Being Tired

[Guest guest]

>

> i seem to be extremely tired all the time since going on this diet.i

> have been mostly on it 5 months now.is there anything that could

help with the energy level.

>

==>Hi Bob. Ensure you are eating the correct ratios of protein to fat

to carbs. Good saturated fats provide the quickest and best source of

energy for the body, and they do not tax the body's resources like

carbs and commercialized vegetable fats do. Butter, coconut oil and

other goods fats recommended do not require bile nor digestive enzymes

in order to be digested and utilized. When your energy is flagging

have a spoonful or 2 of a good fat, even between meals.

==>Also ensure you are taking all of the supplements, particularly the

fat soluble ones, i.e. omega 3 and vitamin A, D & E because they are

very necessary for the total utilization of minerals, nutrients from

foods and other fats in the diet. Cod liver oil is the best source of

omega 3 and vitamins A & D. If you take fish oil for omega 3 in the

Summer, when you get plenty of vitamin D from sun exposure, also take

vitamin A.

I hope that helps,

Bee

[Guest guest]

,

Maybe you are exercising to much.with CMT our muscles have to work harder the

then norm!.and that is not a good thing, if you are over extending yourself..If

you are over exercising it will get you one way or the other!...

Some days I just feel so good and clean my house from top to bottom, not an easy

task form a w.chair,or a nice long ride in the car..or long visits..I suffer for

up to three days. Sore and very tired, hope this helps

Geri.

[Guest guest]

yesssssssssssss

< Does anyone else have the same problem?>

Thanks,

_________________________________________________________________

Get back to school stuff for them and cashback for you.

http://www.bing.com/cashback?form=MSHYCB & publ=WLHMTAG & crea=TEXT_MSHYCB_BackToSch\

ool_Cashback_BTSCashback_1x1

[Guest guest]

,

Sorry to ask but do you work out? Because somebody mentioned something about

working out too hard.

Betania

From: tainosrd@...

Date: Tue, 18 Aug 2009 13:55:19 -0400

Subject: Re: Being Tired

yesssssssssssss

< Does anyone else have the same problem?>

Thanks,

__________________________________________________________

Get back to school stuff for them and cashback for you.

http://www.bing.com/cashback?form=MSHYCB & publ=WLHMTAG & crea=TEXT_MSHYCB_BackToSch\

ool_Cashback_BTSCashback_1x1

[Guest guest]

Geri,

I work out 2 times a week. I work out with weights and I do Pilates.

>

[Guest guest]

,

Same here!

I went to the sleep lab about a month ago. They told me I had mild obstructive

sleep apnea, which seems to mean not dangerous but enough to interfere with

sleep. The doctor told me I could 1) Lose 20 lbs.  2)Get a dental appliance or

3) get the expensive sleep apnea breathing device.

While 1 is obviously best, realistically, I probably won't. The dental appliance

seemed the best bet, but now Blue Cross can't decide whether it will pay for a

medical device built by a dentist. And the dental plan doesn't want to help

because the purpose of the device is medical!

It will be interesting to see what you find out. It almost felt like the purpose

of the sleep center was to sell the expensive apnea devices!

Jim

________________________________

From: fittness35 <wahr@...>

Sent: Tuesday, August 18, 2009 12:22:56 PM

Subject: Being Tired

 

Hello,

I have been feeling so tired lately and my Doctor sent me to a sleep lab to do a

test. I will get the results in 10 days and maybe they can find out what is

wrong. Does anyone else have the same problem?

Thanks,

[Guest guest]

Betania,

Yes I work out but only 2 days a week. Then im tired for the rest of the week.

>

[Guest guest]

,

How long do you exercise twice a week and how strenuous is it?

Geri

Geri,

I work out 2 times a week. I work out with weights and I do Pilates.

>

[Guest guest]

Well in 10 days I will find out.I dont think they are there to seel you the

machine.My insurance since I have Medicare and medicaid will pay for my

machine.They paid for my custom shoes and I will let you know what happens.Ask

your doctor if they can give you Meds.

Thanks,

> ,

>

> Same here!

>

> I went to the sleep lab about a month ago. They told me I had mild obstructive

sleep apnea, which seems to mean not dangerous but enough to interfere with

sleep. The doctor told me I could 1) Lose 20 lbs.  2)Get a dental appliance or

3) get the expensive sleep apnea breathing device.

>

> While 1 is obviously best, realistically, I probably won't. The dental

appliance seemed the best bet, but now Blue Cross can't decide whether it will

pay for a medical device built by a dentist. And the dental plan doesn't want to

help because the purpose of the device is medical!

>

> It will be interesting to see what you find out. It almost felt like the

purpose of the sleep center was to sell the expensive apnea devices!

>

> Jim

>

>

>

>

> ________________________________

> From: fittness35 <wahr@...>

>

> Sent: Tuesday, August 18, 2009 12:22:56 PM

> Subject: Being Tired

>

>  

> Hello,

>

> I have been feeling so tired lately and my Doctor sent me to a sleep lab to do

a test. I will get the results in 10 days and maybe they can find out what is

wrong. Does anyone else have the same problem?

>

> Thanks,

>

>

>

>

>

>

>

[Guest guest]

,

Maybe you are doing too much? Perhaps that's why you are tired.Maybe you need to

cut back a little.

Geri

Betania,

Yes I work out but only 2 days a week. Then im tired for the rest of the week.

>

[Guest guest]

Here it is ok Geri Tuesday - I do chest,Triceps, shoulders with weights

Thurdays - Legs,Back,Bicepts. I do weights and machins.Also I do Pilates.

> ,

>

> How long do you exercise twice a week and how strenuous is it?

>

> Geri

>

>

>

>

> Geri,

>

> I work out 2 times a week. I work out with weights and I do Pilates.

>

>

>

> >

[Guest guest]

Hi ,

 

You may want to review this link from Crabtree's site.  Gretchen has

posted it before:

 

http://www.lindacrabtree.com/cmtnews/fatigue/fatiguepage1.html

 

There is a difference between the fatigue that comes from muscle exertion and

the drowsiness that occurs as a result of a lack of sleep.  If you have sleep

apnea, the Cpap machine could make a big difference in helping you to get a good

night's sleep and it may help you to feel less tired during the day too.

 

Sleep apnea is common in the general population, but it can also be CMT-related

as well.

 

I have a mild case due to muscle weakness.  My breathing is about 50% capacity

when lying on my back.  I did the sleep study and my blood oxygen didn't go

below 90%, so the doc didn't recommend the machine at this point.

 

Sleep apnea may or may not be related to obesity.  My husband isn't overweight,

but he has significant sleep apnea and the Cpap machine has been a huge benefit

to him.  He dreams again, has improved memory, feels less tired during the day,

etc.

 

Hope the machine works for you and you're able to feel better soon.  When we

have some problem that actually has a solution, that's always good news.

 

 

[Guest guest]

I went to see my specialist last Wednesday and he told me that everything is

going wonderfully. I told him that my major side effect was being tired all the

time. Reading other peoples post over the last twelve months this seems like a

normal side effect. He responded by saying that I should not be tired and the I

most probably have a sleeping disorded and sould see a sleep clinic about it. I

was never this tired before hand and I was just wanting other peoples thoughts

on this issue.

[Guest guest]

I was a 33 yr old mother of 3 working full time as a nursing director.

Typical Type A personality when I was diagnosed. NO problems with pain or

fatigue. After 5 yrs on Gleevec and now Spyrcel, I have major fatigue and

muscle pains daily. If I do anything out of a normal day (say going to the

mall or an activity out with the family) I must either rest up before going

or rest the day after. The fatigue is debilitating but life must go on. I

believe 110% that its a side effect of the drug. I never had trouble

sleeping, or waking up in the morning like I've been hit by a truck or feeling

like I haven't slept enough. This is all side effects of taking a daily

oral chemotherapy agent. Unless you experience something other then that, I

don't believe its a sleep disorder.

Just my 2 cents......

RN

Wife and mother of 3 (14,11,9)

CML 5/13/05

Gleevec 800mg until 8/07

Sprycel 100mg since

In a message dated 9/30/2010 6:46:58 A.M. Central Daylight Time,

no_reply writes:

I went to see my specialist last Wednesday and he told me that everything

is going wonderfully. I told him that my major side effect was being tired

all the time. Reading other peoples post over the last twelve months this

seems like a normal side effect. He responded by saying that I should not be

tired and the I most probably have a sleeping disorded and sould see a

sleep clinic about it. I was never this tired before hand and I was just

wanting other peoples thoughts on this issue.

[Guest guest]

I have done a number of things to address side effects and feel good most of the

time now.  When I had addressed all other side effects I still had extreme

fatigue...I had to sit in the car and rest after a work day before I could walk

in the house.   I checked in to meds to increase energy and my doctor refused

to give it to me.

 

Then I stumbled on something that helps.  I have had a lifelong weight problem

and had gone back to a program for weight loss which requires medical

monitoring.  When I talked to my weight loss doctor she said my thyroid was

within " normal " range but that most doctors understand that  that may not truly

reflect the deficiency so she gave me a low dose of thyroid.  In addition, I

went to my alternative doctor who added TSH3 (not sure of this as I am at work

and don't have the prescription with me.)  Traditional medicine doesn't test

for it as I understand it.   In any event, now my energy level is 95%

normal.  By that I mean that I will have an occasional day when I feel exhaused

but not often  I go to bed early (9:00) but I get up at 4:30 to walk an hour

before leaving home. 

 

I suspect that Gleevec " depletes " a number of vitamins, minerals etc. in our

bodies..or the CML depletes it...I don't know.  All I know is that by

supplementing in a number of areas I have ridded myself of most of the problems

I had the first few months on Gleevec. All trial and error, alterntive medicine

etc.  I had not found the internet sites then.

 

By the way, I was diagnosed 6/07, started Gleevec 9/1/07....have been at .00000

for over two years.  I am soon to turn 67, work part time, travel, ...very busy

life.

 

Doris

From: vegasrnjen@... <vegasrnjen@...>

Subject: Re: [ ] Being Tired

Date: Thursday, September 30, 2010, 5:30 AM

 

I was a 33 yr old mother of 3 working full time as a nursing director.

Typical Type A personality when I was diagnosed. NO problems with pain or

fatigue. After 5 yrs on Gleevec and now Spyrcel, I have major fatigue and

muscle pains daily. If I do anything out of a normal day (say going to the

mall or an activity out with the family) I must either rest up before going

or rest the day after. The fatigue is debilitating but life must go on. I

believe 110% that its a side effect of the drug. I never had trouble

sleeping, or waking up in the morning like I've been hit by a truck or feeling

like I haven't slept enough. This is all side effects of taking a daily

oral chemotherapy agent. Unless you experience something other then that, I

don't believe its a sleep disorder.

Just my 2 cents......

RN

Wife and mother of 3 (14,11,9)

CML 5/13/05

Gleevec 800mg until 8/07

Sprycel 100mg since

In a message dated 9/30/2010 6:46:58 A.M. Central Daylight Time,

no_reply writes:

I went to see my specialist last Wednesday and he told me that everything

is going wonderfully. I told him that my major side effect was being tired

all the time. Reading other peoples post over the last twelve months this

seems like a normal side effect. He responded by saying that I should not be

tired and the I most probably have a sleeping disorded and sould see a

sleep clinic about it. I was never this tired before hand and I was just

wanting other peoples thoughts on this issue.

[Guest guest]

I think it is highly unlikely that the problem is a sleeping disorder. When

I was on Gleevec I was a walking zombie. I was switched to Sprycel because

the fatigue on Gleevec was so debilitating, and I need to work full time.

Sprycel has been better for me, but I had to come to terms with the fact

that I will never have the same energy level again.

You might consider seeing a specialist, and maybe even consider switching

meds.

[ ] Being Tired

I went to see my specialist last Wednesday and he told me that everything is

going wonderfully. I told him that my major side effect was being tired all

the time. Reading other peoples post over the last twelve months this seems

like a normal side effect. He responded by saying that I should not be tired

and the I most probably have a sleeping disorded and sould see a sleep

clinic about it. I was never this tired before hand and I was just wanting

other peoples thoughts on this issue.

[Guest guest]

I cant even begin to tell you how tired I am all the time and I am a pretty

active person. There is a big adjustment me and my family have had to do

because mom cant run around and do all the things that I used too. I have

to take frequent breaks and limit the things I do.

It is a side effect of taking a daily chemotherapy!

Jen

In a message dated 10/1/2010 4:53:55 P.M. Central Daylight Time,

suzzienovember@... writes:

Hi: Are you sure this doctor is considered a specialist in CML or in

anything else. If this is the only doctor you have seen, I would just get a

second opinion. I advise everyone to be sure they have a doctor who is familiar

with your disease.

I went to see a specialist for my kidneys, and he asked about my CML etc.

Then he asked me if I ever had a sleep study done for my fatigue. I said

NO, and he starts to tell me that his wife just opened her pulmonary practice

and she is doing Sleep Studies. He was trying to drum up some business for

her. I never went, and later on I found out that he was referring all his

patients to his wife to make money. He was telling everyone they might have

sleep apnea or some other disorder. Just thought I would share that. I am

getting to the point where I do not know who to trust, but yes fatigue is a

big side effect that some have a battle with. Others seem to get some

relief after awhile.

>

> I went to see my specialist last Wednesday and he told me that

everything is going wonderfully. I told him that my major side effect was being

tired all the time. Reading other peoples post over the last twelve months this

seems like a normal side effect. He responded by saying that I should not

be tired and the I most probably have a sleeping disorded and sould see a

sleep clinic about it. I was never this tired before hand and I was just

wanting other peoples thoughts on this issue.

>

RN

Wife and mother of 3 (14,11,9)

CML 5/13/05

Gleevec 800mg until 8/07

Sprycel 100mg since

[Guest guest]

Hi: Are you sure this doctor is considered a specialist in CML or in anything

else. If this is the only doctor you have seen, I would just get a second

opinion. I advise everyone to be sure they have a doctor who is familiar with

your disease.

I went to see a specialist for my kidneys, and he asked about my CML etc.

Then he asked me if I ever had a sleep study done for my fatigue. I said NO,

and he starts to tell me that his wife just opened her pulmonary practice and

she is doing Sleep Studies. He was trying to drum up some business for her. I

never went, and later on I found out that he was referring all his patients to

his wife to make money. He was telling everyone they might have sleep apnea or

some other disorder. Just thought I would share that. I am getting to the

point where I do not know who to trust, but yes fatigue is a big side effect

that some have a battle with. Others seem to get some relief after awhile.

>

> I went to see my specialist last Wednesday and he told me that everything is

going wonderfully. I told him that my major side effect was being tired all the

time. Reading other peoples post over the last twelve months this seems like a

normal side effect. He responded by saying that I should not be tired and the I

most probably have a sleeping disorded and sould see a sleep clinic about it. I

was never this tired before hand and I was just wanting other peoples thoughts

on this issue.

>

[Guest guest]

From: vegasrnjen@... <vegasrnjen@...>

Subject: Re: [ ] Being Tired

Date: Thursday, September 30, 2010, 5:30 AM

 

I was a 33 yr old mother of 3 working full time as a nursing director.

Typical Type A personality when I was diagnosed. NO problems with pain or

fatigue. After 5 yrs on Gleevec and now Spyrcel, I have major fatigue and

muscle pains daily. If I do anything out of a normal day (say going to the

mall or an activity out with the family) I must either rest up before going

or rest the day after. The fatigue is debilitating but life must go on. I

believe 110% that its a side effect of the drug. I never had trouble

sleeping, or waking up in the morning like I've been hit by a truck or feeling

like I haven't slept enough. This is all side effects of taking a daily

oral chemotherapy agent. Unless you experience something other then that, I

don't believe its a sleep disorder.

Just my 2 cents......

RN

Wife and mother of 3 (14,11,9)

CML 5/13/05

Gleevec 800mg until 8/07

Sprycel 100mg since

In a message dated 9/30/2010 6:46:58 A.M. Central Daylight Time,

no_reply writes:

I went to see my specialist last Wednesday and he told me that everything

is going wonderfully. I told him that my major side effect was being tired

all the time. Reading other peoples post over the last twelve months this

seems like a normal side effect. He responded by saying that I should not be

tired and the I most probably have a sleeping disorded and sould see a

sleep clinic about it. I was never this tired before hand and I was just

wanting other peoples thoughts on this issue.