned facing

the

> > side, not that she was wedged sideways (if that makes sense),

and

> > she hasn't had any problem. With Moira, I was going to a

midwife,

> > and then at the end of the pregnancy, she was transverse, plus I

had

> > a low placenta, so the midwife and I both decided it would be

best

> > if I went to an OB, in case I needed a C-section. She did get

into

> > the correct position, and I was able to deliver her vaginally in

the

> > end, but it wasn't a very good experience. She and I have both

had

> > problems since, and I wonder how gentle the Dr. was with that

> > vacuum. We didn't even realize she'd used it until we had

watched

> > the birth video, that my husband took, about 7 times, then I

noticed

> > her, at one time, say " vacuum " , and realized what she was

doing.

> > Didn't bother me, because, like I said, my first had it used on

her

> > with no problem. But, this was a different state, different

Dr.,

> > different hospital, and I just wonder....

> >

> > Any ideas?

> >

> > Caro (rowwith)...mom of Baby Mo (Moira) in Texas

April 9, 2003

> I guess it's quite possible this was caused by her sleep position.

> Maybe I just don't want to think of it as being my fault, but maybe

> it was.

Oh Caro!

Heavens NO NO! It's most definitley not your fault any more than the

other tens of thousands of babies with plagio!!! So don't say that,

please.

My daughter's plagio began inutero, we noticed it on weekly

ultrasounds that her head was stuck in the same position, however, we

never worried about a flat head (worried she'd NEVER come out of me,

BUT! hehe). It only worsened after birth because of her sleep position.

Some babies get it, some don't - just like crooked teeth, some get em,

some don't. Absolutely nothign you could do - especially w/o knowing

of it! Can't prevent something you don't know exists, right?!

But I'm so happy to read how at peace you are with this and getting

her a band. She should have a rounder head in no time! I forgot to

mention, Cranial Technology's average treatment time in their band is

4.5 mos., some babies are longer, some less, based on age, severity &

growth spurts. Hard to estimate...but as I mentioned earlier, given

Mo's young age, she'll be hitting many growth spurts over the next

several mos which will round that pretty little head out nicely!

It's also nice to hear how proactive your pediatrician has been with

getting Mo Xrayed and referring her for a band. Many group members

struggle to get their ped. to listen to their concerns.

Please keep us posted

Debbie Abby's mom DOCGrad

MI

April 9, 2003

Well, you will be in the best possible hands with the DOCband people -

they really know what they are doing!

There are SO many theories as to why plagio develops, but mostly it

seems to happen from inuterio constraint or sleep position. Who knows

who will get it - it's just impossible to say at this point.

Definitely not your fault - that much is for sure!

So keep us posted. At 4 1/2 months Moira (LOVE the name) should get

some great correction with the DOCband!

Marci (Mom to )

Oklahoma