Re: Lottiie and cml group

[Guest guest]

Hi Skip:  That is fantastic.  I always mention you to different people when I

discuss CML, and my journey since 1998.  God works in mysterious ways is all I

can say.  I have seen it in my own life so many times.  May you continue to do

good.

God Bless You

From: Skip Duffie <skipd_2002@...>

Subject: [ ] Lottiie and cml group

Date: Friday, October 8, 2010, 9:52 AM

 

Good morning Lottie and Group,

Just a quick note to let you know about my visit with the Hem Doc, It was a very

nice visit, he

gave me a complete look over, then he sprung the news that I had a log reduction

of 1.

now this would not be much of a news to some one that is on medication, but I

have not

had any meds in over a year. He said that my CML was very very quiet almost a

remission.

He did not know why the log reduction but do not look a gift horse in the

mouth.. My spleen

is still in good shape, no sign of fluid around the lung. 

I still have to receive blood products at least twice week, Hgb and Plts, in

fact I had to

leave his office and go get some platlets.  So all and all he said after 33

years he is

very very happy about me, not sure why things are going the way they are but do

not

try and fix something that is not broken.

He is so happy I do not have to see him for six months, but go to medical day

twice week

 skipd dx'ed 33 years ago almost 34 this December..

been on Bulsufan (Myleran), nilotinib, dasatinib, Gleevec. some twice.

[Guest guest]

he sprung the news that I had a log reduction

> of 1.

> now this would not be much of a news to some one that is on medication, but I

> have not

> had any meds in over a year. He said that my CML was very very quiet almost a

> remission.

__________________________

Hi Skip,

I think that you have just worn your cml cells out after 33 years.....another

way to defeat the dragon! Congrats to you.

C.