Guest guest Posted September 27, 2010 Report Share Posted September 27, 2010 WHOOHOOOOO, Wishing you very many more great visits :-) From: ROBERTA DOYLE <rcd1929@...> Subject: [ ] Dr. Talpaz visit " " < > Date: Monday, September 27, 2010, 3:15 PM  Yippee! I don't have to have labs done every week now, I can just have them done twice a month. Once at U of Mich, and two weeks later at the Cleveland Clinic. And very soon it will be a quarterly visit to see the good doctor, not once a month. My labs are great except for hgb, which stays around 10.2 - 10.7, even taking 975mg iron a day. Had a great visit, was back home by 2:30, not bad considering it is a 350 mile round trip. Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2011 Report Share Posted February 18, 2011 So glad you got good news. We all need to hear something good happening, and especially to you who has been through it all. May you continue to do well with your treatments. This should inspire many who have been struggling to get to the point that your at right now. From: ROBERTA DOYLE <rcd1929@...> Subject: [ ] Dr. Talpaz visit " " < > Date: Friday, February 18, 2011, 8:35 AM  Hi everyone, Mon. my daughter drove me to Ann Arbor for my visit with Dr. Talpaz. Normally it's 3 hrs to get there, 3 hrs. there and 3 more back home. Not this time. The good Dr. Talpaz said my ekg was indicative of a heart attack and sent me to the ER. I did not leave until Wed. afternoon!! The good news is 1) I did not have a heart attack, I had a stress test and the heart is fine. 2) the cardioversion (shock the heart back into normal) worked and I am no longer in Afib. Not sure why the ekg read that way, I think one of the doctors said it could have been due to the cardioversion,. Anyway, they did help with the shortness of breath. They said I had too much fluid in my body, heart and lungs included, and loaded me up with lasix. I have lost 11 lbs since Mon. am. I feel much better, have not been short of breath , just a wee bit on occasion. They said there was not enough oxygen in my blood and that is what made the heart work harder, causing SOB. So, 11 lbs lighter, I feel better. 3) the other good news is I don't go back until May, and will finally be on a 6 month visit schedule. they sort of flew by the 3 month ones. Hans and Beth, if you are reading this, are you on 3 month or 6 month schedules? Have a great day everyone, the sun is out here in Ohio and the snow has melted, looks great to be gone, but now they are worried about flooding. Always something, Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2011 Report Share Posted February 19, 2011 Thanks, I'll take that email to my next visit with the cardiologist. Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club From: ROBERTA DOYLE <rcd1929@...> Subject: [ ] Dr. Talpaz visit " " < > Date: Friday, February 18, 2011, 8:35 AM  Hi everyone, Mon. my daughter drove me to Ann Arbor for my visit with Dr. Talpaz. Normally it's 3 hrs to get there, 3 hrs. there and 3 more back home. Not this time. The good Dr. Talpaz said my ekg was indicative of a heart attack and sent me to the ER. I did not leave until Wed. afternoon!! The good news is 1) I did not have a heart attack, I had a stress test and the heart is fine. 2) the cardioversion (shock the heart back into normal) worked and I am no longer in Afib. Not sure why the ekg read that way, I think one of the doctors said it could have been due to the cardioversion,. Anyway, they did help with the shortness of breath. They said I had too much fluid in my body, heart and lungs included, and loaded me up with lasix. I have lost 11 lbs since Mon. am. I feel much better, have not been short of breath , just a wee bit on occasion. They said there was not enough oxygen in my blood and that is what made the heart work harder, causing SOB. So, 11 lbs lighter, I feel better. 3) the other good news is I don't go back until May, and will finally be on a 6 month visit schedule. they sort of flew by the 3 month ones. Hans and Beth, if you are reading this, are you on 3 month or 6 month schedules? Have a great day everyone, the sun is out here in Ohio and the snow has melted, looks great to be gone, but now they are worried about flooding. Always something, Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2011 Report Share Posted February 19, 2011 Yes, it was 10. something, I think 6. I had been complaining since Dec. about SOB, and no one did anything about it, until Dr. t sent me to the ER. I am about to rid myself of my PCP and my Cardio. Aside from a successful conversion, my cardioBobby is the pits! Hope you're doing great and enjoying your new life. On Fri, Feb 18, 2011 at 9:47 PM, jackie schneider <jschneider008@...>wrote: > > > Bobby that must have been scary! They say that women don't know their > having heart attacks before it kills them. Wow. I am so happy to hear from > you. When my HGB use to be low, I would get short of breath too. Was yours > ok? > > Happy that your home and you don't have to return til May. That's great > news. > God Bless, > Jackie S. > > > > From: ROBERTA DOYLE <rcd1929@...> > Subject: [ ] Dr. Talpaz visit > " " < > > Date: Friday, February 18, 2011, 7:35 AM > > > > Hi everyone, Mon. my daughter drove me to Ann Arbor for my visit with > Dr. Talpaz. Normally it's 3 hrs to get there, 3 hrs. there and 3 more back > home. Not this time. The good Dr. Talpaz said my ekg was indicative of a > heart attack and sent me to the ER. I did not leave until Wed. afternoon!! > The good news is 1) I did not have a heart attack, I had a stress test and > the heart is fine. 2) the cardioversion (shock the heart back into normal) > worked and I am no longer in Afib. > > Not sure why the ekg read that way, I think one of the doctors said it > could have been due to the cardioversion,. Anyway, they did help with the > shortness of breath. They said I had too much fluid in my body, heart and > lungs included, and loaded me up with lasix. I have lost 11 lbs since Mon. > am. I feel much better, have not been short of breath , just a wee bit on > occasion. They said there was not enough oxygen in my blood and that is what > made the heart work harder, causing SOB. So, 11 lbs lighter, I feel better. > > 3) the other good news is I don't go back until May, and will finally be on > a 6 month visit schedule. they sort of flew by the 3 month ones. > > Hans and Beth, if you are reading this, are you on 3 month or 6 month > schedules? > Have a great day everyone, the sun is out here in Ohio and the snow has > melted, looks great to be gone, but now they are worried about flooding. > Always something, Bobby > > a ( Bobby ) Doyle, dob 12/17/29 > DX 5/1995 > Interferon 9 weeks/Hydroxyurea 5 years > 02/2000 to 06/2002 Gleevec trial, OHSU > 06/2002 Gleevec/Trisenox Trial, OHSU > 06/2003 Gleevec/Zarnestra Trial, OHSU > 04/2004 Sprycel Trial, MDACC, CCR in 10 months > 04/2008 XL228 Trial, U of Mich. > 01/2009 PCR 5.69 > 04/2009 Ariad Trial AP24534 > 09/2009 PCR 0.01 > 11/2009 PCR 0.034 > 02/2010 PCRU > #840 Zavie's Zero Club > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2011 Report Share Posted February 19, 2011 Bobby, So very glad to hear that you are feeling better.....not glad to hear that you had to go into the hospital to do so, but the end result is GOOD!! JoAnn > > Hi everyone, Mon. my daughter drove me to Ann Arbor for my visit with Dr. Talpaz. Normally it's 3 hrs to get there, 3 hrs. there and 3 more back home. Not this time. The good Dr. Talpaz said my ekg was indicative of a heart attack and sent me to the ER. I did not leave until Wed. afternoon!! > The good news is 1) I did not have a heart attack, I had a stress test and the heart is fine. 2) the cardioversion (shock the heart back into normal) worked and I am no longer in Afib. > > Not sure why the ekg read that way, I think one of the doctors said it could have been due to the cardioversion,. Anyway, they did help with the shortness of breath. They said I had too much fluid in my body, heart and lungs included, and loaded me up with lasix. I have lost 11 lbs since Mon. am. I feel much better, have not been short of breath , just a wee bit on occasion. They said there was not enough oxygen in my blood and that is what made the heart work harder, causing SOB. So, 11 lbs lighter, I feel better. > > 3) the other good news is I don't go back until May, and will finally be on a 6 month visit schedule. they sort of flew by the 3 month ones. > > Hans and Beth, if you are reading this, are you on 3 month or 6 month schedules? > Have a great day everyone, the sun is out here in Ohio and the snow has melted, looks great to be gone, but now they are worried about flooding. Always something, Bobby > > a ( Bobby ) Doyle, dob 12/17/29 > DX 5/1995 > Interferon 9 weeks/Hydroxyurea 5 years > 02/2000 to 06/2002 Gleevec trial, OHSU > 06/2002 Gleevec/Trisenox Trial, OHSU > 06/2003 Gleevec/Zarnestra Trial, OHSU > 04/2004 Sprycel Trial, MDACC, CCR in 10 months > 04/2008 XL228 Trial, U of Mich. > 01/2009 PCR 5.69 > 04/2009 Ariad Trial AP24534 > 09/2009 PCR 0.01 > 11/2009 PCR 0.034 > 02/2010 PCRU > #840 Zavie's Zero Club > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2011 Report Share Posted February 19, 2011 Hi Bobby: What an ordeal you have been through. Like you, I have just been switched to six monthly visits. Must be something positive in that step. May you have some plain sailing from hereon. Guy [ ] Dr. Talpaz visit > " " < > > Date: Friday, February 18, 2011, 7:35 AM > > > > Hi everyone, Mon. my daughter drove me to Ann Arbor for my visit with > Dr. Talpaz. Normally it's 3 hrs to get there, 3 hrs. there and 3 more back > home. Not this time. The good Dr. Talpaz said my ekg was indicative of a > heart attack and sent me to the ER. I did not leave until Wed. afternoon!! > The good news is 1) I did not have a heart attack, I had a stress test and > the heart is fine. 2) the cardioversion (shock the heart back into normal) > worked and I am no longer in Afib. > > Not sure why the ekg read that way, I think one of the doctors said it > could have been due to the cardioversion,. Anyway, they did help with the > shortness of breath. They said I had too much fluid in my body, heart and > lungs included, and loaded me up with lasix. I have lost 11 lbs since Mon. > am. I feel much better, have not been short of breath , just a wee bit on > occasion. They said there was not enough oxygen in my blood and that is what > made the heart work harder, causing SOB. So, 11 lbs lighter, I feel better. > > 3) the other good news is I don't go back until May, and will finally be on > a 6 month visit schedule. they sort of flew by the 3 month ones. > > Hans and Beth, if you are reading this, are you on 3 month or 6 month > schedules? > Have a great day everyone, the sun is out here in Ohio and the snow has > melted, looks great to be gone, but now they are worried about flooding. > Always something, Bobby > > a ( Bobby ) Doyle, dob 12/17/29 > DX 5/1995 > Interferon 9 weeks/Hydroxyurea 5 years > 02/2000 to 06/2002 Gleevec trial, OHSU > 06/2002 Gleevec/Trisenox Trial, OHSU > 06/2003 Gleevec/Zarnestra Trial, OHSU > 04/2004 Sprycel Trial, MDACC, CCR in 10 months > 04/2008 XL228 Trial, U of Mich. > 01/2009 PCR 5.69 > 04/2009 Ariad Trial AP24534 > 09/2009 PCR 0.01 > 11/2009 PCR 0.034 > 02/2010 PCRU > #840 Zavie's Zero Club > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Hi, I love the idea of 6 month visits. Not just because it's 2 bmb/bma procedures a year, instead of 12, or 4, but because if I'm not preparing every month to go to Ann Arbor, I forget I even have CML. Out of sight, out of mind. I have to set the alarm on my phone to even remember to take my pill, then I have to remember to take my phone with me. So, it's a great step for us, Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club > > From: ROBERTA DOYLE <rcd1929@...> > Subject: [ ] Dr. Talpaz visit > " " < > > Date: Friday, February 18, 2011, 7:35 AM > > > > Hi everyone, Mon. my daughter drove me to Ann Arbor for my visit with > Dr. Talpaz. Normally it's 3 hrs to get there, 3 hrs. there and 3 more back > home. Not this time. The good Dr. Talpaz said my ekg was indicative of a > heart attack and sent me to the ER. I did not leave until Wed. afternoon!! > The good news is 1) I did not have a heart attack, I had a stress test and > the heart is fine. 2) the cardioversion (shock the heart back into normal) > worked and I am no longer in Afib. > > Not sure why the ekg read that way, I think one of the doctors said it > could have been due to the cardioversion,. Anyway, they did help with the > shortness of breath. They said I had too much fluid in my body, heart and > lungs included, and loaded me up with lasix. I have lost 11 lbs since Mon. > am. I feel much better, have not been short of breath , just a wee bit on > occasion. They said there was not enough oxygen in my blood and that is what > made the heart work harder, causing SOB. So, 11 lbs lighter, I feel better. > > 3) the other good news is I don't go back until May, and will finally be on > a 6 month visit schedule. they sort of flew by the 3 month ones. > > Hans and Beth, if you are reading this, are you on 3 month or 6 month > schedules? > Have a great day everyone, the sun is out here in Ohio and the snow has > melted, looks great to be gone, but now they are worried about flooding. > Always something, Bobby > > a ( Bobby ) Doyle, dob 12/17/29 > DX 5/1995 > Interferon 9 weeks/Hydroxyurea 5 years > 02/2000 to 06/2002 Gleevec trial, OHSU > 06/2002 Gleevec/Trisenox Trial, OHSU > 06/2003 Gleevec/Zarnestra Trial, OHSU > 04/2004 Sprycel Trial, MDACC, CCR in 10 months > 04/2008 XL228 Trial, U of Mich. > 01/2009 PCR 5.69 > 04/2009 Ariad Trial AP24534 > 09/2009 PCR 0.01 > 11/2009 PCR 0.034 > 02/2010 PCRU > #840 Zavie's Zero Club > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Hi, , both Beth and Hans were on 3 month visits way before me, the same I think with the 6 month visits. Dr. Talpaz explained to me it was up to the hospital . Now that they have started them, you most likely will not have to wait 2 years like I did. Good luck, and isn't Dr. Talpaz a great doctor? Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club From: Linscott <karenlinscott@...> Subject: Re: [ ] Dr. Talpaz visit Date: Saturday, February 19, 2011, 8:57 PM  Bobby, That is wonderful news! I'm glad you are feeling better. Now to have so much time between visits- that is great. I will still be monthly until...who knows when? I'm glad you are well. ________________________________ From: ROBERTA DOYLE <rcd1929@...> < > Sent: Fri, February 18, 2011 7:35:37 AM Subject: [ ] Dr. Talpaz visit  Hi everyone, Mon. my daughter drove me to Ann Arbor for my visit with Dr. Talpaz. Normally it's 3 hrs to get there, 3 hrs. there and 3 more back home. Not this time. The good Dr. Talpaz said my ekg was indicative of a heart attack and sent me to the ER. I did not leave until Wed. afternoon!! The good news is 1) I did not have a heart attack, I had a stress test and the heart is fine. 2) the cardioversion (shock the heart back into normal) worked and I am no longer in Afib. Not sure why the ekg read that way, I think one of the doctors said it could have been due to the cardioversion,. Anyway, they did help with the shortness of breath. They said I had too much fluid in my body, heart and lungs included, and loaded me up with lasix. I have lost 11 lbs since Mon. am. I feel much better, have not been short of breath , just a wee bit on occasion. They said there was not enough oxygen in my blood and that is what made the heart work harder, causing SOB. So, 11 lbs lighter, I feel better. 3) the other good news is I don't go back until May, and will finally be on a 6 month visit schedule. they sort of flew by the 3 month ones. Hans and Beth, if you are reading this, are you on 3 month or 6 month schedules? Have a great day everyone, the sun is out here in Ohio and the snow has melted, looks great to be gone, but now they are worried about flooding. Always something, Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Bobby, THat is encouraging news for me. I won't buy my plane tickets too far in advance then. I go again on Wed. for biopsy, Echo, meeting with Bixby (Talpaz is out of town) Talpaz is wonderful- he always makes me feel so hopeful! Glad you are well. I'm now 3 months on Ariad- hopefully will have good news with this biopsy. ________________________________ From: ROBERTA DOYLE <rcd1929@...> Sent: Sat, February 19, 2011 8:02:00 PM Subject: Re: [ ] Dr. Talpaz visit  Hi, , both Beth and Hans were on 3 month visits way before me, the same I think with the 6 month visits. Dr. Talpaz explained to me it was up to the hospital . Now that they have started them, you most likely will not have to wait 2 years like I did. Good luck, and isn't Dr. Talpaz a great doctor? Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club From: Linscott <karenlinscott@...> Subject: Re: [ ] Dr. Talpaz visit Date: Saturday, February 19, 2011, 8:57 PM  Bobby, That is wonderful news! I'm glad you are feeling better. Now to have so much time between visits- that is great. I will still be monthly until...who knows when? I'm glad you are well. ________________________________ From: ROBERTA DOYLE <rcd1929@...> < > Sent: Fri, February 18, 2011 7:35:37 AM Subject: [ ] Dr. Talpaz visit  Hi everyone, Mon. my daughter drove me to Ann Arbor for my visit with Dr. Talpaz. Normally it's 3 hrs to get there, 3 hrs. there and 3 more back home. Not this time. The good Dr. Talpaz said my ekg was indicative of a heart attack and sent me to the ER. I did not leave until Wed. afternoon!! The good news is 1) I did not have a heart attack, I had a stress test and the heart is fine. 2) the cardioversion (shock the heart back into normal) worked and I am no longer in Afib. Not sure why the ekg read that way, I think one of the doctors said it could have been due to the cardioversion,. Anyway, they did help with the shortness of breath. They said I had too much fluid in my body, heart and lungs included, and loaded me up with lasix. I have lost 11 lbs since Mon. am. I feel much better, have not been short of breath , just a wee bit on occasion. They said there was not enough oxygen in my blood and that is what made the heart work harder, causing SOB. So, 11 lbs lighter, I feel better. 3) the other good news is I don't go back until May, and will finally be on a 6 month visit schedule. they sort of flew by the 3 month ones. Hans and Beth, if you are reading this, are you on 3 month or 6 month schedules? Have a great day everyone, the sun is out here in Ohio and the snow has melted, looks great to be gone, but now they are worried about flooding. Always something, Bobby a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 Hi Bobby. I am so glad to hear the news. Thank goodness it was't a heart attack. Gee, you really have had alot of health issues this year. I hope that all goes smooth from now on. At least you have the sun in Ohio. We sit in New Jersey in cold, often snowy weather. No sun today-clouds that were followed after snow. Sandi > > > > Hi everyone, Mon. my daughter drove me to Ann Arbor for my visit with Dr. Talpaz. Normally it's 3 hrs to get there, 3 hrs. there and 3 more back home. Not this time. The good Dr. Talpaz said my ekg was indicative of a heart attack and sent me to the ER. I did not leave until Wed. afternoon!! > > The good news is 1) I did not have a heart attack, I had a stress test and the heart is fine. 2) the cardioversion (shock the heart back into normal) worked and I am no longer in Afib. > > > > Not sure why the ekg read that way, I think one of the doctors said it could have been due to the cardioversion,. Anyway, they did help with the shortness of breath. They said I had too much fluid in my body, heart and lungs included, and loaded me up with lasix. I have lost 11 lbs since Mon. am. I feel much better, have not been short of breath , just a wee bit on occasion. They said there was not enough oxygen in my blood and that is what made the heart work harder, causing SOB. So, 11 lbs lighter, I feel better. > > > > 3) the other good news is I don't go back until May, and will finally be on a 6 month visit schedule. they sort of flew by the 3 month ones. > > > > Hans and Beth, if you are reading this, are you on 3 month or 6 month schedules? > > Have a great day everyone, the sun is out here in Ohio and the snow has melted, looks great to be gone, but now they are worried about flooding. Always something, Bobby > > > > a ( Bobby ) Doyle, dob 12/17/29 > > DX 5/1995 > > Interferon 9 weeks/Hydroxyurea 5 years > > 02/2000 to 06/2002 Gleevec trial, OHSU > > 06/2002 Gleevec/Trisenox Trial, OHSU > > 06/2003 Gleevec/Zarnestra Trial, OHSU > > 04/2004 Sprycel Trial, MDACC, CCR in 10 months > > 04/2008 XL228 Trial, U of Mich. > > 01/2009 PCR 5.69 > > 04/2009 Ariad Trial AP24534 > > 09/2009 PCR 0.01 > > 11/2009 PCR 0.034 > > 02/2010 PCRU > > #840 Zavie's Zero Club > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 Holy Toledo what a hair-raising adventure! I sure like the outcome though. On Fri, Feb 18, 2011 at 5:35 AM, ROBERTA DOYLE <rcd1929@...>wrote: > > > Hi everyone, Mon. my daughter drove me to Ann Arbor for my visit with > Dr. Talpaz. Normally it's 3 hrs to get there, 3 hrs. there and 3 more back > home. Not this time. The good Dr. Talpaz said my ekg was indicative of a > heart attack and sent me to the ER. I did not leave until Wed. afternoon!! > The good news is 1) I did not have a heart attack, I had a stress test and > the heart is fine. 2) the cardioversion (shock the heart back into normal) > worked and I am no longer in Afib. > > Not sure why the ekg read that way, I think one of the doctors said it > could have been due to the cardioversion,. Anyway, they did help with the > shortness of breath. They said I had too much fluid in my body, heart and > lungs included, and loaded me up with lasix. I have lost 11 lbs since Mon. > am. I feel much better, have not been short of breath , just a wee bit on > occasion. They said there was not enough oxygen in my blood and that is what > made the heart work harder, causing SOB. So, 11 lbs lighter, I feel better. > > 3) the other good news is I don't go back until May, and will finally be on > a 6 month visit schedule. they sort of flew by the 3 month ones. > > Hans and Beth, if you are reading this, are you on 3 month or 6 month > schedules? > Have a great day everyone, the sun is out here in Ohio and the snow has > melted, looks great to be gone, but now they are worried about flooding. > Always something, Bobby > > a ( Bobby ) Doyle, dob 12/17/29 > DX 5/1995 > Interferon 9 weeks/Hydroxyurea 5 years > 02/2000 to 06/2002 Gleevec trial, OHSU > 06/2002 Gleevec/Trisenox Trial, OHSU > 06/2003 Gleevec/Zarnestra Trial, OHSU > 04/2004 Sprycel Trial, MDACC, CCR in 10 months > 04/2008 XL228 Trial, U of Mich. > 01/2009 PCR 5.69 > 04/2009 Ariad Trial AP24534 > 09/2009 PCR 0.01 > 11/2009 PCR 0.034 > 02/2010 PCRU > #840 Zavie's Zero Club > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 Sandi, all the bad weather NJ gets, you get from OH and we get from out west!! I get more snow than my sister on LI. But, it's almost spring!!!! a ( Bobby ) Doyle, dob 12/17/29 DX 5/1995 Interferon 9 weeks/Hydroxyurea 5 years 02/2000 to 06/2002 Gleevec trial, OHSU 06/2002 Gleevec/Trisenox Trial, OHSU 06/2003 Gleevec/Zarnestra Trial, OHSU 04/2004 Sprycel Trial, MDACC, CCR in 10 months 04/2008 XL228 Trial, U of Mich. 01/2009 PCR 5.69 04/2009 Ariad Trial AP24534 09/2009 PCR 0.01 11/2009 PCR 0.034 02/2010 PCRU #840 Zavie's Zero Club From: Sandy <sandi3533@...> Subject: [ ] Re: Dr. Talpaz visit Date: Monday, February 21, 2011, 1:43 PM  Hi Bobby. I am so glad to hear the news. Thank goodness it was't a heart attack. Gee, you really have had alot of health issues this year. I hope that all goes smooth from now on. At least you have the sun in Ohio. We sit in New Jersey in cold, often snowy weather. No sun today-clouds that were followed after snow. Sandi > > > > Hi everyone, Mon. my daughter drove me to Ann Arbor for my visit with Dr. Talpaz. Normally it's 3 hrs to get there, 3 hrs. there and 3 more back home. Not this time. The good Dr. Talpaz said my ekg was indicative of a heart attack and sent me to the ER. I did not leave until Wed. afternoon!! > > The good news is 1) I did not have a heart attack, I had a stress test and the heart is fine. 2) the cardioversion (shock the heart back into normal) worked and I am no longer in Afib. > > > > Not sure why the ekg read that way, I think one of the doctors said it could have been due to the cardioversion,. Anyway, they did help with the shortness of breath. They said I had too much fluid in my body, heart and lungs included, and loaded me up with lasix. I have lost 11 lbs since Mon. am. I feel much better, have not been short of breath , just a wee bit on occasion. They said there was not enough oxygen in my blood and that is what made the heart work harder, causing SOB. So, 11 lbs lighter, I feel better. > > > > 3) the other good news is I don't go back until May, and will finally be on a 6 month visit schedule. they sort of flew by the 3 month ones. > > > > Hans and Beth, if you are reading this, are you on 3 month or 6 month schedules? > > Have a great day everyone, the sun is out here in Ohio and the snow has melted, looks great to be gone, but now they are worried about flooding. Always something, Bobby > > > > a ( Bobby ) Doyle, dob 12/17/29 > > DX 5/1995 > > Interferon 9 weeks/Hydroxyurea 5 years > > 02/2000 to 06/2002 Gleevec trial, OHSU > > 06/2002 Gleevec/Trisenox Trial, OHSU > > 06/2003 Gleevec/Zarnestra Trial, OHSU > > 04/2004 Sprycel Trial, MDACC, CCR in 10 months > > 04/2008 XL228 Trial, U of Mich. > > 01/2009 PCR 5.69 > > 04/2009 Ariad Trial AP24534 > > 09/2009 PCR 0.01 > > 11/2009 PCR 0.034 > > 02/2010 PCRU > > #840 Zavie's Zero Club > > > > > > Quote Link to comment Share on other sites More sharing options...
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