General information

[Guest guest]

My husband felt better the night that he got his mtx shot.

Ellie -

Stars and Stripes Forever

[Guest guest]

In a message dated 11/08/2001 3:04:13 PM Eastern Standard Time,

bdesilet@... writes:

<< How long do you need to be on

this medication before you notice a difference? >>

It took me a good six months to notice any difference from the meth.;

however, I never really had a full remission. I'm now on enbrel and really

don't feel much has changed, but I think that will take about six months to

really be able to judge as well.

Welcome to the group -

[Guest guest]

Hi

I'm sorry I didn't catch your name. My daughter is 12

and has suffered with symptoms for 4 years. We saw the

Rheumy yesterday and she is sending her for more xrays

and ultrasounds. My daughter suffers constant pain,

and puffy inflamed feet, hands, knees and elbows and

is on Naprosyn but the Rheumy has said if it doesn't

work she will put her on a low dose of Predisnone.

Sometimes the pain is so great my daughter can hardly

move.

I asked the Rheumy about the antibiotic treatment and

showed her the results of the test that Greenly

posted on this site. She has heard of antibiotic

treatment but said as my daughter's bone scan is

normal and blood tests are normal etc. she doesn't

want to treat her for the wrong thing. She has said

that there is no inflammation showing on the tests

though physically it is there for all to see.

One thing my daughter has noticed is that eating sugar

makes the pain much worse.

I am sorry to hear your daughter has been diagnosed

with this but at least you now have a name for all the

pain. Take care

Sue

bdesilet@... wrote:

> Hi, my 17 year old daughter was just diagnosed with

> PA. She is on

> naproxyn, methotrexate and folic acid. How long do

> you need to be on

> this medication before you notice a difference? Has

> anyone been on

> these for very long? Her dad has rheumatoid

> arthritis and has been on

> several meds for a few years. We are very new to

> this, though. Does

> anyone know of anyone else this young with PA? I

> would like for her

> to be able to talk to other young people that are

> going through the

> same things. She is in a lot of pain some days, but

> has kept going

> through it all. Any help you could give would be

> appreciated. Thanks.

>

>

>

__________________________________________________

[Guest guest]

Sue Lillywhite wrote:

>

<snip>

> I asked the Rheumy about the antibiotic treatment and

> showed her the results of the test that Greenly

> posted on this site. She has heard of antibiotic

> treatment but said as my daughter's bone scan is

> normal and blood tests are normal etc. she doesn't

> want to treat her for the wrong thing. She has said

> that there is no inflammation showing on the tests

> though physically it is there for all to see.

>

> One thing my daughter has noticed is that eating sugar

> makes the pain much worse.

>

Isn't that discouraging; you'd like to think that if you have this darn

disease, that _something_ should show up in bloodwork and/or x-rays.

Well, there's a few of us like that out here -- I too have normal

bloodwork and x-rays. But by looking at my hands you can definitely see

inflammation and distortion. And I can sure feel it. I was reading on

the Road Back Foundation bulletin board last night that -- although I

suspect those of us with PA typically do exhibit normal bloodwork more

frequently than those with other rheumatic diseases (just a layperson's

hunch; I am no medical expert) -- many people with these problems,

including RA and scleraderma, can have normal labs, but they are still

undergoing the antibiotic protocol and benefitting from it (to various

degrees).

I've been on the AP since late June for PA and so far I haven't had too

much in the way of results. Actually, virtually nothing yet. I'm hanging

onto that YET, however!

Sugar and fat makes me worse, too -- your daughter has plenty of

company!

Best wishes,

--Louise

[Guest guest]

Louise

May I ask which of the AP drugs they started you, on, my dermatologist

suggested minocylcine 100's but I am reluctant to start without a rheumy

directing and correct dosages etc, thanks

Southside Ed

[Guest guest]

newell3480@... wrote:

>

>

> May I ask which of the AP drugs they started you, on, my dermatologist

> suggested minocylcine 100's but I am reluctant to start without a rheumy

> directing and correct dosages etc, thanks

>

> Southside Ed

>

I was started on the Lederle brand Minocin, 1 100-mg capsule 2x/day,

everyday. However, after 3 months I wasn't experiencing noticeable

improvement so the rheumy (an AP doctor) wanted me to stop and switch to

Arava. I wanted nothing to do with that but wasn't able to convince him.

So, while I still had a couple refills left on my Minocin prescription,

I'm still taking them except that I've switched to 2x every other day.

The rationale for that is from the " New Arthritis Breakthrough " book, by

Henry Scammell and Dr. McPherson Brown, in which the

every-other-day regimen is recommended. (But that's just me -- people on

the AP take minocin -- or doxycyline, or another of the tetracycline

family -- on all different dosages.) Plus I've resumed taking Evening

Primrose Oil capsules everyday.

I'm planning to look for another doctor, by the way -- I just didn't

feel the first AP doc and I had any sort of rapport for making this

protocol work for me. Apparently a rheumy isn't really necessary for

this protocol, as long as the doctor you've got is willing to read the

protocol and is competent and will really work with you. As long as your

derm. seems willing, maybe that's the thing to do? In fact, I have an

appt. with my derm. later this week and I think I'll ask him about

it....

best wishes,

--Louise

[Guest guest]

Sounds like you're experiencing the same frustrations, where is this protocol

found? I got the book " the new arthritis breakthrough " but haven't found any

real road map I can take to a regular doc,thanks

[Guest guest]

antibiotics are probably the safest treatment available and their

effectiveness is similar to most of the other drugs. Just try it, it

seems to work for me

> >

> <snip>

> > I asked the Rheumy about the antibiotic treatment and

> > showed her the results of the test that Greenly

> > posted on this site. She has heard of antibiotic

> > treatment but said as my daughter's bone scan is

> > normal and blood tests are normal etc. she doesn't

> > want to treat her for the wrong thing. She has said

> > that there is no inflammation showing on the tests

> > though physically it is there for all to see.

> >

> > One thing my daughter has noticed is that eating sugar

> > makes the pain much worse.

> >

>

> Isn't that discouraging; you'd like to think that if you have this

darn

> disease, that _something_ should show up in bloodwork and/or x-rays.

> Well, there's a few of us like that out here -- I too have normal

> bloodwork and x-rays. But by looking at my hands you can definitely

see

> inflammation and distortion. And I can sure feel it. I was reading

on

> the Road Back Foundation bulletin board last night that -- although

I

> suspect those of us with PA typically do exhibit normal bloodwork

more

> frequently than those with other rheumatic diseases (just a

layperson's

> hunch; I am no medical expert) -- many people with these problems,

> including RA and scleraderma, can have normal labs, but they are

still

> undergoing the antibiotic protocol and benefitting from it (to

various

> degrees).

>

> I've been on the AP since late June for PA and so far I haven't had

too

> much in the way of results. Actually, virtually nothing yet. I'm

hanging

> onto that YET, however!

>

> Sugar and fat makes me worse, too -- your daughter has plenty of

> company!

>

> Best wishes,

> --Louise

[Guest guest]

Tamara,

Thanks for your response. Oak's SCI organization doesn't do anything for

individuals. You might want to send an blank email to

psychoslaves-subscribe and join an action group. there you will

find the names of the three individuals we are trying to help in IL.

But since Mark Heyrman and others are selling these guys rights down the drain;

I was hoping that your group could help.

Tamara <T@...> wrote:

Hello,

Thank you for your interest in Heartland Alliance. I apologize for the delayed

response. This is not one of our areas of expertise, but I have forwarded your

note to the director of our mental health programs for consideration. Are you

aware of Mind Freedom (www.mindfreedom.org)? That organization advocates for

human rights in the mental health system, including lobbying against involuntary

institutionalization. They may be able to assist you. Good luck in your

search!

Sincerely,

Tamara L.

Assistant to the President

Heartland Alliance

General information

Does your organization do anything to help those involuntarily committed to

mental hospitals in Illinois? It's a form of torture to me and to them.

F. Prior Calendar: http://calendar./j_prior

T: 773/774-6696

M: 773/230-5825 F: 801/848-3451

E: jprior@... W: www.lgln.com

: 22:36-40, Deut 6:5, and Leviticus 19:18

F. Prior Calendar: http://calendar./j_prior

T: 773/774-6696

M: 773/230-5825 F: 801/848-3451

E: jprior@... W: www.lgln.com

: 22:36-40, Deut 6:5, and Leviticus 19:18

[Guest guest]

Who owns most of the organic foods grown in this country - it may surprise you.

http://www.cornucopia.org/who-owns-organic/

______________________________

Health Care Costs to Increase

" The Hewitt report blames higher mostly on medical claim costs and an aging

population but also on U.S. healthcare reform, which has become one of the most

politically charged issues in the coming November congressional elections as

disappointed voters learn they must wait for promised savings to come into

effect. The report projects average health care cost per employee will rise to

$9,821 in 2011, up from $9,028 in 2010. Employees will pay $2,209, or 22.5

percent of the total premium, up 12.4 percent from 2010. " After 18 months of

waiting for healthcare reform to play out, employers find themselves in a very

challenging cost position for 2011, " Ken Sperling, Hewitt's health care practice

leader, said in a statement. "

http://www.reuters.com/article/idUSTRE68Q3N520100927

_______________________________

ANTIOXIDANTS & CHEMOTHERAPY, DO THEY WORK TOGETHER?????

" The idea that the use of antioxidants decreases the efficacy of chemotherapy is

being used more and more by orthodox oncologists. It is based upon their

hypothesis that anything which decreases the oxidant effect of drugs will

decrease the efficacy of chemotherapy. More and more I hear this from my

patients after they are diagnosed and chemotherapy is discussed with them by

their oncologists. This opinion is not universal, but my guess is that about 75%

of oncologists hold this view. Their view is that chemotherapy destroys tumor

tissue because it introduces powerful oxidation products, free radicals, and

that anything which decreases that must interfere with treatment. They know they

are using sub-lethal amounts of toxic compounds which would never pass FDA

standards in any different context. The aim is to kill all the tumor tissue

without killing all the other tissues in the body. This is always a close call.

Therefore, since vitamin C is a good antioxidant it must not be given with

chemotherapy. One of my patients was told by his oncologist that if he took

vitamin C he would not be given any chemotherapy.

" Well, what are the facts? The first fact is that there are no clinical series

which show that patients given vitamin C and chemotherapy fare worse than those

not given this vitamin. On the contrary, all the published series show just the

opposite. I have treated over 1,100 cases with large doses of vitamin C and most

of them had chemotherapy.(1-4) I have examined the follow up data and find that

the mean difference on prolongation of life was heavily in favor of the use of

the vitamins. In the first series I published with Linus ing those patients

on my program lived 10 to 20 times as long as the patients not receiving the

vitamin. "

http://www.doctoryourself.com/chemo.html

_________________________________

Vitamin D Can Replace Flu Shots

" A clinical trial led by Mitsuyoshi Urashima and conducted by the Division of

Molecular Epidemiology in the the Department of Pediatrics at the Jikei

University School of Medicine Minato-ku in Tokyo found that vitamin D was

extremely effective at halting influenza infections in children. The trial

appears in the March, 2010 issue of the American Journal of Clinical Nutrition

(Am J Clin Nutr (March 10, 2010). "

http://www.naturalnews.com/029760_vitamin_D_influenza.html

Sunday Times in UK

" Altogether 354 children took part in the trial, which took place during the

winter of 2008-09, before the swine flu epidemic. Vitamin D was found to protect

against influenza A, which caused last year’s epidemic, but not against the less

common influenza B. "

http://www.timesonline.co.uk/tol/news/uk/scotland/article7061778.ece

_________________________

Cancer Cures From The Unexpected

As cancer is on the rise, so are the numbers of Americans that seek out

alternative treatments to certain types of cancer. The Journal of Oncology

reported in one study that 88% of persons with cancer have tried at least one

type of alternative treatment. There are many different alternatives out there

ranging from energy medicine to Chinese medicine to the spiritual healing to the

odd and unusual. "

* * * * * * * * * * * *

" Goji berries are found in China, Tibet and Mongolia. Currently available in

dried or juice forms. They have been a part of Chinese medicine for thousands of

years. The berries contain polysaccharides in which strengthen the bodies immune

system. Amino acids to the count of nineteen have been found in these berries

and have more Vitamin C than oranges can provide. They also contain carotenoids

like beta-carotene and zeaxathin. Also contained is Vitamin B complex, Vitamin

E, essential fatty acids and Betaine.Various laboratory studies have advocated

that the extract of these berries possibly can stop cancer cells from growing. A

study that was published in the Chinese Journal of Oncology had discovered that

79 cancer patients had better response when the extract of these berries was

added into their other therapies. "

http://tinyurl.com/2bw8wub

---------------------------------------------------

Marijuana May Someday Become Cancer Treatment

" The study by Guzman of Madrid Spain found that cannabinoids, the active

components of marijuana, inhibited tumor growth in laboratory animals by

modulating key cell-signaling pathways and thus causing direct growth arrest and

death of tumor cells. The study also found that cannabinoids inhibited

angiogenesis and that cannabinoids were usually well tolerated and did not

produce the generalized toxic effects of conventional chemotherapies.

" According to neurologist Dr. Ethan Russo, the Guzman study was very important

because cancer cells become immortalized and fail to heed normal signals to turn

off growth and die on cue. In addition, the other way that tumors grow is by

sending out signals to promote angiogenesis, the growth of new blood vessels.

Cannabinoids turn off these signals as well. Normally, any story that even

suggests the possibility of a new treatment for cancer is greeted with headlines

about a " cancer cure " - however remote or improbable it might be. However, if

marijuana is involved, don't expect any coverage from mainstream media. "

http://www.thedietsolutionprogram.com/burnfat4.aspx?hop=m231g & m=ad & r=aff

___________________________

FYI,

Lottie Duthu