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Re: My son was kicked out of treatment!

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Is there possibly an insurance issue behind it? These centers

sometimes have to justify treatment expense by documenting

improvement. Sorry this is happening. I don't think many 11 yr olds

would choose the severe exposure anxiety over escape...it is a

dilemma. Intensive treatment means not going slow I guess.

I know when my dd was inpatient the insurance matter was uppermost in

negotiations. Also some treatment centers are thinking about their

success rates and thus may want to record patient as non-cooperative

rather then treatment as not successdul. Treating ocd and spectrums

can be so subjective and individualized, but when insurance,

contracts, money, comes into play, objectivity is sought. I do think

your son's providers should have called you before presenting your

son with that ultimatum.

nancy grace

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> >

>

> > Barb,

>

> > After all this time, I'm so glad to read that your son is ready

to

>

> try the hierarchy. That is great news.

>

> > I wish him the best of luck.

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> ____________ _________ _________ _________ _________ _________ _

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> ____________ __

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> > Never miss a thing. Make your home page.

>

> > http://www.. com/r/hs

>

> >

>

> >

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,

That is hard to believe! As a minor I don't think he can make medical decisions

without parental consent. Sounds like they were trying to intimidate him into

complying with the ERP program. That is not right!

I am glad to hear you will meet with them next week to review the issue.

Sinead

Thanks for caring and for your good wishes. How is Noah doing these

days? I have read a few strands but get situations mixed up, hard

enough to keep track of one's own!

Barb

>

> Barb,

> After all this time, I'm so glad to read that your son is ready to

try the hierarchy. That is great news.

> I wish him the best of luck.

>

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____________ _________ _________ _________ _________ _________ _

____________ __

> Never miss a thing. Make your home page.

> http://www.. com/r/hs

>

>

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,

Wow! Who gives an 11 year old that power? Of course they will say it's

too hard. I'm sorry.

My DD (12) has used Zyprexa 3 different times for a couple of months, so

if you have any questions, I'd be happy to answer them.

Dina

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Wow, I'm speechless! Especially since he had moved up his hierarchy,

not like he hadn't progressed at all. I just don't know what to say,

just that I'd be upset too by what they did, way they did it!

>

> Well Barb and everyone,

> I am still very upset after the phone call I received this morning.

It was from my son's intensive therapy center.

> Without consulting with us, his parents, they decided to pull him

into the office of the program director for a treatment evaluation. I

don't even think my son has met this guy before. He presented my son

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Geez ! How upsetting, disturbing, and just plain wrong that they

are putting your son in such a corner, and when he is all alone. You

must be beside yourself! Big Hug.

I hope you get some answers and resolution speaking with someone else

next week. It would seem to me that everyone works at there own pace

and that for so many reasons sometimes someone cannot go past a

certain point in treatment. As was already mentioned it may be an

insurance issue, and unfortunately treatment plans seem to have time

lines. If only mental illness worked that way. Imagine if you had

cancer, was hospitalized and were thrown out because you weren't

responding to chemo rapidly enough.........

Hang in there. Hope the zyprexa helps if this is the direction you

decide to go.

Barb

>

> >

>

> > Barb,

>

> > After all this time, I'm so glad to read that your son is ready

to

>

> try the hierarchy. That is great news.

>

> > I wish him the best of luck.

>

> >

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> ____________ _________ _________ _________ _________ _________ _

>

> ____________ __

>

> > Never miss a thing. Make your home page.

>

> > http://www.. com/r/hs

>

> >

>

> >

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Honestly, , I'm appalled!!!! Poor Noah. How dare they put him

through that when he already has so much to deal with. Good grief,

he's 11. ELEVEN! You say he was making progress, yet it was slow.

So what? He was at least making progress. Even slow progress is

better than none, or worse yet, going backwards. Josh also is moving

slower than the average person (or so his psychologist says and I can

believe it because Josh can sometimes be very stubborn), but he

allowed Josh to make the final choice of when to move forward, with

encouragement from him and us. Why are they in such an all fired

hurry? Sheesh, he will have this the rest of his life. Does he have

to be cured this week so they can take a vacation or something?

Grrrrrrrrrrrrr! (Okay, just being sassy now, but I'm so annoyed for

you).

Josh is working on contamination issues right now too. It is a biggie

for him (way up on his list) and he is being allowed all the time he

needs to work through it. As long as he is moving forward and trying,

we are all happy. Noah deserves the same consideration.

I'm so mad for you and Noah.

BJ

>

> >

>

> > Barb,

>

> > After all this time, I'm so glad to read that your son is ready to

>

> try the hierarchy. That is great news.

>

> > I wish him the best of luck.

>

> >

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> >

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> ____________ _________ _________ _________ _________ _________ _

>

> ____________ __

>

> > Never miss a thing. Make your home page.

>

> > http://www.. com/r/hs

>

> >

>

> >

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> >

> > >

> >

> > > Barb,

> >

> > > After all this time, I'm so glad to read that your son is ready

> to

> >

> > try the hierarchy. That is great news.

> >

> > > I wish him the best of luck.

> >

> > >

> >

> > >

> >

> > >

> >

> > >

> >

> > >

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> > >

> >

> > >

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> > >

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> > >

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> > ____________ _________ _________ _________ _________ _________ _

> >

> > ____________ __

> >

> > > Never miss a thing. Make your home page.

> >

> > > http://www.. com/r/hs

> >

> > >

> >

> > >

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Obviously, I'm not (speechless, like said). Rofl

Just hard not to rant. I read of all the struggles of the families in

here (and share ours) and feel I've come to know you and your kids.

When one is treated badly, it's hard not to react strongly, because it

feels like it is happening to family. :o(

((((((( and Noah)))))))

BJ

In , " " <@...> wrote:

>

> Wow, I'm speechless! Especially since he had moved up his hierarchy,

> not like he hadn't progressed at all. I just don't know what to say,

> just that I'd be upset too by what they did, way they did it!

>

>

>

>

>

> >

> > Well Barb and everyone,

> > I am still very upset after the phone call I received this morning.

> It was from my son's intensive therapy center.

> > Without consulting with us, his parents, they decided to pull him

> into the office of the program director for a treatment evaluation. I

> don't even think my son has met this guy before. He presented my son

>

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I'm so angry. Your son has enough problems without them confront him

without his parents. They should know better than this. Where did they

get their diplomas in a box of cracker jack box or what! Sorry, I have

also had a bad week with Mid-Term and school administration I

understand the frustration. Common sense where is it!

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, I'm glad they aren't giving up on Noah altogether. But, I still

find it a bit disturbing that they consider treating him as a waste of

resources. How is it a waste if he is moving forward, even if it's

slower than they would like?

Josh also has trouble envisioning his life without OCD. Our kids have

lived with it from (most likely) day one. It's the only thing they

know. It's normal for them. I remember at one point Josh said he was

afraid to get rid of the OCD stuff because he thought it would make

him less smart. He also thought he wouldn't be " him " anymore. He

just needed help understanding that wouldn't happen. It's sometimes

amazing the thoughts they get in their heads. But, they are kids,

along with having the OCD, and sometimes kids have misguided thoughts.

I believe that's called immaturity. lol

It seems everything I've read suggests they should " willingly " do the

ERP for it to work. I think Josh would react the same as you suggest

Noah would, if ERP was forced through discipline. I will say,

however, Josh does need reminders. When he gets them, he cooperates

willingly. Thankfully.

My thoughts and prayers are with you.

BJ

>

> > ,

> > I'm so sorry you are going through this!

> >

> > This has happened to my dd twice. This past time she

> > was in out patient therapy at the time last year

> > when she was 10.

> > Her therapist, told me (in front of my dd) that she

> > did not have any OCD issues to work on and that

> > (my dd) did not need counseling at this time.

> > This was because she asked my dd what they needed to

> > work on, and naturally at age 10, my dd said she was

> > fine, and didn't need to work on anything.(Why would

> > you ask a 10 yr old what you need to work on?????)

> > I just took her and walked out. I couldn't believe

> > it. At the time, had 30 something sores all

> > over her body from picking and was facial grimacing

> > to syllables, etc, but the therapist said she didn't

> > need therapy at that time, and to come back when she

> > had something to work on.

> >

> > I can tell you another story also. When my dd was 7,

> > and hospitalized, she had been there about two

> > weeks,another doctor came in and took over for the

> > one that was there. This doctor did not agree with

> > her diagnosis, and said there was nothing wrong with

> > her after talking to her(She was 7, and very very

> > manipulative) This doctor stripped her off of all

> > her meds and discharged her. I was fit to be

> > tied!!!!!!!

> >

> > Needless to say, a few months later she was right

> > back in the hospital, age 8 now, suicidal, and in a

> > massive rage. She had to stay 30 days to get

> > stabilized. She was rediagnosed with OCD, Biploar

> > and an Autistic Spectrum disorder.

> > In my opinion, just because they have a license,

> > does not make them qualified!!!!!!

> >

> > Hugs

> > Judy

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

>

>

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Wow, Judy. So sorry you've had to go through that. It's not right.

Then again, a lot of things in this world aren't, huh. . .frustrating

as that is. Frustration upon frustration. <:o/

I agree, just because they have a license doesn't make them qualified.

BJ

>

> ,

> I'm so sorry you are going through this!

>

> This has happened to my dd twice. This past time she was in out

patient therapy at the time last year when she was 10.

> Her therapist, told me (in front of my dd) that she did not have any

OCD issues to work on and that (my dd) did not need counseling

at this time. This was because she asked my dd what they needed to

work on, and naturally at age 10, my dd said she was fine, and didn't

need to work on anything.(Why would you ask a 10 yr old what you need

to work on?????)

> I just took her and walked out. I couldn't believe it. At the time,

had 30 something sores all over her body from picking and was

facial grimacing to syllables, etc, but the therapist said she didn't

need therapy at that time, and to come back when she had something to

work on.

>

> I can tell you another story also. When my dd was 7, and

hospitalized, she had been there about two weeks,another doctor came

in and took over for the one that was there. This doctor did not agree

with her diagnosis, and said there was nothing wrong with her after

talking to her(She was 7, and very very manipulative) This doctor

stripped her off of all her meds and discharged her. I was fit to be

tied!!!!!!!

>

> Needless to say, a few months later she was right back in the

hospital, age 8 now, suicidal, and in a massive rage. She had to stay

30 days to get stabilized. She was rediagnosed with OCD, Biploar and

an Autistic Spectrum disorder.

> In my opinion, just because they have a license, does not make them

qualified!!!!!!

>

> Hugs

> Judy

>

>

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, I would mail you some if I could. lol

The psychologist talked to him, and he just got it, somehow. I tried

to explain it, but I could tell he wasn't convinced I was right. He

accepted it from the therapist. And, it's proven true as he's been

able to let go of some of the OCD rituals, which reinforced it even

more for him.

He did that recently when our well became contaminated with bacteria,

after all the flooding that went on here. We had to bathe in

contaminated water. . .Talk about an enforced ERP for a kid with

contamination issues. He melted down, thinking everything in the

house and been contaminated and was so stressed he made comments that

the whole house needed to be burned down. He didn't mean it, but that

is his typical overreaction to things that are hard for him to cope

with. He needed to control the situation somehow, I guess, and he

wanted everything eliminated somehow and new, " clean " stuff to replace

it all with. To him, everything was ruined and he couldn't touch it

now. As he was having his meltdown, I called the therapist and asked

him if he could talk to Josh, because I felt Josh just wasn't hearing

me. Josh took the phone into his room and when he came out, he was

calm. I asked him what the doctor said, and he told me the doc said

the same things I did. For some reason, coming from the therapist, he

heard it. I just sighed and thought, " Oh, well, whatever got through

to him and helped " .

Sometimes I think it is hard for parents to be the therapist too,

because we are just " Mom and Dad " . Know what I mean?

I do know that Josh seems better equipped to sort of " get it " now that

he is older. When he was Noah's age, he just couldn't seem to reason

any of it in his head. When he was younger, he just wanted it to go

magically away. Now, he seems to be mature enough to realize it's not

going to go away without some work. And he seems willing to do the

work, to try to get better. Hopefully, Noah will have the same

experience, , as he matures some. He's still pretty young. I

know my nephew was that way too. The OCD still bothers them, but they

have a different perspective.

Don't lose hope, Hon. :o)

BJ

>

>

>

>

>

>

> Josh also has trouble envisioning his life without OCD. Our kids have

>

> lived with it from (most likely) day one. It's the only thing they

>

> know. It's normal for them. I remember at one point Josh said he was

>

> afraid to get rid of the OCD stuff because he thought it would make

>

> him less smart. He also thought he wouldn't be " him " anymore. He

>

> just needed help understanding that wouldn't happen.

>

> BJ,

> How did Josh get this understanding? And could you mail me some?

>

>

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my son has said the same thing at 15-16. He was convinced the

ocd has made him smarter, and to tell you the truth I think it has

too. Smarter in the sense that in order to cope he has used every

part of his brain that he possibly could just to cope.

At the oc conference they even confirmed that people with ocd use

parts of the brain that the ordinary person doesn't, and that in

general they are more intelligent. Just what I needed to have that

reinforced!

The identity part my son also took on, as in the ocd is his identity,

he fused with it. So it would be like destroying yourself if you

destroy the ocd, which I believe caused him to become very defensive

in protection of the ocd. Lots of behavioral stuff I think stems

from this too.

Hang in there!

Barb

>

>

>

>

>

>

> Josh also has trouble envisioning his life without OCD. Our kids

have

>

> lived with it from (most likely) day one. It's the only thing they

>

> know. It's normal for them. I remember at one point Josh said he

was

>

> afraid to get rid of the OCD stuff because he thought it would make

>

> him less smart. He also thought he wouldn't be " him " anymore. He

>

> just needed help understanding that wouldn't happen.

>

> BJ,

> How did Josh get this understanding? And could you mail me some?

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

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>

>

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>

>

>

>

>

>

______________________________________________________________________

______________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

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my son has said the same thing at 15-16. He was convinced the

ocd has made him smarter, and to tell you the truth I think it has

too. Smarter in the sense that in order to cope he has used every

part of his brain that he possibly could just to cope.

At the oc conference they even confirmed that people with ocd use

parts of the brain that the ordinary person doesn't, and that in

general they are more intelligent. Just what I needed to have that

reinforced!

The identity part my son also took on, as in the ocd is his identity,

he fused with it. So it would be like destroying yourself if you

destroy the ocd, which I believe caused him to become very defensive

in protection of the ocd. Lots of behavioral stuff I think stems

from this too.

Hang in there!

Barb

>

>

>

>

>

>

> Josh also has trouble envisioning his life without OCD. Our kids

have

>

> lived with it from (most likely) day one. It's the only thing they

>

> know. It's normal for them. I remember at one point Josh said he

was

>

> afraid to get rid of the OCD stuff because he thought it would make

>

> him less smart. He also thought he wouldn't be " him " anymore. He

>

> just needed help understanding that wouldn't happen.

>

> BJ,

> How did Josh get this understanding? And could you mail me some?

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> <!--

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>

>

>

>

>

>

>

>

>

______________________________________________________________________

______________

> Be a better friend, newshound, and

> know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

>

>

>

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> >

> >

> >

> >

> >

> >

> > Josh also has trouble envisioning his life without OCD. Our kids

> have

> >

> > lived with it from (most likely) day one. It's the only thing they

> >

> > know. It's normal for them. I remember at one point Josh said he

> was

> >

> > afraid to get rid of the OCD stuff because he thought it would make

> >

> > him less smart. He also thought he wouldn't be " him " anymore. He

> >

> > just needed help understanding that wouldn't happen.

> >

> > BJ,

> > How did Josh get this understanding? And could you mail me some?

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > <!--

> >

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> > border:1px solid #d8d8d8;font-family:Arial;margin:14px

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> > -->

> >

> >

> >

> >

> >

> >

> >

> >

> >

> ______________________________________________________________________

> ______________

> > Be a better friend, newshound, and

> > know-it-all with Mobile. Try it now.

> http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

> >

> >

> >

Link to comment
Share on other sites

> >

> >

> >

> >

> >

> >

> > Josh also has trouble envisioning his life without OCD. Our kids

> have

> >

> > lived with it from (most likely) day one. It's the only thing they

> >

> > know. It's normal for them. I remember at one point Josh said he

> was

> >

> > afraid to get rid of the OCD stuff because he thought it would make

> >

> > him less smart. He also thought he wouldn't be " him " anymore. He

> >

> > just needed help understanding that wouldn't happen.

> >

> > BJ,

> > How did Josh get this understanding? And could you mail me some?

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > <!--

> >

> > #ygrp-mkp{

> > border:1px solid #d8d8d8;font-family:Arial;margin:14px

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> > -->

> >

> >

> >

> >

> >

> >

> >

> >

> >

> ______________________________________________________________________

> ______________

> > Be a better friend, newshound, and

> > know-it-all with Mobile. Try it now.

> http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

> >

> >

> >

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Rofl. So maybe that is just human nature then (somebody else, other

than family, needs to be saying it). Been guilty of that too.

BJ

>

> That's good to know, BJ. I just wonder how many years between now and

> the point when my son is mature enough.

> I get why our kids don't hear what we tell them, but they get it

from somebody else.

> I never listen to my husband's words of wisdom, unless somebody else

is saying them!

>

>

>

> Re: My son was kicked out of treatment!

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> , I would mail you some if I could. lol

>

>

>

> The psychologist talked to him, and he just got it, somehow. I tried

>

> to explain it, but I could tell he wasn't convinced I was right. He

>

> accepted it from the therapist. And, it's proven true as he's been

>

> able to let go of some of the OCD rituals, which reinforced it even

>

> more for him.

>

>

>

> He did that recently when our well became contaminated with bacteria,

>

> after all the flooding that went on here. We had to bathe in

>

> contaminated water. . .Talk about an enforced ERP for a kid with

>

> contamination issues. He melted down, thinking everything in the

>

> house and been contaminated and was so stressed he made comments that

>

> the whole house needed to be burned down. He didn't mean it, but that

>

> is his typical overreaction to things that are hard for him to cope

>

> with. He needed to control the situation somehow, I guess, and he

>

> wanted everything eliminated somehow and new, " clean " stuff to replace

>

> it all with. To him, everything was ruined and he couldn't touch it

>

> now. As he was having his meltdown, I called the therapist and asked

>

> him if he could talk to Josh, because I felt Josh just wasn't hearing

>

> me. Josh took the phone into his room and when he came out, he was

>

> calm. I asked him what the doctor said, and he told me the doc said

>

> the same things I did. For some reason, coming from the therapist, he

>

> heard it. I just sighed and thought, " Oh, well, whatever got through

>

> to him and helped " .

>

>

>

> Sometimes I think it is hard for parents to be the therapist too,

>

> because we are just " Mom and Dad " . Know what I mean?

>

>

>

> I do know that Josh seems better equipped to sort of " get it " now that

>

> he is older. When he was Noah's age, he just couldn't seem to reason

>

> any of it in his head. When he was younger, he just wanted it to go

>

> magically away. Now, he seems to be mature enough to realize it's not

>

> going to go away without some work. And he seems willing to do the

>

> work, to try to get better. Hopefully, Noah will have the same

>

> experience, , as he matures some. He's still pretty young. I

>

> know my nephew was that way too. The OCD still bothers them, but they

>

> have a different perspective.

>

>

>

> Don't lose hope, Hon. :o)

>

>

>

> BJ

>

>

>

> --- In ocdan

>

>

>

>

>

>

>

>

>

>

________________________________________________________________________________\

____

> Never miss a thing. Make your home page.

> http://www./r/hs

>

>

Link to comment
Share on other sites

Rofl. So maybe that is just human nature then (somebody else, other

than family, needs to be saying it). Been guilty of that too.

BJ

>

> That's good to know, BJ. I just wonder how many years between now and

> the point when my son is mature enough.

> I get why our kids don't hear what we tell them, but they get it

from somebody else.

> I never listen to my husband's words of wisdom, unless somebody else

is saying them!

>

>

>

> Re: My son was kicked out of treatment!

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> , I would mail you some if I could. lol

>

>

>

> The psychologist talked to him, and he just got it, somehow. I tried

>

> to explain it, but I could tell he wasn't convinced I was right. He

>

> accepted it from the therapist. And, it's proven true as he's been

>

> able to let go of some of the OCD rituals, which reinforced it even

>

> more for him.

>

>

>

> He did that recently when our well became contaminated with bacteria,

>

> after all the flooding that went on here. We had to bathe in

>

> contaminated water. . .Talk about an enforced ERP for a kid with

>

> contamination issues. He melted down, thinking everything in the

>

> house and been contaminated and was so stressed he made comments that

>

> the whole house needed to be burned down. He didn't mean it, but that

>

> is his typical overreaction to things that are hard for him to cope

>

> with. He needed to control the situation somehow, I guess, and he

>

> wanted everything eliminated somehow and new, " clean " stuff to replace

>

> it all with. To him, everything was ruined and he couldn't touch it

>

> now. As he was having his meltdown, I called the therapist and asked

>

> him if he could talk to Josh, because I felt Josh just wasn't hearing

>

> me. Josh took the phone into his room and when he came out, he was

>

> calm. I asked him what the doctor said, and he told me the doc said

>

> the same things I did. For some reason, coming from the therapist, he

>

> heard it. I just sighed and thought, " Oh, well, whatever got through

>

> to him and helped " .

>

>

>

> Sometimes I think it is hard for parents to be the therapist too,

>

> because we are just " Mom and Dad " . Know what I mean?

>

>

>

> I do know that Josh seems better equipped to sort of " get it " now that

>

> he is older. When he was Noah's age, he just couldn't seem to reason

>

> any of it in his head. When he was younger, he just wanted it to go

>

> magically away. Now, he seems to be mature enough to realize it's not

>

> going to go away without some work. And he seems willing to do the

>

> work, to try to get better. Hopefully, Noah will have the same

>

> experience, , as he matures some. He's still pretty young. I

>

> know my nephew was that way too. The OCD still bothers them, but they

>

> have a different perspective.

>

>

>

> Don't lose hope, Hon. :o)

>

>

>

> BJ

>

>

>

> --- In ocdan

>

>

>

>

>

>

>

>

>

>

________________________________________________________________________________\

____

> Never miss a thing. Make your home page.

> http://www./r/hs

>

>

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