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Yes, we are all different and not every medication works the same for all of us.

Celebrex did nothing for me but so far it's all I've tried other

than Vioxx and now Voltaren. About all I can say about Voltaren is that it's

better than nothing. I hope the Tylenol and Enbrel combination will

work well for you.

On Sun Jan 29 17:56 , Sue <marysue@...> sent:

>

>Celebrex is still available and might work for you. Vioxx didn't work

>

>for me at all. Bextra worked the best. Different things work for

>

>different people. My insurance company is taking Celebrex off of their

>

>formulary, so I'm trying to make do with Tylenol along with my Enbrel.

>

>

>

>Sue

>

>

>

>On Sunday, January 29, 2006, at 08:03 & nbsp; PM, Crispin wrote:

>

>

>

>> The thing that worked the best for pain was vioxx

>

>> but that is no longer an option as many of you know.

>

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Also Mobic might work for you. I liked it better than celebrex.

Sue <marysue@...> wrote: Celebrex is still available and might

work for you. Vioxx didn't work

for me at all. Bextra worked the best. Different things work for

different people. My insurance company is taking Celebrex off of their

formulary, so I'm trying to make do with Tylenol along with my Enbrel.

Sue

On Sunday, January 29, 2006, at 08:03 PM, Crispin wrote:

> The thing that worked the best for pain was vioxx

> but that is no longer an option as many of you know.

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How easy is Mobic on the stomach? I have to be careful because I had a

bleeding ulcer from over-the-counter Aleve. Sue

On Monday, January 30, 2006, at 12:25 PM, susan smith wrote:

> Also Mobic might work for you. I liked it better than celebrex.

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I really don't know, it is in the same family as alieve. I can no longer take

ant nsaids because of my kidneys, but I never had stomach problems in WI

Sue <marysue@...> wrote: How easy is Mobic on the stomach? I

have to be careful because I had a

bleeding ulcer from over-the-counter Aleve. Sue

On Monday, January 30, 2006, at 12:25 PM, susan smith wrote:

> Also Mobic might work for you. I liked it better than celebrex.

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  • 1 year later...

Hey, that's great, Carole! So glad Michele's still around. Hi, Michele!

Sharon

[ ] Thank you!

Thanks to all of you who welcomed me back! I promise that I will drop by from time to time. It may not be each day, but I am here if you feel there is something I should contribute.I am touched by the reactions you all had to my note! And guess who dropped me an email to alert me? Michele! Apparently, she was lurking! Keep up all the good work for one another! What a special place!Sincerely,Carole M.

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  • 2 months later...
Guest guest

Alice . . . I'm relieved to know your doctor removed your implants properly! . . . AND used drains. Is he/she one of our recommended doctors? . . If not, maybe he/she would be interested in being added to our list. If your doctor did an en bloc procedure and gel was contained by the capsules, you received the best procedure possible . . . That doesn't mean that you'll bounce back right away though. Silicone gel implants leak from the outset . . . tiny amounts of silicone get distributed throughout your body . . .sometimes the form "granulomas" that must be removed surgically. Sometimes the free silicone damages tissues. You are still very early in the healing process to be judging your outcome. The soreness will gradually go away . . . and sensitivity levels will change . . . you will "fluff" for as long as a year - so even there, you can't know what you will

look like. You can do a self-test for fungus/yeast/Candida. The first thing in the morning, before putting anything in your mouth, work up as much spit and you can and spit in a glass of water. Let it sit for 10-15 minutes. . . If the water is clear, or barely cloudy, no problem. . If there's a milky blob floating, with tendrils hanging down - or if there are chunks floating - or if there's a milky blob at the bottom of the glass, it indicates a problem. Depending on the outcome, you may want to educate yourself on yeast problems . .. "The Yeast Connection" is an old, but still valid book. Diet is hugely important . . . But we'll save that for later. Hugs and prayers, Rogene

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  • 7 months later...

Wow, that's amazing. How much are you taking and what differences have you

noticed? Are you using Lugols?

And congratulations!

Thank you!

Hi,

I'm a 33 yr-old male.

I must thank Gracia for her kind recommendations, and I have in fact

started high-dosage iodine...which has helped me immeasurably over the

past six months!!

So thank you for saving me, when the doctors couldn't!!

Respect!!

Henry

________________________________________________________________________

More new features than ever. Check out the new AOL Mail ! -

http://webmail.aol.com

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thanks very much Henry. It has helped me a lot too. I think I will be on

high dose for life. Hopefully I will live past tonight! My wood stove is going

full blast, my smoke alarm is broken, and a nor'easter is on the way.

Gracia

Hi,

I'm a 33 yr-old male.

I must thank Gracia for her kind recommendations, and I have in fact

started high-dosage iodine...which has helped me immeasurably over the

past six months!!

So thank you for saving me, when the doctors couldn't!!

Respect!!

Henry

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How are you Gracia?

How did you do in the storm? I lived North of Buffalo for one winter, and 12

feet of

snow in three days was enough to convince me that I wanted OUT of there. Keep

warm.

Roni

Gracia <circe@...> wrote:

thanks very much Henry. It has helped me a lot too. I think I will be on high

dose for life. Hopefully I will live past tonight! My wood stove is going full

blast, my smoke alarm is broken, and a nor'easter is on the way.

Gracia

Hi,

I'm a 33 yr-old male.

I must thank Gracia for her kind recommendations, and I have in fact

started high-dosage iodine...which has helped me immeasurably over the

past six months!!

So thank you for saving me, when the doctors couldn't!!

Respect!!

Henry

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Hi ,

No, not Lugol's - couldn't find it where I looked so I'm actually

taking Merck Iodide tablets - I get through a sheet a day (25

tablets weighing in at 200 micrograms each), split over breakfast

and evening time...

The main thing I've noticed is that my puffy face is slowly but

surely returning to normal after about 6-7 years of looking like

another person entirely (and not a very healthy one at that!)

Apart from that, it seems to " plug the gaps " I had noticed with

Armour alone - I have more energy and alertness, all that good

stuff - I feel like I'm actually about to come out of this

chrysalis, and no thanks to the bonehead docs!

Hope this helps,

Henry

>

>

> Wow, that's amazing. How much are you taking and what differences

have you noticed? Are you using Lugols?

>

> And congratulations!

>

>

>

>

> Thank you!

>

>

>

>

>

>

>

> Hi,

>

> I'm a 33 yr-old male.

>

> I must thank Gracia for her kind recommendations, and I have in

fact

> started high-dosage iodine...which has helped me immeasurably over

the

> past six months!!

>

> So thank you for saving me, when the doctors couldn't!!

>

> Respect!!

>

> Henry

>

>

>

>

>

>

_____________________________________________________________________

___

> More new features than ever. Check out the new AOL Mail ! -

http://webmail.aol.com

>

>

>

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Henry,

You wrote:

>

> No, not Lugol's - couldn't find it where I looked so I'm actually

> taking Merck Iodide tablets - I get through a sheet a day (25

> tablets weighing in at 200 micrograms each), split over breakfast

> and evening time...

That is only 5 mg per day, and that is not the iodine component. It is

closer to 4 mg of iodine. You can get that much eating a lot of seaweed.

Gracia and Sam recommend at least 10 to 12 times that.

Lugol's is actually a solution with mix of elemental iodine with iodide

salts.

Chuck

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Thanks Chuck,

looks like I need to stock up on the Lugol's! Yes, I had heard that

an iodide/iodine mix is more effective...

Actually the reason I stabilised around this dosage is because any

more and the ol' ticker starts fluttering a bit...but maybe that

would pass if I kept on the higher dosage a while longer?

Best regards,

Henry

> >

> > No, not Lugol's - couldn't find it where I looked so I'm actually

> > taking Merck Iodide tablets - I get through a sheet a day (25

> > tablets weighing in at 200 micrograms each), split over breakfast

> > and evening time...

>

> That is only 5 mg per day, and that is not the iodine component.

It is

> closer to 4 mg of iodine. You can get that much eating a lot of

seaweed.

> Gracia and Sam recommend at least 10 to 12 times that.

>

> Lugol's is actually a solution with mix of elemental iodine with

iodide

> salts.

>

> Chuck

>

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good. storm is still raging, I slept until 10a! I am cooking an organic

chicken, woodstove is going, hope I can get some Xmas cards done and then watch

netflix (I am loving HBO series Rome).

I grew up on Lake Erie and I remember the snow over the rooftops.

Gracia

How are you Gracia?

How did you do in the storm? I lived North of Buffalo for one winter, and 12

feet of

snow in three days was enough to convince me that I wanted OUT of there. Keep

warm.

Roni

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I would spend the $$ on Iodoral.

http://www.breastcancerchoices.org has a good price and supports them.

Gracia

Thanks Chuck,

looks like I need to stock up on the Lugol's! Yes, I had heard that

an iodide/iodine mix is more effective...

Actually the reason I stabilised around this dosage is because any

more and the ol' ticker starts fluttering a bit...but maybe that

would pass if I kept on the higher dosage a while longer?

Best regards,

Henry

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I would spend the $$ on Iodoral.

http://www.breastcancerchoices.org has a good price and supports them.

Gracia

Thanks Chuck,

looks like I need to stock up on the Lugol's! Yes, I had heard that

an iodide/iodine mix is more effective...

Actually the reason I stabilised around this dosage is because any

more and the ol' ticker starts fluttering a bit...but maybe that

would pass if I kept on the higher dosage a while longer?

Best regards,

Henry

---

Recent Activity

a.. 9New Members

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Cancer Support

Groups on

Find answers,

connect with others.

Health

Looking for Love?

Find relationship

advice and answers.

FruitaBü Parents

on

teaching families

how to eat healthy.

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I think the old Lugols formula is hard to get now. Potency has been watered

down (used to be 5% solution, now is 2%)???? something like that, b/c supposedly

it can be used in meth production. ???

big pharma conspiracy.

Gracia

Henry,

You wrote:

>

> No, not Lugol's - couldn't find it where I looked so I'm actually

> taking Merck Iodide tablets - I get through a sheet a day (25

> tablets weighing in at 200 micrograms each), split over breakfast

> and evening time...

That is only 5 mg per day, and that is not the iodine component. It is

closer to 4 mg of iodine. You can get that much eating a lot of seaweed.

Gracia and Sam recommend at least 10 to 12 times that.

Lugol's is actually a solution with mix of elemental iodine with iodide

salts.

Chuck

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Please be very careful with a " fluttering ticker. " I have one, and it's called

Atrial

Fibrillation, and it is nothing to play with. The best thing I did was to get

a blood

pressure machine at the local Walgreen, which shows systolic pressure,

diastolic

pressure, heart rate. It also notifies me if the pressure is normal, 1st stage

high,

2nd stage high, high. One of the best things (for me ) is that it shows up

with a

special symbol that indicates whether my heart is in fibrillation. I feel it

is a very

useful tool.

The doctors said my fibrillation was due to too much thyroid hormone, so I

separated

the dose in half, one half am and one half around 4 - 5 pm. That seems to have

stopped

it. Good luck to you in getting everything straightened out.

Roni

dvanhelsing <dvanhelsing@...> wrote:

Thanks Chuck,

looks like I need to stock up on the Lugol's! Yes, I had heard that

an iodide/iodine mix is more effective...

Actually the reason I stabilised around this dosage is because any

more and the ol' ticker starts fluttering a bit...but maybe that

would pass if I kept on the higher dosage a while longer?

Best regards,

Henry

> >

> > No, not Lugol's - couldn't find it where I looked so I'm actually

> > taking Merck Iodide tablets - I get through a sheet a day (25

> > tablets weighing in at 200 micrograms each), split over breakfast

> > and evening time...

>

> That is only 5 mg per day, and that is not the iodine component.

It is

> closer to 4 mg of iodine. You can get that much eating a lot of

seaweed.

> Gracia and Sam recommend at least 10 to 12 times that.

>

> Lugol's is actually a solution with mix of elemental iodine with

iodide

> salts.

>

> Chuck

>

---------------------------------

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yes it is. I guess 5% Lugols is still available in 1 oz bottles. now it is

more expensive. :(

Gracia

Gracia wrote:

>

> I would spend the $$ on Iodoral.

Isn't that the same thing, just a pelletized version of Lugol's

proportions instead of a solution?

Chuck

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  • 3 months later...
Guest guest

They have never responded to my letter!!...Love to all.......Lea

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Thank you!

> Thanks Lea ,

>

> This is just a quick note to let you know that your message went

through.

>

> As you may have assumed, we get too many messages to answer personally,

but we

> do read them all. If a producer takes interest in what you wrote,

you'll

> likely be getting a call or an email back. That could be soon or later

on.

>

> We are grateful that you wrote to The Oprah Winfrey Show!

>

> Sincerely,

> The Oprah Online Staff

>

>

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Guest guest

Cheryl,It sounds like you have an excellent, caring physician! . . . Thank God!Please don't delay getting this fixed! . .. You've gone too long already!I'm concerned that you're living with mold! . .. Do you have a portable air filtering machine? . .. You can move it from room to room with you. . . Please have someone (not you) search out all sources of mold and eliminate them. Just washing everything with a chlorine solution (let someone else do it in an open house). Wash everything that's washable! . . Including walls and ceiling, light fixtures, AC ducts (call a pro) . .. Mold can be deadly! Nothing to fool around with!Hugs and

prayers,Rogene

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  • 5 months later...

I just wish I knew what the doctor's planning with me! Been two weeks

now and still no word, the pain gets worse every day.

>

> I am new on this list, and this is my first time posting here.

>

> I would like to thank everyone one this list who has posted about

> Epidural Steriod Injections over the past few days. I am going in for

> my first injection later this afternoon. You know you're nervous when

> you insist your boyfriend goes with you. For me I know this will be

> the first of many things to get my back/spine in some semblance of a

> working order. I have Rheumatoid Arthritis, and since I have that

> mostly under control, my doctors could no longer sweep the problems I

> was having with my back under the carpet. Finally had a MRI of my

> cervical and lumber spine, and have a laundry list of things going on.

> Two from column A, 1 from column 3, 4 from column C,..... , 2 from

> column Z. Lol, I try to keep my sense of humor. I am truly hoping

> for some relief after today. Is it normal if you need injections in

> both your lumber area and cervical areas to only do one area at a

> time? I hurt so bad at times that doing both areas would be fine

with me.

>

> Anyway, thank you for all the help you have been to me.

>

>

>

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  • 3 months later...

I am happy for you .

>

> I would like to thank all of those who have written me on list and

> off. My hip is doing very well, part of which I'd like to attribute

> to all the good karma sent my way!

>

> , Editor

>

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  • 1 year later...
Guest guest

Sorry I keep sending message, Kathy, but the hormone aspect is important for sleep.  I am fully in menopause and take 75mg of natural progesterone and twice weekly I put on a .0375 patch of Vivelle (estradiol) and that has made improvements in my sleep as well.

On Tue, May 11, 2010 at 5:41 PM, Kathy <sunbriar@...> wrote:

 

 thanks for all the personal replies about insomnia. I didnt know LDN might actually help me in that area!  I think my insomnia is hormone related (menopause) . I did notice the hot flashes have been worse this week...

 

I am wondering what kind of doses people are on for RA? I am very sensitive to all drugs, so my DR is starting me on 1.5 mg and wants to slowly work me up to 4.5mg. is this the normal dose?

 

Thanks, kathy

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Guest guest

Kathy-- 1.5mg is a prudent beginning dose for people worried and want to be

cautious. People with certain conditions are told to start at that dose, so

that's normal (it's also possible to start out at 4.5mg).

4.5mg is the maximum adult dose, unless someone weighs a lot, and I'm not

sure what the changeover weight is. But your doctor is right on target.

--

> thanks for all the personal replies about insomnia. I didnt know LDN

> might actually help me in that area! I think my insomnia is hormone

> related (menopause) . I did notice the hot flashes have been worse this

> week...

>

>I am wondering what kind of doses people are on for RA? I am very

>sensitive to all drugs, so my DR is starting me on 1.5 mg and wants to

>slowly work me up to 4.5mg. is this the normal dose?

>

>Thanks, kathy

>

>

>

>

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>01:26:00

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

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