Effusion and enlarged heart...Update

[Guest guest]

Hey!

Just wanted to say that I went in for my CT scan today and they saw a lot

more fluid then the xray picked up. The radiologist came in the room and

told me it was his recommendation to drain off that fluid. He called my

oncologist and they went ahead with it. They drained out 1.4 liters. I can

now take a deep breath but I am still beyond wiped out. I am thinking I

have to have a break or a reduction in the sprycel. I cant function right

now.

Thanks for the comments and suggestions from everyone.

RN

Wife and mother of 3 (14,11,9)

CML 5/13/05

Gleevec 800mg until 8/07

Sprycel 100mg since

[Guest guest]

is'nt it great to breath... I was taken off the drug but there was

enough in my system

to fill up my right side for a while, so keep an eye on it.  I have been off

all

meds for a while now

will see the hem doc next couple weeks and see where if anywhere we go from

here. 

The trouble is they have no one (they can find) that has survived as long as me

so they

have no data available.  They have killed all my bone marrow and I am to old to

try a stem

cell, or BMT.  So I am going to have to ride this bull until it kicks me off.

hope you do not get any fluid back.

BTW nurses are my favourite people, I love each and every one of the nurses in

Medical Day

they treat me as if I worked there,  As does everyone here, thanks Lottie and

Jimmy

SkipD been on  myleran, gleeved nilotinib, dasatinib back on nilotinib etc now

on

nothing was dx'ed 33 years ago feel pretty darned good except for low hgb and

plts

________________________________

From: " vegasrnjen@... " <vegasrnjen@...>

Sent: Fri, October 1, 2010 6:56:45 PM

Subject: [ ] Effusion and enlarged heart...Update

 

Hey!

Just wanted to say that I went in for my CT scan today and they saw a lot

more fluid then the xray picked up. The radiologist came in the room and

told me it was his recommendation to drain off that fluid. He called my

oncologist and they went ahead with it. They drained out 1.4 liters. I can

now take a deep breath but I am still beyond wiped out. I am thinking I

have to have a break or a reduction in the sprycel. I cant function right

now.

Thanks for the comments and suggestions from everyone.

RN

Wife and mother of 3 (14,11,9)

CML 5/13/05

Gleevec 800mg until 8/07

Sprycel 100mg since