Jackie

[Guest guest]

--- redjaxj@... wrote:

> ps.. I had to demand my doc order me procrit and he was

> just " sure " that my insurance wouldnt cover it,, well

> wrong O!!

> Sometimes I think I frustrate him because I dont just

> hang on every word he says, I have already investigated

> things on my own and let HIM know what I want...hehehe,,

Good for you! The ego's of some doctor's can be really bad - I know,

I've been there too! (We're having MAJOR problems with that right now

with my grandmother's new doctor.) What's crazy is that when you can

get a doctor back down to earth and start really comunicating, often

the doctor discovers he enjoys it more when patients participate and

take more responsibility in their own health care. They might THINK

that it's more trouble, but to me in the long run it can save

trouble! This all goes back to my beliefs on " Informed Choice " , which

I have previously written an essay about and won't bore you all again

with it. I feel very lucky that I have finally found a doctor who

LISTENS as much, if not more, than he talks. And I have found that

because of this I am much more trusting of his advice and am more

willing to listen to him when he is suggesting something that doesn't

sound too great to me. By the way, I just saw this doctor on Monday

to review my latest LFTs. My ALT and AST were the lowest they've been

in years, just barely over normals, and considering that my biopsy

last year showed no more fibrosis, and almost no inflammation, that

is a fairly reliable indicator that things are still good in my

liver. He told me what ever I was doing, keep on doing it. So I told

him about milk thistle. He was very interested, and said he would

like to get some other of his patients taking it, so I'm going to

send him info on it. He is pretty open minded to new ideas. He is not

an MD, he is a DO. I have often found they seem to be a bit more open

minded than most MD's, especially MD's in the US. (Maybe that is just

my imagination - who knows! But he is the only doctor I could ever

get to give me a referral to a chiropractor too!)

Claudine

__________________________________________________

[Guest guest]

Hi Claudine

I know what you mean about the docs,, in fact mine has

told me that he feels that we are working " together " on

my hep c and he calls me his " poster child " .. but he was

wrong about the procrit ,, so now I investigate things

myself,,

and you are right about milk thistle,, my doc was really

glad I stayed with it.. What form are you using? Im using

the unicity brand as it has the siliphos in it which is

8-10 times more effective than simply silymarin... made

my number drop like rocks even before starting the

peg/riba.. and they have continued to drop with tx,, so I

know its a great thing,,and I am NOT having the sides

from tx others are having,, hmmmm..

Well take care,, hope your mom is doing better,, dont let

the docs get ya down,, just keep at em,, they are human

too altho sometimes need to be reminded of that,, hehe

jackie

>

> --- redjaxj@... wrote:

> > ps.. I had to demand my doc order me procrit and he was

> > just " sure " that my insurance wouldnt cover it,, well

> > wrong O!!

> > Sometimes I think I frustrate him because I dont just

> > hang on every word he says, I have already investigated

> > things on my own and let HIM know what I want...hehehe,,

>

> Good for you! The ego's of some doctor's can be really bad - I know,

> I've been there too! (We're having MAJOR problems with that right now

> with my grandmother's new doctor.) What's crazy is that when you can

> get a doctor back down to earth and start really comunicating, often

> the doctor discovers he enjoys it more when patients participate and

> take more responsibility in their own health care. They might THINK

> that it's more trouble, but to me in the long run it can save

> trouble! This all goes back to my beliefs on " Informed Choice " , which

> I have previously written an essay about and won't bore you all again

> with it. I feel very lucky that I have finally found a doctor who

> LISTENS as much, if not more, than he talks. And I have found that

> because of this I am much more trusting of his advice and am more

> willing to listen to him when he is suggesting something that doesn't

> sound too great to me. By the way, I just saw this doctor on Monday

> to review my latest LFTs. My ALT and AST were the lowest they've been

> in years, just barely over normals, and considering that my biopsy

> last year showed no more fibrosis, and almost no inflammation, that

> is a fairly reliable indicator that things are still good in my

> liver. He told me what ever I was doing, keep on doing it. So I told

> him about milk thistle. He was very interested, and said he would

> like to get some other of his patients taking it, so I'm going to

> send him info on it. He is pretty open minded to new ideas. He is not

> an MD, he is a DO. I have often found they seem to be a bit more open

> minded than most MD's, especially MD's in the US. (Maybe that is just

> my imagination - who knows! But he is the only doctor I could ever

> get to give me a referral to a chiropractor too!)

> Claudine

>

> __________________________________________________

>

[Guest guest]

Hi Jackie,

The milk thistle I am taking is Maximum Milk Thistle. I order it

over the internet. It seems to work well. I tried a cheap brand from

Walmart for a while but didn't really see (or feel) any results.

Also, since I live a long way from any health food store, it's very

convenient. I have a three month supply delivered to my door every

three months automatically so I don't even have to remember to order

it.

My grandmother (not my mom) is not doing too well, and a lot of

that is due to her newest doctor who thinks that after seeing her

only one time in his life he knows more about her than we do. He

prescribed a medicine to her that quite clearly states in the warning

to NOT give to someone with low sodium levels, and low sodium levels

have been a chronic problem for months. He never bothered to read her

previous records, which we made sure he had, and even though we told

him it had been a chronic problem for months, I guess it just didn't

sink in. Her sodium is almost always below normal, but if it drops

anymore than even slightly below normal she hallucinates and gets

aggitated, doesn't recognize people, etc. So when it happened two

days after prescribing this medicine he insisted she was just in the

first stages of demenita. The fact that we have been through this

with her more than once meant nothing to him. We had to argue just to

get him to test her sodium, and sure enough, in only two days it had

dropped from 130 to 123. That is just one example of things that have

happened over the past 3 months. She would have been dead already

several times over if we would not have been very active and watchful

of everything that they do. None of the doctors like us too much, but

that is their problem. Anyway, a great deal of my time is still spent

with her. All this has been a real learning experience. I was already

a bit distrustful of hospitals, and doctors or other staff who won't

listen, but it's still been an eye opener. Anyone who needs to be

hospitalized needs an advocate, and if you ever have a family member

who must go into a nursing home make sure you visit and check out

what is happening there VERY frequently. It's scary! (Sometimes it's

funny too, since you can see the panic when they are 'caught' being

negligent - they don't know we are not law suit people!) Part of the

problem (a major part) is understaffing, but some of it is really an

attitude of not caring a whole lot about the patients. Thankfully

there are at least a few everywhere who DO care, but they can't make

up for all the others who are often downright negligent. I guess I

could ramble on about this for a long time and it's not that relevant

(at least I HOPE it's not, lol), so I'll shut up for now. It really

makes me VERY appreciative of the good doctors and nurses that I have

found though!

Claudine

__________________________________________________

[Guest guest]

--Dave so sorry to hear about Jackie. Rick

- In , Dave <dhz920@s...> wrote:

> We received some sad news this morning. Our friend Jackie passed

away last night. For those who don't know, she had hcv years ago and

there was no recourse but a transplant. She had it several years ago

and things seemed to be going fine, in fact they had recently taken

her off of the anti-rejection meds. I know the hcv was back and she

had a kidney infection. We don't know too many more details yet. She

was an old friend of my wife's and we went to the same church. She

helped me by talking with me after I found out I had hcv. She's got

a 15 year old son and also has custody of her 4 year old grandson.

She has a couple of older sons, unfortunately they haven't shown to

be too responsible yet, hopefully they will step up to the plate in

this crisis. Any prayers for her family will be appreciated. -dz-

[Guest guest]

Dave I am so sorry to hear about your loss..... I will be saying many prayers for her and her family......may his angels watch over and may God give strenght , guidance, and faith .....

By Gods Grace

marie

rick <r_martin85@...> wrote:

--Dave so sorry to hear about Jackie. Rick- In , Dave <dhz920@s...> wrote:> We received some sad news this morning. Our friend Jackie passed away last night. For those who don't know, she had hcv years ago and there was no recourse but a transplant. She had it several years ago and things seemed to be going fine, in fact they had recently taken her off of the anti-rejection meds. I know the hcv was back and she had a kidney infection. We don't know too many more details yet. She was an old friend of my wife's and we went to the same church. She helped me by talking with me after I found out I had hcv. She's got a 15 year old son and also has custody of her 4 year old grandson. She has a couple of older sons, unfortunately they haven't shown to be too responsible yet,

hopefully they will step up to the plate in this crisis. Any prayers for her family will be appreciated. -dz-

[Guest guest]

Thank you. We will be missing her. Life goes on. I guess she had her transplant almost 10 years ago. So she had 10 years of life that she wouldn't have without it. She found her answer and her peace with God. I know we each have our own way of doing that, but I feel that she was well-grounded and spiritually ready for this next journey. She, like me, had led a dangerous and self-destructive life which came back to haunt her. It gives me greater reason to appreciate the second chance I now have.

I will share what I have come to know about this facet of hcv. Correct me if I am wrong, it is normally expected that after a liver transplant, the patient still has hcv. The virus is in the blood and will begin to infect the new liver. The idea is that normally the new healthy liver will outlast the virus and allow the patient to live a normal life. Sadly in Jackies case the virus must have replicated itself and started wreaking damage very quickly. It ruined her liver in 10 years. I had hcv undetected for at least 20 years and sustained very little damage. The disease is so unpredictable. Please don't lose hope, anybody that is waiting for a transplant. At the same time it is a reminder that this is a very real danger and we need to keep up the fight to have that fact recognized by the government and medical community. We have lost another of our numbers too early, she was 48 years old. I am so glad that you are all here to let me unload these

feelings. -dz-Terry Long <pawpawto3@...> wrote:

Dave, I'm sorry to hear about Jackie. I will be remembering her family & you in my prayers. Terry

[Guest guest]

I know it is sometimes hard to understand why a loving God allows some of the things that happen to good people in this world. For my part I accept that some things are just beyond my understanding. I assume your unanswered prayers represent some sad events in your life, I'm sorry for that. It's hard to understand why some people have so much grief in their lives and others go through relatively unscathed. No reason for you to feel bad, I know what you wrote was not mean spirited and I don't expect that others have the same beliefs I do. -dz- <hepc40@...> wrote:

Dave. Thanks because I felt bad about what I wrote andI do not pray due to past unanswered prayers whichhave caused a lack of faith and belief in God.--- dhz920@... <dhz920@...> wrote:> Kind thoughts will do fine. We all have our ownways. -dz->

[Guest guest]

I think there is something to that, Terry. It's just all very hard to understand sometimes. I continue to try, but I have accepted the fact that some things are beyond my understanding, at least during the course of this life. -dz-Terry Long <pawpawto3@...> wrote:

Seeing a lot grief in my 50 years. I came to the belive that God does not allow any more then we can handle at the time. I also belive that grief, is a way we grow stronger. TerryDave <dhz920@...> wrote:

I know it is sometimes hard to understand why a loving God allows some of the things that happen to good people in this world. For my part I accept that some things are just beyond my understanding. I assume your unanswered prayers represent some sad events in your life, I'm sorry for that. It's hard to understand why some people have so much grief in their lives and others go through relatively unscathed. No reason for you to feel bad, I know what you wrote was not mean spirited and I don't expect that others have the same beliefs I do. -dz-

[Guest guest]

In a message dated 2/2/2005 12:03:54 PM Central Standard Time, nancygodin19562003@... writes:

Hi Jackie

Welcome

Post your free ad now! Canada Personals

[Guest guest]

Hang in there!!! Certain counts do drop

and that is one of the concerns of treatment, but they’re watching it and

they can make adjustments before necessarily discontinuing treatment. –dz-

[ ]

Jackie

Hey there I did my 19th shot Friday. Meaning 5 left. I

am so ready to

end it. I know im lucky to have only had to

do 6 months Im still

having to do procrit 3 times a week.Most of you

had longer. By blood

counts dropped this past week down to where I started

from. Not good.

I see my hep dr @ 1:45 Monday. The numbers are

starting to concern me.

Am I getting more concerned than I should be? I

cant wait till Monday

I have questions for him. Tuesday i see the

specialits for my sinuses.

See how much damage I have done snortin all that

meth. I have been on

3 different antibiotics, 2 bottles cough syrup and

meds for sides due

to treatment. I started out the year with one

estrogen pill the lowest

u can go 1 mg. and my multi vitamin and calcium.

what a change. Im

still fairly young 43 ill bounce back from all

this I still deal with

arth. scoliosis, carpul tunnel Enjoy your weekend

Annita

[Guest guest]

What are some of the symptoms that go away when chelation for arsenic?

On May 15, 2009, at 6:23 AM, Shepard Salzer wrote:

>

>

> Hi Jackie,

> You've been through a lot. My arsenic was 0.6 on the 2002 hair

> test. In 2007 it was down to 0.056, in 2008 back up a little

> (probably due to when I tested compared with chelation cycles, no

> known new exposure) to 0.075.

> S S

>

> -------So what was your highest arsenic number on your hair test?

> Just curious. There are a couple real high ones in HTI, and I asked

> Andy one time about mine, and he said they were *nice and high*. So

> I really think the arsenic is a big factor for me.----Jackie

>

> ----------------------------------------------------------

> Virginia Beach Vacation

> Click here for great deals on vacation rentals, packages and

> resorts in Virginia Beach.

> http://tagline.excite.com/fc/

> FgElN1gxx6r3w33yQjceRASAL1Erj1qZwH67sHvC3GRDNCej22dFFBes352/

>

>

[Guest guest]

Hi . Yes, it's been a journey, to say the least. Wow, your arsenic was

really high! So it has taken that many years to bring it down? How often do

you chelate?-------Jackie

>

> Hi Jackie,

> You've been through a lot. My arsenic was 0.6 on the 2002 hair test. In 2007

it was down to 0.056, in 2008 back up a little (probably due to when I tested

compared with chelation cycles, no known new exposure) to 0.075.

> S S

>

> -------So what was your highest arsenic number on your hair test?

> Just curious. There are a couple real high ones in HTI, and I asked Andy one

time about mine, and he said they were *nice and high*. So I really think the

arsenic is a big factor for me.----Jackie

>

>

>

> ------------------------------------------------------------

> Virginia Beach Vacation

> Click here for great deals on vacation rentals, packages and resorts in

Virginia Beach.

>

http://tagline.excite.com/fc/FgElN1gxx6r3w33yQjceRASAL1Erj1qZwH67sHvC3GRDNCej22d\

FFBes352/

>

>

[Guest guest]

Mine hasn't dropped that much yet, so it might be better to ask . And if

you have HTI, Andy covers arsenic very well in there.

One thing I noticed with my daughter is she was finally able to get rid of her

warts, since we stopped drinking the arsenic water. In HTI, Andy mentions warts

and skin problems as a symptom of arsenic poisoning. And my daughter hasn't

chelated, we just stopped the exposure. And I think my son has said his

allergies haven't been as bad. He has done a few odd rounds of chelation, but

not many, because he's NT, and very busy with sports, etc., so hard to fit it

in.

As for myself, I'm not sure if I have reduced it enough to notice much

difference. In HTI, Andy says mercury plus arsenic is a bad combo for the

hypothalamus and pituitary, and this seems to be the case for me, as my hormones

are really messed up. And he also says its a bad combo for chemical

sensitivities. But I can say that my allergies and chemical sensitivities have

probably lessened since starting chelation. Not gone, but better.-------Jackie

>

> >

> >

> > Hi Jackie,

> > You've been through a lot. My arsenic was 0.6 on the 2002 hair

> > test. In 2007 it was down to 0.056, in 2008 back up a little

> > (probably due to when I tested compared with chelation cycles, no

> > known new exposure) to 0.075.

> > S S

> >

> > -------So what was your highest arsenic number on your hair test?

> > Just curious. There are a couple real high ones in HTI, and I asked

> > Andy one time about mine, and he said they were *nice and high*. So

> > I really think the arsenic is a big factor for me.----Jackie

> >

> > ----------------------------------------------------------

> > Virginia Beach Vacation

> > Click here for great deals on vacation rentals, packages and

> > resorts in Virginia Beach.

> > http://tagline.excite.com/fc/

> > FgElN1gxx6r3w33yQjceRASAL1Erj1qZwH67sHvC3GRDNCej22dFFBes352/

> >

> >

[Guest guest]

Hi Jackie,

I have not been chelating every or even every other weekend by any stretch. My

chelation schedule varied depending what else was going on in my life. During

that time both of my parents died (in their 60s), earned an MA in Environment &

Community while working full-time, I got married, moved across country, had 2

nieces born, 1 each with galactosemia and cleft lip (so went on self-education

mode and made a bunch of quilts to help pay for surgery), etc.

S S

Re: Jackie

Posted by: " Jackie " jtrunt@... jackietutts

Fri May 15, 2009 8:57 am (PDT)

Hi . Yes, it's been a journey, to say the least. Wow, your arsenic was

really high! So it has taken that many years to bring it down? How often do you

chelate?-------Jackie

------------------------------------------------------------

You will believe your eyes! Click here for great whale watching packages!

Whale Watching

http://tagline.excite.com/fc/FgElN1g0EjRviRezIGWq2dKqcHb6X9Jw7JwfeYLKnNRngjFl82d\

yAvto9SA/

[Guest guest]

Hi All.

Has anyone heard any news about Jackie? I pray that all is well with her. I

wonder if she had the BMT. If so, how is everything going with her?

Sandi