RE: Digest Number 620

[Guest guest]

Please take me off the list for now, my husband has the computer at work and

I can't get to the emails enough. I will join back on when I have the

computer back.

Thank you, in St. sburg

[Guest guest]

In a message dated 5/1/00 4:50:41 AM Eastern Daylight Time,

egroups writes:

<< Wouldn't it be great if we had one in every high school like this?

Does anyone have a close figure on what the figures this youngster

needs?

I will forward the responses along, also I would like a copy of the

'speech' written by the marine who spoke at his court martial at 29

Palms. >>

My count puts the Court-martials at between 40-50. I have documented 40, and

I doubt I have them all.

CPL Schwartz' statement is posted on the JMP website at

www.jamesmadisonproject.org.

Mark S. Zaid, Esq.

[Guest guest]

I have noticed quite a few people taking mtx and enbrel, is enbrel that

ineffective that mtx must be maintained?

I had a rather bad experience with mtx, after three weekly doeses my liver

tests were horrible and took months to come back down. This is how I found

out I have hep c, a gift from a transfusion in the early 80's. My liver is

now 2nd stage and I was hoping to get on Enbrel as soon as it's available in

Canada. Anyone else in the same predicament? Dan

[Guest guest]

W writes: I'm curious to know, from those who've taken MTX, how

long it takes before you started seeing results? >>

Within three weeks I was feeling better. I think it took about 3 months

before my dosage was regulated to the point where my relief wouldn't " wear

off " by the end of the week. Hope it works well for you, and quickly!

Patty (who injected my first reduced dose of MTX yesterday; wish me luck!)

[Guest guest]

Hi Again,

Sorry if my name was omitted from the last entry-its Peggy. Life as a child with

JRA has

certainly improved over the years due to more treatment options and more

assertive imformed

parents...

Care2 make the world greener !

[Guest guest]

Can you not send anymore mail direct? I lose files when downloading!

[Guest guest]

I use Borax. Our water is hard hard hard! I also use it when making

soap. jan

Ahh! Borax! What are your percentages? How much Borax to how much water?

Thanks,

Sonerila

[Guest guest]

http://www.holman.net/rife/

Good prices! Under $115. From $50. I'm not in anyway associated witht the site.

Just thought you'd all be interested.

[Guest guest]

Gloria,

I will remember the fast stick rule. I have been on Enbrel for 3 weeks and

am still adjusting to playing nurse. It has certainly been an experience I

can live with especially now that the drug is beginning to make a difference

in my pain and use of my wrists. I can now pick up my grandchildren. Please

let me know how excercise effects your RA. Do you have more or less pain

afterward or does it really matter. I want to get walking and biking and I

am concerned.

Thanks

-----Original Message-----

From: Rheumatoid Arthritis

[mailto:Rheumatoid Arthritis ]

Sent: Tuesday, February 24, 2004 6:37 AM

Rheumatoid Arthritis

Subject: Digest Number 620

There are 11 messages in this issue.

Topics in this digest:

1. Re: Just a survey of methotrexate of sorts...

From: aclavern33@...

2. What else is there?

From: " gamurphy64 " <gamurphy64@...>

3. Digest Number 616 Just a survey of methotrexate of sorts...:

From: lib <lib522003@...>

4. ?RA

From: " " <cats2lin@...>

5. Re: Digest Number 616 Just a survey of methotrexate of sorts...:

From: " Hasenstab " <saludo@...>

6. Re: What else is there?

From: " Tawny " <tawnyokc@...>

7. Re: ?RA

From: " Tawny " <tawnyokc@...>

8. Re: Humira vs. Enbrel

From: gloriarex@...

9. Re: Digest Number 616 Just a survey of methotrexate of sorts...:

From: " leo " <leo@...>

10. Re: What else is there?

From: " Kay Simpson " <Siwelyak@...>

11. Re: Humira vs. Enbrel

From: " " <dhuntress@...>

________________________________________________________________________

________________________________________________________________________

Message: 1

Date: Mon, 23 Feb 2004 08:17:19 EST

From: aclavern33@...

Subject: Re: Just a survey of methotrexate of sorts...

Hello and welcome to the group. Sorry to hear your RA is advancing but glad

you can try one of the biologics. I am on Enbrel and it is really nothing.

I

basicly mix let it sit until it warms up give the injection and keep moving.

So far no side effects at all with the Enbrel and its been almost 5 months.

I have been off and on for other reasons.

I have heard that the needles for Humira are kinda large and the med itself

burns like heck while injecting it. There is some sort of preservative in

the

the injection that makes it burn really bad. It was one of the reasons I

opted for Enbrel. Enbrel has to be mixed and used because it does not

contain

that particular preservative.

I get better relief from bi weekly injections than from every two weeks.

Even with bi-weekly it seems to wear off over the weekend. Of course I am

also

injecting Methotrexate weekly as well so the injections are no big deal to

me.

I use an insulin needle with is really small. I also use insulin needle for

my Enbrel. The needle I use is far smaller than the needle that comes in

the

kit. I have found with Enbrel the needles are sometimes pretty dull. I

have

heard the needles with humira are also kinda large as well as some

complained

about dull needles.

I am hear to tell yah, if you get a dull needle it will hurt like heck!!!

Its like trying to stab and orange with a drinking straw! I have gotten

quite a

few bruises from dull needles. Since going to insulin needle I have had no

problems at all.

Good luck

Toni

In a message dated 2/23/04 5:27:01 AM Central Standard Time,

Rheumatoid Arthritis writes:

> Message: 4

> Date: Mon, 23 Feb 2004 00:53:50 -0000

> From: " " <dhuntress@...>

> Subject: Re: Just a survey of methotrexate of sorts...

>

> I was on Methotrexate for 8 years. I was happy on it. My arthritis

> was still advancing, however slowly, so my dosage was increased

> until I got too many mouth sores. Then, I was switched to Arava. I

> was on Arava for 30 days and ended up in the hospital with liver

> damage over such a short period of time! I, too, had my blood drawn

> often and never had a problem on Meth. but did on the Arava.

>

> Now, my doctor has me on Enbrel (which I decided today after

> watching the video) that I am NOT going on - just saw him Friday and

> we decided to try Enbrel but I changed my mind. I will, however, try

> Humira. I am petrified of needles, PETRIFIED and the thought of

> mixing an injection and giving myself 2 injections a week is too

> much for me to handle. I can almost handle twice a month...

>

> I'm glad that you are doing well on Methtrexate. Keep on it until it

> no longer works, IMO....

>

> -

>

[This message contained attachments]

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Message: 2

Date: Fri, 20 Feb 2004 13:51:00 -0000

From: " gamurphy64 " <gamurphy64@...>

Subject: What else is there?

So has anybody out there tried natural supplements of anykind to help

with RA. I'm sure some of you have. I have seen wonderful results

with supplements. Not me personally with RA but some friends of mine

have. What I'm saying is that food supplements is the answer to

getting help. If drugs are the answer than why are they getting rich

and everybody just seems to have sideffects. Go figure! Just my two

cents.

________________________________________________________________________

________________________________________________________________________

Message: 3

Date: Fri, 20 Feb 2004 20:53:46 -0600

From: lib <lib522003@...>

Subject: Digest Number 616 Just a survey of methotrexate of sorts...:

I've been on methotrexate for almost seven years now. I take 10 mg.

weekly, 5 mg. prednisone daily, and flurbiprophen 100 mg. twice daily. This

last med is also known as ansid (sp). Recently I have begun having

problems and go back to the doctor a week from today. I will probably have

to try something new. I have been very lucky and have had no side effects

from the methotrexate.

Also for the person taking plaquinil, one thing to watch out for is

headaches. I developed them after being on plaquinil for only a short

period of time. My doctor said that I was only the second patient that he

had seen this side effect. I stopped the meds and the headaches stopped. I

do also suffer from migraine headaches so I don't know if that had anything

to do with things.

I have been on digest here and usually do not even have time to scan

mail. I do hope to be here more often and have changed to individual

emails. Looking forward to getting to know everyone and share information.

Hugs,

Libby

> ________________________________________________________________________

>

> Message: 2

> Date: Thu, 19 Feb 2004 10:48:44 EST

> From: aclavern33@...

> Subject: Re: Just a survey of methotrexate of sorts...

>

> ,

>

> I have been on MTX for about 9 months now off and on. More off than on.

I

> get all the side effects no matter what they do. So I spend more time off

> than on it. If I need to get something done I go off it so I am not

vomiting

> and

> needing to wear depends so I don't have poopy pants all the time! LOL

>

> I hate the this drug and will all the side effects I can see how patient

> compliance can be a real issue.

>

> Toni

>

> In a message dated 2/19/04 6:01:46 AM Central Standard Time,

> Rheumatoid Arthritis writes:

> Message: 7

> Date: Wed, 18 Feb 2004 20:36:51 -0000

> From: " lem820 " <lem820@...>

> Subject: Just a survey of methotrexate of sorts...

>

>

>

> Hi thank you to the nice folks who responded to my earlier post re:

> the thyroid gland.really did shed some light on this sitch...

>

> Now got another question (yeah, I am just full o' questions):

>

> How long have you all been on Methotrexate??

>

> I have been taking it for 4 yrs without any major probs?..Anyone been

> taking longer than I have??? I know that this drug has been used for

> RA for about 20 yrs...wondering if there are any of you out there who

> have been on it for THAT LONG???

>

> Thank you

>

> God bless..

>

>

>

>

>

> [This message contained attachments]

>

>

>

>

>

> ------------------------------------------------------------------------

>

>

________________________________________________________________________

________________________________________________________________________

Message: 4

Date: Mon, 23 Feb 2004 13:48:07 -0000

From: " " <cats2lin@...>

Subject: ?RA

Hi,

I just joined this group. I haven't been diagnosed with RA, but

the Rheumatologist thinks I may have it. My lab results and x-rays

came back negative. The Rheumy thinks it may be serum negative RA.

I still have to have more x-rays to confirm. Also I have nodules

distal to both my elbows and she wants me to have a biopsy of the

nodules. Any ideas how this is done? I have to make an appointment

with a surgeon. She said he'll tell me about it. I'm on 500mg

Naproxen twice a day and am feeling much better. Wonder if I should

pursue this. I'm also Type 1 Diabetic and have been for 30 years.

Getting tired of going to the doctor. I would like to hear from

anyone that may have had a similar experience. I also feel

fortunate that I don't have as much pain as most here do.

Thanks for listening and any information.

________________________________________________________________________

________________________________________________________________________

Message: 5

Date: Mon, 23 Feb 2004 09:57:18 -0500

From: " Hasenstab " <saludo@...>

Subject: Re: Digest Number 616 Just a survey of methotrexate of sorts...:

Hi Libby,

I've been on Placquenil for about ten or eleven years now, and initially

had all the side effects possible, including that horrible rash. I rode them

out, and for years I haven't had any at all. I don't really know if it

affected my headaches, because I get migraines too, and sinus headaches,

but in the last several years they've decreased in frequency quite a bit.

The drug is working for me -- I have passing joint inflammation, but not

severe, and in the years I've been on it, I only have developed one finger

deformity, and that might be osteoarthritis complications. I'm just hoping

that it continues to work. I take Aleve occasionally, and that seems to help

a lot with joint pain.

----- Original Message -----

From: lib

Rheumatoid Arthritis

Sent: Friday, February 20, 2004 9:53 PM

Subject: Digest Number 616 Just a survey of

methotrexate of sorts...:

I've been on methotrexate for almost seven years now. I take 10 mg.

weekly, 5 mg. prednisone daily, and flurbiprophen 100 mg. twice daily. This

last med is also known as ansid (sp). Recently I have begun having

problems and go back to the doctor a week from today. I will probably have

to try something new. I have been very lucky and have had no side effects

from the methotrexate.

Also for the person taking plaquinil, one thing to watch out for is

headaches. I developed them after being on plaquinil for only a short

period of time. My doctor said that I was only the second patient that he

had seen this side effect. I stopped the meds and the headaches stopped. I

do also suffer from migraine headaches so I don't know if that had anything

to do with things.

I have been on digest here and usually do not even have time to scan

mail. I do hope to be here more often and have changed to individual

emails. Looking forward to getting to know everyone and share information.

Hugs,

Libby

> ________________________________________________________________________

>

> Message: 2

> Date: Thu, 19 Feb 2004 10:48:44 EST

> From: aclavern33@...

> Subject: Re: Just a survey of methotrexate of sorts...

>

> ,

>

> I have been on MTX for about 9 months now off and on. More off than on.

I

> get all the side effects no matter what they do. So I spend more time off

> than on it. If I need to get something done I go off it so I am not

vomiting

> and

> needing to wear depends so I don't have poopy pants all the time! LOL

>

> I hate the this drug and will all the side effects I can see how patient

> compliance can be a real issue.

>

> Toni

>

> In a message dated 2/19/04 6:01:46 AM Central Standard Time,

> Rheumatoid Arthritis writes:

> Message: 7

> Date: Wed, 18 Feb 2004 20:36:51 -0000

> From: " lem820 " <lem820@...>

> Subject: Just a survey of methotrexate of sorts...

>

>

>

> Hi thank you to the nice folks who responded to my earlier post re:

> the thyroid gland.really did shed some light on this sitch...

>

> Now got another question (yeah, I am just full o' questions):

>

> How long have you all been on Methotrexate??

>

> I have been taking it for 4 yrs without any major probs?..Anyone been

> taking longer than I have??? I know that this drug has been used for

> RA for about 20 yrs...wondering if there are any of you out there who

> have been on it for THAT LONG???

>

> Thank you

>

> God bless..

>

>

>

>

>

> [This message contained attachments]

>

>

>

>

>

> ------------------------------------------------------------------------

>

>

[Guest guest]

...it posted anywhoo oh well. Its a cell with caller ID so I'm not overly

worried :-) Plus, whenever anyone messes with me they live to regret it. Too

many contacts with politicians,policemen, etc. lol. ahhh my recent retaliation

was my apartment manager who hung up the phone on me when I called to complain

about security issues. The police department and the management company had a

nice talk with him and I think he is being replaced. I'm not always sweet.

Stacey,

I did find a rubber foot so just lemme know:-) Shouldn't be too bad to mail. I

can sneak an envelope from work ;-)LOL

My spin class kicked my butt today, but I then kicked butt in water

volleyball...that is to say I actually assisted some and spiked the ball a few

times. Walked around 30 min on errands and did a Gilad taped from FitTV. So

about three hours of activity.

Tomorrow I think I might try some Minna Lessig (Emergency Workout) I killed her

other tapes I used them so much. I'll have to search for a deal on a DVD. At

night I'll probably do the third slim and six. See if I type it here I'll do it.

I'm FIRMed out for a week or two. I can only tolerate so much of them i don't

know why. Maybe too much monotony for me.

As for Taebo Ultimate Abs. I think I know the asian girl is referencing.

Don't know her name. I wonder if Sany and I are in that one, I know they used

some of the footage we were in for the other tapes. Might have to look for it

online because my curiosity is piqued.

a

--

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