dosage

[Guest guest]

> BARRY & CATHERINE COLLERT wrote:

>

> I have read many posts about herxs and flares that start with the

> antibiotics. Here's my question.

> I started taking erythromocin 500 mg MWF two weeks ago. I have yet to

> feel any adverse effects. Is it too early for herx?

The Herxheimer reaction usually occurs within the first few weeks of

therapy; however 20% of people on this therapy may not experience it at

all. You may be one of them, or possibly erythromycin is not the drug

for you. Let's see what response you get.

Ethel

[Guest guest]

Dr. Chiu's posts have totally changed my thinking. Before, I took the position

that you should take the least amount

possible, going slowly to recovery. Now, I think that you should be as

aggressive as your body will allow, hopefully

200 mg/day. I'm still working up to 200 mg MWF (I'm at 100 mg M, 150 mg W, 100

mg F), but now my goal is 200 mg/day.

Deb

arjay wrote:

> From: arjay <arjay@...>

>

> Hi All

>

> Has Dr Chui's post about finding ongoing damage in painfree patients and

> his believe in 200mg bid daily got ayone else whose doing well

> reconsidering their dosage? I'm off NSAIDS and feel good, but now I'm

> sondering if I should go up from 100mg bid MWF. Anyone else considering

> this? I think my Dr would go along as long as I don't have a yeast

> problem.

>

> Thanks

>

>

>

>

[Guest guest]

,

I also find Dr. Chui's comments very interesting and something to be

considered if problems are encountered. I'm fairly content with how I'm

progressing at the moment but I'll definitely be watching for any

further comments Dr. Chui makes in this regard in the future. I so

appreciate how he not only obviously takes such good care of his own

patients but also takes the time to help us all out. Wish we could

clone him.

a Peden

arjay wrote:

>

> From: arjay <arjay@...>

>

> Hi All

>

> Has Dr Chui's post about finding ongoing damage in painfree patients and

> his believe in 200mg bid daily got ayone else whose doing well

> reconsidering their dosage? I'm off NSAIDS and feel good, but now I'm

> sondering if I should go up from 100mg bid MWF. Anyone else considering

> this? I think my Dr would go along as long as I don't have a yeast

> problem.

>

> Thanks

>

>

>

[Guest guest]

Hi , I'll bet you're going through a seasonal flare, a lot of us seem

to be having one lately. I hope you can get back to a dosage that works for

you, it's a real hard thing to swallow that " step-back " ! I'm sure you can

get yourself back to the place you were at before, you were doing so well

recently. Hang on to that time in your mind and let it carry you through and

give you hope. {{{{{{{{{{{}}}}}}}}}}} Liz G

[Guest guest]

,

Increasing the Minocin may likely increase your yeast problem. Are you

taking a good probiotic? If not, adding one would definitely help.

Also, eliminate sugar from your diet and it's also advisable to avoid

wheat products and foods containing yeast. I've also been told by my

doctor that drinking too much regular tea can add to a thrush problem so

it might be helpful to avoid that, too. Hope the thrush clears up and

you feel better soon.

a Peden

arjay wrote:

>

> From: arjay <arjay@...>

>

> I have been taking minocin 100mg bid MWF, cleocin 1200mg Tuesday and

> have been doing really well until lately. My trigger finger has started

> to come back and my shoulders have started to feel alittle sore and I've

> been tired lately. I also have another case of Thrush (second in 3

> months). I decided to give up the cleocin and increase the minocin to

> 100mg bid daily. I have read that minocin is somewhat anti-yeast so

> maybe this will solve both my problems. I am taking 6 east parks olive

> leaf daily for the yeast. I'll continue that for 6 weeks. I'll let

> everyone know if I feel better on the new dose.

>

>

>

[Guest guest]

I want to thank everybody who answered my posts about the

dosage of minocin that was prescribed to me (100 mgs 2X a

day). I was trying to answer everyone individually, but I have so

little time these days, and am hurting so much, but wanted

everyone to know I appreciate the help.

Basically, there are a lot of people who are taking it at this

dosage, and also a lot of people who take it 2x a week. So I'm

basically in an aren't-sure-of-what-to-do place right now!

I decided to go with the dosage my dr recommended, also for

another reason (at least for now). I have my dreaded

colonoscopy scheduled for the 22nd, since my colon problems

have not only not subsided, they've gotten worse. My new (old

timer) primary care thinks I may have diverticulitis, and from my

readings, I should have had an antibiotic prescibed.

At any rate, I don't think this'll do any harm, so I'll give it a try at

this dosage for now, and see how I do.

Thanks again -

Lynne

[Guest guest]

Do you know of any certain things that are offending to your GI? Mine is

wheat- so if I have a meal with wheat in the entree- then a zyme and a pep,

then if dessert has wheat also- I take another pep. Basically for each

separate wheat serving I have, I take a pep for it. It seems to take care of

it, along with lots of fluids. Donna, Kingwood, TX

[Guest guest]

In a message dated 10/09/2001 4:35:09 PM Central Daylight Time,

Dwpittard@... writes:

> Do you know of any certain things that are offending to your GI? Mine is

> wheat- so if I have a meal with wheat in the entree- then a zyme and a pep,

> then if dessert has wheat also- I take another pep. Basically for each

> separate wheat serving I have, I take a pep for it. It seems to take care

> of

> it, along with lots of fluids.

Donna and Dana,

Thanks for responding. If I were more clever with computer skills, I'd

include quotes from both your responses. But I don't know how.

Because I had a recent run-in with wheat, I'm leaning toward thinking I'm

celiac and won't try gluten again for a long, long time--on purpose--unless

something should occur to change my mind. I do appreciate knowing, however,

that it takes almost one whole peptide for you, Donna, to handle wheat

yourself. I'll probably be pondering the wheat/gluten/celiac issuue for the

forseeable future, unless I submit to an endoscopy, as someone kindly

suggested I could--to settle the matter.

Thanks to you both,

n

PS: No accident, I'm thinking, that so many parents on this list have autism

issues themselves. Though my children are grown and have never been

diagnosed or received treatment, both need some help, I am certain. Looking

at my own family tree, I'd say it goes back at least to my paternal

grandmother, to my father, includes me, and affects both my children.

[Guest guest]

In a message dated 10/9/2001 3:14:02 PM Pacific Daylight Time,

Filmar2@... writes:

> No accident, I'm thinking, that so many parents on this list have autism

> issues themselves. Though my children are grown and have never been

> diagnosed or received treatment, both need some help, I am certain.

> Looking

> at my own family tree, I'd say it goes back at least to my paternal

> grandmother, to my father, includes me, and affects both my children

n, both of my twins are autistic, I have many asperger's symptoms but

not enough for a full blown diagnosis, my father has a severe obsessive

compulsive disorder, and we all are intolerant of wheat, not celiac, but it

causes us problems. Dairy as well and we all have a lot of inhalant

allergies. Go figure huh? We're doing chelation on the twins right now,

they are responding nicely, and I'm beginning to wonder if myself and my dad

don't have mercury issues. Donna, Kingwood, TX

[Guest guest]

> Except for the expense, can anyone tell me from their experience a

good

> reason not to up my dose of enzymes from one each of Pep and ZP with

each

> meal to two each with each meal?

When I was not gf, I took one Peptizyde with each meal, and had a

major histamine reaction, two was better, three was the convulsions.

So if you are wanting to eat gluten again, there is my experience.

With my kids, I have given one each per meal with no problems, and if

the meal is large or contains a lot of " problem foods " , then I have

given two each per meal, and no problems, but I have not done that

long term, just for a meal every once in a while.

Other people here sip on enzyme " slushies " all day long, and they say

they are fine. I suppose it depends on your personal tolerance level.

You can try it and see if it works for you.

Dana

[Guest guest]

Hi n,

I can't see any reason why not. I started my son on 2 Pep with each meal

and 1 ZP. (He is a big boy and I was afraid one might not be enough). We

have continued like this since July with great results - I do hope to

decrease the dose at some point but don't feel ready yet. Pat

>Dosage

>

>Except for the expense, can anyone tell me from their experience a good

>reason not to up my dose of enzymes from one each of Pep and ZP with each

>meal to two each with each meal? I would be doing it for the extra

>insurance, to be sure I'm maximizing my digestion as much as possible.

>Sometimes more is better, but not always... Right now I'm imagining it would

>be a temporary escalation (3 mos? 6 mos? 1 year?), giving my gut some

>additional support during this initial healing time.

>

>Devin has already signed off on it being OK. But sometimes those " in the

>trenches " have additional insights.

>

>Thanks,

>n

[Guest guest]

I'm taking 100mg per week through injection, and I think either the dose needs

to be increased or I have estrogen issues. My insurance is called Medicaid for

Employed People with Disabilities (MEPD), and they pay for the medicine,

needles, and syringes.

Dosage

Anyone here on a dosage higher than 100mgs weekly? If so what is

your dosage and how has it affected you. also if anyone is on

medicaid, have you had any problems getting them to pay for your

shots? thanks for any input.

Jerry

[Guest guest]

I took 1.5 for a month and then increased to 3mg. so far after 2 weeks I am doing fine. Does anyone drink a glass of wine occasionally while taking LDN?

Sally

[Guest guest]

Absolutely, wine has been fine for my husband.

Re: [low dose naltrexone] Dosage

I took 1.5 for a month and then increased to 3mg. so far after 2 weeks I am doing fine. Does anyone drink a glass of wine occasionally while taking LDN?

Sally

[Guest guest]

I do, and it doesn't seem to hurt

Re: [low dose naltrexone] Dosage

I took 1.5 for a month and then increased to 3mg. so far after 2 weeks I am doing fine. Does anyone drink a glass of wine occasionally while taking LDN?

Sally

[Guest guest]

Yes Sally I drink one or more glasses of wine as it is an old german tradition to make wine in my family .

What good is it to make wine and not enjoy the fruits of your labours huh?

I believe that this small amount of Revia (aka naltrexone) that we take doesn't really affect our drinking ability.

l have been on 3.5mgs now for a year non stop.

Reg.

-- Re: [low dose naltrexone] Dosage

I took 1.5 for a month and then increased to 3mg. so far after 2 weeks I am doing fine. Does anyone drink a glass of wine occasionally while taking LDN?

Sally

[Guest guest]

Thanks for the info about the wine. My family also has a tradition of a little wine with their evening meal.

Sally

[Guest guest]

>

> Here I am again. I thank everyone again who responded and gave me such

> good suggestions and help when had her bad exacerbation on

> Sept. 2. She had lost the use of her right arm and a lot of control of

> her head and speech. She has come back a long way. But she now is

> just sort of " blah " . No energy and no ambition. she still does her

> exercises every day but not very well. We have an appointment booked

> next week for a total physical just to rule anything else (like an

> infection we don't notice or something) out but my questions now is

> this. Just before she had the attack she had tried going to 4.5mg for

> a few nights. I'm sure this didn't cause it because she has tried

> different doses in the past couple of years and I guess tried this

> because she was starting to feel weak and tired again, so something was

> already up. Anyway, she wants to stay with 3mg She takes it at 11

> every night but doesn't go to bed until 1:00 usually. Anyone have any

> idea if it might help to change the time to 1:00 pm? Or maybe earlier,

> 9 pm or so? LDN has been so fantastic for her and I can't believe it

> has just stopped working - I know a change probably has to be made but

> we are unsure what to try. Our doctor's only sure statement is not to

> stop the LDN. If anyone has had similar experiences and can suggest

> something, it would be wonderful to hear from you.

>

===========

She hasn't given 4.5mg a long enough trial. Take it for 1 month and if she

still feels fatigued then drop down to maybe 3.5mg. She needs to start taking

the LDN at 9pm or 10pm. No wonder she feels blah, she should be in bed getting

plenty of sleep by 11pm. Get her some melatonin at healthfood store. Start

melatonin at 3mg or 6mg 30 minutes before she takes her LDN. If she does not

get sleepy on the 6mg of melatonin go up to 9mg and on up to 15mg of melatonin

if needed. I feel blah the next day if I stay up too late.

[Guest guest]

I think you should start at a lower dosecyndiOn Jun 17, 2006, at 3:57 PM, mbrovitz wrote:hi all! i wrote before about dr. bihari's strange phone call. i haven't received my ldn yet, but when i called the pharmacy to order it, they said the scrip is for 4.5 mg. i'm a little nervous, from what i've read here, about starting at that dosage. what does everyone think?thanks,michelle

[Guest guest]

thanks cyndi,

i'll wait to see the scrip, then decide, or call dr. bihari back.

michelle

>

> > hi all! i wrote before about dr. bihari's strange phone call. i

> > haven't received my ldn yet, but when i called the pharmacy to

order

> > it, they said the scrip is for 4.5 mg. i'm a little nervous, from

what

> > i've read here, about starting at that dosage. what does everyone

> > think?

> >

> > thanks,

> > michelle

> >

> >

> >

>

[Guest guest]

--- In low dose naltrexone , " mbrovitz " <mbrovitz@...>

wrote:

>

> hi all! i wrote before about dr. bihari's strange phone call. i

> haven't received my ldn yet, but when i called the pharmacy to

order

> it, they said the scrip is for 4.5 mg. i'm a little nervous, from

what

> i've read here, about starting at that dosage. what does everyone

> think?

>

> thanks,

> michelle

>

--

I started out with 3.0mg. After one month went up to 4.5mg. It may be

a good idea to get your begining prescription in 1.5mg capsules, this

way you can regulate your dosage should 4.5mg be too much.

[Guest guest]

,I would do what rtee54 suggests.  That's what I do.  It's a tad more expensive but it gives you some flexibility with the dosage.All The Best, ...helpful support groups for people with MSLDN_Users & www.ldnusers.orglow dose naltrexonemscuredTheChronicIllnessCafe On Jun 17, 2006, at 4:31 PM, rtee54 wrote:--- In low dose naltrexone , "mbrovitz" <mbrovitz@...> wrote: hi all!  i wrote before about dr. bihari's strange phone call.  i haven't received my ldn yet, but when i called the pharmacy to order it, they said the scrip is for 4.5 mg.  i'm a little nervous, from  what  i've read here, about starting at that dosage.  what does everyone think?thanks,michelle --I started out with 3.0mg. After one month went up to 4.5mg. It may be a good idea to get your begining prescription in 1.5mg capsules, this way you can regulate your dosage should 4.5mg too much.

[Guest guest]

hi jason and rtee,

i agree, he should have started me out lower. i'll call monday and see

what they say.

thanks,

michelle

[Guest guest]

I started LDN September 3rd, 2005 at 3 mg then I waited for 5 months to let my body get use to it then I went up to 4.5 mg and doing great. I went to my Neurologists last month for a checkup and I asked him how he thought I was doing and since being on LDN for 8 months and he said he thought I was doing great. So don't rush into going up in dosage because its not going to work any better by going up to fast. I know some people are impatient and want to go up as fast as they can but you can't do that. You have to let the body get use to it then go up. I would wait between 5-6 months before going up in dosage. That's my 2 cents...

Always,

Crystal

Crystal's Website

www.crystalangel.org

[low dose naltrexone] Re: dosage

hi jason and rtee,i agree, he should have started me out lower. i'll call monday and see what they say.thanks,michelle

[Guest guest]

yes, crystal, that's why i asked in the first place. i'm not doing too

badly, and i'd hate to get worse because the initial dose was too high!

thanks,

michelle