Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 , Welcome and rest assured, you can find answers here. How difficult to be dealing with so much in a child so young. It's heartbreaking, especially when they turn off their affection toward you. My 11 year old son also seems to love objects more than us sometimes. Yesterday he saw this large styrofoam crate in which we had some food shipped to us. He picked it up, hugged it and said, " Oh, Styrofoamie, I love you! " He is quite the joker, so I'm assuming he was just trying to get a rise out of me, but based on past experience, there may be some truth in this. I told him he was going to have to add a styrofoam exposure to his therapy! Anyway, welcome and I hope we'll be able to help you. new and many questions -looooong My son who will be 5 March 1st has had sensory integration disorder since he was 18 months (maybe earlier). This is th eonly official diagnosis he has had except for anxiety which was never pinpointed. This summer we saw a pediatric psychiatrist who thought he may have OCD (at that time the main thing was attachment to odd things and counting). He hasbeen in therapy (if you can call it that) for over a year. This consists of someone coming to our house and watching us play and occasionally talking to him (he is VERY good at avoiding talking if he is uncomfortable) .His behavior is always the worst with me.Most others never see what I do. At preschool (he started in the fall) his teacher notices his need to pick up every single thing but doesn't see it interfere with other thinkgs. At home he has rituals which have become more and more pronounced and tiem consuming (must get snow off a certain car and put it in a special cup, must fix his toy cars, in a cerrtain order, must fill page he is coloring comepletly-absolutl y no blank spots). Whoa be to me if his ritual is not perfect-he will hit , buite, rage. Friday he threw heavy metal cars at me, smiled as he was hitting me and trying to bite me, etc. Last week was all the rituals. No play with me. Every time I suggested we play, it just turned into a ritual, something he had to do. I just broke down and cried a few times it was so sad. He is also very unaffectionate all of a sudden. He would always snuggle with me. Now it is things like cars in the parking lot he tells " I love you " to. My family doc and his therapist said to try him on Zoloft I am scared of the side effects as well as the possiblility that he may be bipolar (he has a strong family history of it).He has always slpet through the night but am afraid the Zoloft will disrupt that. My heart is just broken over all this. I have no where to get anwers. <!-- #ygrp-mkp{ border:1px solid #d8d8d8;font-family:Arial;margin:14px 0px;padding:0px 14px;} #ygrp-mkp hr{ border:1px solid #d8d8d8;} #ygrp-mkp #hd{ color:#628c2a;font-size:85%;font-weight:bold;line-height:122%;margin:10px 0px;} #ygrp-mkp #ads{ margin-bottom:10px;} #ygrp-mkp .ad{ padding:0 0;} #ygrp-mkp .ad a{ color:#0000ff;text-decoration:none;} --> <!-- #ygrp-sponsor #ygrp-lc{ font-family:Arial;} #ygrp-sponsor #ygrp-lc #hd{ margin:10px 0px;font-weight:bold;font-size:78%;line-height:122%;} #ygrp-sponsor #ygrp-lc .ad{ margin-bottom:10px;padding:0 0;} --> <!-- #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, sans-serif;} #ygrp-mlmsg table {font-size:inherit;font:100%;} #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean, sans-serif;} #ygrp-mlmsg pre, code {font:115% monospace;} #ygrp-mlmsg * {line-height:1.22em;} #ygrp-text{ font-family:Georgia; } #ygrp-text p{ margin:0 0 1em 0;} #ygrp-tpmsgs{ font-family:Arial; clear:both;} #ygrp-vitnav{ padding-top:10px;font-family:Verdana;font-size:77%;margin:0;} #ygrp-vitnav a{ padding:0 1px;} #ygrp-actbar{ clear:both;margin:25px 0;white-space:nowrap;color:#666;text-align:right;} #ygrp-actbar .left{ float:left;white-space:nowrap;} ..bld{font-weight:bold;} #ygrp-grft{ font-family:Verdana;font-size:77%;padding:15px 0;} #ygrp-ft{ font-family:verdana;font-size:77%;border-top:1px solid #666; padding:5px 0; } #ygrp-mlmsg #logo{ padding-bottom:10px;} #ygrp-vital{ background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;} #ygrp-vital #vithd{ font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:upp\ ercase;} #ygrp-vital ul{ padding:0;margin:2px 0;} #ygrp-vital ul li{ list-style-type:none;clear:both;border:1px solid #e0ecee; } #ygrp-vital ul li .ct{ font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-ri\ ght:.5em;} #ygrp-vital ul li .cat{ font-weight:bold;} #ygrp-vital a{ text-decoration:none;} #ygrp-vital a:hover{ text-decoration:underline;} #ygrp-sponsor #hd{ color:#999;font-size:77%;} #ygrp-sponsor #ov{ padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;} #ygrp-sponsor #ov ul{ padding:0 0 0 8px;margin:0;} #ygrp-sponsor #ov li{ list-style-type:square;padding:6px 0;font-size:77%;} #ygrp-sponsor #ov li a{ text-decoration:none;font-size:130%;} #ygrp-sponsor #nc{ background-color:#eee;margin-bottom:20px;padding:0 8px;} #ygrp-sponsor .ad{ padding:8px 0;} #ygrp-sponsor .ad #hd1{ font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%\ ;} #ygrp-sponsor .ad a{ text-decoration:none;} #ygrp-sponsor .ad a:hover{ text-decoration:underline;} #ygrp-sponsor .ad p{ margin:0;} o{font-size:0;} ..MsoNormal{ margin:0 0 0 0;} #ygrp-text tt{ font-size:120%;} blockquote{margin:0 0 0 4px;} ..replbq{margin:4;} --> ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 , Welcome and rest assured, you can find answers here. How difficult to be dealing with so much in a child so young. It's heartbreaking, especially when they turn off their affection toward you. My 11 year old son also seems to love objects more than us sometimes. Yesterday he saw this large styrofoam crate in which we had some food shipped to us. He picked it up, hugged it and said, " Oh, Styrofoamie, I love you! " He is quite the joker, so I'm assuming he was just trying to get a rise out of me, but based on past experience, there may be some truth in this. I told him he was going to have to add a styrofoam exposure to his therapy! Anyway, welcome and I hope we'll be able to help you. new and many questions -looooong My son who will be 5 March 1st has had sensory integration disorder since he was 18 months (maybe earlier). This is th eonly official diagnosis he has had except for anxiety which was never pinpointed. This summer we saw a pediatric psychiatrist who thought he may have OCD (at that time the main thing was attachment to odd things and counting). He hasbeen in therapy (if you can call it that) for over a year. This consists of someone coming to our house and watching us play and occasionally talking to him (he is VERY good at avoiding talking if he is uncomfortable) .His behavior is always the worst with me.Most others never see what I do. At preschool (he started in the fall) his teacher notices his need to pick up every single thing but doesn't see it interfere with other thinkgs. At home he has rituals which have become more and more pronounced and tiem consuming (must get snow off a certain car and put it in a special cup, must fix his toy cars, in a cerrtain order, must fill page he is coloring comepletly-absolutl y no blank spots). Whoa be to me if his ritual is not perfect-he will hit , buite, rage. Friday he threw heavy metal cars at me, smiled as he was hitting me and trying to bite me, etc. Last week was all the rituals. No play with me. Every time I suggested we play, it just turned into a ritual, something he had to do. I just broke down and cried a few times it was so sad. He is also very unaffectionate all of a sudden. He would always snuggle with me. Now it is things like cars in the parking lot he tells " I love you " to. My family doc and his therapist said to try him on Zoloft I am scared of the side effects as well as the possiblility that he may be bipolar (he has a strong family history of it).He has always slpet through the night but am afraid the Zoloft will disrupt that. My heart is just broken over all this. I have no where to get anwers. <!-- #ygrp-mkp{ border:1px solid #d8d8d8;font-family:Arial;margin:14px 0px;padding:0px 14px;} #ygrp-mkp hr{ border:1px solid #d8d8d8;} #ygrp-mkp #hd{ color:#628c2a;font-size:85%;font-weight:bold;line-height:122%;margin:10px 0px;} #ygrp-mkp #ads{ margin-bottom:10px;} #ygrp-mkp .ad{ padding:0 0;} #ygrp-mkp .ad a{ color:#0000ff;text-decoration:none;} --> <!-- #ygrp-sponsor #ygrp-lc{ font-family:Arial;} #ygrp-sponsor #ygrp-lc #hd{ margin:10px 0px;font-weight:bold;font-size:78%;line-height:122%;} #ygrp-sponsor #ygrp-lc .ad{ margin-bottom:10px;padding:0 0;} --> <!-- #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, sans-serif;} #ygrp-mlmsg table {font-size:inherit;font:100%;} #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean, sans-serif;} #ygrp-mlmsg pre, code {font:115% monospace;} #ygrp-mlmsg * {line-height:1.22em;} #ygrp-text{ font-family:Georgia; } #ygrp-text p{ margin:0 0 1em 0;} #ygrp-tpmsgs{ font-family:Arial; clear:both;} #ygrp-vitnav{ padding-top:10px;font-family:Verdana;font-size:77%;margin:0;} #ygrp-vitnav a{ padding:0 1px;} #ygrp-actbar{ clear:both;margin:25px 0;white-space:nowrap;color:#666;text-align:right;} #ygrp-actbar .left{ float:left;white-space:nowrap;} ..bld{font-weight:bold;} #ygrp-grft{ font-family:Verdana;font-size:77%;padding:15px 0;} #ygrp-ft{ font-family:verdana;font-size:77%;border-top:1px solid #666; padding:5px 0; } #ygrp-mlmsg #logo{ padding-bottom:10px;} #ygrp-vital{ background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;} #ygrp-vital #vithd{ font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:upp\ ercase;} #ygrp-vital ul{ padding:0;margin:2px 0;} #ygrp-vital ul li{ list-style-type:none;clear:both;border:1px solid #e0ecee; } #ygrp-vital ul li .ct{ font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-ri\ ght:.5em;} #ygrp-vital ul li .cat{ font-weight:bold;} #ygrp-vital a{ text-decoration:none;} #ygrp-vital a:hover{ text-decoration:underline;} #ygrp-sponsor #hd{ color:#999;font-size:77%;} #ygrp-sponsor #ov{ padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;} #ygrp-sponsor #ov ul{ padding:0 0 0 8px;margin:0;} #ygrp-sponsor #ov li{ list-style-type:square;padding:6px 0;font-size:77%;} #ygrp-sponsor #ov li a{ text-decoration:none;font-size:130%;} #ygrp-sponsor #nc{ background-color:#eee;margin-bottom:20px;padding:0 8px;} #ygrp-sponsor .ad{ padding:8px 0;} #ygrp-sponsor .ad #hd1{ font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122%\ ;} #ygrp-sponsor .ad a{ text-decoration:none;} #ygrp-sponsor .ad a:hover{ text-decoration:underline;} #ygrp-sponsor .ad p{ margin:0;} o{font-size:0;} ..MsoNormal{ margin:0 0 0 0;} #ygrp-text tt{ font-size:120%;} blockquote{margin:0 0 0 4px;} ..replbq{margin:4;} --> ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 Dear , I'm so sorry and heartbroken with you. This stuff is just that - gut-wrenching painful! Seems there are no easy or quick answers, but this is a great group for support and ideas to try. We'll support you however we can - keep us updated. My diagnosed son is 7, and his started severly and noticeably at 5, though there were signs before that. Some great books that helped me understand and help him a bit are: What to do when your child has OCD by Aureen Wagner Up and Down Worry Hill by the same author What to do When your Brain Gets Stuck. I haven't yet found a good therapist either, but as hard as it is to find, it would be worth searching for one trained specifically to deal with ocd, using cognitive behavioral therapy and exposure and ritual prevention. This is hard stuff to deal with, and I am just so sorry. One of the hardest ongoing things for me is to feel so misunderstood by those around me. This group helps me with that. Big hug to you and your son! Leigh Anne new and many questions -looooong My son who will be 5 March 1st has had sensory integration disorder since he was 18 months (maybe earlier). This is th eonly official diagnosis he has had except for anxiety which was never pinpointed. This summer we saw a pediatric psychiatrist who thought he may have OCD (at that time the main thing was attachment to odd things and counting). He hasbeen in therapy (if you can call it that) for over a year. This consists of someone coming to our house and watching us play and occasionally talking to him (he is VERY good at avoiding talking if he is uncomfortable) .His behavior is always the worst with me.Most others never see what I do. At preschool (he started in the fall) his teacher notices his need to pick up every single thing but doesn't see it interfere with other thinkgs. At home he has rituals which have become more and more pronounced and tiem consuming (must get snow off a certain car and put it in a special cup, must fix his toy cars, in a cerrtain order, must fill page he is coloring comepletly-absolutl y no blank spots). Whoa be to me if his ritual is not perfect-he will hit , buite, rage. Friday he threw heavy metal cars at me, smiled as he was hitting me and trying to bite me, etc. Last week was all the rituals. No play with me. Every time I suggested we play, it just turned into a ritual, something he had to do. I just broke down and cried a few times it was so sad. He is also very unaffectionate all of a sudden. He would always snuggle with me. Now it is things like cars in the parking lot he tells " I love you " to. My family doc and his therapist said to try him on Zoloft I am scared of the side effects as well as the possiblility that he may be bipolar (he has a strong family history of it).He has always slpet through the night but am afraid the Zoloft will disrupt that. My heart is just broken over all this. I have no where to get anwers. ________________________________________________________________________________\ ____ Never miss a thing. Make your home page. http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 Dear , I'm so sorry and heartbroken with you. This stuff is just that - gut-wrenching painful! Seems there are no easy or quick answers, but this is a great group for support and ideas to try. We'll support you however we can - keep us updated. My diagnosed son is 7, and his started severly and noticeably at 5, though there were signs before that. Some great books that helped me understand and help him a bit are: What to do when your child has OCD by Aureen Wagner Up and Down Worry Hill by the same author What to do When your Brain Gets Stuck. I haven't yet found a good therapist either, but as hard as it is to find, it would be worth searching for one trained specifically to deal with ocd, using cognitive behavioral therapy and exposure and ritual prevention. This is hard stuff to deal with, and I am just so sorry. One of the hardest ongoing things for me is to feel so misunderstood by those around me. This group helps me with that. Big hug to you and your son! Leigh Anne new and many questions -looooong My son who will be 5 March 1st has had sensory integration disorder since he was 18 months (maybe earlier). This is th eonly official diagnosis he has had except for anxiety which was never pinpointed. This summer we saw a pediatric psychiatrist who thought he may have OCD (at that time the main thing was attachment to odd things and counting). He hasbeen in therapy (if you can call it that) for over a year. This consists of someone coming to our house and watching us play and occasionally talking to him (he is VERY good at avoiding talking if he is uncomfortable) .His behavior is always the worst with me.Most others never see what I do. At preschool (he started in the fall) his teacher notices his need to pick up every single thing but doesn't see it interfere with other thinkgs. At home he has rituals which have become more and more pronounced and tiem consuming (must get snow off a certain car and put it in a special cup, must fix his toy cars, in a cerrtain order, must fill page he is coloring comepletly-absolutl y no blank spots). Whoa be to me if his ritual is not perfect-he will hit , buite, rage. Friday he threw heavy metal cars at me, smiled as he was hitting me and trying to bite me, etc. Last week was all the rituals. No play with me. Every time I suggested we play, it just turned into a ritual, something he had to do. I just broke down and cried a few times it was so sad. He is also very unaffectionate all of a sudden. He would always snuggle with me. Now it is things like cars in the parking lot he tells " I love you " to. My family doc and his therapist said to try him on Zoloft I am scared of the side effects as well as the possiblility that he may be bipolar (he has a strong family history of it).He has always slpet through the night but am afraid the Zoloft will disrupt that. My heart is just broken over all this. I have no where to get anwers. ________________________________________________________________________________\ ____ Never miss a thing. Make your home page. http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 Hi , welcome! Before I forget, wanted to say that with bipolar in the family history, make sure you see a child psychiatrist who is familiar with bipolar and OCD. There are other parents in the group who have kids with bipolar also, they can probably guide you regarding their experiences. As to his therapist, it doesn't sound like she's experienced with OCD. Or is she not treating it as OCD yet since he's not " officially " OCD? Is she just working on the sensory stuff? You might try contacting the psych he saw earlier and let him know how things are now, and perhaps he can get your son in soon and give him an official diagnosis, how time consuming it's become, angry outbursts if ritual isn't right, etc. How do you handle his outbursts? There are some books for children about OCD. Does he like being read to? You can read about the different medications for OCD at the OCD Foundation website. And there is a BPKids website that's good. (though you may have already visited and read them) Kids generally do " misbehave " more at home with mom; and OCD is usually worse at home, their " safe " place. He probably would never throw anything at someone outside the family. I have 3 sons (single mom) and my OCD son is now 19; he was in 6th grade when I joined this group. He has a twin (not identical) and then my oldest son will be 23 in April. Each son was soooo different growing up! My OCD son also had some sensory issues and occupational therapy helped with that; has your son gotten any OT? single mom, 3 sons , 19, with OCD, dysgraphia and Aspergers > > My son who will be 5 March 1st has had sensory integration disorder > since he was 18 months (maybe earlier). This is th eonly official > diagnosis he has had except for anxiety which was never pinpointed. > This summer we saw a pediatric psychiatrist who thought he may have > OCD (at that time the main thing was attachment to odd things and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 Hi , welcome! Before I forget, wanted to say that with bipolar in the family history, make sure you see a child psychiatrist who is familiar with bipolar and OCD. There are other parents in the group who have kids with bipolar also, they can probably guide you regarding their experiences. As to his therapist, it doesn't sound like she's experienced with OCD. Or is she not treating it as OCD yet since he's not " officially " OCD? Is she just working on the sensory stuff? You might try contacting the psych he saw earlier and let him know how things are now, and perhaps he can get your son in soon and give him an official diagnosis, how time consuming it's become, angry outbursts if ritual isn't right, etc. How do you handle his outbursts? There are some books for children about OCD. Does he like being read to? You can read about the different medications for OCD at the OCD Foundation website. And there is a BPKids website that's good. (though you may have already visited and read them) Kids generally do " misbehave " more at home with mom; and OCD is usually worse at home, their " safe " place. He probably would never throw anything at someone outside the family. I have 3 sons (single mom) and my OCD son is now 19; he was in 6th grade when I joined this group. He has a twin (not identical) and then my oldest son will be 23 in April. Each son was soooo different growing up! My OCD son also had some sensory issues and occupational therapy helped with that; has your son gotten any OT? single mom, 3 sons , 19, with OCD, dysgraphia and Aspergers > > My son who will be 5 March 1st has had sensory integration disorder > since he was 18 months (maybe earlier). This is th eonly official > diagnosis he has had except for anxiety which was never pinpointed. > This summer we saw a pediatric psychiatrist who thought he may have > OCD (at that time the main thing was attachment to odd things and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2008 Report Share Posted January 27, 2008 He has had a year of OT and it helped with the sensory stuff as much as it could (they let him go after a year saying he had went as far as he could in OT). Still has really bad auditory processing and oral defensiveness stuff. We don't have a choice in who we see as far as psychiatrists and I am not fond of this one. He has spent a total of maybe 10 minutes with my son, gave me a check list for OCD syptoms (that's how he was diagnosed). I know he has the OCD but he really needs to spend time with the kid. I feel right now like my son is just lost to me and it hurts so much to see this stuff taking over and esp. with me ( he hides it from everyone else). Is it normal for them to withdraw affection like this?? Now he tells his favorite car in the parking lot " I love you, you will keep me safe, you'll always be there for me " stuff I have told him! Or he says it about the cat which is at least a LIVING thing although up until this past week he would try and hurt the cat. I just have no answers. - In , " " <@...> wrote: > > Hi , welcome! > > Before I forget, wanted to say that with bipolar in the family > history, make sure you see a child psychiatrist who is familiar with > bipolar and OCD. There are other parents in the group who have kids > with bipolar also, they can probably guide you regarding their > experiences. > > As to his therapist, it doesn't sound like she's experienced with > OCD. Or is she not treating it as OCD yet since he's > not " officially " OCD? Is she just working on the sensory stuff? > > You might try contacting the psych he saw earlier and let him know > how things are now, and perhaps he can get your son in soon and give > him an official diagnosis, how time consuming it's become, angry > outbursts if ritual isn't right, etc. How do you handle his > outbursts? > > There are some books for children about OCD. Does he like being read > to? > > You can read about the different medications for OCD at the OCD > Foundation website. And there is a BPKids website that's good. > (though you may have already visited and read them) > > Kids generally do " misbehave " more at home with mom; and OCD is > usually worse at home, their " safe " place. He probably would never > throw anything at someone outside the family. > > I have 3 sons (single mom) and my OCD son is now 19; he was in 6th > grade when I joined this group. He has a twin (not identical) and > then my oldest son will be 23 in April. Each son was soooo different > growing up! My OCD son also had some sensory issues and > occupational therapy helped with that; has your son gotten any OT? > > > > single mom, 3 sons > , 19, with OCD, dysgraphia and Aspergers > > > > > > > My son who will be 5 March 1st has had sensory integration disorder > > since he was 18 months (maybe earlier). This is th eonly official > > diagnosis he has had except for anxiety which was never pinpointed. > > This summer we saw a pediatric psychiatrist who thought he may have > > OCD (at that time the main thing was attachment to odd things and > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Hi , I just wanted to say " Hi, and welcome to the group! " I have three children, Brittany age 12, diagnosed with anxiety disorder. 11, diagnosed wit OCD, Bipolar and PDD-NOS, and iel 6, diagnosed with OCD and mood disorder nos. Both and iel also have Sensory Integration Disorder and severe anxiety, which many times goes along with OCD.(Well the OCD is an anxiety disorder) My kids are always worse with me also. I think that's just a " mom " thing!(lol) Many of the behaviors you described I see in my two younger ones, especailly about being unaffectionate. I think that hurts the most, especially when they once were very affectionate. and iel are also on medication. has been on the Zoloft since she was 5. It has worked well for her. I just wanted to share a little with you! We are all here for you! Hugs Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Welcome, . I have to say, that from reading your first posting, I wondered " is the OCD diagnosis accurate? " There are some points in your story that sound like something else may be going on...and since you were simply given a checklist to diagnose OCD, I would question the result. I am no expert by any means, and could be way off base, but I sensed something more towards Aspergers Syndrome...especially given the emotional withdrawl, and giving affection to objects. Can you see a psychologist rather than a psychiatrist? They would have a much different approach, and may be able to work more with your son to get a firm diagnosis. > > He has had a year of OT and it helped with the sensory stuff as much > as it could (they let him go after a year saying he had went as far > as he could in OT). Still has really bad auditory processing and oral > defensiveness stuff. We don't have a choice in who we see as far as > psychiatrists and I am not fond of this one. He has spent a total of > maybe 10 minutes with my son, gave me a check list for OCD syptoms > (that's how he was diagnosed). I know he has the OCD but he really > needs to spend time with the kid. I feel right now like my son is > just lost to me and it hurts so much to see this stuff taking over > and esp. with me ( he hides it from everyone else). Is it normal for > them to withdraw affection like this?? Now he tells his favorite car > in the parking lot " I love you, you will keep me safe, you'll always > be there for me " stuff I have told him! Or he says it about the cat > which is at least a LIVING thing although up until this past week he > would try and hurt the cat. I just have no answers. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Welcome, . I have to say, that from reading your first posting, I wondered " is the OCD diagnosis accurate? " There are some points in your story that sound like something else may be going on...and since you were simply given a checklist to diagnose OCD, I would question the result. I am no expert by any means, and could be way off base, but I sensed something more towards Aspergers Syndrome...especially given the emotional withdrawl, and giving affection to objects. Can you see a psychologist rather than a psychiatrist? They would have a much different approach, and may be able to work more with your son to get a firm diagnosis. > > He has had a year of OT and it helped with the sensory stuff as much > as it could (they let him go after a year saying he had went as far > as he could in OT). Still has really bad auditory processing and oral > defensiveness stuff. We don't have a choice in who we see as far as > psychiatrists and I am not fond of this one. He has spent a total of > maybe 10 minutes with my son, gave me a check list for OCD syptoms > (that's how he was diagnosed). I know he has the OCD but he really > needs to spend time with the kid. I feel right now like my son is > just lost to me and it hurts so much to see this stuff taking over > and esp. with me ( he hides it from everyone else). Is it normal for > them to withdraw affection like this?? Now he tells his favorite car > in the parking lot " I love you, you will keep me safe, you'll always > be there for me " stuff I have told him! Or he says it about the cat > which is at least a LIVING thing although up until this past week he > would try and hurt the cat. I just have no answers. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 , I'm no doctor either, but I have to agree with you. I have a daughter who is similar to this and she also has PDD-NOS, as well as OCD. These kids are hard to " connect " with. My dd has very little eye contact with anyone she doesn't know well, and shows affection on her terms only. I don't know too many children who don't care if they get a goodnight hug and kiss from their mom.(My daughter has always been this way, unless her anxiety is acting up) Hugs Judy Re: new and many questions -looooong Welcome, . I have to say, that from reading your first posting, I wondered " is the OCD diagnosis accurate? " There are some points in your story that sound like something else may be going on...and since you were simply given a checklist to diagnose OCD, I would question the result. I am no expert by any means, and could be way off base, but I sensed something more towards Aspergers Syndrome...especial ly given the emotional withdrawl, and giving affection to objects. Can you see a psychologist rather than a psychiatrist? They would have a much different approach, and may be able to work more with your son to get a firm diagnosis. > > He has had a year of OT and it helped with the sensory stuff as much > as it could (they let him go after a year saying he had went as far > as he could in OT). Still has really bad auditory processing and oral > defensiveness stuff. We don't have a choice in who we see as far as > psychiatrists and I am not fond of this one. He has spent a total of > maybe 10 minutes with my son, gave me a check list for OCD syptoms > (that's how he was diagnosed). I know he has the OCD but he really > needs to spend time with the kid. I feel right now like my son is > just lost to me and it hurts so much to see this stuff taking over > and esp. with me ( he hides it from everyone else). Is it normal for > them to withdraw affection like this?? Now he tells his favorite car > in the parking lot " I love you, you will keep me safe, you'll always > be there for me " stuff I have told him! Or he says it about the cat > which is at least a LIVING thing although up until this past week he > would try and hurt the cat. I just have no answers. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Hi Michele and Judy, I think when the sensory acuity is very pronounced (as in my daughter, now 15) and maybe there is some degree of LD too, as in non verbal learning disorder category, it affects relating to other people b/c the stimuli (either from the persons or the setting) can be too overwhelming. However it is hard to diagnose autistic pectrum or even aspergers when the ability to communicate is obviously there, and communicating is desired, but is often withheld as needed (or mood/meltdown ocurrs) to avoid the overstumulation and anxiety. It is not quite like social anxiety/phobia and not quite like aspergers/autism, but hovering around there. nancy grace > > > > He has had a year of OT and it helped with the sensory stuff as much > > as it could (they let him go after a year saying he had went as far > > as he could in OT). Still has really bad auditory processing and oral > > defensiveness stuff. We don't have a choice in who we see as far as > > psychiatrists and I am not fond of this one. He has spent a total of > > maybe 10 minutes with my son, gave me a check list for OCD syptoms > > (that's how he was diagnosed). I know he has the OCD but he really > > needs to spend time with the kid. I feel right now like my son is > > just lost to me and it hurts so much to see this stuff taking over > > and esp. with me ( he hides it from everyone else). Is it normal for > > them to withdraw affection like this?? Now he tells his favorite car > > in the parking lot " I love you, you will keep me safe, you'll always > > be there for me " stuff I have told him! Or he says it about the cat > > which is at least a LIVING thing although up until this past week he > > would try and hurt the cat. I just have no answers. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Hi , It is a tough thing to get an accurate diagnosis in any instance, whether it's OCD, autism spectrum, ADHD, etc. Aspergers is an interesting one to me, because too many RL friends have had this diagnosis with their kids, and I was watching for this with my son, based on his quirks as a baby. All of these kids were very verbal and bright...and could communicate with others, but it was the social interaction (being able to understand and respond to social cues) that was in question. Some acted out in aggressive ways (at home and away), others just had very odd social interactions. My son (now 8yo) does not have the Aspergers or OCD diagnosis. His ability to interact and engage socially does not fit within that diagnosis, although it's taken him a bit of work to learn to be more empathetic, and have fair give-and-take during play. It's more like he is slower at developing those skills rather than being deficient in then. He has never been aggressive, but does have acute sensitivity in all senses. He has always been less " cuddly " than my other two kids (he's more like me in that way.) My OCD daughter also has sensitivies, but also has the ritualistic OCD behaviour and thoughts, which is why she has the diagnosis. She is a very cuddly kid, always has been, although she will withdraw some when she is at the peak of OCDness. Right now is a bad time, as she is at the tail end of a flu that had kept her home from school. I'm hoping will see the rituals calm down again as she gets healthier and back into routine. She had been doing sooo well during and right after Xmas Holidays. Anyway, I just thought I'd throw the suggestion out there...it definitely doesn't hurt to get a second opinion from another medical professional. > > > > > > He has had a year of OT and it helped with the sensory stuff as > much > > > as it could (they let him go after a year saying he had went as > far > > > as he could in OT). Still has really bad auditory processing and > oral > > > defensiveness stuff. We don't have a choice in who we see as far > as > > > psychiatrists and I am not fond of this one. He has spent a total > of > > > maybe 10 minutes with my son, gave me a check list for OCD > syptoms > > > (that's how he was diagnosed). I know he has the OCD but he > really > > > needs to spend time with the kid. I feel right now like my son is > > > just lost to me and it hurts so much to see this stuff taking > over > > > and esp. with me ( he hides it from everyone else). Is it normal > for > > > them to withdraw affection like this?? Now he tells his favorite > car > > > in the parking lot " I love you, you will keep me safe, you'll > always > > > be there for me " stuff I have told him! Or he says it about the > cat > > > which is at least a LIVING thing although up until this past week > he > > > would try and hurt the cat. I just have no answers. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Hi , It is a tough thing to get an accurate diagnosis in any instance, whether it's OCD, autism spectrum, ADHD, etc. Aspergers is an interesting one to me, because too many RL friends have had this diagnosis with their kids, and I was watching for this with my son, based on his quirks as a baby. All of these kids were very verbal and bright...and could communicate with others, but it was the social interaction (being able to understand and respond to social cues) that was in question. Some acted out in aggressive ways (at home and away), others just had very odd social interactions. My son (now 8yo) does not have the Aspergers or OCD diagnosis. His ability to interact and engage socially does not fit within that diagnosis, although it's taken him a bit of work to learn to be more empathetic, and have fair give-and-take during play. It's more like he is slower at developing those skills rather than being deficient in then. He has never been aggressive, but does have acute sensitivity in all senses. He has always been less " cuddly " than my other two kids (he's more like me in that way.) My OCD daughter also has sensitivies, but also has the ritualistic OCD behaviour and thoughts, which is why she has the diagnosis. She is a very cuddly kid, always has been, although she will withdraw some when she is at the peak of OCDness. Right now is a bad time, as she is at the tail end of a flu that had kept her home from school. I'm hoping will see the rituals calm down again as she gets healthier and back into routine. She had been doing sooo well during and right after Xmas Holidays. Anyway, I just thought I'd throw the suggestion out there...it definitely doesn't hurt to get a second opinion from another medical professional. > > > > > > He has had a year of OT and it helped with the sensory stuff as > much > > > as it could (they let him go after a year saying he had went as > far > > > as he could in OT). Still has really bad auditory processing and > oral > > > defensiveness stuff. We don't have a choice in who we see as far > as > > > psychiatrists and I am not fond of this one. He has spent a total > of > > > maybe 10 minutes with my son, gave me a check list for OCD > syptoms > > > (that's how he was diagnosed). I know he has the OCD but he > really > > > needs to spend time with the kid. I feel right now like my son is > > > just lost to me and it hurts so much to see this stuff taking > over > > > and esp. with me ( he hides it from everyone else). Is it normal > for > > > them to withdraw affection like this?? Now he tells his favorite > car > > > in the parking lot " I love you, you will keep me safe, you'll > always > > > be there for me " stuff I have told him! Or he says it about the > cat > > > which is at least a LIVING thing although up until this past week > he > > > would try and hurt the cat. I just have no answers. > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 I'm sorry, that story although tragic was so cute that I had to smile. Joyce in Seattle --------- new and many questions -looooong > > > > > > > > > > > > > > > My son who will be 5 March 1st has had sensory integration disorder > > since he was 18 months (maybe earlier). This is th eonly official > > diagnosis he has had except for anxiety which was never pinpointed. > > This summer we saw a pediatric psychiatrist who thought he may have > > OCD (at that time the main thing was attachment to odd things and > > counting). He hasbeen in therapy (if you can call it that) for over a > > year. This consists of someone coming to our house and watching us > > play and occasionally talking to him (he is VERY good at avoiding > > talking if he is uncomfortable) .His behavior is always the worst with > > me.Most others never see what I do. At preschool (he started in the > > fall) his teacher notices his need to pick up every single thing but > > doesn't see it interfere with other thinkgs. At home he has rituals > > which have become more and more pronounced and tiem consuming (must > > get snow off a certain car and put it in a special cup, must fix his > > toy cars, in a cerrtain order, must fill page he is coloring > > comepletly-absolutl y no blank spots). Whoa be to me if his ritual is > > not perfect-he will hit , buite, rage. Friday he threw heavy metal > > cars at me, smiled as he was hitting me and trying to bite me, etc. > > Last week was all the rituals. No play with me. Every time I > > suggested we play, it just turned into a ritual, something he had to > > do. I just broke down and cried a few times it was so sad. He is also > > very unaffectionate all of a sudden. He would always snuggle with me. > > Now it is things like cars in the parking lot he tells " I love you " > > to. My family doc and his therapist said to try him on Zoloft I am > > scared of the side effects as well as the possiblility that he may be > > bipolar (he has a strong family history of it).He has always slpet > > through the night but am afraid the Zoloft will disrupt that. My > > heart is just broken over all this. I have no where to get anwers. > > > > > > > > > > > > > > > > > > > <!-- > > #ygrp-mkp{ > border:1px solid #d8d8d8;font-family:Arial;margin:14px 0px;padding:0px 14px;} > #ygrp-mkp hr{ > border:1px solid #d8d8d8;} > #ygrp-mkp #hd{ > color:#628c2a;font-size:85%;font-weight:bold;line-height:122%;margin:10px 0px;} > #ygrp-mkp #ads{ > margin-bottom:10px;} > #ygrp-mkp .ad{ > padding:0 0;} > #ygrp-mkp .ad a{ > color:#0000ff;text-decoration:none;} > --> > > > > <!-- > > #ygrp-sponsor #ygrp-lc{ > font-family:Arial;} > #ygrp-sponsor #ygrp-lc #hd{ > margin:10px 0px;font-weight:bold;font-size:78%;line-height:122%;} > #ygrp-sponsor #ygrp-lc .ad{ > margin-bottom:10px;padding:0 0;} > --> > > > > <!-- > > #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean, sans-serif;} > #ygrp-mlmsg table {font-size:inherit;font:100%;} > #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica, clean, > sans-serif;} > #ygrp-mlmsg pre, code {font:115% monospace;} > #ygrp-mlmsg * {line-height:1.22em;} > #ygrp-text{ > font-family:Georgia; > } > #ygrp-text p{ > margin:0 0 1em 0;} > #ygrp-tpmsgs{ > font-family:Arial; > clear:both;} > #ygrp-vitnav{ > padding-top:10px;font-family:Verdana;font-size:77%;margin:0;} > #ygrp-vitnav a{ > padding:0 1px;} > #ygrp-actbar{ > clear:both;margin:25px 0;white-space:nowrap;color:#666;text-align:right;} > #ygrp-actbar .left{ > float:left;white-space:nowrap;} > .bld{font-weight:bold;} > #ygrp-grft{ > font-family:Verdana;font-size:77%;padding:15px 0;} > #ygrp-ft{ > font-family:verdana;font-size:77%;border-top:1px solid #666; > padding:5px 0; > } > #ygrp-mlmsg #logo{ > padding-bottom:10px;} > > #ygrp-vital{ > background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;} > #ygrp-vital #vithd{ > font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-transform:upp > ercase;} > #ygrp-vital ul{ > padding:0;margin:2px 0;} > #ygrp-vital ul li{ > list-style-type:none;clear:both;border:1px solid #e0ecee; > } > #ygrp-vital ul li .ct{ > font-weight:bold;color:#ff7900;float:right;width:2em;text-align:right;padding-ri > ght:.5em;} > #ygrp-vital ul li .cat{ > font-weight:bold;} > #ygrp-vital a{ > text-decoration:none;} > > #ygrp-vital a:hover{ > text-decoration:underline;} > > #ygrp-sponsor #hd{ > color:#999;font-size:77%;} > #ygrp-sponsor #ov{ > padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;} > #ygrp-sponsor #ov ul{ > padding:0 0 0 8px;margin:0;} > #ygrp-sponsor #ov li{ > list-style-type:square;padding:6px 0;font-size:77%;} > #ygrp-sponsor #ov li a{ > text-decoration:none;font-size:130%;} > #ygrp-sponsor #nc{ > background-color:#eee;margin-bottom:20px;padding:0 8px;} > #ygrp-sponsor .ad{ > padding:8px 0;} > #ygrp-sponsor .ad #hd1{ > font-family:Arial;font-weight:bold;color:#628c2a;font-size:100%;line-height:122% > ;} > #ygrp-sponsor .ad a{ > text-decoration:none;} > #ygrp-sponsor .ad a:hover{ > text-decoration:underline;} > #ygrp-sponsor .ad p{ > margin:0;} > o{font-size:0;} > .MsoNormal{ > margin:0 0 0 0;} > #ygrp-text tt{ > font-size:120%;} > blockquote{margin:0 0 0 4px;} > .replbq{margin:4;} > --> > > > > > > > > > > ________________________________________________________________________________ > ____ > Be a better friend, newshound, and > know-it-all with Mobile. Try it now. > http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2008 Report Share Posted January 29, 2008 That was the reaction I had hoped for. BTW, I got the same thing from ds yesterday when he saw the crate again, this time lined up to go out to the garage in anticipation of the next " heavy trash " pick up day. He said, " You aren't throwing it out, are you? You can't! Not my styrofoamie! " I hope he knows how comical he sounds. --- jonahsfamily@... wrote: > I'm sorry, that story although tragic was so cute > that I had to smile. > Joyce in Seattle > --------- new and many questions > -looooong > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > My son who will be 5 March 1st has had > sensory integration disorder > > > > since he was 18 months (maybe earlier). This is th > eonly official > > > > diagnosis he has had except for anxiety which was > never pinpointed. > > > > This summer we saw a pediatric psychiatrist who > thought he may have > > > > OCD (at that time the main thing was attachment to > odd things and > > > > counting). He hasbeen in therapy (if you can call > it that) for over a > > > > year. This consists of someone coming to our house > and watching us > > > > play and occasionally talking to him (he is VERY > good at avoiding > > > > talking if he is uncomfortable) .His behavior is > always the worst with > > > > me.Most others never see what I do. At preschool > (he started in the > > > > fall) his teacher notices his need to pick up > every single thing but > > > > doesn't see it interfere with other thinkgs. At > home he has rituals > > > > which have become more and more pronounced and > tiem consuming (must > > > > get snow off a certain car and put it in a special > cup, must fix his > > > > toy cars, in a cerrtain order, must fill page he > is coloring > > > > comepletly-absolutl y no blank spots). Whoa be to > me if his ritual is > > > > not perfect-he will hit , buite, rage. Friday he > threw heavy metal > > > > cars at me, smiled as he was hitting me and trying > to bite me, etc. > > > > Last week was all the rituals. No play with me. > Every time I > > > > suggested we play, it just turned into a ritual, > something he had to > > > > do. I just broke down and cried a few times it was > so sad. He is also > > > > very unaffectionate all of a sudden. He would > always snuggle with me. > > > > Now it is things like cars in the parking lot he > tells " I love you " > > > > to. My family doc and his therapist said to try > him on Zoloft I am > > > > scared of the side effects as well as the > possiblility that he may be > > > > bipolar (he has a strong family history of it).He > has always slpet > > > > through the night but am afraid the Zoloft will > disrupt that. My > > > > heart is just broken over all this. I have no > where to get anwers. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > <!-- > > > > #ygrp-mkp{ > > border:1px solid > #d8d8d8;font-family:Arial;margin:14px > 0px;padding:0px 14px;} > > #ygrp-mkp hr{ > > border:1px solid #d8d8d8;} > > #ygrp-mkp #hd{ > > > color:#628c2a;font-size:85%;font-weight:bold;line-height:122%;margin:10px > 0px;} > > #ygrp-mkp #ads{ > > margin-bottom:10px;} > > #ygrp-mkp .ad{ > > padding:0 0;} > > #ygrp-mkp .ad a{ > > color:#0000ff;text-decoration:none;} > > --> > > > > > > > > <!-- > > > > #ygrp-sponsor #ygrp-lc{ > > font-family:Arial;} > > #ygrp-sponsor #ygrp-lc #hd{ > > margin:10px > 0px;font-weight:bold;font-size:78%;line-height:122%;} > > #ygrp-sponsor #ygrp-lc .ad{ > > margin-bottom:10px;padding:0 0;} > > --> > > > > > > > > <!-- > > > > #ygrp-mlmsg {font-size:13px;font-family:arial, > helvetica, clean, sans-serif;} > > #ygrp-mlmsg table {font-size:inherit;font:100%;} > > #ygrp-mlmsg select, input, textarea {font:99% > arial, helvetica, clean, > > sans-serif;} > > #ygrp-mlmsg pre, code {font:115% monospace;} > > #ygrp-mlmsg * {line-height:1.22em;} > > #ygrp-text{ > > font-family:Georgia; > > } > > #ygrp-text p{ > > margin:0 0 1em 0;} > === message truncated === ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Mobile. Try it now. http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2008 Report Share Posted January 29, 2008 Hi again , Has anything new popped up since first seeing the psych? You might want to make another appt. I do feel he is showing OCD but some things you said made me wonder about the possibility of that bipolar history too. Maybe not bipolar. But trying to hurt the cat isn't OCD. Then again he is 5, sometimes young kids get too rough with pets. And, yes, kids can withdraw from affection due to OCD. And the reasons can be sooo varied for this. Have you asked him why he doesn't want a hug or want to give mommy a hug? Psychiatrists generally will diagnose and then prescribe medication and monitor the medication. You could ask that psych if he knows of a therapist (more experienced) that could help. Is the school addressing any of the auditory processing problems (or do you feel they *are* a problem, is he learning okay)? My son's OT began in 6th grade (I wanted it before that) and he only got it about 1.5 years; like with your son, they did as much as they could, but he did make good progress! > > He has had a year of OT and it helped with the sensory stuff as much > as it could (they let him go after a year saying he had went as far > as he could in OT). Still has really bad auditory processing and Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.